such smart people :O Thank you for your work !

How about a video on hip labral tears?

Question. I'm curious what you think about a particular excersize where you lay on your back with your legs bent/knees up and then you open the left leg to the left, then the right leg to the right, and then repeat? Does that really strengthen hips? I tried this excersize once and I didn't open my legs very wide and it caused my right hip to feel like it was on the verge of going out of place or partially out of place. This feeling lasted into the next day.

I’m a teen that’s being referred to a chronic pain unit to get tested for HSD soon. It’s so tiring to have seen SO many specialists, and get so many tests that always come back with “normal” results. Fingers crossed I get a diagnosis just so I can know what’s wrong!

Def int rotate

Lovely to watch this video, as a respiratory physiotherapist it's great to see people teaching others helpful ways of improving their breathing pattern. Interestingly watching this video - you look quite uncomfortable at times when breathing and talking, there is quite a lot of mouth breathing and gasping and you look hungry for air at times. Very common when speaking, especially quickly and when nervous etc but ideally you should still be inspiring through the nose and then exhaling through the mouth as you are speaking. It would be helpful to slow down a bit and make sure you're not talking so much that you are running out of air and then needing to do a quick gasp in. Breathing and talking comfortably can be challenging. Practicing reading aloud can be helpful in retraining our patterns.

Jeannie talks so much sense! Never thought about wrong use before 😮

Thanks i had gone for a cross fit exercise but i was in too much pain i noticed my elbows bending in i couldn't stretch i was anxious i was worried coz i have knock joints i will be sharing my updates thx

Thank you!!

Question, would barefoot shoes, or walking barefoot promote foot movement/ mobility? Are shoes or bulky height sneakers reduce accessibility in foot movement?

Hosting isn’t expensive, and the app is very basic, so development costs would have been low. Filming can be done with a simple iPhone, and editing a single-camera source with no effects is as straightforward as it gets. 8,000 downloads during the pandemic underscores the need in our community for a program where people can help themselves - as you've identified, and charging a £15 monthly subscription fee is excessive and excludes those in the greatest need from accessing it. Considering your cost of maintaining the app is the same to you no matter how many people people subscribe, surely it makes better sense to have a more sensibly priced paywall that will allow more people to benefit, and give you a clearer conscience when you sleep at night. £15 seems exploitative of our community and greedy, unless you can only attract a handful of subscribers each month, which considering you had 8,000 downloads, clearly isn't the case.

Or, you could just make the app free or upload the videos to KZbin, making them freely accessible to help the entire community, instead of locking them behind an expensive paywall. As you know, for many of us, this disability prevents us from working and leaves us struggling financially and unable to afford the £15 monthly subscription. I guess one option for me is to skip some more meals in order to find the money to subscribe for a month, and then download all I can in that time.

Ive just given this a try. I have HEDS and 2 prolapses. I always thought my pelvic muscles were tight. I felt aslight release during the exercises so im going to continue doing them. Thank you so much

Just the thing I need to add to my week, thank you!

I have the same thing from the 4th finger.

I'm reminded of an article that suggested that a spasm is actually a blessing in disguise.. its spasming for a reason; theres an injury if some kind, and the body knows it, so it tightens the the appropriate muscle to try to prevent you from moving the way in which you got the initual injury

