My Lupus Journey for World Lupus Day 2019 || Beth Does Beauty

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Күн бұрын

World Lupus Day 2019, it's been 7 years since I was diagnosed and I thought it made a lot of sense to tell you my story. Being chronically ill, with System Lupus, is the reason Beth Does Beauty exists. I hope sharing some pain can help you better understand Lupus or provide some comfort to you if you have the disease too.
Subscribe: / @bethdoesbeauty
Sources of information, used in this video:
Lupus Foundation of America: www.lupus.org/...
Lupus UK: www.lupusuk.or...
If you'd like to know which charities have been great resources to me:
Lupus UK: www.lupusuk.or...
Lupus Foundation of America: www.lupus.org/
Lupus Research Alliance: www.lupusresea...
Mental Health Foundation: www.mentalheal...
Pain UK: painuk.org/
Mind: www.mind.org.uk/
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My name is Beth, I'm a sassy 24 year old with a disease called Lupus, and a large collection of makeup.
I started with an interest in beauty when my skin became damaged due to the effects of Lupus and harsh medications. My self-confidence hit an all-time low until I started playing with makeup to make me feel a little more human again. Beth Does Beauty exists because I want others to embrace who they are with what they've got, even if that means a banging contour, some heavy foundation or being bare-faced badass with your middle finger to the world.
What is Lupus?
bit.ly/2TK8bEq
♡ If you want to hear more from me, hit that subscribe button! ♡
You can also check out my socials:-
♡ Reddit: bit.ly/2VOKVTq
♡ Twitter: bit.ly/2vkzJlr
♡ Instagram: bit.ly/2viuog1
♡ Facebook: bit.ly/2F0Eabx
Thanks for dropping by, I'll see you in the next one!
Love, Beth xo
♡ www.BethDoesBeauty.co.uk ♡

Пікірлер: 15

@gailhall6283 Жыл бұрын

I wish I had a dollar for every time a doctor said something was all in your head, whether it be myself or someone close to me. Thanks for your help. All the best to you.

@BethDoesBeauty Жыл бұрын

I understand and I'm sorry you've experienced this too

@bakedbeans9275 4 жыл бұрын

I got diagnosed when I was 16. Right now I am 19 and still in a constant drug change like I’m some lab rat. Ive been going through my bad days since the beginning of 2020, well 2020 in general is everyone’s bad days. But I’ve been getting ill every week during that time. I eventually lost a lot of my hair, going skinnier each month because everything I ate made me throw up. My joints and bones are so sore that I wouldn’t even get up from bed. And the one thing I hated the most was getting up to use the bathroom. Hurts to sit down since my body feels so bruised and fragile, also I developed bad shortness of breath which affected my sleeps and me trying to talk. My doctor couldn’t really do anything and I got tested and stuff but all they could say was that I was feeling my ‘lupus flare up’ and couldn’t really do anything about it. Advil and aleeve started not to work anymore so I had to suffer all the pain every part of my day. I got super depressed because for the past month I sat in my room just laying on my bed looking at the ceiling in pain... Could not move. Felt so gross because I was malnourished and could barely walk, skin tone was grey tone while my eyes look dead all the time. Didn’t feel pretty because I always had beautiful long hair, it was a big part of my life and just having that gone was super hard for me. I got depressed and still trying to deal and heal from this year, trying to get at a healthy weight and get back to somewhat ‘normal’. I hope for my ‘good days’ to come. I am truly glad to hear someone else with Lupus tell what their symptoms are and share the pain that I’m feeling, really makes you feel like “you are not alone” and that you know how much someone else suffers everyday like you... thank you for being open about your illness. If you wanna contact me and you have lupus, here’s my IG: Sleepyduckie

@BethDoesBeauty 4 жыл бұрын

Leo, you described everything I have felt about living with Lupus and more. Huge love to you and thank you for sharing your story with me and the Beth Does Beauty community. My meds did the opposite for me with my weight, my metabolism and thyroid are not doing so great and it's very, very frustrating to try explain to people how hard life being chronically ill is. I'm hoping for more good days for you and sending lots of gentle hugs

@nicchutom3409 2 жыл бұрын

I have lupus.. Thank you for sharing your pain which Iam also suffering but I can do all my work.. But its too difficult to work at home.. Because nobody understands our pain.. Iam 21 year old and married at 18. I have baby.. After delivery I am suffering from this.... I always feel about this because if Iam sick.,what about my baby? Who will lookafter? Iam so sad

@Saphira4293 2 жыл бұрын

I recently (in the last 5 months ) have been dealing with symptoms like joint pain, swollen knees, rashes on my skin, my hear falling out. I went to my doctor and she wasn't helpful, she just told me to take tumeric and ibuprofen and sent me on my way. I had to switch doctors in order to get help. They just drew blood and my ANA is high and some other levels were high as well. I am now finally going to see the rheumatologist soon.

@irisrivera9921 2 жыл бұрын

Thank for your message I send to my cousin.i know a little about lupus because I had too.isnt easy.take care yourself.

@TanyalovMusic 5 жыл бұрын

I really wish there would be more research into why Lupus occurs exactly, because right now every story I hear is so different from the others. I was diagnosed when I was 20 but I had been unwell since forever. No doctor could really diagnose what was wrong with me since I never had a flare up before 20, but always had general fatigue, pain, nausea all the time. Things got worse once I had my menstrual onset at 14. I bled for 3 whole months, and since then every single period was for about 2 weeks and heavy flow and pain. Once again when I was 16 I suddenly started bleeding very heavily and they put me on hormonal medications. That made life a little easier but the pain on each onset was always there. At 20, I was in college when I stayed back for the summer break for extra credits, and had high fever - 104 C fluctuating to 101 over time.. I thought its because of menstrual problems, then my skin started itching all over.

@TanyalovMusic 5 жыл бұрын

I completed all my exams and went back home in a month since it all started because I was in a bad place in life then to ask for help from anyone, and when they took me to the doctors I was diagnosed. Honestly, all I could feel then was relief, I finally had a name to my illness. It has been an uphill struggle since then, but I do believe that I'm at a better place than I was at 16 or 20, when no one would believe I'm ill or dismiss my illness as just being weak. Thus, I really hope there's more awareness so that people who do not go to a doctor often (it's a thing in India) know when exactly it's time to seek for help. Also, I have seen that with physical health problems also comes mental health issues. Luckily, I am currently in the best place I have ever been in my life and hopefully others are able to make it through all of their struggles too. (You too Beth :*)

@dalewiliamskn58 2 жыл бұрын

Im the same in being alone but im a man with lupus and its horrible...

@crystalr9633 2 жыл бұрын

I was told I needed to see a psychologist as if I were crazy my labs showed something was wrong and I was still ignored... my ana changes I was told I was healthy and completely fine and was diagnosed with fibromyalgia... drs don't listen to their patients right away they blame anything and everything on anxiety I never been a person to have anxiety lupus gives me anxiety because you feel all these crazy things going on in your body and you don't know what it Is or what's going on its scary... I seen a naturopath dr he found that I had lupus if it weren't for him and me going that route I still wouldn't have answers... how are you doing now?