My Hair Loss Story Alopecia Universalis

This is my hair loss story on how I came to be fully bald. I am learning that many people suffer with Alopecia in one form or another. Whether we have alopecia areata, alopecia totalis, or alopecia universalis, we all grow through huge physical, and emotional changes when we lose our hair.
In this video, you will hear my story, some of the emotions that I went through during this process, and how I came to a place of acceptance with my condition. Whether you are balding temporarily, or if it seems to be permanent like mine, know that you are not alone and you will get through it. I hope my story will help you with that.
If you have questions that you want me to answer about my experience during this process, or anything else, leave the questions in the comments. Maybe I will make another video answering any questions that you have. Losing my hair was hard (I went through great depression), but I'm living my best life with it now, and you can too.
Thanks for watching! Don't forget to like, comment, and subscribe! More videos to come in the near future.
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[@rollyourfeet4597]

I found your video today. Thank you so much for sharing your story. I lost all my hair in March-April 2014 after years and months of accelerating hair loss. I resonate with what you say so much. I put a brave face on it and didn’t talk about it to anyone all that time. I felt so ashamed. Its only now that I realise I need to grieve. I’ve been through so many changes and I am a different person now. I dont wear wigs, I tried for a while but its just not me. I wear scarves, sometimes I go bareheaded. Some days are good all days are ok. I had a good cry. I am not alone. Thank you for bringing your story xx

[@BaldHeadBeautyTVanetradionne]

Misia Thank you for your kind words. You are not alone. Not ever. I’m hear if you are ever having a down day. I have them all the time. Just message me. Glad you were able to find my story.

[@rollyourfeet4597]

Thank you! Bald really is beautiful!!! ❤️

[@FaithfullyAsia]

You are the true definition of "I am not my haIr". How brave of you to share your story with us. So glad you developed self-love in this process. Thank you for letting God use you to share your testimony. I'm sure there are others out here who needed to hear your story. I couldn't imagine what you went through losing your hair. I wear wigs all the time and my KZbin channel is actually centered around them. Feel free to watch my videos for help on how to manipulate them should you decide to start wearing them again. God Bless.

[@BaldHeadBeautyTVanetradionne]

Thanks for your kind words. I just want to help people see that no matter what your situation, you are worth more than what's on the outside. You can be comfortable in your own skin! It's freeing. I hope people will be encouraged to try. I'll definitely watch your videos. I miss being able to change up my look. I did a lot of that when I had hair! Thank you again!

[@Vanali]

It’s so crazy how similar our experience was, I too hid my emotions a lot for other people and cried in silence instead wondering why me! I had no idea child birth could be a trigger for alopecia. Thank you for sharing, I love hearing how someone else learned how to just be... much love ❤️

[@BaldHeadBeautyTVanetradionne]

I know! That's why I"m so happy I saw your story. The more you share is the more people don't have to feel as if they are in it alone. By the way, I'm ordering Moxie lashes because of you. HA!

[@aprilmeowmeow]

I know this is years old, but I want to say thank you. I have extreme hair loss around my crown and part, and I'm 29. I have a wedding to go to next month, and I'm sobbing at 4 am because of this. No way for me to hide it. No medical options worked, and I just have to accept it. THANK YOU, from the bottom of my heart, for helping me not feel so alone. Thank you.

[@mswtaz94]

I’m going through this now. I am 65 and I feel like my life is over. I cry all the time. I have lost all hope and don’t know how I’ll go on. It won’t be fine to go out bald. I have a high forehead and hid it always. Now for it to show plus be bald, is more than I can take. Glad you have found a way to cope and that your world has gone on. Thank you for the video.

[@BaldHeadBeautyTVanetradionne]

I don't know who you are, but I have been there...tears and all. Number 1: You are allowed to grieve the loss of your hair. There is no period for you to get over it. the process is a journey. It's okay and your feelings are valid. #2: You said that you would not be fine to go out bald. That is your truth for now...but it may not always be. Healing can come if you allow it to. I loved my hair. I loved doing my hair. I still miss my hair. but there came a point that I know longer wanted to be trapped by having to always cover me up. Somehow in doing so, I was saying to myself that I am not good enough, or beautiful enough without having my hair. That is not true. What makes me me, is not the hair on my head, it's who I am internally that defines me. So what I look like on the outside has no bearing on my validity as a person. It's the same for you. But you are not there yet. And you don't have to be. You will get there. #3 I am here to support you. Don't try to go through this time alone. There are groups that you can join that will support how you feel and give you encouragement. I am also here if you want to talk. You can email me at [e-mail] if you want to connect. But don't try to handle these emotions on your own. People belittle this condition saying it's just hair, what is the big deal. But the truth is that it is a big deal...until it's not. Anyway, I can really empathize with how you feel. Thank you for watching my video. I am going to try to put up more because I think they can help someone. If you want to talk, let me know.

