Sophia’s diagnosis I never shared

[@KnotsOfWonders]

She had nothing but pure adoration and love in her eyes when she looked upon her family. The unconditional love and bond everyone shared was undeniable and it inspires me, thank you Sophia and Family

[@eightyduece9670]

What a loving beautiful family. Thank you so much for your strength, tenacity, positivity. You are amazing.

[@estherrossnewman4261]

I have learned so much from your open love . I try very much to say hello to any person who might have a different look than me . we are all people.

[@pixiesmama8807]

Sophia was so blessed to have had you two for parents. Many people never experience such love as she did. I’m sorry for your precious loss of Sophia. ❤

[@sheilametcalfe9467]

She was the cutest child I've ever seen. Very feisty and bright. I'm glad she was born into a very close and loving family. Sophia's spirit will always live on in the minds and heart of those who cared and loved her. Beautiful Sophia rest in God's loving arms ❤

[@sherryab3964]

Sofia was such an incredible gift to this world and still is ❤ She continues to change lives and thank-you for sharing her with us and for connecting to other families with similar conditions as Sofia’s. Your other children are amazing human beings because of Sofia and they will go on to do great things in life, most importantly, be responsible, empathic and caring adults ❤❤

[@mariabal8214]

Sweet Sophia 😔😘👼🏼✨💫

[@koalasez1200]

Precious Sophia has (yes, has) the most amazing mother and family. Her incredibly beautiful eyes were windows to the universe. Thank you for sharing her life with us snd for educating people. Sophia is so very much loved and is watching over you ❤️

[@1995--]

Mrs.Weaver just know I've seen a few videos with your family and Sophia. Lemme just say you are all very beautiful. You've raised your other kids with such respect and inclusion for both Sophia and their peers. We need more of this in the world and Sophia's joy and smile was top notch. Thankyou!! Much love from Southbridge. Ma

[@stjohnbaby]

Just beautiful loving parents and family for Sophia.

[@laurie6893]

I’m so so sorry for the loss of your lovely little girl! What an amazing, beautiful family! My heartfelt condolences!

[@RHrrrrrrhhhhhh]

Thankyou for allowing us to be part of Sophia’s life. You are a beautiful family, with all the ups and downs I’m sure there were times where there were struggles and times that you didn’t think you could continue to be who you were once Sophia had passed. But in her memory you have to remember the wonderful life you gave her and the benefits you have all received from having her in your life. You have all, including her siblings, been incredible advocates for what a family should look like and live like, through Sophia’s life. She touches your heart in mysterious ways. A bright light shines from all of you, particularly Sophia. Now go live your lives, have amazing adventures, in her memory and be proud of the amazing, sweet, funny, cheeky and beautiful little girl who will be looking down on you all, no longer in pain, with gratitude for her blessed and remarkable family.😊💞🌸🧚🧑🏻‍🎤🧤👒🐸🪲🦎🦜🌲🍀🫛🍏🧃🪀🏄🏼‍♀️🧩🛶🏡🧼📗💚❇️✅🟢🟩🏞️

[@kkrb1212]

Thank you for sharing. I have been binging your content today. I remember you saying that you didn’t want to share her last diagnosis and I just wanted to say thanks for doing this and because of Sophia you will help others. I know it

[@joannabanana8431]

I think the best thing is parent to parent contact. We both know where you are and how it feels to be you. Also sharing rescources without discrimination. One social worker told us that they are bound by specific rules and policies, where as parents can tell it like it is. Now Sophia has passed on her work still goes on through her parents and now we all know the name of one amazing angel. ; - D

[@littleblizzard7591]

What a gift she gave to the world, opening eyes and softening hearts and answering questions that will help others not be so scared and feel alone. Helping others see life is full of hope and joy even during challenges. Her life was beautiful 💚

[@Angelface11]

Cant imagine. She was so precious and you all were so loving with her. Thank goodness she was born to you.

[@warriormamma8098]

Thank you for sharing with us. I have found on my journey to get rare health issues diagnosed doctors tend to shrug me off and say “oh, that’s really rare.” Or “I doubt you have it since we only know of a handful of cases.” This reminds us lol to not be gaslit and keep advocating for ourselves and loved ones that something is not right and we need a diagnosis and support options. Your family is a joy to watch.

