Topamax and Your Brain

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I CARE FOR YOUR BRAIN with DR. SULLIVAN

I CARE FOR YOUR BRAIN with DR. SULLIVAN

Күн бұрын

Пікірлер: 444
@thebattybests7635
@thebattybests7635 Жыл бұрын
I just started Topamax at 25mg a month ago and then they increased it to 50mg. They suspected seizures and migraines and essential tremor. It had helped with all of my symptoms, but I do feel high like I smoked some weak weed. I'm giggly and feel stoned and I feel exhausted by the end of the day. I still get headaches, but I'm not just randomly forgetting everything in the middle of talking and the aphasia has stopped. I hope to God I don't start getting depressed. Trying to find the right medication balance is so stressful. I'm so glad I found this channel.
@terriberrens2144
@terriberrens2144 Жыл бұрын
Back in 2011 i took topamax . I went from 178 to 98 lbs. Ended up in psych ward for 9 days. Lost ability to manage anything but primal instincts. It's 2023 and I am finally getting back my mind. But I haven't had migraines since 2011 and I suffered years with them 15 days out of the month.
@amberblood1064
@amberblood1064 10 ай бұрын
What was your dose
@rosscopantani4678
@rosscopantani4678 9 ай бұрын
I had some very tough times mentally and nearly put myself on a train line back in 2013, I'm still struggling now with memory loss and depression
@nikitaw1982
@nikitaw1982 9 ай бұрын
​@@rosscopantani4678in 2013 was that from topamax? I almost did the same going off zoloft too quick around 2005
@katalinahill8753
@katalinahill8753 8 ай бұрын
Do doctors discriminate prescribing Topomax to patients based on gender? I’m noticing a majority of women commenting about bad side effects here. If this isn’t biased prescribing then why would men report less negative side effects to Topomax ?
@rosscopantani4678
@rosscopantani4678 8 ай бұрын
@katalinahill8753 it's not prescribed one gender at all, I'm an ex cluster head ache sufferer and statistics show you are more likely to get clusters if you are male! Yet most forums and cluster pages are full of females🤔personally I think men just don't seek for help as much as women do which is sad because that's what these forums are for.
@bonniejohnstone
@bonniejohnstone 9 ай бұрын
I’ve been taking 200mg of Topomax a day since 2009 for atypical migraines. What Topomax has done is reduce the triggers that used to happen constantly from light, noise, scent, crowds, change in temperature and so on. The symptoms were passing out, severe nausea, face migraines, heart attack symptoms. Electric shock, complete shutdown with inability to walk or talk. Honestly it was horrible. I still have triggers but not so often or severe. I’m 75 and figure I forget words and Topomax encourages me to do more without feeling so afraid of what will happen. If you know inside that something isn’t right, get help. People might try to discourage you, but you take care of yourself. You are important!
@jesseccles6089
@jesseccles6089 2 жыл бұрын
Topamax has really helped me with my migraine maintenance. In the beginning, I did have issues with memory and it did help with weight loss, but after two years it has all leveled out and I went from 16 migraines a month to 3-5 and that is a vast improvement.
@DrPat-mx9nn
@DrPat-mx9nn Жыл бұрын
Please tell me what dosage is working.
@coramaeofstie1281
@coramaeofstie1281 2 жыл бұрын
I took a low dose to prevent migraines. It worked perfectly with no side effects.
@HurlingMongroach
@HurlingMongroach Жыл бұрын
I took it twice 2nd time almost died 😮
@fatpinkteddy
@fatpinkteddy 11 ай бұрын
What does did you take ? Coz I am interested in taking it for binge eating
@Carolina_girl86
@Carolina_girl86 9 ай бұрын
I’m on night 3 of taking it for IIH still hasn’t worked. How long did it take to work? I’m on 25 mg.
@JocltJoy
@JocltJoy 3 ай бұрын
Hello was wondering if you are still on Topamax and how is it going
@Mr_Beans1900
@Mr_Beans1900 3 ай бұрын
@@HurlingMongroachwhat happened? I just got prescribed this and now I don't want to take it
@lechelewashington62
@lechelewashington62 Жыл бұрын
Topamax for weightless. Can you do a video to expand more on that. What are the long term effects after achieving desired weight loss?
@courtenaywells140
@courtenaywells140 Жыл бұрын
P.S. I take topiramate ER for migraines and yes, at 100, I have some word finding trouble, but have been through so many meds I am grateful this is working and terrified to try anything else. My patients also love it for migraines, but there are complications to prescribing for my (mostly female) migraineurs in some SE you mentioned, especially for using this drug for migraines (a non-life-threatening condition). Young women may want to become pregnant, or they may NOT want to become pregnant (ironic that there are problems on either side of the spectrum) and there's that pesky "dopamax" problem, which is the number 1 reason for . However, I've quitting. However, it's a great fit for so many. I've had patients with mild side effects to refuse to stop the medication because it FEELS life-saving. And I will continue to use it, with the medical discretion it warrants. Thanks for this video.
@treat9905
@treat9905 2 жыл бұрын
100 mg started 20+ years ago for severe pts that was intolerable. Totally changed the way drinks taste. Depersonalization. Weight loss. Word finding difficulty. HOWEVER, it helps so much that I will stay on it.
@rosscopantani4678
@rosscopantani4678 9 ай бұрын
I still find The word finding hard and I was using topamax 13yrs ago. I'm convinced it's fucked my brain
@susanadie1803
@susanadie1803 8 ай бұрын
My son started this medication for epilepsy about 20+ years ago and now he’s having problems with electrical problems in the heart. We are just starting the process to see if it’s caused on this medication.
@Macabre_Moth
@Macabre_Moth Жыл бұрын
I have been on Topamax for 2 years now, for migraines. Started on 50mg, I now at 75mg. I deal a lot with trying to find the words, but it find that it happens more than often verbally, than when I am typing text out. I still deal with tingling sensation, but I have been dealing with that since before Topamax. Other than Adhd, Alice in Wonderland Syndrome, Visual Snow Syndrome, Silent Migraines, Hemiplegic migraines all things I have suffered from since I was a child now into 40+ ; I am on no other medications for those things. I stutter a lot now, and have the abridged disconnect when trying to remember words. I am now dealing with the myopia getting worse, some days I wake up and can’t see anything out of my left eye, I had no clue that was a reaction of Topamax, thank you for letting me know.
@candyyyybabeeee
@candyyyybabeeee 9 ай бұрын
Wow a year ago you were at 20k and now 80k+ that awesome! I couldn’t have came across this video at a better time. I’m a nursing student about to finish pharmacology who just started topiramate for migraine prophylaxis. I was already having fatigue, trouble with memory, finding words etc and my Dr said it was most likely due to the migraines and showed me a chart of the cycle of migraines. I was MIND BLOWN. Almost every symptom I had was on there. So when I heard about the side affects of topamax I was not excited 🤣 especially because I told him I didn’t want anything that would effect my mental health. I will be taking my 3rd dose tonight and I have definitely been feeling a little funny since starting it a couple nights ago but nothing crazy. I’ve also had mood swings but I’m starting my period in 5 days so it’s most likely because of the that. Wish me luck! New subscriber here ❤️
@m.c.5459
@m.c.5459 2 жыл бұрын
I've been taking it for a couple of months now for vestibular migraine. It's been a life saver. My vertigo was unbearable.