[@mswtaz94]

@@BaldHeadBeautyTVanetradionne Thank you.

[@WaldiaBynes]

Your story will help so many people and I commend you for sharing. You’re gorgeous!

[@BaldHeadBeautyTVanetradionne]

That's what I"m hoping for. Transparency always helps somebody! Thanks for the love!

[@DiscoveringNatural]

Thank you so much for sharing. I am going to share this video

[@BaldHeadBeautyTVanetradionne]

Wow! I am soooo honoured! I have been following you for years! I love your channel because it helps me to teach me to my children to keep up their own natural hair! I can't thank you enough!

[@ItsMyLifeDaralynn]

I finally shared my story here on Yt. Thanks for sharing yours. For me its tougher because women of color are stereotyped as being the fault of alopecia. Despite the fact it is a disease. I tell myself thank God it isn't cancer. I miss my hair. I miss fussing with the flat iron and preparing to dress up in evening gowns and feeling feminine with my hair in an updo. I have areata. Very good message. Health is Wealth! New subscriber.. Hugs

[@rainsunbloom8714]

Your strength gives me strength. Thank you sister for sharing your story.

[@BaldHeadBeautyTVanetradionne]

RainSunBloom thanks my friend. That is the whole reason I put myself out there. So other know that they can be free if they so choose and it will be okay. Thank you for watching.

[@kyiennpepper]

You are beautiful inside and outside. This is a wonderful testimony / story. I am deeply touched. Thank you so much for sharing this personal aspect of your life. I can only imagine the pain and torture in your mind as you were losing hair over that period. Thank you for finding the courage and accepting the positives of yourself through this hair lost. God has definitely strengthened you and now you are empowering others. My hair isn't as thick / full as it was some years ago. My hairline is creeping backwards 😨 I am experiencing breakage. All this can be for various reasons I identified. However, this video gave me a deep message that I appreciate thank you. Life is so much more than the external. Many blessings to you and your family. May God give you many reasons to smile

[@BaldHeadBeautyTVanetradionne]

This comment touched my heart! Thank you so much. Yeah, life changes in many ways. It can be hair, relationships, etc. You just have know your worth through it all!

[@realar]

You are beautiful, just so you know. Also, thank you for being a teacher. It's a very underappreciated profession.

[@BaldHeadBeautyTVanetradionne]

Thanks you so much! I love what i do!

[@realar]

Bald Head Beauty TV What do you teach?

[@BaldHeadBeautyTVanetradionne]

A grade 4 class! My favorite grade to teach!

[@wrbrown2006]

Anetra!! I had no idea you had a KZbin page. I too have suffered from alopecia since 1994. I've had a bald spot in the center of my head for YEARS. Just now going to try to do the steroid shots. You are so graceful and BEAUTIFUL!! keep sharing and thank you for sharing your story. Love ya girlie

[@Gemishell25]

I have scarring alopecia and am slowly losing my hair. Thank you for your honesty and strength. It's very inspiring.

[@BaldHeadBeautyTVanetradionne]

I'm glad i'm here to support. Watching your hair fall out is the hardest thing. But it does get better, and you are beautiful either way. Thanks for watching the video.

[@ToiSharae]

love you for sharing this, I have an aunt to also as alopecia. I will be sharing this with her!

[@BaldHeadBeautyTVanetradionne]

Thanks for the support. I want it to help those that are going through this thing, or for those that just need and encouraging word t know that they are okay just as they are!

[@Xeniagul]

Love you so much ❤️❤️❤️

[@TPweeti]

I love how you are so bold and confident..your story will help many people out there that may be going through the same as you and give them courage to maybe someday be just as confident you are. great video 💕

[@BaldHeadBeautyTVanetradionne]

Thank you for your support. I just want to encourage others to feel good about themselves.

