14 Years Old, Losing Muscle Every Day | The New York Times

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The New York Times

The New York Times

7 жыл бұрын

Nicolas is 14 and has Duchenne muscular dystrophy, which is robbing him of his muscles Ó and his life. A new and expensive drug may help, but can he get it?
Read the story here: nyti.ms/2swbQax
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14 Years Old, Losing Muscle Every Day | The New York Times
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Пікірлер: 46
@erichorbal2157
@erichorbal2157 7 жыл бұрын
The government better pay for the new drug.
@moderatesunited
@moderatesunited 7 жыл бұрын
Eric Horbal shouldn't have elected Drumpf.
@jaysimoes3705
@jaysimoes3705 3 ай бұрын
@@moderatesunited While he is clear psychopath, Obama did nothing either. Ever seen a lot of change in America's policies when the new president was from the other party? No. They are both the same, not there for the people but for big companies. It is a wellfare system for multinationals mostly. Obama was no different at all. Words words words. That is why people lose all faith in politics. Because these people have no problem letting you down big time.
@KevinLyons-gn7eu
@KevinLyons-gn7eu 23 күн бұрын
@@moderatesunited what is the name of the machine that sitting next to him?
@muppetsmom
@muppetsmom 5 жыл бұрын
Such a beautiful, beautiful boy. I pray so hard that a cure is found for these boys.
@WoWfAnLoL50
@WoWfAnLoL50 7 жыл бұрын
I have this. Im 24 right now. My brother also has this but has since passed. This is a terrible sickness :(
@CoDeMiTri
@CoDeMiTri 5 жыл бұрын
I just made friends with someone with dmd.. looking at the life expectancy broke my heart.. but I want to be by his side either way, the whole way. This condition is vicious and unfair.
@CoDeMiTri
@CoDeMiTri 5 жыл бұрын
@Tech Shakib I will.. no one deserves to live with this. I'm so sorry you have this. I hope you're able to fill your days with joy, love and adventure while you're here. I don't know you but I'm sending you my love and compassion. None of us are promised tomorrow... Try to make the best of what you have ❤️ I love you and I'm sorry you're going through this but it doesn't mean you have to let it limit you. Apply for grants, go to school, or if that's not your thing, find a job that makes you happy, go on adventures. Don't let this condition keep you from living your life. I'll be praying for you. ❤️❤️❤️❤️❤️❤️
@cuteredpanda00
@cuteredpanda00 5 жыл бұрын
@@CoDeMiTri i have it 2 milder form of dm i am 33
@cuteredpanda00
@cuteredpanda00 5 жыл бұрын
@Tech Shakib i have limb graded md also known as beckers md
@eminqeniyev4744
@eminqeniyev4744 4 жыл бұрын
How do yo feel know?
@_carlos9407
@_carlos9407 7 жыл бұрын
this kid looks cool I wish I knew him in real life🙏🙏
@YTMMS-hy6mz
@YTMMS-hy6mz 5 жыл бұрын
LoL
@bhuvanbam8499
@bhuvanbam8499 5 жыл бұрын
I have polymyositis. Similar to mascular dystrophy but not genetic.
@966minda
@966minda Жыл бұрын
Is her son still alive?
@arafchowdhury4771
@arafchowdhury4771 7 жыл бұрын
is that malcom
@zenist69
@zenist69 7 жыл бұрын
Give TCM a try.
@marcolafargue2851
@marcolafargue2851 4 жыл бұрын
Try ataluren, it's better than corticosteroids at least...
@rhonackimp
@rhonackimp Ай бұрын
Ohh i have this very late, my son and i have the same 😢
@michaelnitsch4431
@michaelnitsch4431 Ай бұрын
SEE DR. WALLACH ON THE 90 FOR LIFE
@bhuvanbam8499
@bhuvanbam8499 5 жыл бұрын
Exondys 51
@mistrotech8894
@mistrotech8894 5 ай бұрын
Stem cell therapy?
@elisamondragon2849
@elisamondragon2849 4 жыл бұрын
I have a cousin with this and he ruined my life.
@toroshiidk8190
@toroshiidk8190 4 жыл бұрын
how did he ruin your life?
@teamgoodboys5383
@teamgoodboys5383 3 жыл бұрын
Ayo
@julii5890
@julii5890 Жыл бұрын
حبيبي 🤍
@dowLoveTap
@dowLoveTap 7 жыл бұрын
does he even lift bro?
@sensitivetip4344
@sensitivetip4344 3 жыл бұрын
Edgelord
@floatingtothesurface
@floatingtothesurface 7 жыл бұрын
first
@JDexHuken
@JDexHuken 7 жыл бұрын
just stop
@KJVILOVEJESUS
@KJVILOVEJESUS 7 жыл бұрын
All this kid needs are SARMs. They prevent muscle wasting. It would literally solve all his problems, he just needs to get on a daily dose of ostarine every day in the morning and he should be fine. I hope the family sees this comment. Even testosterone would help.
@ianbonnar1801
@ianbonnar1801 5 жыл бұрын
Don't give false hope to us, there is no cure, how dare you even try to say that there is.
@YTMMS-hy6mz
@YTMMS-hy6mz 5 жыл бұрын
Lanboner imagine if that kid sees your comment he probably gonna be crying
@daminovanilufar1540
@daminovanilufar1540 Жыл бұрын
Are you doctor
@ambermarie8885
@ambermarie8885 10 ай бұрын
This is an incredibly irresponsible comment to leave.
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