@DrPat-mx9nn
@DrPat-mx9nn Жыл бұрын
What dosage do you take?
@167bustillo
@167bustillo Жыл бұрын
Hi. What dosage did they prescribe you? Also any side effects?
@pepper419
@pepper419 Жыл бұрын
You're lucky, it's great for migrane. It has nasty effects for people with other simptoms.
@HurlingMongroach
@HurlingMongroach Жыл бұрын
Im allergic to that 1 i stopped breathing woke up to emt
@blancagardini421
@blancagardini421 7 ай бұрын
Did you have mood swings?
@lorrainedean8732
@lorrainedean8732 Жыл бұрын
I am so happy to have found you. I was totally impressed that you never said "ah" once! That being said, I have been on Topamax for migraine headaches for at least 20 years. And if my memory is correct I do remember tingling in my fingers and toes when I began taking this medication. But I don't recall ever having a conversation with any of my doctors regarding Glaucoma, especially since I have had it for YEARS! I have only listened to 2 of your videos and I am a fan for life. I can't wait to share your program with one of my Doctors and all of my friends and family. Please continue your insightful and informative work. Thank you.
@courtenaywells140
@courtenaywells140 Жыл бұрын
She never said "Ah" because she's not on Topamax!!!! lol
@DoItWrightRo
@DoItWrightRo 4 ай бұрын
Almost - 19:37 She said “ah” but transitioned quickly. She’s a great speaker either way.
@GinitraElle
@GinitraElle Жыл бұрын
I was prescribed it for weight loss. Only 25mg, though. Thinking about quitting it now because I accidentally forgot to take it for a couple of days and I feel more sharp in general. I really resonate with the word finding thing and it seems to be getting worse with time.
@kimbailey-e2z
@kimbailey-e2z 11 ай бұрын
me my doctor gave me the same mg but these comments are making me nervous to take it I have to lose weight,,, are you still using it and how are you feeling
@cbsteffen
@cbsteffen Жыл бұрын
Topamax is also nicknamed Stupamax for the same reason it’s nicknamed Dopamax. When I took Topamax, I wasn’t worried about side effects at first, but my memory started to get weak about a year after I got put on that medication, and I got slightly nearsighted around that same time. I felt kind of scared that the side effects would mean permanent damage for me, but they stopped completely after I got off of Topamax.
@debbieshandmadesoapco.8627
@debbieshandmadesoapco.8627 5 ай бұрын
How much were you taking?
@loreCarbonell
@loreCarbonell 25 күн бұрын
I quit the drug 3 weeks ago. How much to return to ''pre drug'' baseline?
@amandakmett
@amandakmett Жыл бұрын
Just started 50mg for migraines 4 days ago. I actually feel really good, like it boosts my serotonin or something. I do notice tingling, but have had that issue before. But all these negative side effects comments make me nervous. Good to be aware of as I more forward. Thanks for all the info
@melissabrown164
@melissabrown164 9 ай бұрын
I had the tingling in my feet, hands and lips, they dropped me down to 25 mg and that’s worked wonders. Best of luck to you 🙏🏽
@fundanindebele6011
@fundanindebele6011 24 күн бұрын
How long dd it take to work for u​@@melissabrown164
@adaragsdale3360
@adaragsdale3360 6 ай бұрын
I was just prescribed this to help with weightloss, I haven't started taking it yet....
@cherylkanzic
@cherylkanzic Жыл бұрын
First off I would like to say I appreciate your channel. I have been taking Topamax pretty much since 2004. Having bipolar disorder at that time, I was reading lots of books on medicine that could help because all the usual meds didn't work. So I asked my physicist if I could try it with my Wellbutrin. At times I was on high doses as like 300mg then went down to 100mg twice a day... This medication with all its little quirks has helped me survive my life. At my worst, my bipolar was rapid cycling and I had racing thoughts, was on edge, and never slept. Topamax calmed all that I can function as a normal person. On the plus side, my nervous tics like biting fingernails, and rapid speech have also stopped. I can listen to people now. Yes, at first I felt like a stroke victim. My doctor explained that was my brain slowing down. In hind site, she was very right. But I would rather be calm than the frazzled mess of a person like before Topamax.
@courtenaywells140
@courtenaywells140 Жыл бұрын
Hi, Zadae. Topiramate DOES have an anxiolytic (anti-anxiety) effect. I would not necessarily use it for that, but it can be a great side effect! Please don't take Wellbutrin/ bupropion with bipolar, it's a dopamine agonist and will very likely flip you into mania... fast and hard. Take care, m y thoughts are with you.
@jlopez665
@jlopez665 Жыл бұрын
Your doc sounds really aligned with mine. He also uses pretty interesting convos. He says that every patient works differently
@jlopez665
@jlopez665 Жыл бұрын
@@courtenaywells140ude unless you are the physician respectfully shut the up
@fatpinkteddy
@fatpinkteddy 11 ай бұрын
I have bpd and want to try this for my binge eating but my psychiatrist has refused to let me try it coz he said I can make me depressed
@fatpinkteddy
@fatpinkteddy 11 ай бұрын
@@courtenaywells140I am on Wellbutrin the now but read if you have bi polar you can’t take it. I have bpd. It has gave me lots of energy which I like coz before I started it I had no motivation to do anything.
@annanderson1470
@annanderson1470 2 жыл бұрын
I take it for seizures and the benefits of migraine prevention. That being said, I appreciate so much what you are doing as I am on Gabapentin as well. I'm on 300mg a day of Topimax. 1800 of Gabapentin. I have Reflex Sympathetic Dystrophy or CRPS since 30. Am now 57. Grand Mal seizures started about 5 yrs. later. Love what you are doing!! Thanks so much!!!
@journeygale3030
@journeygale3030 Жыл бұрын
Has it helped with your seizures?
@annanderson1470
@annanderson1470 Жыл бұрын
@@journeygale3030 Yes, however I have recently found out it was all stress related and I am now living in a completely stress free environment!
@KrystalRodarte
@KrystalRodarte Жыл бұрын
I have been taking Topiramate 25mg for over a year now for BP disorder “mood stabilizer” and it has been a great help. Thank you for this informative video. Just became a follower 😊
@stephunnylv
@stephunnylv Жыл бұрын
How was this effective for you? I just got an RX
@fatpinkteddy
@fatpinkteddy 11 ай бұрын
I wanted to try it for this and for my binge eating but my psychiatrist refused coz said it can cause depression
@marileemaddox5533
@marileemaddox5533 Жыл бұрын
Great info! Thank you so much. After post auto accident concussion with Cluster Headaches my neurologist ordered a Brain MRI with DTI which showed 40% -50% of gray matter and neurons affected. I was prescribed Topramax 25mg qd after STRONG intolerances to both Lomectol and Nortriptyline. I'm evidently one of those people receiving neuro-protective benefits from Topramax and function very highly on it. The other meds made me totally unable to process, unable to recall, felt like part of myself was missing, couldn't make it past 2:30 in the afternoon; felt drugged. I have now discovered numerous mistakes on my work - and was unable to see or notice those mistakes. I've just spent the last month correcting everything I did while on the other medications. I feel like myself on Topramax, although there are side affects. When my medication was changed to the Topramax the cluster headaches tripled, but when I began receiving Hyperbaric Oxygen Therapy they reduced by 75% and my spinal injuries are healing. Highly recommend! Good Stuff :)
@TreeFeather
@TreeFeather 2 жыл бұрын
About 15 years ago, I was prescribed Topamax for migraine prevention. I don't remember the dosage, but I believe it was on the low end. I only lasted about four days on it, because of the cognitive effects. The worst effect I experienced were along the lines of word-finding issues, but not exactly. In my case, I knew the words, but there was a disconnect between thinking of something and expressing it. Whether I spoke, wrote, or typed, the words that came out were not the words I was thinking of! I had just begun my first semester towards a new degree and I could not express myself well enough to complete assignments or participate in discussions. I couldn't afford to wait it out to see if it leveled off, so I stopped taking it.
