Thank you for the info. My son is starting this now. We are hopeful that it helps control his seizures. God bless you and everyone living with the struggle. We all pray for a cure.
@baharmonyy3 жыл бұрын
Thank you for all of this information! My pup is starting this for his seizures and this is really informative
@zeerhogaming18283 жыл бұрын
You have no idea how helpful this was!! I was diagnosed with epilepsy and given this medication with hardly any explanation and I’ve been having just weird feelings and just anxiety I guess and it’s hard to describe but I recently just had a kidney stone! Now my diet wasn’t necessary the best either but I’m also not huge either I’m 6’6 190 now probably because I went like 4 days without eating, from the kidney stone just from pain and throwing up everything. I’m getting back to normal now but it’s not easy. I get nauseous when I want to eat food and it’s hard because it’s food I really usually enjoy. I just don’t know what to do to help that because I don’t want to get to skinny.
@lucasdumb46265 ай бұрын
Wow. Hope it didn't noob you that bad because when I took this food was so gross. Have to do nephropathy forever now I dunno if this caused it or a induced seizure.
@gia91732 жыл бұрын
It does NOT work for me. I get seizures regularly. I am on 400mg. daily. I did not lose any weight. Yes, tired, stupid, sleepy! Plus suicidal thoughts. I am going to request to be removed!
@taniatucker70642 жыл бұрын
5 years ago My mom had 3 seizure in one night because she mixed alcohol and nyquil, ever since that day she has been taking seizure medication because she doesn't have the coverage for a MRI so that's why her doctor wanted her to get treated for seizures, I feel like she doesn't need medication for seizures if she isn't had anymore seizures please help me understand this better. Thank you
@babyscarr32 жыл бұрын
🗣️ listen to your first mind if she only had one sezuire than they just giving her that medicine for nothing that the same medicine I take for my sezuire they 👨⚕️⚕️ dignose me with eplisey after a brain tumor 🧠 removal and I got prescribed with them for my eplisey sezuire and I only can take the night sezuire medicine 💊I can't take the morning sezuire medicine 🙁 I'm allergic to it they didn't even know I was allergic to it until they seen me on a check up with my face swallowing and rashes all over my body ‼️
@courtneypine13302 жыл бұрын
What about pins and needles in hands and feet? Or eye floaters? Topiramate was working great for my anxiety and panic but the side effects are not pleasant
@michelefischetti25082 жыл бұрын
My doctor just changed mine to this. I took fycompa and gained 40 pounds. It's good to take a drug that makes you lose weight.
@-m7k0z7-94 жыл бұрын
Since you are a neurologist, I hope you can help me clarify some things: -How can someone know they are having seizures (temporal lobe seizures) in their sleep, without having to do a sleep study? -If someone is having temporal lobe seizures, and they're having low motivation, anhedonia (if those symptoms were due to epilepsy, can an antiepileptic relieve those symptoms)?
@babyscarr32 жыл бұрын
Yes I have sezuire in my sleep 😴 also it call grand mal sezuire they dignose me after a brain 🧠 tumor removal 😔‼️🙏 I died and came back than they dignose me with eplisey ☹️my life been kinda hard I'm only 24 I'm still learning more about my brain disease 💯
@Real_Chara_Dreamur Жыл бұрын
@@babyscarr3goffy emojis
@srabchun3 жыл бұрын
I’ve been on this medication for a year. 100mg a day. 50mg am and pm. I want off of it. Although it has seems to help with my seizures, I do not feel like the same person I was a year ago. It wakes me up. And worst of all, I now have at least 6 to 7 bowel movements every day. Sometimes I will skip a pill for my nighttime dose so I can get a good nights sleep. But when I do that, half way through the night I wake up with my entire chest area of my t-shirt soaked in sweat. I know everyone is different. But that is my experience with this medication. I absolutely hate it.
@dianemorton22226 ай бұрын
Interesting. Very well said.
@HandleHandle2334 жыл бұрын
I missed you! More videos please!!
@AndrewReevesNeurology4 жыл бұрын
I'll try to be better about making videos. I'll maybe mix it up between videos on medications (which are the most popular) and on diseases.
@joanne42994 жыл бұрын
hi my husband last year went into cardio-respiratory as a result of the hypoxic injury he developed Lance Adams Syndrome .He has very bad jerky movements of his muscles which means that he cant walk use his hands even .Due to the myoclonus he is unable to produce fluent language i would like to know if zonisamide would help him with the jerky or if you know any other tables that would help him thanx
@amaliagallegomarin22234 жыл бұрын
Zonegran para que se utiliza
@AndrewReevesNeurology4 жыл бұрын
Para varios tipos de epilepsia.
