Neuroendocrine Tumors; What determines outcome?

[@sandygardner733]

Thank you for posting this. I have the NET in my lungs and in the mediastinal lymph node and its metastized to liver and small intestine and pancreatic area .....Stage 4 Grade level 1...K67

[@johnwright7782]

How are you holding up?

[@sandygardner733]

@@johnwright7782 the gastrointestinal symptoms I do not suffer with , it’s a daily struggle with the mediastinal area tumors to do anything without tiring or loss of breath. So it’s one day at a time and make the best of my days 😊

[@mikoh13]

All I know it's rare and not much information unless it's been search. I'm on stage 4 , unknown primary it's been more than 4.5 months since I got diagnosed. I have in groin, lungs, pancreas, lymph nodes, abdomen tonsil.

[@johnwright7782]

@@sandygardner733 Thoughts and prayers are with you.

[@donnathomas3732]

I had Distal pancreatic cancer operation 17 years ago! Tumors in my mouth, thyroid, both lungs, liver, ascending colon,and Anusara! Lot of stomach issues! Lot of meds! Same cancer as Steve Jobs!

[@bluesteele2235]

It might be a silly question, but, how does one impact survival rate if the tumour is removed, it was net g2 in the appendix, stage 3.

[@linagauthier4193]

I have neuroendocrine breast cancer stage 1 but grade 3 poorly differentiated. er+ pr+ her2-. After lumpectomy, they told me they remove all cancer, lymp nodes negative, margins very good. I'm 72 years old all scans (chest/bone/brain) no metastasis. Need to do 4 rounds strong chemo, then 12 weeks less strong chemo, afterwards 3 weeks radiation plus 1 week booster (radiation) and hormones therapy. Oncologist told me that if I don't do any treatments, i have 80% chance of recurrence. Do you think its worth it at my age with all side effects, do I have a chance for survival?

[@thesurgicalscholar]

I would strongly urge you to discuss your treatment with the team caring for you. I wish you the best Lina.

[@mini_ola]

I have carcinoid syndrome symptomes everyday now. Wondering if I have a chance as it seems to be really advanced.

[@Love.Yourself.1976]

What if my NET is free floating, not in an organ, but in-between.

[@ryanwdavies1]

❤so helpful thank y

[@johnwright7782]

Im stage 3 very aggressive its in my spine , liver and pancreas. Ki 67 20.8

[@Wolf_0_0_]

How are you doing now.. hope all good from you end. My dad was diagnosed stage 4 grade 3 and need to know more details.

[@johnwright7782]

​@@Wolf_0_0_Doing ok now that i am off the pill form of my chemo and back on the liquid form and lower dose.

[@niklaskristensson2231]

I have a NET G1 (rectum) 3 percent and doctor will not treat - just check in 6 months! Ok?😢

[@Glamorrous]

How are you doing? I was just diagnosed with a NET in my rectum. Idk the grade or anything else yet but I’m scared 😞

[@katebc9148]

Nets are usually slow growing, but if I were you, I would consider another oncologist or doctor and get a second opinion.

[@mini_ola]

​@@Glamorroushow are you today? Did you have any symptones?