@RahulKumar-kx2uk
@RahulKumar-kx2uk 2 жыл бұрын
You are very lucky. My migraines started at age 16 and I was prescribed with topamax. I took it for approx 10months. Then got sudden memory loss and mental confusion. Even after stopping it, It slowly destroyed my full memory. And got continuous pain for 11 years. Now after 11 years still I am getting very inflammation and migraine pain in my brain with pain level of 1000. Please suggest any solution for it if you can.
@TreeFeather
@TreeFeather 2 жыл бұрын
@@RahulKumar-kx2uk What finally worked for me was lifestyle changes. The first thing that helped, was removing gluten from my diet, as that can be very inflammatory. Later, I reduced most processed foods and sugars and it helped more. I also was very careful about my caffeine intake, so I wasn't creating a rollercoaster effect. I added a lot of nutrient-rich foods to nourish my body. I left my stressful job and found a very flexible one, where I had the time and support to take care of myself. I began spending more time in nature and finding quiet time for meditation or journaling. I found things to do that inspired me. The list of changes goes on and on and it has been a process over years of identifying and removing the foods and stressors that triggered my migraines and replacing them with foods and habits that nourish my mind and body. Thankfully I almost never have migraines anymore, and, if I do, they're very mild and short-lived. With my lifestyle changes and self-care, I haven't needed any prescriptions in 8+ years. We're all different, so I don't know what will work for you. I suggest researching gut health and learning what foods nourish your body and what contributes to inflammation. Also look for places in your life where you can let go of stress and find more ease. I wish you all the best on your health journey! May you find the path that works for you!
@RahulKumar-kx2uk
@RahulKumar-kx2uk 2 жыл бұрын
@@TreeFeather first of all thank you for taking your precious time to reply and nice to hear that now you no longer have migraine. I tried several medication but nothing worked. So the last option left for me is to change lifestyle. So, gluten can be very inflammatory. I have been eating noodles( its brand name is Maggie) regularly since my childhood. Now I think it is the major cause for my problem. As you said , I will remove all the foods that contains gluten and will add nutrient rich foods to my diet. I will start eating more nonveg for protein. As you said everyone's body is different, so I will try to find out my best combination which will work for me. I know I am too late for changing my lifestyle. I wasted my several years. But still if this works then I can live rest of my life happily. Something is better than nothing. I will let you know about my progress after few months🙂. And All the best to you as well for rest of your happy life🙂 May god bless you and your family.
@reggiefigueroa3724
@reggiefigueroa3724 Жыл бұрын
I'm sorry to hear about your side effects. My question is, do you still have any of the side effects that you described or were you able to recover at 💯 %? Any permanent damage? Hope that you are OK. Were you able to finish school &nd get your degree?
@reggiefigueroa3724
@reggiefigueroa3724 Жыл бұрын
In reference to word finding &nd verbal memory. Could it be possible to get such side effects immediately if you are not tapered into the medication? Meaning, taking "50mg twice daily" vs "25mg once daily"?
@janabloomfield4151
@janabloomfield4151 2 жыл бұрын
I take a low dose (25 mg), morning and evening,for chronic headaches. I find it slightly helps. I appreciate your lectures!! Thank you :)
@joanneschmitt296
@joanneschmitt296 Жыл бұрын
Beware of memory changes. I also took 25mg and it effected me greatly over several months.
@trishans4295
@trishans4295 Жыл бұрын
​@@joanneschmitt296I am also talking it but my problem is related to sleeping issues like more than 11 hours I am sleeping a day and its really a affecting me coz I am student and my study is getting pending plz help
@jonspengler5891
@jonspengler5891 7 ай бұрын
@@joanneschmitt296does it help with headaches?
@AllThingsHouseplants
@AllThingsHouseplants 2 жыл бұрын
came for the info on the medication, stayed for the plant stained glass window in the back😍🔥
@AllThingsHouseplants
@AllThingsHouseplants 2 жыл бұрын
very informative info thank you for this video! going to try this medication for migraines. I have multiple sclerosis and syringomyelia and suffer from chronic pain, gabapentin didn’t help me for that
@icareforyourbrainwithdr.su7103
@icareforyourbrainwithdr.su7103 4 ай бұрын
@@AllThingsHouseplants my mom made those!
@karlamorales3719
@karlamorales3719 3 ай бұрын
Thank you so much for this video. What is the benefits of taking Topirama with Merformin for weight loss?
@CG-un4tr
@CG-un4tr Жыл бұрын
I found this very informative and interesting. I have noticed a number of subtle effects recently that I did not associate with taking Topiramate, but you just listed off several. I’ve been taking 50mg twice a day for 16 days. This is the second time I’ve taken it for migraine prevention. I’ve had multiple concussions, crushed and reconstructed sinuses, blown lower disks, cervical spine misalignment and all around beat myself up young. Now I deal with chronic headaches, recently, basically daily. The last year the headaches got pretty bad and were nearly every day. Full migraines weekly, sometimes multiple to several. My first week or week and a half on Topiramate this time, I noticed my extremities were very tingly. Like, a lot. I assumed this was just another spinal related thing. Even my nose and lips got tingly. Fingers and toes the most, nose and lips some, less the farther back on my head and farther up my arms and legs you go. The headaches did start to get milder in as little as about a 7 to 10 days in though. I also have had a few days where I forgot to eat lunch, very uncharacteristic of me. I could use to drop some weight, hope that sticks. It’s also been quite stressful lately, our 1st kid is 4 1/2 and the 2nd is due in March, wife is very pregnant, there have been some complications, and it’s been stressful. I didn’t realize it at first but I feel like I’ve been a bit more chill through the chaos and constant demands this last week. Overall I’m happy with the effects. I’m getting more done, headaches are slowing down, only 2 migraines since starting and those were in the first 4 days, the tingling is getting lighter, and I did chores for 5 hours yesterday after work before sitting down to have dinner at 9pm. So, moving in a good direction. 😅
@courtenaywells140
@courtenaywells140 Жыл бұрын
If you don't have a neurologist, you should. Your health concerns are very specialized and deserve specialist treatment. Get a second opinion at least. And, ask about adjuncting the medication. Sounds like it is working but maybe not quite enough?
@CG-un4tr
@CG-un4tr Жыл бұрын
@@courtenaywells140 It was helping, just had the added effects. I have since ran out and am “so so” on headaches. We just had a baby, so follow up appointments have been on the back burner. Lol Update: As of Jan 24’, I still take the Topiramate, it seems to help. I also found that Grounding seemed to make a compounding effect. Tested this on and off with very definitive results. Grounding helps. Last items added was a sea moss supplement and more Vitamins D as I am a desk jockey. These items working together seem to have really made a great difference. Far fewer headaches, less severe and way way less progress into a migraine level. So that’s good. 👍🏼
@dustinblackman1611
@dustinblackman1611 10 ай бұрын
Weight loss wish me luck.
