My Keratoconus/ Cornea Transplant Story

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Ashley Rodriguez

Ashley Rodriguez

7 жыл бұрын

Hi everyone! I made this video to share my story with people who are going through a similar process or are interested in Keratoconus and Cornea Transplants. I hope you enjoyed.
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XOXO
-Ashley

Пікірлер: 420
@ieattrollsforbreakfast2973
@ieattrollsforbreakfast2973 6 жыл бұрын
Thank you so much, I appreciate that you took the time to do this video for others, you are a real Blessing.
@zarzaxo12
@zarzaxo12 7 жыл бұрын
You're so well spoken and this video is so well organized! It's so nice that you decided to share your story on KZbin and I hope you continue to make videos. I had never heard of your condition and the vid was super informative, it's crazy how much science has progressed
@ashleyrodriguez9161
@ashleyrodriguez9161 7 жыл бұрын
Hi nat! thank you so much for the positive feedback, i truly appreciate it. The condition is super rare so i knew that sharing my story can help and inspire others.
@annaretes
@annaretes 5 жыл бұрын
Thank you for going more into detail of what to expect today I was told I have to go to the specialist Ill need to be put on the donors list I freaked out I know somewhat about the surgery due to my brother having it as well but m scared but looking forward to my new & improve vision
@etgfchj5094
@etgfchj5094 6 жыл бұрын
I was just diagnosed with Keratoconus , you help me feel a lot a lot better. Thank you for making this video 😘😊
@allenhain2222
@allenhain2222 6 жыл бұрын
Ashley, Thanks for such a great video and optimism despite what you’ve been through. Always easier said than done! The video was amazing. You did a great job explaining things. Best of luck to you! Keep kicking Keratoconus’s ass!
@irinasavon3548
@irinasavon3548 7 жыл бұрын
Great job Ashley!!! Loved this video so much. You've helped me so much through all this and I can't wait to see you help so many others!! ❤️
@ashleyrodriguez9161
@ashleyrodriguez9161 7 жыл бұрын
Thank you Irina!! you're the best. You helped me come to terms that i wasn't alone in this process either. thanks girl :)
@AhmedAli-ze7ly
@AhmedAli-ze7ly 2 жыл бұрын
Thank you so much ! Literally doing the same thing that you did, researching and looking up everything about the procedure. And i appreciate and can relate to this video so much more than the medical ones that speak on it. Thanks again, this did give me a boost of confidence and only positive thoughts from now on 🙏🏾
@cutielovelypinkie
@cutielovelypinkie 2 жыл бұрын
Thank you so much for sharing your journey! I feel better, calmer about getting the transplant now ❤️ and getting my eyesight back!!!
@TheBoycii
@TheBoycii 6 жыл бұрын
Im so glad u told us your story and your outcome of transplant.. in near future ill probably need transplant also and man im scared as hell of the procedure and the outcome.. its hard with this disorder and nobody really truly understands what are u going through.. wish u all the best Ashley!
@lherna9015
@lherna9015 3 жыл бұрын
Very informative! I've been looking for good information on this procedure and this video is by far the best. Thank you
@Malsis1502
@Malsis1502 2 жыл бұрын
Thank you so much for this video!! I’ve had Kerotaconus for 10 years and am finally booked in for surgery next week! The surgery doesn’t scare me much it’s more so the recovery period that worries me. Thank you for alleviating some of my fears and hopefully I have the same outcome. ☺️
@jenelk8279
@jenelk8279 Жыл бұрын
Hope you're recovering well! Just went for mine 3 weeks back.
@m00rtin4
@m00rtin4 6 жыл бұрын
i have had keratoconus for atleast 5 years now and u are a warrior compared to me to have go through all this. tho i have struggled with depresion cus my keratoconus and i have never been comfortable with the hard /rigid gas lenses i got for my keratoconus. so even if i had not as severe case as u, my life has been greatly affected by this eye condition. thankfully, i have somewhat of a mild case. cus currently i have some soft contacts and they are far more comfortable and vision wise they work almost as good on me as the rigid ones. but yeah, i have imagined if i needed a transplant sometimes. i have visited many eye specialists before i got my first contacts and one told me i needed a transplant. this condition changes over time and it can "get better" or "worse" i guess....glad u are making some positives out of this extremly negative eye condition.
@AlainK22_
@AlainK22_ Жыл бұрын
Thank you so much. I have the transplant scheduled for next week and you just made things sound less scary. Thank you
@ramiroecheverria2205
@ramiroecheverria2205 5 жыл бұрын
Thanks so much, I'm going to see my specialist today Linda scared but you gave me strength
@jessikam4137
@jessikam4137 5 жыл бұрын
Thank you so much for sharing this! ❤️ I haven’t seen in 12 years and I’m getting the cornea transplant
@noufaln3259
@noufaln3259 2 жыл бұрын
Scleral lence work for mee..but transplant work for mee
@alyssarose2853
@alyssarose2853 4 жыл бұрын
I was diagnosed a few months ago and now I’m terrified to wear contacts. So I’m definitely going to start wearing glasses until I get my procedure done. Thank you for making this video!!