Thank you. why do my shoulders and arms shake with resistance band exercises

Alwaya cushions in the gap that I have in my back. Thoracic pain, and sublaxations maybe causing lower back pain now too. Very hard with thoracic back pain to hold myself up sitting on a chair, needing to eat food standing up, blood pooling in legs then, and my back aches so much that I want to lay down most of the day on hard floor No amount of pillows work, but its good to know that I can try to look at weight in the pelvis, and the feet & grounding into floor to help with taking my mind off the pain and the feeling Im wanting to slouch to stop pain. Talked to every doctor and Chiro and Osteopath about the back that looks like im pregrant as does belly. Too much bend I think, maiing pot belly stick out. Many problems are going on. Not diagnosed for any but just feel Im not strong enougj to sit or not shaped right to sit. I cant breathe well a lot of the time- usually shallow. I dont know where to start other than my GP asking doctor for a diagnosis of something wrong???...only remedial massage helps, oher than that the Chiro aligns me monthly but sometimes causing more pain elsewhere or headaches, & iback pops out again and again, my neck keeps hurting, shoulders hurt, and hips, arms also despite chiro saying I adjusted well. I was told to pretend a string is running through my body and to putll up from nexk with that string, it helps but cant hold long enough to work, or eat, and get dizziness and overheat if exercise, so hoping sitting and standing wont hurt soon if I find what exercise works best to maybe work on my back and stomach muscle strength. Can you have a hypermobile spine, hips or shoulder area or is it only movable joints?. I have weird arms. They are hypermobile, I think? The seem to not be straight, but ive told Doctors and Chiro, and they dont seem to believe that means anything wity my inner arm pain, when I ask what is wrong with my arms they say nothing its not carpel tunnell pain they say. It makes me feel that being in pain and having arms like that will be my norm forever, Im 52, but im getting worse with pain and fatigue as I age. Thanks for your video. I have to find my sitting bones through lots of padding lol

I have had huge issues with pillows ever since my ME/CFS onset 17 years ago. I’m going to try a buckwheat pillow

26:41 I never realized this was an issue, I always stand and walk like this, I make a tripod using my heel and the side of my little toe folded under my foot 😅

Thank you for sharing this knowledge.

Thank you, this helps

thank you for these videos🤍🤍 you’re getting me through a heck of a struggle

Hi, thank you for this video. I have a question for you. I was recently diagnosed with hEDS. I had been training Taekwondo before that. It could be possible for me to continue training? People say I should quit.

Brilliant Jeannie thank you! I love the way you explain what’s happening and how it should be. I have relief from just a few reps.

Like to heat why our body would want to be tight in the muscles due to hypermobility. Dealing with constant pain every day non stop you just want to find someone to help stop the oain when you dont takr pain killers at all.

Damn right that pain is real and stops me sleeping at night

I have some experience in somatics and I know that the connection between body and emotion can be really crazy sometimes but… is there any reason that these exercises would cause someone to start sobbing uncontrollably? Haha are they related to somatic exercises at all? The coat hanger exercise, once you explained not to engage the glutes and use the neck to lift… when I felt those muscles activate it suddenly and unexpectedly made me cry like a baby?? Haha

Hi! I dont know what kind of EDS i have the doctors are going to figure it out, but is there any way to chat with you? If pay you because im feeling so bad i dont know what to do anymore the hospital isnt helping me every time i go in my hands and feet are going numb im only 20

Awesome video!

You talk such sense 💜

Quick question, when I do the press and release exercise and the lifting the head up one (the last two), i feel a lot of it in my upper back and shoulder blades. Is this normal or am I doing something wrong?

This is valuable, thank you. I’ve got EDS and have struggled with hip and lower back issues for a few years now. I do workout for strength 5x per week, but find that my hypermobility means I can go too far and end up tweaking muscles (that d…mned psoas muscle!) I then stretch and go too far with that. I need to remember that I’m super bendy and must learn safe limits that actually aid in recovery

I have rib subluxations in a lot of my ribs. Im wondering if this would help the popping and crunching in my spine as well?

SO thankful that my sister turned me on to you, and this video!! I feel that my coat hanger pain is related to my migraines...so will start doing these exercises daily. Is it recommended to do the number of reps you illustrated in the video, or is it beneficial to do more of each, of the five? Thank you!

i have known for a while that i need to strengthen the muscles around my elbows and shoulders because of the amount of strain i feel in my elbow and neck just from playing volleyball. and so i tried looking up an arm workout for beginners and cried within the first exercise because it seemed so simply but i could feel something was wrong with my shoulder. popped over here, watched the video and practiced feeling good shoulder placement, just tried the exercise again and feel much better! thank you so much! 😭😊🥲

Do you have any recommendations for someone who suffers from intense anxiety from hypermobility likely due to dysautonomia? And chronic fatigue? (I don’t have POTS).