[@MindfullyKiki]

You're right nothing else matters but what's on the inside! We have become such a superficial society that everyone has forgotten this! Thank you for sharing your journey! The journey to self love is always that, a JOURNEY! You're truly beautiful outside and in!!! I do have a question, being that kids are HONEST, have your kids ever said anything that made you self conscious again?

[@simoneking78]

Thank you so much for sharing your story. You are so amazing, beautiful, and unstoppable! ❤️

[@BaldHeadBeautyTVanetradionne]

You are too kind! Thanks for watching. Maybe it will help someone!

[@yolandarutledge7083]

You are a beautiful incredible woman!

[@BaldHeadBeautyTVanetradionne]

Thank you for saying that! I really do appreciate it!😍

[@WanderlustBeautyDreams]

Thanks for sharing your story!

[@bonniechilibeck1168]

Thank you so much for sharing. Your video made me feel like I wasn’t alone. Thank you.

[@BaldHeadBeautyTVanetradionne]

You are never alone. There's a whole community of people out there. I didn't know it when I began losing my hair, but I'm glad I've connected with people who understand. Try connecting here: www.thebaldiemovement.org/ . Thank you for watching. I really appreciate it.

[@evehunter8248]

Thank you. This video really touches me deeply. May all of us find healing for our minds and bodies and spirits.

[@BaldHeadBeautyTVanetradionne]

I love this comment. Healing is what I hope for all who need it. In whatever form it comes. Thanks for watching

[@jacquelinebeason1360]

God bless you Sister. I admire your openness and honesty, in this video. I am a new subscriber, from the UK 🇬🇧👍🏽

[@melshealthyalt]

I have alopecia too. My sister got it. She doesn't wear wigs and people give her money because they think it is cancer.

[@BaldHeadBeautyTVanetradionne]

Ha! That’s the funniest thing I’ve heard all day! Does she keep it? I’m sure both of you are beautiful! 😍

[@melshealthyalt]

No, she donates it to charity. It's awkward for her sons though. I think sometimes she'll explain that it is alopecia. We both have universalis, so completely bald! I lost mine around 2009 too.

[@HotBaldMom]

Hi Sis! Just subbed! I have this too!!! I don't mean to sound excited, but it feels good to not be alone lol I talk about it on my channel a lot.

[@BaldHeadBeautyTVanetradionne]

It's nice to have someone understand what you may be going through! Thanks for the support!

[@dashayjohnson839]

Thank you so much for sharing this. You are so amazing and brave. I’m sure that those who are sharing in what you are going through have just been blessed and encouraged. Thanks

[@BaldHeadBeautyTVanetradionne]

dashay bivens thanks for watching my story. I’m just hoping it will help someone find strength and love in who they are! So many people struggle silently when they don’t have to. Thanks again for the support

[@tracihines8807]

Thanks so much for sharing. Your story is very similar to my daughters. She was diagnosed with Alopecia at all 11. But at age 14 she lost all of her hair. At 16, she is bald, no eyebrows or eyelashes etc. She does not wear a wig but struggles and has a hard time when other students ask her if she is going to wear one to look ‘special’ for special occasions. I can’t wait to show her your video. One question - did you already have your teaching job when you lost your hair? I’m wondering how/if being bald has affected job interviews. I tell my daughter often this is who are you but do you have different advice as someone in her position?

[@BaldHeadBeautyTVanetradionne]

I can't imagine what it must be like to be young and have to deal with this disease! She is much stronger than ever was at her age. When children don't understand what she is going through, they may say things unintentionally that hurts her. She will learn to separate her emotions from their comments in time. I am proud of her. You can let her know. To answer your question about whether I was bald before I started teaching, the answer is yes and no. When I lived in the States and was teaching, I had lots of hair. However I moved to Canada in the last 6 years, and had to start over with job interviews, etc. For me it was more about the fear of going into the interview without hair. Once I owned it in my head, it actually makes you seem more confident, because don't have anything to hide behind. It's just you. I have always gotten the job I have applied for. And I choose to go into those interview bald, because I want them to see what I actually look like so they can make an informed decision. Not me wearing a wig and then four weeks later I show up to school bald. Your daughter will find her way. She will be stronger for this. It just takes time. If she or you ever need to talk, I am here. Thanks for watching!