@ladymolly5143
@ladymolly5143 Жыл бұрын
I took it for binge eating. After about 2 weeks, I started not sleeping or eating. I lost 20 pounds in about 4 weeks. I started hallucinating. I thought people were trying to kill me. I cried and heard noises. I was diagnosed with PTSD because of the volunteer work I do with children. I went to therapy for a year. I only took it about 8 weeks before I quit cold turkey. I only took 50 mg twice a day.
@fatpinkteddy
@fatpinkteddy 11 ай бұрын
That’s what I wanted to try it for but my psychiatrist refused to let me try it coz I have bpd and he said it could cause my depression to get worse.
@sydneybristo22
@sydneybristo22 2 жыл бұрын
My friend took Topamax last year and had a horrible time with it lots of cognitive issues plus more that I dont recall that was severe. While getting off she had detachment, anxiety, out of body, hyper arousal. She said it was the hardest thing she has ever gone through. She was only on 75mg and only for a few months. Ive not had any thing like that thankfully and im on 200mg.
@tomislavzg742
@tomislavzg742 Жыл бұрын
Did she masturbate a lot while she was hyper arousal?
@62aligirl
@62aligirl 2 жыл бұрын
I have Neurosarcoidosis and experience constant headaches due to Trigeminal neuralgia. I have small fibre neuropathy in my feet which has led to restless legs at night. I was prescribed Topamax at its lowest dose for these symptoms, but discontinued after about three doses due to the brain fog which was largely reported by my husband, who said it wiped me out. I already take Epilim for my many neuropathies, and am prepared to tolerate a little breakthrough pain over the brain fog of, say, Lyrica. I have uveitis and felt worried about my vision being affected by Topamax as my eyes are constantly tired and uncomfortable. It’s a compromise. Thank you for a wonderful tutorial!
@marriott57
@marriott57 2 жыл бұрын
Years ago I took topamax for migraine prevention. I don't remember the dosage, but I believe it was on the longer side. I was only able to tolerate it for 2.5 months before I started showing signs of depression. My husband noticed a change even in my countenance and facial expressions and took me to the doctor. We had to shave off small amounts of the pills every three to four days until I finally got off them. I experienced horrible brain zaps that were very painful while decreasing the dosage. I wish I could have stayed on it because I didn't have a migraine for the 2.5 months I took it.
@JocltJoy
@JocltJoy 2 ай бұрын
I’m on 6 weeks 25 mg Topamax and only had 1 migraine ❤ I’m grateful to have had the courage to start this preventative treatment for I would have between 1 and 3 migraines a week What a difference in my life
@katherinegrant6366
@katherinegrant6366 Жыл бұрын
Hi, thank you for this wonderful information. I have been on Topamax for Temporal Lobe Epilepsy for 8 years. I also get severe depression so it has been a great mood stabiliser. I have taken up to 300 mg but am now on 100 mg Topamax an 50 mg Lamictal. Word blindness and number blindness have always been a problem and lately I’ve noticed more strange memory issues, which is why I watched your video. Kath
@XenoTravis
@XenoTravis Жыл бұрын
Just after 2 weeks of taking it I had crazy anxiety with dissociative panic attacks, crazy vision problems that made driving dangerous, muscle pain and painful spasms/jolts in my neck/leg/jaw. I never thought a medication could do something like this.
@167bustillo
@167bustillo Жыл бұрын
Hi. What dosage?
@Dony189
@Dony189 Жыл бұрын
My 13yo daughter has intractable epilepsy. She started on keppra and was hallucinating with suicidal ideations. She then switched to Tegretol and put on a lot of weight and continued to have seizures. We are now on week 7 of Topamax. She has lost alot of weight already. Mood wise she has been a bit manic and stoned like laughing at nothing. Her cognitive ability seems to be getting better..which is odd. But she is still having focal seizures we have been slowly increasing and are at 100mg twice a day.
@sallyAS4419
@sallyAS4419 2 жыл бұрын
I took Topamax 15 or so years ago, for depression, migraine prevention & ET. Titrated up to full dose, then started having dementia-like symptoms like getting lost on my way home from work. I don't know if Topamax would have been effective because I could not stay on it. Dementia-like symptoms resolved after I finally was off.
@doniellewerner7589
@doniellewerner7589 2 жыл бұрын
Hi. I was just wondering how long it took to reverse the cognitive problems you were having...? I'm going through that same scenario now.. The word finding and memory problems are getting severe so I just went off the medicine.
@sallyAS4419
@sallyAS4419 2 жыл бұрын
@@doniellewerner7589 It's hard to remember for sure. I think it was 4-6 weeks after I was completely off of the Topamax. It is really important to go off of T under a doctor's supervision. It can be dangerous.
@loriegreene9375
@loriegreene9375 2 жыл бұрын
Thank you for this channel. The brain is a very complicated piece of machinery. If we all report symptoms related to our experience with medications it is sure to help someone down the road. I had a malignant brain tumor (Astrocytoma grade 3) and had a resection, radiation (6 weeks) and chemo (Temodar). I can say that for myself, one of the best drugs is Provigil (Modafinil) as it contributes to wakefulness. The least favorite drug was arricept. It induced night terrors for me and until I could figure it out I was afraid to go to sleep. At this writing the only drug that I am taking is Modafinil. It is my thoughts that nutrition plays a huge part in how the brain works. Even though I grew up in the south and love sweet tea, I now try to keep my carbs below 50 per day. Yes, it is hard when you love sweets, but I believe that tumors also love sugar.
@ownerofphonebarbedwire1832
@ownerofphonebarbedwire1832 Жыл бұрын
Dr palmer would agree about limiting carbs to below 50. He does alot on KZbin about using keto diet to fix brain inflammation, which he thinks causes mental symptoms from depression to psychosis. I hope your health is restored soon.
@lulu36451
@lulu36451 2 жыл бұрын
My daughter has been taking it since July for migraines and has lost weight from it. That’s about the only side effect I’ve noticed so far. But everyone talking about all these side effects makes me want to take get off of it.
@bizziny
@bizziny Жыл бұрын
I current take Topiramate for migraine prevention. I came here bc I'm experiencing derealization, depersonalization, basically just general dissociation, extreme pupillary dilation, blurry vision, photophobia (aka light sensitivity), a floating sensation, slower cognitive processing, and tingling in the face. All these occured after stopping the medication for a bit then restarting it without weening myself back onto it (woops). I'm not seeking medical advice with this comment btw. Just putting my side effects out there in case others are experiencing the same thing. Feel free to reply if you're experiencing something similar. I believe I'm at 200mg rn
@CountessKek
@CountessKek Жыл бұрын
I also was on topomax for chronic migraines. This was about 10 yrs ago, started at a "normal" dose, don't remember the amt, but it did help some..dr raised my dose to i think 200 or even more, my memory isn't great probably due to the meds i'm on. Anyway i started noticing a soft buzzing in my head, that over time it got so loud i couldn't sleep or concentrate, i was a mess. The migraines were somewhat better but the benefits didn't last, i think altogether i was on it a yr, but eventually the bad outweighed the good and dr weaned me off it and we tried other things.
@Carolina_girl86
@Carolina_girl86 10 ай бұрын
I’ve been off balance with severe brain discomfort (not headaches at all) pressure and pulsating every day 24/7 non stop for 19 months now. The doctor has prescribed me topiramate for it. I hope it works.
