Natalie Blagowidow - OB-GYN and EDS-HSD

[@florabraswell-nm1re]

I noticed with the EDS topics, there is no talk about seniors with EDS that have been living with this syndrome all their lives every test and every talk about my symptoms l always was told your bloodwork is fine or maybe you are anxious and sent me to a counselor or psychiatrist now it is coming out about EDS still only few know about this my doctor said to me “ where did you get this information from ? I told him the internet and l didn’t get to tell him my story when he walked out the door!

[@TheEhlersDanlosSociety]

Hi Flora, we have a talk on aging here: kzbin.info/www/bejne/r3WcfX2sh62AhJosi=0iHonTxxo3GT0lRa

[@SimiSilver]

You have no discussion here about menopause. I’m wondering why I have had severe muscle loss. I have always worked out and just got diagnosed at age 55. I am a real go-getter having raised five children as a single mother and run my dental clinic for 18 years. The past two years I have turned into a piece of Jell-O. They tell me it is not EDS but they haven’t found any other reason. I was hoping you were going to talk about menopause

[@Parrot5884]

Menopause can do that if estrogen isn't replaced through HRT. Estrogen is essential for maintaining collagen levels. Once your body stops making estrogen, your collagen levels deplete, which can affect your muscles. Low estrogen can also cause generalised fatigue and consequently feelings of weakness separately from its impact on collagen. If these symptoms are new, then it is not likely to be EDS because EDS is genetic and present from birth. However, if this is a worsening of preexisting symptoms, then that's a different story. There does seem to be a very strong theoretical basis for the idea that EDS symptoms worsen with menopause because reducing collagen when someone's collagen is already weakened is...rough.

[@g0ne_dark]

I'm curious about the prevalence of heterotopic pregnancies in women with EDS (hypermobility). Also, is endometriosis and adenomyosis (in younger women) more common?