@blakeedwards6519
@blakeedwards6519 4 жыл бұрын
Thanks so much, I am told I need the surgery and you've been really informative.
@340_ISLANDBOI
@340_ISLANDBOI 3 жыл бұрын
Wow! So happy for you! Just had the surgery this past week and I can’t wait for the full results to take form
@noufaln3259
@noufaln3259 2 жыл бұрын
Your vision
@epicwatchme8750
@epicwatchme8750 5 жыл бұрын
Hello, thanks for sharing this story with us , I’m having a transplant next month or so this video really helped me out, hope you post video of your updates in future
@EstellaCouture
@EstellaCouture 5 жыл бұрын
Thanks for this Ashley. I just had corneal transplant 4 days ago. Its s great feeling to see through the eye again.
@howdo1govern995
@howdo1govern995 2 жыл бұрын
I'd love to hear how your getting on I have KC.
@MzEstellaTV
@MzEstellaTV 2 жыл бұрын
@How do 1% govern 99% It turned out a bad story, because doctor said I have an immune problem that caused the new cornea to go cloudy. 2nd surgery is out of the question. So, I am praying to God for a miracle
@aviemore907
@aviemore907 Жыл бұрын
What an encouraging video for all. I have had keratoconus in my right eye for over 20 years. Was wearing gas permeable lenses but now it's worse, so I've been keen to go for DMEK. I have been scared about blindness at times but not so much about surgery. Love when you said "you aren't alone". Means a lot to me. I heard recently that if we had infrared eyes we could see the rings around Neptune! Technology will only improve for this crazy disease. Surgery sounds worth any recovery pain. Thanks 🧐
@lisalongerot1855
@lisalongerot1855 2 жыл бұрын
I’ve just had a corneal transplant 6 days ago (Tuesday 6/14/22). Ummmm, they called me Friday afternoon, and said they detected a bacterial infection from the host. So, another eye drop, making it four eye drops with an additional gel like substance (so, 5 meds) four times a day. I’m doing great! I have no pain and my eye is looking great. So far, I think this is the best decision I’ve ever made. Thank you, Dr. Gross, in Phoenix, Arizona. You ROCK!!!
@ratherbfishing455
@ratherbfishing455 Жыл бұрын
How long was it before you could drive? When do you get a new prescription? How long did you have to be on your back? Thank you
@zeddluciano1775
@zeddluciano1775 3 жыл бұрын
I liked how you were informative and descriptive with how your experience was and how you were emotionally. To see you going through this hurts but I’m happy your vision is getting better. I have keratoconus myself and my left eye is scarred and more damaged. I have an appointment for this month sn depending on the situation, I may need a transplant surgery to. Vision is really bad. Honestly, I’m actually scared but seeing how positive you were, I’ll probably do fine. After watching this, I legit had a panic attack! I’m okay now but hearing people’s pain or whatever makes me sick to my stomach. Hopefully doctor doesn’t mention a surgery but if it’s needed then I have to. Thanks again for sharing your experience
@noufaln3259
@noufaln3259 2 жыл бұрын
You transplant 👁️
@carlosc6981
@carlosc6981 3 жыл бұрын
Thank you for telling sharing your story. Gives us hope.
@jakec5618
@jakec5618 2 жыл бұрын
wow u stayed so positive during the whole process.. thats a hard thing to go thru but u made the most of it and stayed in good spirit. thats wasup
@user-st9hi2yp1k
@user-st9hi2yp1k 5 ай бұрын
Thank you Ashley I have credit cards they're thinking about scleral lenses. The transplant is the last resort but if I have to do that you made me feel a lot better do me a favor and just keep on being you❤
@patricealjoe5026
@patricealjoe5026 4 жыл бұрын
Thank you so much for sharing. I feel so much better about my journey.
@demetriofrietze9646
@demetriofrietze9646 9 ай бұрын
Wow , such a great video. Just one. Was hoping to see more of the long process.
@tameratgwordofa
@tameratgwordofa 3 жыл бұрын
hey my dear thank you so much this video helped a lot of people who were scared to have surgery because of this video I read the comment and we found a lot of people express my mom gonna have next month and try to steady...how work how it’s risky BUT there is no enough video so this help lat of people.thanks may God bless you and your future as well 🙏🙏🙏🙏🙏💫
@amarkashyap2984
@amarkashyap2984 5 жыл бұрын
How many of you guys rubbed your eye badly who have keratoconous?
