NODCC - "Alyssa's Story"

The latest in a series of videos by the National Organization for Disorders of the Corpus Callosum (NODCC) to raise awareness for disorders of the corpus callosum.

[@elizabethbelloEMPOWERS]

I found out about my Complete ACC at 51 years old and said......now I understand the why "I knew I was different" after all this time. Your story is full of hope, I thank you for telling it!

[@Zolwena]

Being the parent of a daughter who had C-ACC I want to say hello and I want to thank you for sharing your story! One day at a time, one step at a time... Huggles!

[@shabuj100]

Every thing she can do. Is there Creator? My heart is broken !

[@mskitt49]

God bless your babies!❤❤❤❤

[@41sandybeach]

Wanting to have another child knowing it will have disabilities is for yourself and therefore selfish. It is not fair to a child who will have to go through life with struggles having disabilities.

[@_Z0YA_COOKS]

Girls look so happy and healthy.

[@linm9598]

You have two beautiful, incredible daughters

[@HopesSeizures]

This gives us hope for our baby girl Hope x yoyr such a great momma x keep strong x

[@girlivinglifex]

We need more information about this ..I was so worried when I was pregnant. There's not enough information!

[@sayusayu688]

Yo tengo 25 semanas de embarazo y en la neurosonografia salió que tiene ACC y me sugieren interrumpir con el embarazo 😢

[@Modern_tiffin]

@@sayusayu688 hey, can you please share more? I am in the same situation right now. I want to know what did you do?? Any update?

[@sophiepalmer-doran344]

I have absence seizures. I was diagnosed at the age of 5 but have been seizure free since the age of thirteen and so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point an then it becomes a pill no pun intended. my triggers are flashing lights, specifically the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors though I did hope for a regents diploma but after taking the algebra common core regent seven times starting out with a 40 and ending up with a 57 oh well. I start collage in July not august as you can infer I was not expected to do much of what I just mentioned The effects of my seizures is that i have Aspie like tendencies due to my epilepsy which i know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself and so i have all of the symptoms of Aspergers but lack any sort of understanding math as a result i have no understanding of money and never really learned my basic math facts.(i am just learning them now in college which for most Aspergers people they are gifted with math abilities )i also have orthotic because due to my seizures that i had straight feet at birth After my father died, it seems I have had a relapse if that is possible. i still have my absence seizure but it is not enough to put me on meds . i have been getting driving lesson and have 10 -20 seizures in the drivers seat. i take omega 3 cod liver oil liquid form as i can not swallow pills this helps decrease the too -small -to -medicate -seizures i have very small seizures that show up on the EEG as misfired neurons and the Dr. called them "flurries" so here is what my flurries are typically like i will become very spacey i can not interact with my surroundings i also felt locked in to place.

[@liveloveblog8274]

wow !!!i have girl with ACC SHE IS NOW 14 MONTHS she was late developed sitting at 11 months and standing crawling at 12+months .im so scared how the outcome will be .

[@Thunderpaws111]

It is a shame this short video didn’t attempt to explain what the condition was, how it was caused, or the long term outlook for this precious child.

[@notatallimsorry2356]

my baby has CACC，please pray for it

[@vikasahuja2281]

touched

[@girlivinglifex]

My baby has ACC he is doing well atm

[@shabuj100]

I am unlucky father . I have a daughter Raisa 6.5 years old who is suffering from L.G.S epilepsy . How I save my daughter with my income. We are two teacher with low income . I can bear with what to do.

[@familylove5412]

Wow

[@Godfavorabletome]

My grandson 2years an 3months and he is not doing anything not talking not walking sigh

[@snehaabrol7472]

Hlo

[@vivalaleta]

No, your children are lovely and worth it all but what about when you're gone? It isn't moral to keep having medically challenged children when you know the odds.