Neuroplasticity & Digital Health: The Future of Pain Therapy | Dr. Elan Schneider

Dr. Schneider is a physical therapist specializing in neurorehabilitation of chronic pain. He co-founded the Retrain Pain Foundation, a non-profit organization dedicated to pain education, and has created educational content used in pain clinics throughout the world in over 30 languages.
Dr. Schneider is also the co-founder of TrainPain - a digital health company developing novel technology for pain related neuroplasticity. He is optimistic about the future of pain care and is a passionate advocate for public awareness of modern pain science, and its implications on policy, health care systems and improved patient-centered care.
To learn more about complex regional pain syndrome (CRPS) and reflex sympathetic dystrophy (RSD), visit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)’s website at rsds.org.
#RSDSA #CRPS #RSD

[@luke144]

I sure hope someone figures something out soon!! My quality of life is LOW!!! I live on the kindness of others and it's running out!!

[@mercy3219]

The psychological studies tend to be of short duration and that does not seem to match my experience with medication and CRPS. It can take 20-30 min. to feel the shift from very painful to a significant reduction in pain. When these experiments get constructed, it would be useful to actually speak with CRPS patients to understand why their experiences of pain are of a different type. In my early life experience, I was able to have dental fillings, etc., without novocaine -- the process might last 40 - 90 min. One of the problems I see with pain is the way patients are communicate about pain. To select a number between 1 and 10 to represent an entire month is ridiculous. To identify areas of the body where pain is felt without stating the type of pain experienced (deep boring pain, sharp pain, burning pain, etc.) where the vocabulary that could be used to speak about the pain experience does not get used in the medical practices. Broad terms are not very valuable to evaluate the patients who are working to do things to reduce pain do not get an opportunity to speak about the changes they feel, instead it becomes a blurred amorphous thing we talk about in an abbreviated way that does not help the patient differentiate their status. So, the chronic pain is handled as one statement. Our words help us to form our reality. I guess I'm rather disappointed in the discussion today because it does not have much focus on CRPS -- this is quite typical to the current medical practices where chronic pain and CRPS are treated as the same thing.

[@ShepardfortheLord]

Sending kindness, love and Grace your way 🙌😇

[@luke144]

This is a scary way to look at people suffering. I don't know. People that haven't suffered hellish pain I have a hard time listening to their advice. We don't even know what neurotransmitter is responsible for pain. They used to call it substance p. The science behind pain is a guessing game at this point. From my perspective anyways. I've tried it all and NOTHING has solved the problem. Some of it made my life far harder. There's not help for the poor. You need money for help and after loosing it all to pain money is pretty tight. I've lost track of the people that chose the off button waiting. My life is hell and I'm so tired of screaming for help!! I've been to countless psychologists and not one has helped me. The last thing someone needs to hear that suffering lifetimes of pain in a day is it's all in your head. Those words have killed a lot of people! Telling crippled people that PT is the answer is really hard for someone that has a hard time moving or even getting out of bed with no way of getting to a doctor seems sadistic. To say they need to exercise kind of seems like a "no s***" in my opinion. If you haven't lived with the debilitating disease you just can't relate. It's impossible. I'm not saying that painkillers or drugs are the answer by no means, but I don't know if this is. I try to keep an open mind and try to try everything that's thrown at me. I've tried several kinds of stimulators, I've tried drugs, I've tried physical therapy, I've tried mental therapy with no results. Distraction is the only thing that helps. What do I do, live in vr? What?

[@deanbacon8245]

I so agree with you , I've told that to so many too !!

[@ShepardfortheLord]

Sending love and Grace your way 🙏

[@selbst105]

thanks for the interesting lectrue about pain. now i am at 30:21. oh, it is sad to not go to a physiological or psychological therapist for therapy but to make things at home with a machine. for me the help was, that a therapist, a human being, a person was speaking with me. we are interactive beings, interconnected beings. our relationchips are important, i guess and i got the impression. another point, it is said that the government makes new guidelines etc. to intergrate new research results and findings. but you know i think, society shuold change, how we treat one another. if we are kind, positive, friendly as humans to humans, respect the being with its ability (the brain all the functions to be present that are in our system) and structure and also use the ability that would have a large impact on our well being and health! one physiological therapist .. i spoke with him in a moment about my unemployment, and it is always a rejecting reaction on telling that people. there he said, that is totally fine, i do not judge it. he told me everything is noted by our amazing body/sytem on many levels (also psychiologically, emotionally physiologically). the way we are, speak is important and has influence how we percieve it. and makes an impact on hwo we see ourselves. so he was carefull with me and that made a huge and different impact on how i feel!

[@ShepardfortheLord]

I have a good relationship too with my physiotherapist.

[@joeclark2909]

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