@briniduran6149
@briniduran6149 4 жыл бұрын
i do:/
@amarkashyap2984
@amarkashyap2984 4 жыл бұрын
@@briniduran6149 dont do it its the key
@k.senyah4632
@k.senyah4632 3 жыл бұрын
I believe it may have started at a younger age doing so without knowing ... more than likely thats why... now I wish I could go back into time.. and tell my younger self not too rub them like crazy.smh.lolz
@buzzlightyear5174
@buzzlightyear5174 3 жыл бұрын
Me to
@asmasherin9284
@asmasherin9284 3 жыл бұрын
Me tooooo
@ricsantos3885
@ricsantos3885 3 жыл бұрын
Thanku for your story it helped alot I've had keratoconus for 4 years and we're hard glass contacts now and it's been an extremely hard journey so it's a blessing to hear that there's someone going through what I'm going through I pray that one day I can have a cornea transplant
@vindyasupulmalee3134
@vindyasupulmalee3134 2 жыл бұрын
I've had keratovonous also for 4 years and i've also done cross linking to both of my eyes and wearing hard contact lenses. It's really hard .so i want to do this treatment(cornea transplant)but my doctor said it can't do with my situation😑
@bpeezy
@bpeezy Жыл бұрын
Just had my second corneal transplant as the first failed. It has improved my life so much so far, fingers crossed it holds and good luck to all the people who have this unfortunate disease. Greetings from Australia.
@breathemj
@breathemj Жыл бұрын
God bless you ! Update ?
@bpeezy
@bpeezy Жыл бұрын
@@breathemj my second corneal transplant has stabilised for now. I honestly feel like I have been given a second chance to be able to live a somewhat normal life again. Still not able to drive I don't think but I can live somewhat independently compared to before.
@Bruh-sq9fv
@Bruh-sq9fv 11 ай бұрын
@@bpeezyif you don’t mind me asking, will you be able to drive eventually? That’s my biggest fear when it comes to a transplant and keratoconus in general as relying on other people to get you from point a to point b seems like a headache.
@bpeezy
@bpeezy 11 ай бұрын
@@Bruh-sq9fv I really hope so but unfortunately I won't be able to drive currently. Maybe after I get my corneal transplant on my second eye I could possibly drive.
@bpeezy
@bpeezy 11 ай бұрын
@@Bruh-sq9fv this has been such a pain for me the last 5 to 10 years esp being a male. I felt like a burden and eventually became home bound for 5 or so years due to needing assistance just to go anywhere where including just walking to the local shops. I hope and pray everything works out for you!
@bnradebe
@bnradebe 4 жыл бұрын
I just had my cornea graft on the 7th of November 2019. This video just made me feel much better in recovery journey..thank you so much.
@thatolebotsa8682
@thatolebotsa8682 3 жыл бұрын
Hello Bongani, how's your recovery journey going? I'm getting cornea transplant soon and I'm feeling so anxious.
@bnradebe
@bnradebe 3 жыл бұрын
Hi Thato. The journey had it sips and downs but I'm much better, my sight gets even clearer when stitches gets removed... It's okay to be anxious, but worry not, all will go well.
@noufaln3259
@noufaln3259 2 жыл бұрын
@@bnradebe your vision now
@bnradebe
@bnradebe 2 жыл бұрын
It's okay, better than what it was. I resumed driving this year with the assistance of spectacles... However my other eye is has worsen. Im still waiting for an available graft
@noufaln3259
@noufaln3259 2 жыл бұрын
@@bnradebe surgery eye 👁️ vision with glass..20/20
@thepincayreport9452
@thepincayreport9452 6 жыл бұрын
I have Keratoconus as well and plan on making a video about my life with it. Thanks for your video it's great to know that I'm not alone. = ]
@hhampton
@hhampton 2 жыл бұрын
I was diagnosed with kerataconus when I was in the early 80s when I was in my mid 20s. I wore rigid gas permeable contacts until my corneas got so thin they were in danger of rupturing. My cornea surgeon said he had not seen thinner corneas. I had my left eye done October 2003 and my right April 2005. I was very lucky that I had a friend who was an ophthalmologist who put me in touch with a cornea specialist who was the head of the ophthalmology department of a medical school near to me as well as the director of the regional cornea bank. I never had any problems or pain other than when a stitch would break. I would not hesitate to do it again, if needed.
@noufaln3259
@noufaln3259 2 жыл бұрын
Cornea transplant vision and..pain still 6/6
@vegabondrealestate
@vegabondrealestate Жыл бұрын
How are you now?
@davidcastor8812
@davidcastor8812 6 жыл бұрын
Thnx for this video very helpful , I got lasik done 11 yrs ago when I was 19 yrs old and it was a disaster, I now need a transplant in both my eyes ,my left eye is worst so this January I'm getting surgery , super nervous but hearing good outcomes from other people give me hope , thank you.
@ashleyrodriguez9161
@ashleyrodriguez9161 6 жыл бұрын
I can imagine, i hope it all goes well and i'm glad i was able to help! It is challenging but it gets better. Good luck!
@peggyk.738
@peggyk.738 2 жыл бұрын
I know this was a few years ago, but it has been so helpful to me in knowing what my teenage daughter may be going through. She sees a cornea specialist in a little over a week. I feel we are going to go in with more knowledge than the average person now. Thank you!
@cyberrespond6310
@cyberrespond6310 Жыл бұрын
DMEK sounds good. My right eye is keratoconus.
