Digital Infoday Session: Steroids

[@TobyG-j8z]

Thank you for posting this - great to see it on catch-up and very useful for me.

[@eryilkce]

Thanks a lot!

[@FOTOMOTOGP]

When taking Daratumumab, Velcade, Thalidomide and Dexamethasone look out for symptoms of peripheral neuropathy. I first noticed slight pins and needles going down my arms and legs. I thought nothing of it. It later developed into quite significant peripheral neuropathy. My Velcade and Thalidomide were stopped immediately. Maybe if I had told my consultant about the slight pins and needles I may have prevented the peripheral neuropathy becoming significant.

[@FOTOMOTOGP]

When you feel stimulated by the steroids make sure you don’t overdo physical activity because your bones will probably be fragile. I broke ribs and vertebrae being overactive.