@jessicaj.1011
@jessicaj.1011 Жыл бұрын
On it for migraines. When I first got on it about 4-5 years ago my doctor rapidly moved me up to the max dosage. I believe it was 400 a day. I was on it for a couple years with no results. Long story short I decided to taper down myself due to all the side effects since it wasn’t working anyway. I was tapering extremely slowly. Once I was taking about 200mg a day I noticed my migraines were less & less & that’s what mg. I’ve been on with roughly 2-3 migraines a year now. However, I’m not the same person I was before Topamax. I’m miserable. Not happy. I have the symptoms of a bipolar person. Not to mention many other side effects.
@dawnb1561
@dawnb1561 2 жыл бұрын
I'm new watched your Gabapentin vlog first as that caught my eye with the word brain. I've watched some other vlogs and have enjoyed the topics and your presentation. Thank you for these informed discussions. Yes, I have had the privilege of going to a neuropsychologist twice. I've been on topo for 20 yrs to treat migraines after having CVA's. Secondary for seizures that started a year later (tried many heavier seizure drugs). I was on 800mg for most of those years. Lost weight, tingling in hands and feet. Then gradually reduced down due to age. I now take 300mg. Definitely have the cognitive problems as I've gotten older. Gaba started 15 yrs ago for sleep, secondary seizures, neuropathy. Gradually increased to 200mg, now I'm on 40mg. Was taken off for a month or two and it caused me to have menopause like symptoms. I've been on Lyrica for 20 yrs for fibromyalgia, sciatic nerve pain, seizures. It's been 75mg once or twice a day. Now it's twice. I asked to lower the dosage as I could tell kidneys/liver not functioning as well and blood work showed little by little changes. For me when I went on disability 5 yrs later and had to start generics, I had to take a lot more of the dosage to get the same results. Especially topromaite. Had more side effects. As I'm on a number of meds including warfarin. A year from my strokes I was diagnosed with POTS and Neurocardiogenic Syncope too. Hope this helps. If you have any more questions send through.
@latenightladybug4505
@latenightladybug4505 2 жыл бұрын
Thank you so much for this informative content! I took Topamax a few years ago in hopes of relieving my chronic (35+ years) occipital headaches. I had all kinds of crazy side effects, not the least of which was cognitive decline. About one month in, I experienced about two weeks of no head pain (amazing!🙂). After that, however, I developed a frontal headache, which remained for the duration of the six months I stayed on the drug. After five months on Topamax, my hair started falling out in handfuls. That is when I began titrating off of it. Sadly, the brain issues have remained (can't find words, poor balance, feeling "in a fog," and at times I even forget basic facts like my phone number, what season it is, and how to use an ATM machine). I am currently awaiting results of neuropsychological testing. ☹️
@fiobee7557
@fiobee7557 2 жыл бұрын
My hair also fell out. Was taking it as an alternative to diamox (acetamolozide) for benign intracranial hypertension BIH, or pseudo tumour celebri, or i think it may be just intracranial hypertension. They keep changing modifying its name. I asked to go back to diamox. Didnt like topamax. Diamox stopped miagrane, when switched to topamax miagranes returned.
@miawallace846
@miawallace846 2 жыл бұрын
I would love to see a follow up update for this. Hubbs had same affects while on it a total of 4 months..... hope they are not permanent
@kingscore5702
@kingscore5702 2 жыл бұрын
What dose were you on ?
@noellealdi881
@noellealdi881 Жыл бұрын
@@miawallace846how is he now?
@noellealdi881
@noellealdi881 Жыл бұрын
How are you now? I’m so scared to start taking it
@JuniperXVII
@JuniperXVII 6 ай бұрын
I was referred to a neurologist for intense vertigo and nausea and mild brain fog. He suspected migraines and prescribed me this drug. Really wish I had done research before just trusting him and taking it. I already suffer from depression and take an antidepressant and mood stabilizer. During my third week of taking it I was so confused my spouse thought I was having a stroke and my suicidal ideation had returned with a vengeance. So glad I'm off of it and still can't understand why he prescribed it considering what symptoms I originally went to him for. I'll never just trust a medication again.
@eli.8991
@eli.8991 6 ай бұрын
Hi, were you diagnosed with something for your symptoms?
@lori3978
@lori3978 2 жыл бұрын
Hello, TBI and neck injury here. However it’s not just the head but the neck. I’m getting very frustrated with Doctors by passing the neck. The pain has localized in neck with pain traveling not only to the spine but runs up to behind the ears and at it worse to top of my brain. I still have pressure behind the eyes and the injuries are from a fall off of a ladder. If this seems long but I will use this note for explaining the Neurologist and insurance. Mind you I have had five CT scans within two days. None of them are of the neck . Thank you for allowing me to rant. To those who are dealing with doctors and insurance side stepping this issue please let me know. Respectfully Lori
@Omequa1
@Omequa1 Жыл бұрын
I’m am taking it to prevent migraines but I am also on a weight lost journey. I had no idea it helped with obesity and weight loss. I just thought it was for seizures and migraines. I only found your channel from a search about it. And that was only because another KZbinr mentioned her being prescribed for weight loss. Very interesting stuff. Thanks for the info.
@inquisitivesoutherntara6997
@inquisitivesoutherntara6997 2 жыл бұрын
When I tried topomax around 10 years ago for migraine prevention, it caused a different kind of headache. Every time I stood up the top of my head pounded and hurt.
@brittanyc2045
@brittanyc2045 3 ай бұрын
I have been on this previously for weightless and migraines and went off it because of the verbal delay/memory I experienced but now about 6 months later, having really struggled with binge eating and gained A LOT of weight, plus suffering from a few migraines, I want to give it another go. This was so informative, thank you.
@shannaiceson2747
@shannaiceson2747 Жыл бұрын
I have been suffering from a vestibular concussion for the last 11 months. I was only on Topiramate for 3 weeks when I started hearing voices, seeing stuff & people that weren’t not there. Other symptoms: loss of appetite (weight loss which was a plus), shaking, tingling all over, confusion (and I felt stupid), anger, and impulsive. I literally felt like a walking zombie. The reason I stopped the medication is because the suicidal ideation became stronger. 😢 I rather just deal with the migraines/dizziness/neck pain over feeling like I no longer want to live. What really pisses me off is that the Neuropsychiatrist came off like she thought I was making these symptoms up.
@courtenaywells140
@courtenaywells140 Жыл бұрын
Those are really extreme symptoms, and I'm sorry you had to experience them. Just because they aren't common doesn't mean they don't happen. I've seen some wacky side effects (not in the manuals) that were clearly med side effects. Took YEARS for the drug company to admit Levaquin could cause hallucinations, after I saw myself (right away) it in my elderly patient population. It couldn't be a side effect because it wasn't on the list, right? After all, how many studies have been performed testing topiramate on patients with vestibular concussion? If you feel that your provider isn't listening, think about that therapeutic relationship and how much trust and listening factor in to successful medicine.
@lifebeginnings228
@lifebeginnings228 Жыл бұрын
Praying for you!! 💕
@BraveRuby24
@BraveRuby24 Жыл бұрын
TOPAMAX was another medication I was on (for chronic headaches & migraines) in addition to Gabapentin, fentanyl, OXYCODONE, Xanax, BACLOFEN, robaxen, Wellbutrin, duloxetine, Oxybutyn 😅 after medical nightmare in 2007
@terriberrens2144
@terriberrens2144 2 жыл бұрын
I suffered with migraines for years. I took topamax for about 1.5 years. I went wacky but haven't had any more migraines.