@portiasandy7968
@portiasandy7968 6 жыл бұрын
Been diagnosed last month am so so depressed don't know what to do but your video really helped thanks
@tailoredproductions4106
@tailoredproductions4106 6 жыл бұрын
Portia sandy same.. I got diagnosed yesterday
@Ghost-my1tr
@Ghost-my1tr 5 жыл бұрын
@@tailoredproductions4106 got diagnosed just today..
@eliasjrleon724
@eliasjrleon724 5 жыл бұрын
Jonathan it will be okay buddy just do what you’re doc says and you will be alright they well let you know what you have to do
@harishharish.r3338
@harishharish.r3338 5 жыл бұрын
How are u feeling now ... I am totally broken after I get to know that I need a cornea transplant to be done
@Givalita
@Givalita 4 жыл бұрын
same
@stephaniesiyawareva5111
@stephaniesiyawareva5111 6 жыл бұрын
You described it so well"a bunch of eyelashes stuck in your eye" true that
@traciehutchison8919
@traciehutchison8919 2 жыл бұрын
a definite life altering challenge to have to experience. wanted to say nice job on this video. I am still struggling with my 2nd transplant in 3 months. Been 9 months since I have bad any vision. I can see light. but thats it. NOT being able to see was scarier to me than any of this whole ordeal . All I wish for. go back for my 4 week follow up in a week. wish me luck best wishes for you with your own adaptions you may have to encounter in your future❣
@LancelotVantuyckom
@LancelotVantuyckom 2 жыл бұрын
How are you now?
@ColiP2408
@ColiP2408 6 жыл бұрын
Thanks for your video. I have Kerotaconus in both eyes. I'm currently wearing the hard contact lenses. I've had to get new contracts every year for the past 4 years, due to my cornea changing. I maybe having a cornea transplant in one of my eyes in the future. Thanks for showing me what I can expect.
@ashleyrodriguez9161
@ashleyrodriguez9161 6 жыл бұрын
Hi Colin! thank you so much and I completely understand, i have been doing the same with my hard lenses. It seems scary but if the time ever comes, you can get through it!
@MrsB00p
@MrsB00p 6 жыл бұрын
Colin Puru hang in there
@lkayde1996
@lkayde1996 6 жыл бұрын
I only have Kerataconis in 1 eye but I'm wearing hard contact lenses too to see if it work if not I'll probably have surgery it's my left eye.
@noufaln3259
@noufaln3259 2 жыл бұрын
@@lkayde1996your lence vision...transplant done
@brandonthomas9609
@brandonthomas9609 6 жыл бұрын
I really appreciated this video, Ashley :) I had my transplant a few days ago and I needed some encouragement.
@thapelogram2897
@thapelogram2897 2 жыл бұрын
How has the experience been?
@Brandonperezz
@Brandonperezz 6 жыл бұрын
Just got diagnosed with karatoconus thank you thank you so much for this!
@ashleyrodriguez9161
@ashleyrodriguez9161 6 жыл бұрын
Thank you so much brandon! im glad i can help
@hagar6359
@hagar6359 Жыл бұрын
Don't worry about it Brandon. I got a transplant in 1990 and never had an issue. Nobody can tell I have it and my vision is fine, I do wear a contact lens over it as I am in my 50s now so need corrective vision. I still play contact sports, still swim and scuba dive. It doesn't stop you doing much at all.
@richardkevincaparas7117
@richardkevincaparas7117 6 жыл бұрын
Thank you this really helped a lot. I do have my hard contacts but I don’t really wear them because it is sooo un comforting
@Gopalselva99
@Gopalselva99 4 жыл бұрын
Try wearing hard lens on top of the soft lens.
@chillingintheshire02
@chillingintheshire02 7 жыл бұрын
Very informative, Ashley! Good job.
@ashleyrodriguez9161
@ashleyrodriguez9161 7 жыл бұрын
Thank you so much Gen! I appreciate it
@TarenDonneaud
@TarenDonneaud 4 жыл бұрын
I am having my transplant in 8 days. I am scared, but excited. I haven't been able to see out of my left eye in 3 years. Thank you for the pointers on how to make recovery easier.
@thapelogram2897
@thapelogram2897 2 жыл бұрын
How was the experience and hows the vision?
@TarenDonneaud
@TarenDonneaud 2 жыл бұрын
@@thapelogram2897 It was not successful. It is stable but still unable to see anything more than 20/200
@noufaln3259
@noufaln3259 2 жыл бұрын
@@TarenDonneaud lence vision
@TarenDonneaud
@TarenDonneaud 2 жыл бұрын
@@noufaln3259 It is only a -1.25, but requires a scleral content because the cornea is still misshapen.
@noufaln3259
@noufaln3259 2 жыл бұрын
@@TarenDonneaud lence vision 6/6
@marlonk1771
@marlonk1771 2 жыл бұрын
Thank you so much for all the information 😊
@olsmeistergeneral1953
@olsmeistergeneral1953 7 жыл бұрын
Great positivity. Currently all stitched up from my second op.
