My ALS treatment with ION363 / Jacifusen

[@romankostjuk]

Amazing. Does this mean treatment for ALS was found? How are you doing now, with this treatment?

[@karlgren74]

Hi! The are testing this medication for now. Hopefully it will be approved soon and on the market sometime in the close future. 🤞🤞 I’m doing very good after the injection and I can feel the illness get pushed back. But I will have to get it for the rest of my life. Hopefully it will save me and that I will get my life back again. 🫣🤞❤️

[@karlgren74]

I totally forgot…this medication I get is just for FUS-ALS. It’s a gene manipulation. The medication is named ION363, also called Jacifusen.