New to Sight Loss - My Journey

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Low-Vision UK - Terry's View

Low-Vision UK - Terry's View

Күн бұрын

#LINKS
Blog: www.low-vision...

Пікірлер: 18
@BlindtoBillionaire
@BlindtoBillionaire 5 жыл бұрын
Hey, this is an excellent video. Thank you very much for sharing your story and your perspective. It was fun to listen to you. It’s cool that you’re also a blind KZbin or. I am too! Thanks again, Matt
@LowVisionUKTerrysView
@LowVisionUKTerrysView 5 жыл бұрын
Hey Matt. Thank you for commenting and your kind words
@PatriotInTheDark
@PatriotInTheDark 5 жыл бұрын
No worries, one thing at a time. Cane training is so important for your Independence and confidence. You are not alone. Stay vigilant. We’re all here to support and grow. Blindness is just another adventure
@LowVisionUKTerrysView
@LowVisionUKTerrysView 5 жыл бұрын
Thank you :-) Things have significantly changed since this vid. I am now registered Blind, and whilst I don't LOVE using my cane, without it, I just couldn't go out and do the things I do now. I am also now on the Waiting List for my first Guide dog which I am very excited about. I LOVE the Visually Impaired Community - It really has given me so much more confidence and the support (including yours) is amazing. Thanks so much for your comment - and all the best to you also
@alicebrookes8247
@alicebrookes8247 6 жыл бұрын
Great video, Uncle Terry, lots of love! Xxxxx
@LowVisionUKTerrysView
@LowVisionUKTerrysView 6 жыл бұрын
Aww, thank you my beautiful Princess x x
@gigi4822
@gigi4822 4 жыл бұрын
Hello great video I hope your getting on better I got diagnosed with retinitis pigmentosa a few months ago I’m 22 in January and live in London I still can’t believe that one day I will be fully blind and I feel really scared and have my days where I think I would rather be dead but I watch videos like yours and honestly I feel better I’m not the only one going through gradual sight loss. I hope you all the best
@LowVisionUKTerrysView
@LowVisionUKTerrysView 4 жыл бұрын
Hi there. Thanks for your comment. I am pleased my video has helped in some small way. I felt exactly the same, and then found you tubers going through what I was, it helped me a lot too. All too often, you feel scared and alone, and I totally relate to the feelings you describe. I am now registered Blind, but do have some residual vision, albeit very blurred. It still scares me whitless that one day, even that will also disappear - so, arming myself with as ,many skills as I can, whilst I still can. So many useful apps out there, and if you think there is anything I can do to help at all, please shout out, and I will happily do what I can. We certainly need to support one another, and it helps knowing you're not alone
@gigi4822
@gigi4822 4 жыл бұрын
Thank you very much, do you mind me asking how you lost your vision?
@LowVisionUKTerrysView
@LowVisionUKTerrysView 4 жыл бұрын
@@gigi4822 Dont mind at all. Mine was through Diabetic Retinopathy - have been diabetic on insulin for many years. I had a bleed in my eyes some 15 years ago, and had so much laser surgery to stop the bleeding over a number of years. This in itself destroyed some of my peripheral - but over the years the diabetic retinopathy has taken over and especially in the last 18 months
@gigi4822
@gigi4822 4 жыл бұрын
Low-Vision UK - Terry's View iv heard of diabetic retinopathy I’m sorry to hear you have that but I like to think your doing okay so far you strong for getting this far don’t let it get you down now! Have your moments but don’t let it control your mood/day/thoughts I really wish you all the best and hopefully there is looking like promising advances in the medical field lets be positive and hope that there will be a cure one day just like all the other once deadly diseases! I am here for you and I will continue to watch your videos because I am in the same boat as you and I am at a point where I NEED honest but positive advice from people going through same situation. I pray god keeps the vision you still have left and you live happy and can move on from this. Good luck
@LowVisionUKTerrysView
@LowVisionUKTerrysView 4 жыл бұрын
@@gigi4822 Absolutely. I think videos have to be honest, otherwise there is no point. However, you have to be positive - because we cant change it. I truly believe that loosing ones vision, takes you through a grieving process, like any other loss. You need to grieve. My rehabilitation chap assigned to me when I first was registered partially sighted said to me, you need to focus on the things you CAN still do, rather then the things you no longer can. I have learned, that I can still do most things, but just in a different way, and thats the great thing about the blind community, there is so much help out there if you look for it. Down days, or course, but more good days than bad - so, onwards and upwards :-) You sound as though you have determination my friend, and that will take you a long way. We cant change what is destined for us, but, we can learn to live with it, and maintain a fulfilling life all the very best to you and yours, and hope to see you back on the channel in the future...Terry
@BlindNeil
@BlindNeil 5 жыл бұрын
Great first video. Thank you for sharing your story . By now you must be getting around a bit better . I have been using my cane for 26 or so years now. Saved my butt more than a few times.
@LowVisionUKTerrysView
@LowVisionUKTerrysView 5 жыл бұрын
Hey Neil. Im like a little Ninja now with my cane haha. I still don't like using it - but, as you say - its does save our butts from time to time haha
@Eviemay2
@Eviemay2 5 жыл бұрын
Great video. What eye conditions do you have, can I ask? I've proliferative diabetic retinopathy. I'm not registered visually impaired, but do use a cane in poor light as I've had a few falls in the past. Feel much safer and get out much more now I have it.
@LowVisionUKTerrysView
@LowVisionUKTerrysView 5 жыл бұрын
Hi Evie hanks for your lovely comment. I have Diabetic Retinopathy and something called CSR. I am now registered blind, but do have some useful vision still, albeit very slight. You may find that being registered entitles you to some benefits, such as a metro card etc, =depending on where you live? I am pleased to hear that you feel safer with using a cane - it helps me no end, in fact, I never leave home without it
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