My Lymphoma Story: Undergoing Chemo & CAR T-Cell Therapy

Daniella shares her journey battling stage 2 primary mediastinal B-cell lymphoma, a rare non-Hodgkin's lymphoma. Her first symptoms were a cough that turned to bronchitis and night sweats. She was misdiagnosed with doctors saying it was pneumonia or possibly tuberculosis. She later got her cancer diagnosis after a CT scan revealed a large mass in her chest.
She underwent six rounds of R-EPOCH chemotherapy, followed by CAR-T cell therapy and radiation, experiencing side effects like hair loss, fatigue, and nausea. Despite challenges and setbacks, she eventually achieved remission.
#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #nonhodgkinslymphoma #lymphoma #lysm #primarymediastinalbcelllymphoma #chemotherapy #hairloss #treatmentoptions #cartcelltherapy
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[Video Chapters]
00:00 Introduction
00:30 My first symptoms
02:38 They found a large mass in the center of my chest
05:20 Living minute by minute
06:38 Deciding on my treatment plan
08:35 Being diagnosed with Primary Mediastinal B-Cell Lymphoma
09:20 My chemotherapy treatment plan
10:22 Losing my hair
11:46 Other side effects from chemotherapy
13:21 They found two more spots after chemotherapy
15:51 Getting Car-T Cell Therapy
17:10 The process of Car-T Cell Therapy
22:40 The survivorship is very difficult
24:10 The fertility preservation process
25:15 My biggest advice
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The interview has only been edited for clarity. The interview has only been edited for clarity.

[@lindag1372]

God Bless you. Thank God for your cousin the radiologist, being astute and recommending the cat scan. Being a planner to living in the moment changes ones whole life. Prayers for you.

[@Sasbie65]

She hadn't even had a chest x-ray when she was diagnosed with bronchitis and then pneumonia, so what were they basing these diagnoses on?! I can't stand the way doctors don't take the time to actually figure out what's wrong with people!

[@KatieZeldin]

Right? So many stories on this channel when people were diagnosed ONLY after insisting on more thorough testing.

[@LowKeyStatus]

It’s the American way. We are not people we are dollar signs.

[@lauraferriss1600]

​@@LowKeyStatusnot sure it's an American thing I've been waiting a year to have my gallbladder removed even though they know there's a tumor in there I've had all the weight loss, skin problems fatigue you name it and I can't tell you how many times I've been told by doctors that it's probably nothing and sent home and I'm in the UK docs sometimes just live with there heads up there asses putting it bluntly.

[@JackJack_frenchieboi]

My mom and sister had Lymphoma. My mom had Hodgkin’s and my sister was later diagnosed with the exact same Lymphoma as you. She thought she had pneumonia and asked to get a chest X-ray … she was a an Interventional Radiology Nurse. She looked at the film herself and knew she had Lymphoma. She’d seen many X-rays in her career. It’s been 15 years and she is still cancer free. She had RCHOP chemo and radiation to her chest. Best of luck to you, we wish you good health always.

[@TT-cu7ze]

She is so young and adorable. 😢

[@Over60sowhat]

I know it's not about this, but I don't think I've ever seen a more adorable human!

[@faithf5846]

You will be a great advocate for others! You speak clear & compassionate principles of your cancer journey. God sent you to the right health care providers & each day you will grow stronger. Psalm 41:3 ❤

[@joysgirlrachellejohnston1333]

Thank you so much for sharing. I am so happy for you being in remission!

[@anitajohnson6894]

I ❤❤❤your strength! I am cancer free12 years and there are days I still feel fatigued 14:01

[@TungB]

Bless your cousin for helping you solve your condition. You clearly show how its ALL YOU when you know your health needs help. Good job being fierce! I can tell you're still scared, which is good. You WILL have to stay diligent. While you may always be genetically susceptible, I still think its ultimately caused by an environmental trigger, perhaps one to avoid in the future? I lost two friends to this exact disease (the young cancer killer), one quite young, the other made it into her early 40's before it came back and finally got her. She said crows followed her for some time after she was initially cured. I still miss both of them so much, they we're so alive and full of life. They were both Italian/S. European. One of them couldn't smell. The other loved salt, he would just eat it plain. I always wondered if any of those things were correlated.

[@ralphdering837]

What a beautiful story very uplifting. Thank you for sharing your journey. You help me and many other people to see hope.. Stay strong. and reach for the stars, young lady.. God bless you. ❤

[@debbriggs5811]

Am sure you have grown into a better person than the one you feel you lost track of. You are adorable. Thank you for this information. Many more blessings.

