NOT THE TYPICAL CF PATIENT | Erin Mahaney

[@semiseriouschefs4629]

That sinus nebulizer photo was THE BEST THING EVER! Thanks so much for sharing that! I love your ability to laugh at all this. :) AAAAAANNNNND !!!!! I had no idea there were nebulizers for the sinuses! I know a woman who was diagnosed with CF (unknown gene) as a toddler who decided she was 'done taking medicine' at the age of 10 and has never taken a single pill or other CF treatment since, and is perfectly fine. My son seems to also be unusual in that he is nearly 'over-weight' with one delta and one stop (x) mutation; no hospitalizations or IVs yet at age 7+. But he does grow MRSA and has fully stuffed sinuses. They just don't seem to cause him trouble. Does your family have a genetic disposition to natural weight gain? I don't mean this rudely, but it seems so with my husband's family, and we know that 'good body weight=good lung function' so I wondered if our families had this in common; you and our son, who is doing so well.

[@2listening1]

I'm glad you don't have to be "typical" Erin! :)

[@2listening1]

Oh, my Gosh, that's terrible that there's a shortage of sterile water!! =O