@hollyworkman99724 жыл бұрын
Nice to see you, even if it's on a KZbin video! Just wanted to let you know, if it helps any, I am on 400mg of zonisamide twice a day right now and just had my 5th child! She just turned 6wks on Wednesday. I have been on zonisamide during all of my pregnancies, not lessening the dose, raising it during some, and all of my children have been born very healthy with no abnormalities except my now 3yr old having an aortic ring on his heart. He had that fixed and is also a very healthy boy. Zonisamide did cause a kidney stone, I didn't know about it until last year, and it was 17×26 in size. So, overall, it has been a good medication taken with levetiracetam (keppra) and my VNS. Even though my seizures are still not controlled. But it does work very well for pregnancy, at least it did for me as far as safety of the babies!
@AndrewReevesNeurology4 жыл бұрын
Holly, thanks for sharing your thoughtful comments! I've found so many people who don't take the "normal" dose, or don't react to a medication the "normal" way, that I always emphasize the your-mileage-may-vary aspect of medications. I hope the kidney stone issue has gone away for you. I'm sure you're drinking a lot more water now....
@123mja1232 жыл бұрын
How long did it take to detect the kidney stone since zonesamide was introduced? Thank you
@hollyworkman99722 жыл бұрын
@@123mja123 I had been on it for 10+ years before it formed. It was found during a pregnancy, by that time it was thought to be there for at least a year or 2. But it's been free sailing since that one! I have only had that one.
@faatimamiller1613 жыл бұрын
My son started on keppra when he was 14 almost 15. He has had 2 major seizures before keppra and 1 major 4 years later. Now he’s almost 20 and had 2 mild seizures, his neurologist is going to start him on 100mg of zonisamide & then work him up to 200mg once a day at bed time. He’s been on 2,000 mg of keppra for 4 1/2 years. I appreciate you making this video because I don’t believe in playing God with my child’s life & I am hopeful that he will not have anymore break through seizures with this like he had on keppra. And I hope we can keep the dosage low. Thank you for making this video!
@toccarathomas87174 жыл бұрын
Thank you very informative I was just given this medication by my neurologist for migraines it will be a week this Saturday on it
@AndrewReevesNeurology4 жыл бұрын
Hopefully it'll work. It takes a good while to build up in the blood, though.
@RMSrealestate Жыл бұрын
I was prescribed 100 mg Zonisimide for Auras. Have never had a bodily seizure. This medication caused heart palpitations and pauses. Had only taken two weeks. Stopped 100%.
@riverbender98984 жыл бұрын
Thanks for the insight.
@Loganjsherrill4 жыл бұрын
Do you know if zonegran can also lower your white blood cell count? Ever since I started it last month I’ve felt extremely sick and recently visited the hospital and they told me my white blood cell count was very low and so I looked it up on the internet if it could be the cause, but you know you can’t believe everything you read…
@AndrewReevesNeurology4 жыл бұрын
It can happen, actually with a variety of seizure meds. Most of the time the person doesn't have any problems with it, however. If the person isn't having frequent or severe infections, I usually don't do anything.
@babyscarr32 жыл бұрын
Listen to your first mind 🙏💯 they have me the same medicine for my eplisey sezuire 🙁 they just be doing experiments 👨⚕️🧤💯
@seanpearson17244 жыл бұрын
This was very informative. I am actually off of zonisamide its been a week bc i was having a bad reaction to it (bleach odor on skin, severe hyperhydrosis, constipation). I am just wondering when the side effects will go away bc its been a week and i’m still experiencing the excessive sweating and its rly debilitating.
@AndrewReevesNeurology4 жыл бұрын
Well, the half-life of zonisamide is usually about 60 hours, and it will generally take 5-7 half-lives for the medicine to clear out completely, and then your body has to recover a bit, so...it often takes a while for medications like zonisamide.
@barbaramiprince57242 жыл бұрын
Thank You ,, I Truly enjoyed watching,, it was very very helpful & I loved how you explained everything where it was understood, Thank You 👍
@FormerTrucker3 жыл бұрын
I was perscribed this med I just read about the side effects they were pretty scary. Almost having second thoughts about it
@lcanton91463 жыл бұрын
Did you end up starting it? If so, what has your experience been like? I was just prescribed this and I’m having second thoughts as well.
@FormerTrucker3 жыл бұрын
@@lcanton9146 It makes me sleepy so I take it at night.. Side effects so far is constipation.
@lcanton91463 жыл бұрын
@@FormerTrucker Thank you for responding! I guess I won’t know how it will affect me until I try it. I hope it’s worth the risk? I’ve read some scary 💩!
@dani72832 жыл бұрын
Yes everyone is different. My 14 year old daughter has been taking this for 2 months and it gets her sleepy and has constant constipation. She takes it in the evening and takes 300mg.
@Marco-nx5tj4 жыл бұрын
Always love your videos also how is things going for you guys
@AndrewReevesNeurology4 жыл бұрын
Thanks, Marco! Considering that the COVID-19 "lock-down" just started here, things are going OK right now. Besides being a neurologist / epileptologist, I am also the Medical Director where I work, so my leadership demands just increased significantly. Oh well...it goes with the turf. I hope you all stay safe and coronavirus-free!