[@kathrynbaker8215]

What an articulate young woman!

[@miked8227]

I’m praying for you, but you look great and are going to be fine!❤

[@pandapower5902]

Thank you for sharing your story

[@mariemartinico]

God has BLESSED YOU..I THANKYOU🎉

[@neen42]

With cancer?

[@annmarierevet4854]

Bless you for sharing your journey. You are a WINNER, STRONG ! and so is your mom. ❤❤

[@4BarbaraJ]

Thank you for sharing your story. ❤

[@raisedfromperdition2x919]

What a blessing your testimony is! You have been through so much! I completely understand what you mean about losing your identity and where do you go from here! Facing the unavoidable head on and being prepared to say ok this might be it or this is it puts you in such a different head space. Then after a time you learn no you are going to be here and now you have to reshape your life again. Even though it’s such a privilege to get to do it, it’s daunting and I know I felt like but what if comes back again? I don’t want to go through this loss yet again?! So it’s hard to thrust yourself over that fence to embrace the future when you had been preparing to not go over that fence. You are such an amazing person, I know you and your family will look back on this and appreciate how far and just what you had overcome.

[@LB-my1ej]

I’ve been where you are. Saw my doctor as I had a swollen lymph node, was referred to the hospital who saw me within a week. Had a biopsy and scan plus bone marrow biopsy and was told it was stage 3 non Hodgkin Lymphoma in the abdomen. This all happened within 11 days. Went through chemotherapy for 8 months then preventative therapy for 2 years to prevent the tumours growing again. I’ve been in remission for 16 years now so it all worked out. By the way living in the UK all my treatment was free even my parking costs to visit the hospital was free. The best of luck to you.

[@scottiehall8695]

Nothing is free. Someone paid for it, it just wasn't you.

[@joycedudzinski9415]

She's paying too through taxes

[@LB-my1ej]

@@scottiehall8695 Of course, nothing is free, it’s paid for as part of the our income tax but at least we don’t have to worry whenever we need to visit the hospital that it’s going to bankrupt us. Isn’t it better that everyone pays a bit then everyone has the benefit of it when they need it any other way is just selfish.

[@dontfollowthecrowd6949]

you are so beautiful and clever. I wish you all the best and hope you have a long and happy life.

[@anamaria-zo5ym]

You are so strong.I don't know if i take it like you...God's blessings to you and my prayers 🙏 ❤

[@drummersagainstitk]

Our prayers and support to you. God Bless you.

[@ken_in_atx9619]

Praise science!

[@californiadoll6273]

Prayers are useless! If God existed chemo and medical intervention wouldn't be required!

[@ryans413]

It’s just hair at the end of the day it’s better to be clean and healthy than worry about loosing your hair. Thanks for your story I’ve had a few family members go through cancer sadly none of them are alive.

[@AussieTracy]

Easy for you to say that it's just hair. It is so much more than just hair and it is almost like you are grieving the loss of yourself.

[@ryans413]

@@AussieTracy no I’m just saying what’s more important being cancer free or worrying about your hair. That’s all I was getting at not saying it’s easy to lose your hair but I’d take that over not being able to beat cancer.

[@HopeofGlory-qx4lk]

@@AussieTracyat the end of the day, it is really “just hair”! Hair will always grow back. One can not replace life after cancer. Understand the difference.

[@user-mt5pj5ld6w]

You will have a long healthy life. Your prayers will be answered and I will pray for you.

[@dianapeterson8979]

You are beautiful, and I pray for complete recovery in Jesus' mighty Name, amen.❤

[@amytucker6142]

The LORD created all the things we need to have good health. I had squamous cell carcinoma staged at 4b not given much hope so went organic no sugar and keep carbs in the teens per day. Now 4 years out doing great, no cancer so please look at this life style

[@alphaomega1351]

Negative 👎! Your imaginary god created nothing. It is similar to Mickey Mouse 🐭 and Bugs Bunny 🐰. 😳

[@HopeofGlory-qx4lk]

@@alphaomega1351the fact you took the time to type this ridiculous comment is proof you know Jesus is real! The day of reckoning is coming. Repent and be saved! Acts 2:38

[@carolinekeenan7582]

What diet did you use,and did you have no treatment at all

[@SculptExpress-gv8jp]

Oh sweetie, I am so sorry for such trouble in life, but let’s hope for your full full recovery. They have new drugs every day that can get you out of this. All the very best❤️

[@wowzatrishiebunz]

I thought she was a young teenager. Wow, good genes!🧬

[@user-mc1cz6sd9f]

god bless u

[@splash6427]

🙏 ❤️ 🙏 For You & All Always & Forever

[@doriasalmon4790]

So sad and scary that we are seeing more and more young people being diagnosed with cancer

[@heidi2166]

It's the C needle

[@Pat.D.]

