My name is Julian, I have Pelizaeus-Merzbacher Disease.

My name is Julian and on April 9th, just after my 2nd birthday I was diagnosed with PMD. Here is the down and dirty, but watch my video for more information. It's a rare disease that is commonly misdiagnosed as Cerebral Palsy. I will grow and function much like a normal child until adolescence when the disease will begin to regress my health. Life expectancy is 20-30 years of age, but that can vary greatly.