Neck Instability (CCI) Stem Cell Update (PICL) - PART 2 - this is the ONE main benefit I’ve had

[@DebbieRichhill-kj5op]

Scrambler therapy works super well for dystonia!!! I have that machine also come to NYC

[@kimikazikola]

So far my only real change is my heart rate is becoming a bit more stable. All of the neuro stuff like dizziness and feeling faint is still so rough. I am so happy you’re seeing something positive. ❤️

[@ItsStabilityTime]

It’s so difficult Kimi! Same here, no change in neuro symptoms. I am hoping number 2 will help that! Praying for you!

[@ItsStabilityTime]

That’s amazing you’re seeing your heart rate stabilizing!

[@kimikazikola]

@@ItsStabilityTime remind me, did you see Dr. C or Dr. S? When I had my four month follow up Ryder was not happy that the only thing that has improved is my heart rate, and so he said that I would have to do another DMX before approving me for a second procedure.😞 I guess to see if there were at least some structural changes.

[@ItsStabilityTime]

@@kimikazikola oh my gosh :( I hope he discussed that with your doctor before signing off on that. Can you confirm your doctor said that and not his assistant? My initial reaction was that the hr stabilization means the joint is stabilizing and the vagus nerve is not getting as irritated

[@kimikazikola]

@@ItsStabilityTimewell I asked in one of Dr.C’s live videos and he said “he probably just said that because it’s protocol”, but I asked if I could wait until 6mo out to reevaluate and see if I have any more positives. He said that was perfectly fine. So hopefully by next month I’ll be seeing some more positives. 🙏🏻

[@cameronsterls7983]

Hi- I’m a new sub to your channel- I don’t hold an atlas correction and my AO doctor sees that with patients who have issues related to jaw positioning/occlusion- whereby splint devices such as the tanner device which is a lower arch splint can work very well alongside an atlas correction and can be very effective to maintain atlas alignment for much longer periods. I’m going down this treatment path now and have spoken with many that use this splint device and some haven’t come out of atlas correction since using the splint device. Hope that helps

[@nrp5791]

Much appreciated for documenting your journey. I am going for Prolotherapy using dextrose in September 2024.

[@ItsStabilityTime]

I hope it provides so much healing for you!

[@fdauti_ca]

I certainly wouldn't mind having more upright time 🤕, good that you have noticed that

[@ItsStabilityTime]

Oh my gosh being bedbound for so long is indescribably difficult :( I’m so grateful for this sign of change!

[@ItsStabilityTime]

How have you been?

[@ItsStabilityTime]

How have you been?

[@RachelsCCIpath]

These update videos are really great-thank you! It’s also incredible to hear that your atlas stayed in position for three months. That’s an amazing milestone!

[@fdauti_ca]

@@ItsStabilityTime Stable in managing suffering, especially if I dont walk outside without collar or move the neck too much. Have been incorporating neck isometrics 10-15min at night hoping to offset the above

[@DebbieRichhill-kj5op]

Try scenar therapy it works so well and also there’s an upper cervical specialist in NYC at Apollo that is great

[@naturalbrainandpain]

My friend had her breakthrough right about 5 months mark.

[@analyticalhealth]

Go you !!❤

[@RachelsCCIpath]

This is a great resource for others-I really appreciate the way you explain things. I think it’ll be helpful to many, and I’m adding it to the resource playlist on my channel. I have a question for myself: I also struggle with sensory issues, and how noise affects my balance and coordination. Is this something you’ve come across as being part of dystonia?

[@ItsStabilityTime]

@@RachelsCCIpath hey Rachel! I feel the same about how you explain your journey too! That’s a great question, one I’m still unpacking and learning about every day! For me, the dystonia is triggered by noise, more specifically by overwhelm in my brain. Western medicine doesn’t explain dystonia in a helpful way. I use a program from a dystonia researcher who explains dystonia as an extreme protection mechanism from trauma or stress. For me, this is what I found - physical trauma to the brain and body and spine plus chronic deep anxiety from all this loss. For me, I’ve been treating the dystonia functional neuro AND removing the noise and I calm my nervous system again ❤️‍🩹

[@ItsStabilityTime]

@@RachelsCCIpath also wanted to add that my ROM is very limited (like 15 degrees max), and this affects my proproception because my brain can’t map my world. Humans move their head up to 100 plus times a minute so it makes sense I have these dystonia and balance issues because I don’t give enough feedback to the brain and thus the auditory part of my vestibular system is over sensitive and I’ve protective ❤️‍🩹

[@Sarah33445]

Can you please share what you do in pt and things to mange dystopia sending much love ❤❤❤❤

[@JessicaJames007]

How is your recovery going? I just did my telemedicine with doctor c couple days ago, He wants me to go forward with ao chiropractic, Which i've never done before, After that he wants me to go to Colorado for my in person visit to see if they'll do posteriors.Or the p I c l procedure. It's nice to finally have a diagnosis and answers. And and a treatment plan.

[@ItsStabilityTime]

Going well, with ups and downs! I have a very complex neurological condition now too. So it’s tough but the PICL is well. I got number 2! I trust dr c and he is fantastic. I hope you get all the healing to come ❤

[@JessicaJames007]

Are you a fan of Ao Chiropractic? Have you ever done posterior Upper cervical injections only? ​@@ItsStabilityTime

[@JessicaJames007]

Do you also see an AO?Chiropractor?

[@RachelsCCIpath]

@JoaoSiebinho Hey Joao, I thought this video might give you some good information.

[@JessicaJames007]

How was your recovery immediately after the procedure, Like going to the hotel room , then getting on the plane?

[@ItsStabilityTime]

@@JessicaJames007 I’m very sensitive so the doctor injected conservatively making the recovery more tolerable. I woke up and was in recovery for an hour. Too unbalanced too walk so we use my wheelchair. Two days of pain. No meds. I used heat. Then airport we use my hard collar and wheelchair. I cannot function in airports at this time so my partner pushes me and handles literally everything 🙏

[@JessicaJames007]

How are things going after second p I c l?

[@ItsStabilityTime]

@@JessicaJames007 no major changes yet from the first! I have severe dystonia and that honestly is worse than the CCI symptoms currently :(

[@JessicaJames007]

@ItsStabilityTime Would you even consider a third?

[@ItsStabilityTime]

Yes!

[@JessicaJames007]

What happens to the dystonia when you are put to sleep, Like during your picl?

[@connoredwards7199]

Why didn't bobblehead improve that's my worst symptom

[@ItsStabilityTime]

I wish I knew :( it’s one of my top worst issues too, alongside the severe dystonia

[@connoredwards7199]

@@ItsStabilityTime it makes me think does this therapy actually tighten ligaments I have severe eds and my head slides like crazy but less neurological impact, I don't know if I should just fuse it but my entire spine is unstable

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