Thank you for your story. I also have lymphoma (CLL). I am a patient at memorial Sloan Kettering and they are wonderful. I curious to know where you got your car t therapy

[@debrarouth855]

My son had Car T-cell at City of Hope in Duarte, California. Saved his life.

[@brigitnunez6735]

🙏

[@deathbychocolate584]

🙏❤️

[@marshabrannum2418]

My daughter did HBO documentary about her issue of losing her hair.

[@JerseyLynne]

I wonder how much time you took off work

[@ericstepansky]

❤❤❤

[@ivettesantana4319]

I think everything lined up for her like she says because she must have great health insurance. Idk what insurance would approve all these procedures so quickly. They would make you wait for approval or you have to wait for months for appointments as they deny. She also has youth on her side. I don't think they would care about her fertility treatments or her at all if she was beyond 33

[@LowKeyStatus]

It’s sad that you think like an American in terms of health care. If you lived in Spain all that would be free. America has brainwashed its citizens to believe that doctors are gods and socialism is bad.

[@thesheepofthegoodshepherd2868]

Psalm 86:5 For thou, LORD, art good and ready to forgive; and plenteous in mercy unto ALL them that call upon thee.

[@chrismckernan6945]

Forgive what??

[@thesheepofthegoodshepherd2868]

@@chrismckernan6945 Forgive us all for violating/disobeying Gods Holy Law by doing wrong by sinning, by NOT having perfect love and for doing evil, and we need to be forgiven for our sin because God is perfect and is rightous and in heaven no sin can be there, we must be made righteous by faith in Jesus Christ.. The Gospel saves us from the condenbation of the law of God that requires perfect obedience & love, and ONLY faith in the Gospel of Christ Jesus at 1 Corinthians 15:1-4 SAVES US & RESERVES A PLACE N EAVEN FOR US FOR EVER WITH JESUS CHRIST.

[@artandrea5348]

I know the forgiveness part might seem irrelevant to this situation and story, but we have all sinned and fallen short of the glory of God. We all need forgiveness. If we accept the free gift of salvation that only comes from Jesus, who died on the cross in our place for our sins, we will be justified for our sins. God is merciful and He heals! We need Jesus❤

[@user-yn7ep7rx6f]

❤🙏🏻

[@b25mech]

What a spectacular woman you are :-). I can see it in your eyes in that one pic of you.

[@anaferguson5135]

My niece died at 17 from a rare non-Hodgkin's Lymphoma

[@LowKeyStatus]

Why would people thumbs up your comment? People can be so cruel.

[@lorraineophoff4984]

Maybe the thumbs up mean they understand, or have a loved one pass also.?

[@glasscleaner8970]

i think valaciclyr or aciclovyr helps with cancer

[@1MinuteFlipDoc]

you are destined to play peter pan someday soon! you are cute as a pixy! LOL

[@darrellhicks360]

Good tip: cut ur hair so u don’t spend your days chasing hair around. 💕

[@LilyGazou]

Why are so many young people getting cancers?????

[@heidi2166]

What's been different in the last 3 years?

[@KatieZeldin]

I hope it's a rethoric question. After 2021 many people "worked around chemicals".

[@HopeofGlory-qx4lk]

@@heidi2166that part!

[@franpaszkowski-hood1565]

You r adorable- I’m not being critical just bringing it to your attention when you yell your speaker is vibrating t and it then distortion!!!

[@michelles9897]

🤍

[@pwyman5540]

Im not a doctor but from what i understand there is no cure for cancer but only treatments and hopefully recession.

[@lorraineophoff4984]

Did you ever marry your fiancé?

[@viktigt123]

💉💉💉💉

[@TheRocketrob3]

Remission means it will return some day Right🫣🫣

[@HopeofGlory-qx4lk]

No that’s not what it means…remission is the same as NED.

[@freakinsweetdude]

After 5 years of remission, someone is considered "cured" and the odds of reoccurrence drop significantly after that.

[@andreegodbout868]

🙏🫶