Thanks very interesting! I liked it having no fancy editing of the video. Just straightforward presentation of information.
@bellafontaethe14404 жыл бұрын
Hello my name is Eddie Bell Jr. I was diagnosed with Hurler Scheie syndrome or mps1 the year 1987 I was 5 years old going on 6. I've been suffering from this over 30 years. It been good times and also been bad times. My mother been by my side along the way. It's inspiring to see you all doing KZbin videos. I've been involved with genzyme programs. The Wish Foundation .My mother been my biggest supporter.
@saharfashionvlog2870 Жыл бұрын
I am in Pakistan plz help me sis
@dejavugaming6666 ай бұрын
How old is your son ? Did the doctor looked for possibility of enzyme replacement therapy ? I also do research in MPS I H
@rafida8346 ай бұрын
@@dejavugaming666I am from bangladesh.i have two daughters.my elder daughter is healthy.but my little daughters have mps hurler syndrome.i want to have baby again.if I take a baby again is it possible to get the baby and hurler syndrome? please reply
@saharfashionvlog2870 Жыл бұрын
My kid mps
@sumairakhurram710 ай бұрын
Aoa sister my son also diagnose MPs me also from Pakistan can you help me please