@ashleyrodriguez9161
@ashleyrodriguez9161 7 жыл бұрын
Thank you so much. I hope your recovery goes smoothly and you get well soon :)
@howdo1govern995
@howdo1govern995 2 жыл бұрын
How did it turn out
@shezankhan2591
@shezankhan2591 5 жыл бұрын
I don't know what to say I'm totally speechless Beacuse I'm going through the same thing but i yes Congratulations you Ashley now you have new life so take care of it :)
@victoriameylan4310
@victoriameylan4310 6 жыл бұрын
Thanks for the video! I have KC my vision is 20/500 without my hard contacts, i had cross linking done in my right eye and that helped a lot! But I'm scheduled to have my cornea transplant done in my left eye in 2 weeks so thank you this helped a lot, i've had hip surgeries but that's nothing like your eye..i see horrible so I hope the surgery helps.
@ashleyrodriguez9161
@ashleyrodriguez9161 6 жыл бұрын
Hi Victoria, thank you so much. I hope that your surgery goes great, and that you have a speedy recovery. I remember being so nervous but you will feel like a brand new person after a couple of months. You are strong and will be able to overcome this. Wishing you the best of luck!
@A42yearoldARAB
@A42yearoldARAB 3 жыл бұрын
Did you get sclaros after the cross linking? I just got cross linking 2 months ago and so far my vision is worse and my old contacts don't work at all anymore
@victoriameylan4310
@victoriameylan4310 3 жыл бұрын
Oh my goodness it’s crazy how much people can be alike! I’ve had 3 hip surgeries in my life (I was born with hip dysplasia) and when I was 17 I had cross-linking in my right eye as well. Don’t let the video scare you the surgery is unexplainable when you finally get your vision.. it’s truly a blessing and I look around every day thinking about how awesome it is to see 🙂
@victoriameylan4310
@victoriameylan4310 3 жыл бұрын
@@ashleyrodriguez9161 I forgot to add your name to my comment lol
@noufaln3259
@noufaln3259 2 жыл бұрын
@@victoriameylan4310 your transplant eye vision...with glass or contacts
@tjoybell8448
@tjoybell8448 11 ай бұрын
I just had the surgery last week. I am hoping my body does not reject the transplant. This was most definitely an experience. I have not experienced any pain even directly after surgery.
@garysingh4334
@garysingh4334 6 жыл бұрын
Very clear cut
@chiagoziedaniel9247
@chiagoziedaniel9247 3 жыл бұрын
Thanks alot for ur words i have a scar on my right conea i hope one day i will get the opportunity to see again clearly
@hagar6359
@hagar6359 Жыл бұрын
Hi Ashley I have Keratoconus since I was about 15, I am in my late 50s now. I had a transplant in my left eye in 1990, easy operation and stitches in my eyes for 12 months. to this day I still have a partial stitch in my eye. It took many years for my specialist to let me wear contact lens in the eye again. But hey I have much better sight now, the right eye still is corrected with a hard lens. So overall I am a happy guy. Oh back in the 80s I was fitted with a shell, a contact lens the whole size of the eye. Nasty I would never recommend that only one positive, you won't lose it swimming lol
@Andreyabish
@Andreyabish 3 жыл бұрын
I went from 20 20 to legally blind in one eye within 2 years. Got glasses and finally diagnosed with this disease. Now looking into cross linking and or transplant.... thanks for the video!! I’m
@Anuarbekkaz
@Anuarbekkaz 2 жыл бұрын
How is it now? Have u done something like CXL?
@Andreyabish
@Andreyabish 2 жыл бұрын
@@Anuarbekkaz haven’t done anything… I’ve been stable and I can see fine with glasses…
@Andreyabish
@Andreyabish 2 жыл бұрын
@@Anuarbekkaz I get tests every 6 months
@Roy-qw9mq
@Roy-qw9mq 2 жыл бұрын
@@Andreyabish do you get halos and ghosting with glasses ?
@callumstrong4215
@callumstrong4215 3 ай бұрын
Thanks for making this video. I am 22 and got diagnosed with kerakotonus in both eyes when I was around 20. And the drs say I can’t have a transplant until I’m around 30 and that my eye may still reject it even if the operation is successful. So am sure this video will help and hopefully make me feel Abit better. I can’t drive due to kerakotonus and it broke me. I have a severe case of kc. My left is severely blurred and my right eye is okay for now and I pray my right eye doesn’t get as bad as my left cus I would be fucked even more if that happens… 🙏🏻🤞🏻
@kooner3
@kooner3 4 жыл бұрын
Thanks soo much for making this video. I may need to get this surgery and have been soo depressed and anxious thinking about how life will be afterwards.
@deniseadam9976
@deniseadam9976 2 жыл бұрын
Me so worry,about.
@saberur66
@saberur66 5 жыл бұрын
ive had keretoconus since middle school with contacts changing every 6 months, the pain is the most horrible thing about this disease, depression doesnt even cover the affect this invisible pain has on us. thankfully its finally being treated in america, while before no one had one hell of an idea of what it was.
