Nutrition and Exercise for Muscular Dystrophy Patients with Mark Tarnopolsky | MDC - DMC

11th Edition - 2018 Nationwide & Bilingual Neuromuscular Symposium
Nutrition and Exercise for Muscular Dystrophy Patients with Mark Tarnopolsky | MDC - DMC
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[@gtgodbear6320]

I used to have enlarged calves and enlarged triceps untill I got gastroparesis. I spent so many hours sick and dehydrated that my body ate away my enlarged calves and triceps. My triceps actually had a lot of strength instead of weakness. But they were very easy to strain/cramp up if used too much.

[@gtgodbear6320]

I have Becker MD. It's the same as duchene's it just Progressive slower. My uncle and brother has DMD and i have BMD.

[@nishargakabir745]

Great!

[@lindakolach6263]

Thanks so much for this great info. I have FSHD.

[@MDCDMC]

Glad it was helpful!

[@erikandersen9430]

Fascinating video! How can I get hold of someone from this research centre so speak to us here at MDF in South Africa? I wish this info was more widely distributed. After 30 years with MD I have not come across studies like this. Well done.

[@MDCDMC]

Hello Eric, you can contact our research team at [e-mail]

[@puneetsharma6653]

I am a DMD patient. Pls. Suggest a creatinine supplement.

[@mreudeco]

Not creatinine but creatine. Buy any brand but only creatine monohydrate. It’s quite cheap and very effective.

[@holyquran3285]

I am sick with muscular dystrophy and I want you to help me, thank you

[@MDCDMC]

Hi Ahmed, MDC has a number of support services and programs. What do you need help with?

[@nasheemashahbazi6055]

السلام عليكم ورحمه الله وبركاته I have a friend with this disease. Did you get anything for treatment that helped you. I would be very appreciative of anything you can share. Shukran.

[@gtgodbear6320]

I wish I could learn to edit. I'd like to show myself naked with privacy Shadows so people could see the extreme ravages of muscular dystrophy. I have bmd and doctor say it's the most extreme case of BMD they have ever seen. I can still walk but it should be impossible. My thigh muscles are completely detached from my knees. I shouldn't be able to lock my knees with each step.