@OnTheFritz602
@OnTheFritz602 Жыл бұрын
Took it for a bit and it seriously messed with my head. Made me angry for no reason, agitated, and depressed/suicidal all rolled up in one. Didn't work at all for my AUD, for which it was prescribed.
@wendiwillmon3535
@wendiwillmon3535 2 ай бұрын
I have idiopathic intracranial hypertension with papalidema. I'm 50yr old woman with a VP shunt and was told it's keeping me from going blind
@pattiburrus6964
@pattiburrus6964 Жыл бұрын
My First Seizure Doctor called this Med Dope-a-max, but still gave it to Me with Keppra/2000 mg. Twice a day. I was being poisoned by the Keppra, and My Doctor wasn't doing any Blood tests. My New Family Doctor did the Work, and let My Specialty Doctor know the results,, but the Seizure Doctor didn't change My dose, the Family Doctor did. He will be checking on My results regularly from now on.
@bd7656
@bd7656 Жыл бұрын
Great video thank you! Here’s my story. I take Topamax for migraines. I was getting them almost daily. I took 25 mgs once daily for a year then upped my dose to 50mgs. As soon as I did my side effects seem to worsen so I dropped down back to 25mgs. My side effects are extreme tiredness, tingling of hands and feet, forgetful/brain fog and I think it might make me a little nervous. I did lose weight almost immediately when starting the medication. I lost about 20 lbs. I’ve recently gained almost all of it back and nothing in my diet or exercise routine has changed. I’m not happy about it. I know I don’t take Topamax for weight loss but for me. It wasn’t a bad side effect.
@bd7656
@bd7656 Жыл бұрын
I forgot to mention I have gone back to 50mgs. It’s only been about two weeks. I’m extremely tired again though.
@courtenaywells140
@courtenaywells140 Жыл бұрын
@@bd7656 Ask your doctor about adding an adjunct medication for preventing your migraines if the topiramate is too little at 25 and too much at 50. If the 25 has NO effect, it's back to the medicine cabinet. If the 25 has SOME effect, adding a dose of a different medication for migraine prevention can be serendipity. Just ask.
@bd7656
@bd7656 Жыл бұрын
@livinthedreamfmp thank you for taking the time to respond. That’s very helpful.
@zabellarouge5090
@zabellarouge5090 Жыл бұрын
​@@courtenaywells140 m
@sandrar9608
@sandrar9608 Жыл бұрын
That’s why I went off Topomax because the way my pop tasted. Well years later thinking on going back on so I can kick the pop habit. Plus mood issues.
@lori3978
@lori3978 2 жыл бұрын
Already dealing with word finding in speech and scored low of cognitive test. Yet college level English before head and neck injury. This dose not sound like a drug I would want to take. Thank you for all the information you share 👍
@RoccoKOfficial
@RoccoKOfficial 4 ай бұрын
Ive just been prescribed this for migraines, and found your video extremely informative. Thanks !
@kimberlyerickson6725
@kimberlyerickson6725 8 ай бұрын
Cervical dystonia and head tremors. It’s been a life changer.
@caidencemyers
@caidencemyers 3 ай бұрын
My dr prescribed me this yesterday for mental health reasons, mainly to “calm down”
@krystinamartinez7407
@krystinamartinez7407 Жыл бұрын
I was surprised you did not mention it being used for Idiopathic Intracranial Hypertension (IIH) / psydotumor cerebri - especially because I do believe it is approved for this and thus not an off label use.
@Carolina_girl86
@Carolina_girl86 10 ай бұрын
That’s what I’ve been told I have, IIH. How exactly does this help it though? My doctor wants me to take this?
@bevbass7083
@bevbass7083 2 жыл бұрын
I am a 75 yo woman with ET and tried to take Topamax (aka 'dopamax') about 5 years ago at the smallest available dose. The day after i started this med i had a sudden visual field cut in my problematic left eye which has unilateral RP. I nearly had an auto accident due to the field cut. My mood was significantly destabilized and i had anger and aggression also immediately. My tremor was definitely significantly minimized almost to the point of extinction. I am a lifelong obese person and my appetite for food became nil. After one week at the minimum dose, after informing my neurologist about the adverse effects, he cut the dose in half for a second week of trial of Topamax and i developed uveitis which my rheumatologist attributed in writing to Topamax. At the end of the second week - first at something like 25 mg daily then second week at half that dose - i was told to stop the drug. I only had 10 degrees of central vision in the left eye when i started topamax, and that is my approximate current functional field of vision on the left currently, so i did regain the lost visual field cut over time. However, the left eye had several episodes of uveitis which progressed to CME (or cystic macular edema) in that left eye and i was told to expect to lose my vision in that eye at the time of the uveitis/CME although i have managed to retain my 10 degrees of central vision since with the use of prednisolone and dorzolamide topically OS. I continue to use dorzolamide only at HS and the CME has resolved. My ophthalmology care is currently at the UW/HMC and neurologist at Virginia Mason. Its a damn shame i couldn't tolerate the Topamax because if i had been able to take it it would have really helped with both my ET and also my overeating.
@lizisliz5130
@lizisliz5130 7 ай бұрын
I haven’t taken yet. Prescribed 25 mg he said okay to cut in half to see how I do on it. Its use would be off label for anxiety. I do not need to lose weight and I am careful about what I take so I had asked if I could start at a lower than normal dose and dr agreed.
@AnnetteMarieHairPrincess
@AnnetteMarieHairPrincess 6 ай бұрын
Day 1 for migraines. Will increase weekly to 100 by week four. My migraines are so bad that I need to try something. Thank you for the information. I can’t complain about my neurologist he was so informative and listened to me. He took his time. I was actually surprised and thankful.
@icareforyourbrainwithdr.su7103
@icareforyourbrainwithdr.su7103 6 ай бұрын
I always love to hear of a great doctor-patient interaction! So glad you felt supported.
@travisodell1678
@travisodell1678 Жыл бұрын
WOW...Thank you Sooooo much for your informative, thoughtful. well-presented information. I am struggling with whether to start Topamax for migraines (My Dr. prescribed it 2 months ago and I think today is the day I'll start). I have feared risking damage to my eyesight, but I have migraines 3-4 days a week and I am so tired of them. I'll stay in touch to share my experience.
@Anonymous_Anon882
@Anonymous_Anon882 Жыл бұрын
How’s it going?
@laurab9518
@laurab9518 11 ай бұрын
I took topamax for about 8 years and I move been it off it a few. My vocabulary has not come back to where it used to be. But I have a slightly easier time learning new phone numbers now and remembering what day it is
@mantisfilms7821
@mantisfilms7821 8 ай бұрын
What dosage?
@rosscopantani4678
@rosscopantani4678 9 ай бұрын
I was a cluster headache sufferer from the age of 14 to 32 and tried all the drug available to try and get rid of them, when topamax came along it was like a life saver. Anyway i ended up on a very strong dosage and my doctor let me self dose without any help and i ended up on 300mg a day. I now suffer from very bad memory loss, depression, struggle to remember words and so on.
@nicohendricks9549
@nicohendricks9549 6 ай бұрын
When you say Cluster headaches, what type of aura did you have? I have been diagnosed with cluster headaches and I have several auras before one will hit! Can you please describe if you don't mind how your cluster headaches have dealt..