@unknownsource4359
@unknownsource4359 5 жыл бұрын
I also have keratoconus. I hate wearing contacts. My eyes are very prone to getting bloodshot red from the contact lenses compressing the blood vessels in the eyes. People will think I am high on something or very tired. We do suffer in silence. People with perfect vision and healthy eyes should pray everyday for that huge blessing.
@A42yearoldARAB
@A42yearoldARAB 3 жыл бұрын
This is so true, it is so depressing more than anything that we have to suffer just to have a basic need (vision) .
@vindyasupulmalee3134
@vindyasupulmalee3134 2 жыл бұрын
@@unknownsource4359 i have similer problem too.😑
@jzayas1987
@jzayas1987 6 жыл бұрын
Thank you for this!!!!
@veltg26able
@veltg26able 5 жыл бұрын
Wow I had almost the same exact experience as you in 2004. During my transplant i had problems but the doctor said it was my weight and the cornea transplant took like 3 hours or more to finish but i didn't know until i woke up. I remember the stitches too. In 2015 I had my second eye done but it was a newer way of the cornea transplant surgery so i had no problem the second time. I have a great specialist doctor in Atlanta for contacts i can see 20/40 almost 20/20. I hope you continue to do well with your transplant
@noufaln3259
@noufaln3259 2 жыл бұрын
20/20 with rgp
@noufaln3259
@noufaln3259 2 жыл бұрын
You see with contacts 20/20
@noufaln3259
@noufaln3259 2 жыл бұрын
Contact lences with 20/40
@chrysanthemuchallah9225
@chrysanthemuchallah9225 7 жыл бұрын
i love this!!!
@hivehelp3597
@hivehelp3597 6 жыл бұрын
Thanks for sharing. I've had very similar experiences with KC. Especially the walking into the door frame part ;-) I'm 53 and was diagnosed 13 years ago. I'm lucky in that my right eye can be corrected to 20/20 with a lense, but I've had to have a lot of surgery on the left eye...which hasn't really worked...yet. Everyone needs to realize this process can take a VERY long time, and results are not always guaranteed. For me, things began with LASIK 5 years ago. That didn't work, so after I'd healed they tried a corneal transplant. I then had to have additional eyelid surgery because the corneal surgery damaged the eye muscles. Five years later, and I've only just had the last stitches taken out of my eyeball. The vision is still poor (20/80), so they are scheduling another round of LASIK and eyelid surgery for me. It's been a long (and you know how painful) process. My advice to anyone considering surgery, do NOT get both eyes done at the same time if you have at least 20/40 in one eye. Blind in one eye has been annoying. Blind in both would be a helluva lot worse.
@MrsB00p
@MrsB00p 6 жыл бұрын
On feb 26 this year im gonna have my second surgery .. Im so grateful rn 😄😄
@jenniferchupina5940
@jenniferchupina5940 4 жыл бұрын
U had 2 corneal transplant in one eye?
@ibrr2
@ibrr2 6 жыл бұрын
Thank you very much for this great video
@ashleyrodriguez9161
@ashleyrodriguez9161 6 жыл бұрын
Thank you! i hope it helped
@chrisx1197
@chrisx1197 7 ай бұрын
Hope things are going well Ashley
@liznewsome4182
@liznewsome4182 5 жыл бұрын
Thanks for sharing this information with us, God Bless you
@Marie-se8di
@Marie-se8di 10 ай бұрын
Thank you so much !!
@TinyT1792
@TinyT1792 6 жыл бұрын
Thankyou for such an informative video. I have a transplant for my left eye next week and this video has helped me immensely. My doc has told due to the pressure it would exert on my eye me that i will never be able to weight lift again which bothers me, but i have heard from others strenous exercise is fine after a while. Would you be able to shed some light on this ?
@sambloom5569
@sambloom5569 2 ай бұрын
I know that this is an old video but still very helpful.... hope you are doing well... thanks for the content 🙏
@k.vinothjoushva8952
@k.vinothjoushva8952 4 жыл бұрын
Hi I am having Keratoconus in my both eyes... October Month 2019 my left cornea tares.. Now I going under treatment for cornea transplant 👍👍👍
@noufaln3259
@noufaln3259 2 жыл бұрын
Transplant done
@jaysvideos865
@jaysvideos865 Жыл бұрын
“Un puntico” 😂😂❤️❤️
@mrmartywaring
@mrmartywaring Жыл бұрын
I got my transplant on 9/19/22 & I did notice a difference with clarity almost immediately! That said, my vision is still blurry but it's getting better by the day
@jenelk8279
@jenelk8279 Жыл бұрын
Wow hope all is going well. I just did mine 3 weeks back.
@dustbat
@dustbat Жыл бұрын
I just had my eye doc. refer me to the cornea people and go in Sep2022 for our first talk. You have something I have spent, youth. I am 81 and have put off as long as I could doing this. I have Fuch's dyst. Enjoyed meeting you. You are quite pleasant and fun to listen to. Did you have any trouble from your local DMV during healing?
