Myths Part Four: You Don’t Look Sick & Other Myths About How Hypermobility "Looks"

[@LyndaRoberts-t2e]

Thanks for this Jeanie. Wasn't diagnosed until l was 60, am now 69 ( long story). People often say, you look so well, when trying to explain heds pots. Have had operations on my feet, plus hernia repair, some days l can hardly walk and travelling is becoming more problematic, but hey, as you say we try so hard to keep going. Look forward to your little talks and exercises. Thank you.

[@JeannieDiBonHypermobility]

Thank you for being here. Glad these are useful.

[@louiseclarke3784]

I am SO glad I found you and this channel. I have terrible lower back pain and am frequently told by family it’s because of my “pelvic tilt” I’ve been trying to “correct it” for so long. Maybe it’s just how I’m built and my pain is related to my EDS 😢

[@JeannieDiBonHypermobility]

So glad to help.

[@julieshenk7640]

Thank you so much. Best help and advice I have heard to date. Turning 70 soon but a recent...couple years or so. Will jump on board with your offerings. Grateful🙂

[@JeannieDiBonHypermobility]

So glad to be of help.

[@wonderingpilgrim]

I am a fairly new "Zebra" subscriber to your channel and have been watching a lot of your videos. Thank you for doing this myth busting series as I also don't fit the stereotype. I would love to do all your exercise videos, especially the ones for shoulder strenthening/stabilizing but unfortunately cannot because it requires lying down. Due to cervical instability, lying down flat causes dizziness. I was wondering if you would please consider doing a series of exercises standing up for different body parts, but especially the shoulders? I would be so grateful if you could! Thanks so much!

[@JeannieDiBonHypermobility]

Thank you for following my channel. The Zebra Club has programs like you are looking for. We have a whole standing program on there.

[@wonderingpilgrim]

@JeannieDiBonHypermobility Thank you so much for your reply. It seems worth every penny, given how generous you already are! I look forward to a time when we aren't financially struggling so much, and are able to afford that kind of monthly subscription.

[@PsychodelicKitten]

My skin isn’t really velvety. There are some areas but I mostly have keratosis Polaris. I am very fair skinned tho

[@janemcdonnald70]

Any advice for an 83-year-old who is suspicious she hasmild hyper mobile joints, and now is impacted with the ravages of old age, osteoarthritis, hip replacement and dealing with sciatic type symptoms. My question is what medical discipline would be best for me who is trying very hard to avoid surgery, rheumatology or neurology?

[@JeannieDiBonHypermobility]

Have you tried Physiotherapy / physical therapy?

[@TheMazinoz]

Yes, until they find the genetic basis of HEDS, phenotypic descriptions should be taken with grain of salt. Im 5' tall, 9/9 Beighton score, 70 yrs old, diagnosed by two specialists, POTS, postural hypotension including migraine etc, mitochondrial myopathies tests negative. Pretty damn sure its HEDS, mother is the same. Not tested for other types.