[@brendamarkham7399]

THANK YOU I AM A SISTER BALDIE 🥰😂 AND I LOVE ME AND I LOVE YOU FOR SHARING YOUR JOURNEY❤️ BE BLESSED 🙏🏿

[@BaldHeadBeautyTVanetradionne]

Thank you so much for taking the time to watch my video. I just wanted someone who is dealing with the same issue, or even just someone who doesn't have enough confidence to know that they are enough just as they are. Be blessed!

[@user-cf6vz8hi9p]

Thank you for the video, it made me cry of ease. You are such a wise, adoring woman

[@VIVBROWN]

Thanks Anetra for sharing your truth. This is so empowering and I hope one day I can be brave too. I am encouraged hearing you. You are such an amazing/beautiful person.

[@BaldHeadBeautyTVanetradionne]

Thanks Viv! You found me. LOl. I appreciate your kind words. Just trying to help people feel free to be themselves even if things are sometimes outside of their control.

[@soblsd224]

God is speaking to me through you. I have alopecia and I've been contemplating shaving my hair lately but how do i move from wigs to baldness.

[@BaldHeadBeautyTVanetradionne]

That' so nice of you to say. All I can say is that you can do it. Step out on faith one day and just try. Maybe just go out to one place for the day, and then go back home. Test the waters. It's not about not wearing wigs. There is nothing wrong with choosing to wear them. But to have the confidence in yourself that if you wanted to go without the wigs it would still be fine... that's the key. I believe in you! Let me know how it goes when you try. Thank you for watching!

[@soblsd224]

Bald Head Beauty TV thank you God bless you...continue to let your light shine

[@mzsista2728]

Good bless you sis love your beautiful words of encouragement much love

[@BaldHeadBeautyTVanetradionne]

Sister of Judah thank you so much. God bless you too.☺️☺️

[@briteyesboyd4089]

I b glad when I gain my braveness.not there yet even thought I'm 44 and had this since age 4.ive had all the types of alopecia. Diagnosed alopecia areta. I'm completely bald wearing hairstyles on a stock cap.i dnt care for wigs there too big for my head also I've worn them in elementary school. There was no help then.and what may work for some or you.dont work for me..I say I will b ready by 50 at that age idnt think no one would care.jys my opinion. But 8m sure I'll change my mind I dnt think ppl are ready 4the real ME.💔I'm not ready 4the real me.but I hope so..I'm sooo drained n tired. This is motivation for me and I now know I'm not alone I was never alone.im glad I have supportive family ,siblings,and friends

[@BaldHeadBeautyTVanetradionne]

What holds you back? How can I help?

[@briteyesboyd4089]

@@BaldHeadBeautyTVanetradionne I think it's jus more so of scared most of all .it's mainly emotional because it's been along process 40 years of my life of being different. So it's more so not being accepted I guess.its jus all mixed feelings if u know what I mean..I'm in tears jus text these messages. Trust me when I say I've had all the stages..

[@briteyesboyd4089]

@@BaldHeadBeautyTVanetradionne if or when u wanna talk or ask questions I'm open to that.jus so u know.ur motivation is everything jus trying to remain humble throughout this life long journey

[@splashcave]

You are amazing. Thanks for sharing your story. A great encouragement for others.

[@BaldHeadBeautyTVanetradionne]

Thanks Joan! A lot of people were asking me questions about my head, so I made a video.

[@BaldHeadBeautyTVanetradionne]

If you all have questions you would like me to answer and there are enough question I can gather together, I will make another video answering them all! Thanks for the support!❤️

[@BaldHeadBeautyTVanetradionne]

Hi there. Yes someone introduced me to her channel. It's great. My alopecia is deeper though. I need to address my immune system. But her channel seems that it would be so helpful to many!

[@olivearodriguez9603]

Bald Head Beauty TV Are you from NYC?

[@Justin-baxe]

You are beautiful and confident!

[@BaldHeadBeautyTVanetradionne]

Thank you so much. Just hoped that the video would help someone be confident to be themselves no matter what!

[@olivearodriguez9603]

Girl I have alopecia universalis as well and if your a lil crafty look into west kiss hair it’s a good price and in my opinion good quality. You’re beautiful girl stay strong and live your life boldly.

[@BaldHeadBeautyTVanetradionne]

Hi Olivea! I don't know how crafty I am, but I will check them out. LOL. Thank you for the compliment. From one Baldie to another, we are to free to be whoever we are, no exceptions or apologies. Thanks for the support!