@Marco-nx5tj4 жыл бұрын
@@AndrewReevesNeurology hope you stay safe 🙂
@darlene11874 жыл бұрын
Thank-you, Dr. Reeves. I do not suffer from epilepsy but will learn more about this medication and how it might relate to Parkinsons, for family. Forgive me if I have already asked this. Are you available for distant consultations? I am able to send a copy of my Brain MRI. I do not require a Diagnosis. I really just want an expert pair of eyes to review my Brain MRI so I can ask specific questions. This isn't the way to really contact you. I will find your formal contact information. Thank-you, Darlene
@AndrewReevesNeurology4 жыл бұрын
Thanks for asking, Darlene, but I do not do distance consultations.
@darlene11874 жыл бұрын
@@AndrewReevesNeurology Thank-you for your reply. Where do you stand on relocating to Canada? 😉 Please, keep making your videos.
@AndrewReevesNeurology4 жыл бұрын
A friend who is an excellent neurologist tried to recruit me to work in Banff years ago, actually. I called him to recruit him to work with us when I worked for Mayo, and the guy turned around and offered ME a job paying more! Lol! Mrs. Reeves *hates* to move, so I won't be moving to Canada (or anywhere else) any time soon :-) ! Best of health to you, Darlene!
@barbaraprince6375 Жыл бұрын
Thank you so much,,,THANK YOU 😊
@barbaramiprince57242 жыл бұрын
You mention it can cause kidney stones from side affect, Im set up for another CT scan,, i was prescribed this drug by my Neurologist , but desided not to take it at that moment, now I’ve desided to begin taking after a week, I’m seeing my Urologist for Abdominal pain,back pain,is this medication safe or if I may have kidney stones,THANK YOU 👍
@MsBossTone4 жыл бұрын
Ive been prescribed this medication for my chronic migraines. Im supposed to take it for 6 months. The doctors told me it would make me sleepy but I should adjust after 3 weeks or so and the drowsiness should go away. Do you think it’s possible? I feel very unmotivated, I just feel like lying in my bed all day and I’m only taking 100mg a day 😱 is there any chance it will change with time? (It’s been only a week since I’ve started). Thank you so much!
@noellealdi881 Жыл бұрын
How are you now?
@maureenkea55852 жыл бұрын
Zonisimide 150mg make my son aggressive
@gia91732 жыл бұрын
Gum inflammation? My gums are bleeding 🩸
@AndrewReevesNeurology2 жыл бұрын
Dilantin (phenytoin) is the most famous for gum issues, but could happen with about anything.
@tammicharre893 жыл бұрын
Can you take this medication with trileptal as well?
@AndrewReevesNeurology3 жыл бұрын
Some people use both medicines.
@Emd32xyz4 жыл бұрын
Is there a way to prevent kidney stones while on this medication?
@AndrewReevesNeurology4 жыл бұрын
Drinking lots of water certainly helps.
@adamw11453 күн бұрын
This medication destroyed me, but other meds are worse. I’m still not close to the same intelligence wise
@heyguysiguessthatsit438 Жыл бұрын
It destroyed my muscles or what little i had of them, don't like to listen to doctors now
@ZachkTV4 жыл бұрын
Hey, I've been a longtime fan of your work; as my neurologist would never tell me what actual side effects there are on the medications I'm taking and just uses the excuse 'well all medications have side effects!' without even a second thought about how each one can affect me personally. As someone who's currently going through switching medications because my Keppra gave me pancreatitis, would you suggest Zonegran, or Dilantin? I was thinking about Zonegran after watching your videos, but I'm really not sure. I had the choice to choose Lamictal, but after this pancreatitis scare; the last thing I need is to chance myself with getting SJS. Thank you very much for all of your help, and the videos you make; they help out a lot of people including me!
@andyreevesarchive5284 жыл бұрын
Every case is different to some degree, of course, but I can say that we don't use too much Dilantin these days because it tends to have more side effects, both in the short run and the long run. Good to discuss with your neurologist, or at least some neurologist who will listen....!
@ZachkTV4 жыл бұрын
@@andyreevesarchive528 Thank you very much, you saved me! I called them and let them know that I want to get on Zonegran; not Dilantin due to the long term permanent side effects you get! To be clear, I even relied on your videos years previously when choosing which medications would work for me, because the freaking neurologist wouldn't tell me! I can't appreciate you enough for all of your work!!
@ZachkTV3 жыл бұрын
@@andyreevesarchive528 Update, they seem to have put me on 100 mg tablets at bedtime, is that too much of an introductory dose; or does that sound about right?
@andyreevesarchive5283 жыл бұрын
@@ZachkTV I use that as a pretty typical introductory dose in a lot of folks.
@ZachkTV3 жыл бұрын
@@andyreevesarchive528 Thanks! Just wanted to get a second opinion on the matter. I just want to let you know again, that I really appreciate everything you do! Hopefully this works out better than keppra..