My Life With Lyme Disease

[@aylamurphy6467]

The medical community has a big problem with not believing symptoms or willing to take suggestions from patients. They need to be open minded.

[@MyLifeWithLyme]

I could not possibly agree with you more.

[@dalelittlefield57]

Wish I had the focus to write a good comment ( brain fog ) you know, Ya I got Lyme. thanks for getting your story out.

[@lyrapsi]

Stay strong.

[@lyrapsi]

Gosh I wish I could give you a hug!

[@MyLifeWithLyme]

Thank you, that’s really sweet

[@sylvia4179]

I'm so glad I ran into your video. I d like to connect. I have all the same things as you, and am so tired. You summed it up very well.

[@lauriemeilbeck6716]

I was sick for 14 years it all started very slowly since 2007 when I came back From visiting my sister and brother in law in Costa Rica. My husband and I went repelling down a beautiful water I got stuck mid way so water was forcefully pulling me in and I swallowed water and of course got in my eyes. I was ok. But I got home either a bad eye infection one eye doctor said hi had herpes infection in my eye most likely from bacteria in the water one said I would go blind. I found a great doctor that helped me it took over a year but then I ended up with joint pain had 3 back and neck surgeries All do to nerve root and inflammation uhm inflammation to make this story shorter all the symptoms you talking about I’ve had 2022 I spend most of my time in the ER and in the hospital test after test no doctor could say what is going on my nerves burned in all my body my brain was on fire. Seizures after seizures. I knew I was dying and hoping I would I went to Mexico got stem cell therapy with my husband I met a man who had all my same story he was healed when he went to Sanoviv Medical Institute. That was Jan 2024. I went in May was diagnosed with Lyme and 5 co infections 3 chronic 2 more recent. I know the most recent was May of 23 I got a bad rash when a bee stung me I got a bulls eye rash then a rash on my belly out of nowhere dr gave me a cream. Anyway I went back to Sanoviv Medical Institute for two weeks. Amazing. Anyone please check it out. If you would like to talk with me I want to help Can reach me on Facebook. Laurie Meilbeck. Or Email me Meilbecklaurie@gmail. Com. Many some who I met we are raising awareness I’m in touch with those who have same success story as I do. I would live to help ❤

[@ApsLean]

I can relate to your symptoms herbs help tremendously.

[@johnM-Jr]

yep, i can relate. hope this man still hanging in. id like to get in contact to brainstorm w you on treatment and coping, and good international clinics.

[@MyLifeWithLyme]

@@johnM-Jr Hi there, thanks for being here. Are you seeking resources for pursuing treatment?

[@johnM-Jr]

@@MyLifeWithLyme yes, i am.

[@MyLifeWithLyme]

@@johnM-Jr alrighty, email me at [e-mail] and we can set up a text thread or phone call to try and get you some help.

[@mititeimaricei]

How are you now?

[@romankolar156]

Hang on man. Have you tried treating with herbs, antibiotics or other stuff? I am right there with you, got Bartonella(+ plus possibly Babesia) last May.

[@MyLifeWithLyme]

@@romankolar156 Hi there, yes I am currently treating Bartonella and Anaplasmosis with antibiotics. I have to be careful currently with herbs and tinctures as I am still having some issues with histamine. Have you been tested through igenex? That’s how I found out about Anaplasmosis.

[@johnM-Jr]

lyme is very psychological and tormenting.

[@bethhivley2633]

Oh it is so pathetic how useless most doctors are. The CDC has denied for 40 years that chronic Lyme exists. Just 2 years ago the started saying that there is. Therefore there has not been studies or funding for research and doctors are not educated on tick borne illness. Lyme is the most misdiagnosed illness there is. Most people get misdiagnosed with lupus or depression or bipolar, or some some kind of psychosis or whatever other BS they can think, of it’s really sad. I have late stage neurological Lyme disease and I have deteriorated dramatically in the past year. I finally tested positive July 17. But would you believe I don’t have it severe enough to be reportable to the CBC. I only have 3 positive bands on the western blot test.

[@sylvia4179]

Oh yes I can believe that I've been sick since 2010 and I have tried everything and just push myself and push myself and I'm just over it I can't do anything anymore

[@1azjacki]

I believe you got it from your girlfriend…. It is transmitted inutero and through blood

[@sylvia4179]

I really want to talk to you. I don't know how to send an email. Can you answer me?

[@MyLifeWithLyme]

@@sylvia4179 hi Sylvia, what kind of help are you looking for?

[@mititeimaricei]

@@MyLifeWithLyme Try ivermectin.

[@gpants3633]

Well hey, you still have nice hair. ✌🏾

[@MyLifeWithLyme]

Thanks, I forgot to mention an early symptom was significant hair loss haha. Fortunately that one went away.

[@cpfcjames7504]

​@@MyLifeWithLymeI'm sick with lyme for 9 years. I've had rapid hair thinning and it's not stopped. Did you do anything to stop the hair loss?

[@MyLifeWithLyme]

@@cpfcjames7504 hi there, thanks for being here. I believe my hairloss stopped when I was able to take doxycycline for an extended period of time. I also had very bad mold exposure, that could have been a factor as well, changing seasons or changing houses can drastically affect mold growth. This isn’t medical advice. Generally seeking treatment from a qualified physician is going to be the best bet. For me it was a combination of antibiotic treatment and getting out of a mold infested home that helped.

[@cpfcjames7504]

@@MyLifeWithLyme Thank you. Did you treat with doxycycline soon after the bite? Or was the doxycycline after lyme was chronic? Sorry for the questions.

[@MyLifeWithLyme]

@@cpfcjames7504 please don’t apologize, I’m here because I want to help people if I’m able to. It took me well over a month or two to get a diagnosis, it was a clinical diagnosis (meaning not through testing but because of signs and symptoms). By this time all of my infections were pretty advanced and doxy is not the only drug I should have been on at the time. But, it’s all that the doc would give me. I believe I got 30 days and that’s all that they would prescribe as CDC guidelines will not allow more than that for doctors in specific facilities. You have to seek out a doctor from ILADS or someone that you know will prescribe long term, combination antibiotics to bring down the pathogen load. And they will require a positive diagnosis for whatever they are treating (generally from IGENEX).