[@JeleneTyreeWaltmanBlanchard]

Hì Natalie Blessings to you as I remain one of your biggest fans and susupporters. You continue to inspire and teach. I have learned so much from the love and acceptance that resonates within your sweet little family. ❤❤❤❤❤

[@wendycutts9734]

Hello Natalie, I have watched videos and have gone through so many emotions. I lost my daughter at the age of 38. My heart goes out to you.Sending all my love and total admiration to you and your family from England.w

[@susan_elizabeth]

Thank you for sharing Sophia with us, as well as discussing her diagnoses. I can feel your pain. You and your family are in my prayers. 💜

[@mikemoola2101]

Natalie, I just started watching your videos of Sophia. She was a beautiful, happy, playful girl. The differences with her mouth didn't prevent her smiles, laughter, and happiness from showing. She was absolutely adorable. Sophia is in Heaven with God now and she is waiting patiently for you and the rest of her loving family. God bless and thank you for the videos 🙏

[@heatheryuhas1031]

I wanted to thank you and your family for sharing your journey. I was watching videos about people with disabilities with my children and we came across one with Sophia. I had to know more about her. She had such a presence and a spunk about her. Although as heartbreaking it was to watch knowing she passed, she still somehow put a smile on my face. Such a beautiful soul put on this earth to spread happiness and love 💕! She was blessed to have such a loving and caring family to be by her side, and she has blessed us with her beautiful soul. Thank you again for sharing Sophia with the world! P.S. You are an amazing mother and your husband is an amazing father! With all the challenges you have overcome you have made such a beautiful family 💕.

[@pattiwilliams9144]

Thank you for sharing Sophia with us!! 💜💜💜

[@standup2982]

I’m sending you my love, from England ❤ What an incredible Mother and woman you are ❤ Much love to you and your family and I’m so very sorry for your loss. Sophia was beautiful, inside and out ❤

[@TerriW1203]

You gave her the best life possible, momma! She is with her Lord and savior completely whole waiting for reunification with those she loved who loved her. May God's face shine upon you all for doing such a great job. Sophia lives through all of you though her body rests. Best wishes!

[@bwcwxx]

she was a beautiful young lady.. fly high Sophia 💖

[@tracymay1749]

I had no idea you all was in NC. Some am I. I have watched you and Sophia for years. She was absolutely beautiful! Your an amazing person,mother and I really hope people learn from Sophia. I'm just so sorry that people have been so mean. To me she was such a beautiful little girl. As a mother of 3, I support you all the way. You really do inspire me. I think your so strong and I pray that God will be with you and your family in difficult times like these. I know she is smiling down from Heaven so proud of her mother! If you ever need anything please never to hesitate to contact me. I don't know you personally but I feel like I do from watching you and Sophia. Stay strong! Hugs from NC

[@missluna]

Rest in peace baby Sophia! ❤

[@edwingonzalez1498]

Sophia was so sweet, beautiful, and perfect in every way. You and your family have her so much love.🙌🙏❤

[@Nettieoiuyt]

You are an amazing mother and family. She was blessed to have you - and her life obviously blessed you all as well. You absolutely respected her and her life - we have a son with a severe immune deficiency and have wanted him to also have a full and wonderful life, but we have not had the amount of issues you’ve had to deal with. You are very special and God obviously chose Sophia to “do” life with you because He knew what a great job you’d all do and how fulfilled she would be. I pray He comforts all of your precious hearts.♥️

[@bekasoyars3964]

💖🕊💖SOPHIA💖🕊💖

[@winniethepoohandeeyore2]

Her suffering is over. She's at peace.

[@d.n.8919]

Forgive me for asking, but how does ablepharon macrostomia play into this? I saw the study that came out many years ago with Sophia in it. Did she not actually have that? The study was from 2011, so Bilu syndrome is the more accurate diagnosis?

[@WICKED-r8k]

You were supposed to figure that out on your own . Sophia had deformities in her privates. I think she had 2 buttholes or something.

[@Chief-Solarize]

There is a bigger picture that is impossible for outsiders to see. In time it will be more observable. No rush.

[@leilahauck]

💜

[@Zompetneedsneweyes]

❤

[@Person0fColor]

I’m the child of a parent with a facial difference and it was pretty terrible some of the stuff that happened that being said it’s important to remember that they are just regular people too. I don’t think they are special or God’s gift to humanity or the definition of beauty and strength they really are just regular people just like anyone els. If we really want to normalize facial differences then we need to start there treating them normally.

[@solarOvum]

Didnt knew she is home. I hope you feel okay mom

[@much2pretty57]

Retts is horrible. My friends daughter had that