[@HopeLanay]

Great video❤

[@lesitebarnes9765]

You have beautiful skin you look beautiful bald and God-bless you

[@Tyren5414kt]

I was going through the same thing every month going to get shots in my head and I just stopped couldn't take it no more.

[@soniagriffiths4213]

Very good video,I know a lot of people that has it but won't stop wearing it's .

[@BaldHeadBeautyTVanetradionne]

Sonia Griffiths thank you so much. I know a lot of women like that as well. Wigs are fine. We are women so we like to change up our style. It’s just the idea of being dependent on them to feel secure I’m hoping to free people from. Thanks for watching!☺️

[@georginawillis2179]

A good brand since you like braids....Braids Queen wigs

[@BaldHeadBeautyTVanetradionne]

Thanks for the info. I will check it out☺️

[@jthomas3189]

Been bald for 51 years and I could never go bald because I have been made from 10 years old to be ashame. I have suffered in silence

[@BaldHeadBeautyTVanetradionne]

There's no time limit to feeling comfortable with your bald head. Some things take time. But what's the worse that could happen if you tried it? No matter what, you are beautiful. Thanks for watching my videos. Since i'm in the house now, I'm recording more to put out there. Thanks for your support. But really, you CAN do this.

[@anabellakella3669]

Like 💖👍👍

[@markuskardoza4211]

You are very bold and beautiful

[@BombTwinMom]

Wow very interesting thank you for sharing your story! You are extremely brave and beautiful! Just subbed! Hopefully we can support each other 💗

[@BaldHeadBeautyTVanetradionne]

thank you for the support!

[@BombTwinMom]

You're very welcome!!

[@danielapatterson9926]

I think this is happening to me.

[@BaldHeadBeautyTVanetradionne]

Daniela Have you been to a Dermatologist? There is so many reasons why hair falls out or thins. It’s not an easy process so if you need support I’m here for you. Really.

[@danielapatterson9926]

Thanks for asking. i actually did. they say it could be a lack of iron. i still need to do some test tho. thanks for reaching out.

[@AlexisCervantes]

❤️

[@BaldHeadBeautyTVanetradionne]

Thank you for watching my video. More to come soon... Now that we are home and all. LOL.

[@AlexisCervantes]

@@BaldHeadBeautyTVanetradionne I would love to see more! I have the same exact condition. Since the age of 3. It's been hard but trying to come out of my she'll more and not care what others think. Like you said, the appearance is all superficial. Doesn't matter at the end of the day. I had been injected with steroids as well when I was younger and my face would swell. Didn't like it. I've tried creams, natural remedies, everything. Now that I'm older, I've come to realize it may have some or all to do with the way we eat. I don't believe that there is anything under the sun that cannot be cured so I am still in high hopes that something will work. I will be trying the alkaline diet in hopes to clear and detox my system. I am still not comfortable with showing my complete bare self on camera but I look forward to the day when I'm 100% comfortable. Thank you for this video and I look forward to more :) to go girl 💕💕💕🌹

[@BaldHeadBeautyTVanetradionne]

@@AlexisCervantes I completely understand your feeling. There are many days I want my hair back. In fact, most days if I"m to be honest. There will come a point in your life when you will want to feel free more than you care what people think about how you look. That time come at different points in people's lives. Sometimes it takes our whole lives to get there. Let me know if there is anything that I can do to help.

[@chalseywilder937]

I didn't noticed you had no eyebrows till you said something. I follow someone else with it too, she got her hair back. I'll link her if you want her kzbin.info/www/bejne/jJaypoCvbsh7pJo

[@BaldHeadBeautyTVanetradionne]

Chalsey Wilder Nope. No body hair at all. Sometimes my eyelashes in one eye grow back lightly, but they always fall out again so it’s like a trick😜.

[@chalseywilder937]

Bald Head Beauty TV oh okay. Well at least you never need to shave

[@BaldHeadBeautyTVanetradionne]

Chalsey Wilder I checked out her channel. It’s great! Thanks for the link!

[@BaldHeadBeautyTVanetradionne]

Chalsey Wilder this is true! Cuts down on morning prep!

[@chalseywilder937]

Bald Head Beauty TV oh okay. I hope her advice helps out. And if it does you'll only have to do it for your head + No shaving. It's a bonus