@kathybell3711
@kathybell3711 2 жыл бұрын
I had to stop taking it as I was losing cognitive skills. I could not remember how to open an email on a computer. I did not know what to do with my hands and felt very panicky. I also while driving I had such blurred vision I had to pull over to drive. I could not remember how to proceed. I finally called my husband. I worked at a very important job with Blue Cross Blue Shield as a Provider Telecommunications Center. I furnished benefits as well as helped providers with claim status. I had to remember where to find the information as well as I had to translate it t the staff at the Doctor’s Office. I found I was unable to fulfill my job that I had for 8 years resulting in my loss of job. I no longer take Topamax and have it on my Allergy list. To this day I still suffer from cognitive problems although it has gotten better.
@latenightladybug4505
@latenightladybug4505 2 жыл бұрын
I'm so sorry for what you have been through with this! My situation is very similar ☹️
@TheAQUAJAG
@TheAQUAJAG 2 жыл бұрын
I was prescribed topamax by neurologist for migraines and seizures back in 2006. I do not remember dosage or how long I actually took it. It is now on my list of medications allergies. I had horrible cognitive side effects. Couldn’t speak with any intelligence because there was such a delay from the thought in my brain to getting the word out. I also had memory loss that never returned,
@dianegraber9333
@dianegraber9333 2 жыл бұрын
Wise decision to put this drug on your allergy list at this time.
@TheAQUAJAG
@TheAQUAJAG 2 жыл бұрын
Very sorry for everyone who experienced effects from topamax. I thought I was the only one all this time. Most people including Doctors don’t understand and I felt like no one believed me. I am grateful for discovering ‘ I Care For Your Brain with Dr. Sullivan’ and reading all of your comments. Thank you.
@mantisfilms7821
@mantisfilms7821 8 ай бұрын
What dosage did this to you? I'm only on 25 mg so I must have been born impaired.
@christiangallagher7155
@christiangallagher7155 2 жыл бұрын
Topamax gave me induced akathisia. I have had a lot of meds that caused akathisia and now I am so scared to take anything. I wish you would do a throughout video on akathisia. I can't imagine there being anything more frightening, painful, horrible, or uncomfortable than akathisia.
@peggyleone5482
@peggyleone5482 2 жыл бұрын
I was originally prescribed it for my migraines quite a while ago. Now it does double duty as it also helps my orthostatic tremors.
@CrystalChilds-l9q
@CrystalChilds-l9q 24 күн бұрын
LOVE your office. Working towards becoming a neuropsychologist. Working on tapering off topamax right now.
@MommaBear-ni3tz
@MommaBear-ni3tz 2 жыл бұрын
I've been on Topamax @ 400mg for over 20yrs for migraines and I'm also on gabapentin @ 3600mg a day for over 10yrs!! I have the memory problem big time it frustrates me when I know the word but can't say it!!
@shirleyblevins79
@shirleyblevins79 2 жыл бұрын
I havent taken Topamax for 5 years but I was on it several years for migraines. I had really bad brain fog, no desire for sex or being touched in any form, easy to get upset. Few other effects. i took myself off of it cause it wasnt getting better. Within 3 weeks of being off it side effects started to subside. It wasnt even helping my migraines. Yes my eyes hurt and my vision got so bad. That part did not improve after stopping it. I also had numbness and tingling in my fingers and still do.
@bertrandlewis4906
@bertrandlewis4906 Жыл бұрын
Exactly that bullshit made my dick limp. My mom was so adamant that I take that headache causing, libido killing, appetite killing bullshit.
@frankierodriguezmartinez7135
@frankierodriguezmartinez7135 Жыл бұрын
I’m taking it for tremors on a tbi 25-250 it’s been life changing 🎉haven’t had any tremors ever since thank goodness 😅
@marmeone
@marmeone Жыл бұрын
I took two doses on the advice of my neurologist, for seizures. I hated the way it made me feel. I had a TBI. T made my brain feel chaotic. I couldn't think. I just felt like I wasn't here. Told the doctor I won't take it again. I never did.
@FightingMECFS
@FightingMECFS 2 жыл бұрын
Extreme Joint/bone pain or stiffness with topamax: When topamax was much newer for migraine, my neurologist prescribed it to potentially help reduce my migraines .... im not sure how much it really helped there and initially i had no discernible side effects until i started experiencing a sensation of locking up in the hips when in a squatted or bent position, i dont know how else to explain it other than it felt like something would break if i straightened too quickly and it was painful - because of the duration i was taking it, it took QUITE a long time to figure out the connection... as soon as i stopped the topamax this stopped and it was the joint pain and random bone breakage warning in less common side effects that even tipped me off that there might be a connection .... sharing in case anyone else has a similar experience after taking topamax
@kimedwards4153
@kimedwards4153 2 жыл бұрын
I also have the feelings that my bones will break but never thought it would be this . Thanks for this information.
@FightingMECFS
@FightingMECFS 2 жыл бұрын
@@kimedwards4153 it took me quite a while looking for an explanation because id taken topamax with seemingly no side effects, i only looked at the side effects out of desperation, i was far too young at the time and i did manual work outdoors and under homes so it became a daily concern and was having a major impact on my work (and personal life impacts became extremely awkward 😜)
@miseducationnation
@miseducationnation 4 ай бұрын
I am currently on Diamox for IIH, but can't tolerate my target dose due to it's side effects. My neurologist is considering adding topimax on top of my Diamox to get my intracranial hypertension under control and prevent blindness, and it was recommended years ago by my PCP to prevent my migraines, which I also struggle with. I have heard anecdotally that topimax affects memory in pretty astounding ways, which is concerning because I'm already struggling with brain fog, word finding, stuttering and short term memory. Thank you for posting this!
@danielbartlett2381
@danielbartlett2381 25 күн бұрын
My wife was given topamax for weight loss and is having all the symptoms described and now she is wanting to go off it and is suicidal and having a horrible time. This was given to her to loose a small amount of weight. It’s insane that this is a legal thing to do to someone. No other weight management strategies were pursued before using this dangerous drug!
@DrBatoul
@DrBatoul Жыл бұрын
I reached a dose of 300 mg/day. It gave me the fogs, difficulty with finding words but helped with weight loss. Now that I stopped it I can’t control my appetite. I’m considering going back on it
@kadym4164
@kadym4164 2 жыл бұрын
I have been on it since 1996 for migraine control. It was very successful in the early years as my migraines were extremely severe and I was on Morphine injections at home x5/ week to manage them. I also have ME/CFS/FM. I am on 100 mg BD but am still getting migraines regularly and have to have a Morphine injection from my GP every couple of months after severe stress or vaccines like Fluvax or Covid vaccine. I have tried a couple of time to reduce the dose but my migraines have increased severely. Over the last 20 years I have noticed increasing nominal aphasia and memory issues, brain fog that is different from the brain frog of ME/CFS. When I began taking Gabapentin for the neuropathic pain of the FM the nominal aphasia becomes a lot worse. When you were talking about personality changes with Gabapentin I think that happened with me when I was back at work as a Midwife for 8 years, in the last couple of years as I was getting a lot of patient complaints about me saying things that I did not remember saying and would not usually say - were totally out of character for me, being very unkind or rude etc. I was also finding that I was getting very drowsy when I was driving and often had to stop and rest on my way home on a 30 minute trip. I felt SO much better when I took myself off all those drugs and lost 30kgs in the process. I also came off my anti-depressants and half of my blood pressure meds. I have been very concerned about dementia symptoms for years but all testing came back normal. QUESTION: I have been in therapy for severe childhood trauma that triggered the migraines at the age of six and they got a lot worse when I began therapy and the repressed memories returned. After 31 years I have made great strides and am seeing a new therapist who is dealing with the work in a very less trauma inducing way and I am not getting depressed or stressed after my therapy sessions. So could this be a good time to titration the doses down? Does Topamax cause cataracts?