@aaronrutledge6725
@aaronrutledge6725 6 жыл бұрын
I had my right eye done, full thickness transplant, 15 months ago and am going to have my left eye done in a couple weeks. Thanks for the video. Keratoconus is a bitch. I couldn't drive my car for over a year. Thank God for this procedure.
@noufaln3259
@noufaln3259 2 жыл бұрын
Rt eye vision
@noufaln3259
@noufaln3259 2 жыл бұрын
Your vision recovery
@noufaln3259
@noufaln3259 2 жыл бұрын
Your visions nowww
@alexbyrne44
@alexbyrne44 6 жыл бұрын
Thank you!
@dhananjaydas2298
@dhananjaydas2298 2 жыл бұрын
thank you it helped me a lot .
@hsabzevari1
@hsabzevari1 3 жыл бұрын
Thanks for sharing the insightful video. I am going to go through the same surgery in 3 weeks. How was your vision acuity (in percentage) after a month? Were you able to read computer? Thanks!
@rehanaparveen5046
@rehanaparveen5046 4 жыл бұрын
Hi Ashley, not sure if you will see this message I wish i had seen ur video a year or 2years earlier. I'm 28 this year and just went for my second corneal transplant for the left eye. I had went for my first corneal transplant on the right eye on 2018. I was diagnosed keratcornos at age of 19 and i was using the hard lens. It would drop off all the time & i stopped using it. Fast forward 7 years later my vision got worst and i had scars (conean tear). It got me very depressed. The numerous times of going to hospital coz of the swelling. And going back to hard lens was making life so hard. Finally the transplant was done and i had a partial transplant. (4 layers was removed leaving the last layer of mine, this gives more chances of having less rejection). And now fast forward i just had my left eye cornea transplant done. The experience is always scary and painful but it def gets better. I have 2 stitches left on the right eye. The sad part of it is not many people know or understand this condition so to them it would rather seem stupied or disgusting to have stitches ard the cornea. I would ask those people to google up and not make fun of conditions that u do not know of. And for those who are going through it ,or have already been through the transplant we are warriors and we have come across it Yayy!!! :)) and it will get better.
@noufaln3259
@noufaln3259 2 жыл бұрын
Your vision
@escoto1984
@escoto1984 14 күн бұрын
pain was dealing with the broken stiches 13 for 10 years , after 14 years of mu corneal trasplant i have my scleral lenses now
@carlwycka8299
@carlwycka8299 5 жыл бұрын
Watch DMEK on you tube. It shows this thirty minute procedure in detail. It is not gross or painful just educational. The donor tissue comes from a dead person who was loving enough to give the gift of sight to someone who would otherwise go blind. Recovery time is quick and awesome to see again in high definition.
@chelseageorge7916
@chelseageorge7916 6 жыл бұрын
Thanks so much! I'm thinking of getting a corneal transplant because I too have keratoconus and I cant explain how colossal the effects have been on me, I had a normal life and I just want everything back. Just want to know how much it costs usually haha, I have no clue and my optometrists haven't really touched on it Just let me know if you can
@aldoeuflausinodepaulafilho2679
@aldoeuflausinodepaulafilho2679 5 жыл бұрын
I'm afraid I'm going to do the same. It's impossible to wear the hard lenses. Hopefully I'll be as happy as you after the procedure. Tks for the video. 😉
@lisastern7331
@lisastern7331 6 жыл бұрын
I’m so happy for you!! I’ve had cross linking surgery and might have to get a transplant too and I’m terrified. The cross linking surgery was SO painful and I’ve had a few scratches and tears on my cornea and the pain is unbelievable so the fact that the surgery is painful just makes not want to do it. I don’t have to yet but it’s most likely in my future. Thank you for making this video, it did help even though I’m still a bit scared lol ❤️
@LancelotVantuyckom
@LancelotVantuyckom 2 жыл бұрын
Cross linking is a uv light and eye drops? It’s painless. Uncomfortable, yes. But normally painless.
@lisastern7331
@lisastern7331 2 жыл бұрын
@@LancelotVantuyckom maybe that’s your experience. Many others like me found the surgery to be extremely painful. Your opinion is your opinion but try not to invalidate someone’s experience just bc you haven’t had the same one :)
@LancelotVantuyckom
@LancelotVantuyckom 2 жыл бұрын
@@lisastern7331 normally the procedure is painless. I commented not because I wanted to discredit your experience but because something isn’t right when you endure pain during these minor invasive surgeries. No malicious intent. Stay safe, Lisa. Hope you get better.
@LancelotVantuyckom
@LancelotVantuyckom 2 жыл бұрын
@@lisastern7331 I was wrong, looked it up! I apologize. You had a different procedure than I had. The crosslinking you had was epi-off crosslinking where they scrape off the front part. This is indeed a painful procedure but much more effective! I am curious how your progression is now. How is it holding up? good luck!