Before i knew i had EDS, i got into powerlifting w the best trainer (abusive Polish man who i unfortunately got into a relationship with) I was in the best shape of my life. Then i got sicker and stopped for a couple years. Getting bk into now at 37 and my hips are so so so bad. I used to squat all the way paralell, all natural no help, at 6' tall, all leg. Now i cant do 100 lbs :*(

The first demonstration of the hand acting as ribs and the exercise band seriously made me go. "Ooooooohhhh, thaaaat makes sense." I am a twenty seven year old male who is currently undiagnosed, however my family members do beleive EDS may of been passed down through the family, We're just becoming aware to the reality of chronic pain and a life of constant discomfort.. My knees lock backwards, my shoulder pops out, my ribs have slipped before (beyond painful, thought jt was an airbubble) my hips slip and catch in the joint, my fingers and toes are all double jointed, (hypermoblie) my hipflexors constantly pop when i get in and out of a vehicle.. my ankles crack and pop with every step if I walk without footwear.. It can all becoming quite exausting.. So I thank you for your time, support, and knowledge regarding these manners. ❤️

I didnt know i had hypermobile elbows till i had my first pilates class yesterday and the teachwr used me as an example of what that was and what not to do 😂

Wait everyone doesn't feel like this 😭 I know I have hEDS but I still find things everyday I realize aren't "normal." Crazy stuff!

Hi Jeannie, I have a knee that is off track. Do you know how to get a knee to go back to normal or do you just have to wait a long time and see if it goes back on it's own? My knee has been like this since the 19th. My physical therapist said it's not subluxed.

thsmd hp ,y ftkt trehd

Hi Jeanie, I have a question. I just recently started seeing a physical therapist. She said I have the tightest thighs she's ever seen so she wants me to stretch them out. The thing is though, for years, whenever I sit on my bed with my feet on the bed, it ends up hurting my lower back, and I only feel it once I get up. So I'm not sure what to do about these exersizes. I addressed this with my PT but she didn't really give me an answer, just said do slow stretches. It seems like I would just keep repeatedly hurting my back, trying to do that. What are your thoughts? I recently injured myself, making my low back pain worse, because I picked up an accordion and set it on my lap. big mistake.

What does it mean if my mid-upper back is aching really badly while doing these shoulder exercises?

Thank you!

Is this excersize safe to do while my knee is subluxed? thank you

I have a question I'm hoping you can answer: Is it safe to walk while having a subluxed knee? How about biking with a subluxed knee? What happened was I set my accordion on my lap, on my right leg and the weight of it caused subluxation in my right knee and it's been like this for 4 days. It pops all the time. I don't know how to get it back to normal. I've been so scared and don't know what to do. I have EDS. It's my knee that goes more inward than the other knee (knock knees).

"We're very good at cheating" speaks to me deeply. When I was doing dance 5 days a week, I could get away with faking it because I had enough general muscle tone to keep things mostly in place. Now that I no longer have that, faking hurts more. It always looks like I have good posture, but that's simply because my spine slouches into sideways S's instead of forward and backward. And just looking at how flexible and seemingly strong my legs are belies how it feels like my hips aren't screwed in correctly. I recently found your channel through one of your old videos on shoulders and lying on the ground with a towel under one shoulder blade while only doing vertical forearms while listening to the rest of the video has done more in that half hour than the many chiropractic and osteopathic consultations I've attempted. Thank you for sharing your knowledge and I look forward to watching more of your videos as I try to rebuild my strength.

You are providing so many of us such a huge, positive impact on the quality of our lives. I can not thank you enough for this video I almost cried and kept saying "oh my god yes finally" because its been hard to explain and alter on my own. Yoga was so painful in the hands, wrists and elbows nothing really helped except instead using the fingertips which was minimal relief. Also the fact that you even went as far as to mention how to grab and just functikn correctly and described it in such good detail... I wisv providers would care enough to provide something as little and easy as this... we are so lucky to have human beings likr you to share something so powerful. May seem like "common sense" to others who do not battle with this but its difficult to feel "stuck" or "locked" and not knoe hoe to align everything or use it properly altogether. And I know I can not be alone on that. But at the end of the day, sharing compassion and knowledge selflessly is true power