@jaedtobey791
@jaedtobey791 Жыл бұрын
EMDR with a licensed clinician has GREATLY helped my childhood trauma❤
@LINERIC44
@LINERIC44 2 жыл бұрын
Could you share latest research on neuro-feedback?
@Slipcoverchic
@Slipcoverchic Жыл бұрын
I am tapering off this drug as of yesterday. Because the day before that I found out that the pressure in my eyes that the doctor has been been watching for years shot up over the year I have been on it. Now I am now on drops to lower pressure in my eyes and possible looking at surgery for glaucoma in December! I read the package quickly when I bought it but quickly forgot all it said and that is not good. I kept telling two different medical professionals I could not get any quality sleep and some nights only 3-4 hours. I told them my memory was not as good as it used to be, WORDS especially would not come to me. My husband was having to finish sentences. But because of covid and all it’s weird lasting symptoms, they were chalking it up to that. Never again. I am going through the rest of my meds and looking back at their side affects now. Getting off this 🚂 train as fast as I can.
@justinad1520
@justinad1520 6 ай бұрын
So i was perscribed this for alcoholism because i totally cannot do naltrexone. My provider told me side effects were minimal, aside from weight loss and a bad mouth taste. I drive for a living so I'm a bit skeptical with the feild of vision thing, although i typically work on a mix of benzos and opiods.. ive never been in an accident and im very cautious, but this makes me very weary. I was planning on starting tommorow.
@justinad1520
@justinad1520 6 ай бұрын
Also, i have had 13 drinks in 3 hours on an empty stomach upon posting this. Maybe (hopefully), it wont impact my field of vision?
@JenniferWells-s5k
@JenniferWells-s5k Жыл бұрын
My doc wants me on it for insomnia and weight loss but I am leery of the glaucoma and other risks.
@briangorton5790
@briangorton5790 2 жыл бұрын
I’m new too, hopefully learn something about brain seizures, two in fact over the last 4 years and I’m a fit 75 year old pensioner!
@ladymolly5143
@ladymolly5143 Жыл бұрын
Could not take this. I was taking Prozac and it did not mix with this. I hallucinated and had full blown panic attacks.
@Pistolpete-iv8so
@Pistolpete-iv8so Жыл бұрын
So Im kinda scared of taking it due to the side effects, can someone please tell me how it works and what side effects you guys have experience? What major side effects and how did you fix it?
@pepper419
@pepper419 Жыл бұрын
Word finding: It does happen to me all the time. It's called anomic aphasia and it downright drives me up the bloody wall. If someone asks me a question, I can't answer it because it's a name of something or somewhere.
@toni4729
@toni4729 2 ай бұрын
My word problem never left me and my attention rate only returned after I cut back. I'd been on it for eight years.
@zoedukuly284
@zoedukuly284 Жыл бұрын
I just got prescribed Topamax, 50 mg as a night pill for Schizophrenia. I was on Seroquel for 10 years and I got tired of the weight gain. I also deal with Arthritis and constipation. So Topamax was prescribed. I take Paxil in the morning. I'm researching the drug first.
@donor4053
@donor4053 Жыл бұрын
It messed my stomach up.. felt like my intestines had a blockage .. I stopped taking them , and it took about a week for the pain to go away. Went to my doctor, told me I was probably just sick from something else , started them again….. same thing.
@crirojas8592
@crirojas8592 9 ай бұрын
I am taking that starting today, I'll keep up posted with the effectiveness. Thanks, I found your video very informative. 😊😊
@kimmyjean21
@kimmyjean21 6 ай бұрын
How did you do on it?
@lolasong7880
@lolasong7880 3 ай бұрын
Update??
@pureromancelovers16
@pureromancelovers16 3 ай бұрын
I have been on tomapax for years for having epilepsy. I'm 200mg morning and night. I just upped it 50mg.
@The469mamapoo
@The469mamapoo 2 ай бұрын
I was on topamax for 6 years taking 100 milligrams every night and I just quit cold turkey on the 11th so I am on day 7 and I have been feeling very depressed and aggravated and I’ve been crying a lot but I would rather go through this then to continue taking it. Hopefully the side effects go away soon
@LindaTablada
@LindaTablada 24 күн бұрын
Last year I took Topiramate/Topomax for weight loss with phentermine and it was very effective with combating cravings specifically. I no longer had any desire for salty crunchy snacks. I put 10 lbs back on in 1 yr and my NP prescribed it again but only Topiramate alone.
@moniquem3738
@moniquem3738 17 күн бұрын
My doctor prescribed this med for me for weight loss but idk if I want to take them now
@themichael3105
@themichael3105 7 ай бұрын
I was just prescribed Topiramate today for seizures. I'm a little confused about how it's supposed to stop the electric current, because my understanding was that a seizure occurs when the electric current stops or gets interrupted. I was on Dilatin and Gabapentin, but Doc says this is a better medication for me. I really hope this works, cause everyday is horrifying thinking that I can have a seizure at any given moment. Thank you for your channel. Best regards...
@kathybell3711
@kathybell3711 2 жыл бұрын
I wish I would have known the risk.
@iananttila
@iananttila 8 ай бұрын
I started on Topamax when it was still experimental in 1994 by the late dr Frederick Andermann where it was a miracle med for me as prior to it, the longest I went seizure free was 72 days, the day I started Topamax I went 1023 days clear then my pharmacy accidentally gave me a generic which caused a severe flare of seizures
@inquisitivesoutherntara6997
@inquisitivesoutherntara6997 2 жыл бұрын
I would love a video on amitriptyline. Especially the link between it and female hormones.
@123-g8z8c
@123-g8z8c 13 күн бұрын
i take 100mg divided into 2 doses daily for BPD symptoms ive tried dozens this is the best for me out of them all
@Missmiapie
@Missmiapie 11 ай бұрын
Was prescribed low dose for weight loss along with phentermine. Thoughts for weight loss? Dose is 25 mg. And 15 for phentermine
@NancysNibblesofLife
@NancysNibblesofLife 10 ай бұрын
How did that go for you?’I’ve been prescribed the same
@TheJennipherh
@TheJennipherh Жыл бұрын
I was just prescribed this for weightloss
@bizygirl1
@bizygirl1 Жыл бұрын
Same
@germillmitchell8463
@germillmitchell8463 Жыл бұрын
Any side effects ?
@TheJennipherh
@TheJennipherh Жыл бұрын
@@germillmitchell8463 yes, I have tingley feet at times and extreme loss of appetite.
@journeygale3030
@journeygale3030 Жыл бұрын
​@@TheJennipherh how long did your weightloss take?
@TheJennipherh
@TheJennipherh Жыл бұрын
@@journeygale3030 well, I am still working on it. Down 26 lbs so far.
@melodytallmage532
@melodytallmage532 Жыл бұрын
You are a blessing your willingness to d the proper research to give the ra honest information thank you very much
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