@lisastern7331
@lisastern7331 2 жыл бұрын
@@LancelotVantuyckom no worries, I appreciate the clarification! :) My eyes have been pretty much stable since I had the cross linking, small variations only. I have to use hybrid contacts though, which are uncomfortable but help me see much better! Thank you :)
@motalks2598
@motalks2598 3 жыл бұрын
Great video, I've just also undergone a transplant myself and uploaded my experience. How is your situation now 4 years on?
@1dave
@1dave 2 жыл бұрын
so helpful ❤️
@mrgreen6857
@mrgreen6857 2 жыл бұрын
Hi Ashley thanks for that..I just had my transplant last week ..on day 3 of recovery ..just wanted to ask few questions .. How long does testy and red eye go on for?
@joshhansen445
@joshhansen445 6 жыл бұрын
Hi Ashley I had Kerataconus in My Left Eye And had a Cornea Transplant about one Year Ago and I am Doing Great my Vision is A lot Better and I can see!!!!
@jaibuddy6756
@jaibuddy6756 5 жыл бұрын
What about cost sir...please tell me
@philstoke
@philstoke 4 жыл бұрын
Have*
@noufaln3259
@noufaln3259 2 жыл бұрын
Vision how
@remibolduc6545
@remibolduc6545 2 жыл бұрын
Hi Ashley. Thanks for your testimonial. Could you give us an update on your corneal transplant. How has it been going in the last 4 years. Thanks
@michaelromine7195
@michaelromine7195 6 ай бұрын
Had corna transplant 30yrs ago both eyes ,get another transplant Dec 4th don't fear the surgery it will find.
@ljtheartist
@ljtheartist 5 жыл бұрын
Thank you so much... I'm having my surgery August 7th 2018 so I'm a bit nervous...
@JAAviation94
@JAAviation94 5 жыл бұрын
How did it Go bro let me knowww
@ejazahmad2544
@ejazahmad2544 5 жыл бұрын
I had this since childhood it been making my life hell does this improve the eyes
@pierredamas6261
@pierredamas6261 5 жыл бұрын
Great video. I had 2 transplants done i know the feelings
@syedtalalali4611
@syedtalalali4611 5 жыл бұрын
Bro how much time it take to recover ??
@noufaln3259
@noufaln3259 2 жыл бұрын
Your vision how much
@htowner1327
@htowner1327 Жыл бұрын
Man your story is just like mine .I started getting blurred vision and ghosting .it got worse after a while so I went to get a exam for glasses and they t couldn’t fit me .I had to stop driving at night .went to specialist and he told me I had kc and sent me to contact specialists and now I wear lenses and might need a partial transplant soon .
@user-ut7ue3wg6e
@user-ut7ue3wg6e Ай бұрын
I got my surgery in 2018z everything you said I went through. lol I will be needing a transplant on my other eye now. Ughhh starting over again lol
@cyberrespond6310
@cyberrespond6310 Жыл бұрын
I like the sound of DMEK. My right eye basically blinded with keratoconus
@Pflashmini
@Pflashmini 2 жыл бұрын
Been living with the same problem since I was 10 13 yrs later I'll be undergoing a cornea transplant
@nexuthepotatoe4054
@nexuthepotatoe4054 5 жыл бұрын
I feel better now that I know what can happen you I dont know how many times I broke down
@evilyellow725
@evilyellow725 6 жыл бұрын
Ashley, do you have some videos with the medical eye plaster? :)
@mrsj118
@mrsj118 7 жыл бұрын
This was so helpful to me! Thanks for the tip about the neck pillow too! My husband's scheduled surgery is this coming Monday.... Question for you? Are the stiches taken out weekly, monthly? How does that work?
@ashleyrodriguez9161
@ashleyrodriguez9161 7 жыл бұрын
I'm so glad i was able to help :) Hope all goes smooth and well for your husband and that he has a speedy recovery! The stitches started coming out after 4 months and it was 2-3 every 2 months after that. I'm past a year already and I still have 5 stitches left. I've talked to some people that had all stitches out before a year and others after 2 years so I think it just depends on the person and doctor.
@mrsj118
@mrsj118 7 жыл бұрын
Thank you so much.... !!
@noufaln3259
@noufaln3259 2 жыл бұрын
@@mrsj118 your husband vision...how much...
@edwardnygma5549
@edwardnygma5549 3 жыл бұрын
Guys go get CXL done asap. Also before you do get CXL double check if you are a good candidate to get kerarings or intacs before CXL. Then wear contacts or glasses for 6 years. After that 6 years continue with glasses or contacts your whole life, or you if you wish ICL is an option. It is an internal implanted comtact lifelong but there is a 1% chance of retinal detachment later in life. It is an option, explore with your eye doctor if you are a suitable candidate. Go private doctor of you can.
@agnivabagchi1175
@agnivabagchi1175 5 жыл бұрын
thanks i have keratoconus and having cornea transplant of my both eyes in the next month
@Shon9tilR
@Shon9tilR 4 жыл бұрын
Agniva Bagchi How is your vision now?
@juanokiller
@juanokiller 5 жыл бұрын
I'm hoping to get surgery really soon, on my left eye.. I'm praying to have my vision back..
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