Thank you for watching. Please let me know if you have any tips or advice in the comments. My Instagram: / nellefindlay
Пікірлер: 52
@bibialtona16492 жыл бұрын
Happy 1st birthday, Nelle‘s hearing loss! Mine will turn like 24 this year. It‘s probably older. But that‘s when wearing hearings aids started for me. I was about your age, when I was diagnosed with a 50% loss. And much to my surprise, I had impression goo in my ears the same day! Everyone concluded that I naturally wanted to wear hearing aids. And, yes, they helped a lot. However, I felt so self-conscious with them in that I went through a lot of trouble trying to hide them and pretend all was normal. It took me years to finally accept and embrace the fact that I‘m hard of hearing and that actually no one cares, if I wear hearing aids or not (all those years of hiding for nothing!). I am telling you all this, because I was so amazed with how you handled your sudden hearing loss. I admire you for your pragmatic approach and the rational analysis of the issues and the solution at hand („let‘s have some hearing“). And I love the humor. I had to laugh so many times. I think I was the exact opposite, when I was diagnosed with my hearing loss. And in hindsight that makes me kind of sad. Because I would have rather been more like you. But maybe it‘s true what you said in the other video. That it might be easier to wear hearing aids, if they make the difference between no and some hearing and not between not so good and normal hearing, as it was for me. Anyways, I was happy to find this video today and to see that you‘re happy. Spanish and BSL sounds beautiful, by the way. And I wish you all the best.
@nellefindlay2 жыл бұрын
Hi, thank you for your comment. I have to say that I'm very lucky to not be self conscious about my appearance at all. Also, I can't imagine anyone thinking anything bad about someone wearing hearing aids, like I wouldn't ever think anything bad about someone who had a walking stick. I'm also very lucky that I have a supportive family who don't shy away from a bit of 'tough love'. Anyway, thank you for sharing your story, and I'm glad you feel confident with your hearing aids now. Nelle xx
@Cookenour5 ай бұрын
My cochlear implant thanks you for your thoughtful videos from technical info to simply how to make the hearing loss life easier. I stream to my implant & aide via a Cochlear brand tv streamer, what a WONDERFUL accessory. Many compliments to your channel and how you share topics with sincerity.
@user-nw2nq1qb5n Жыл бұрын
I just came across your channel today. I completely lost my hearing suddenly around June 2021 in my left ear. After a year and a half, the doctor just recommended CI for me. I'm gathering all information about CI as much as I can right now and your channel helps a lot. Thanks :)
@nellefindlay Жыл бұрын
I'm glad you're finding it helpful. From your comment I'm guessing you have single sided deafness or an asymmetrical hearing loss. If that's your situation and you're looking for more information, there's another channel on KZbin called Travis and Vanessa (@travisvanessa7003), she got a cochlear implant for an asymmetrical hearing loss around the same time I got mine. You might find her videos helpful about what that process and experience is like. Vanessa is super nice and I'm sure she would be happy to answer any questions. I hope this is helpful. Nelle :)
@user-nw2nq1qb5n Жыл бұрын
@@nellefindlay Yes! I have SSD. I’ll definitely that channel out. Thanks for the recommendation. That’s very kind of you 😊
@boeclaybourn35292 жыл бұрын
Hey Nelle, you seem like such an amazing person. My name is Boe and im 17, and a month ago i had ssnhl in my R and a few days later also in my L ear. After only getting steroids 6 days after losing my hearing (i thought it was just an infection) i was on them for about 2 weeks with no improvement that i could notice. I never looked up what ssnhl was, i just let my mum deal with it but as time went on she got more and more worried - as I now know theres a limited time frame to get hearing back. Im a classical pianist who regularly plays with orchestra's and in the Royal Albert Hall in London - this ins't what i want to do as an occupation (i'd like to study medicine/chemistry) but its something that is so important to me. Yesterday i had my audiology test (pure tone and ABR) and i was told im profoundly deaf and my consultant has refferred me for cochlear implant - i cant hear anything no matter the Hz more than 105 decibels. in both ears. As you can bet im currently in a state of shock and disbelief - i was a musician, with perfect pitch who's now profoundly deaf. Ik its only been a day since a 'proper' diagnosis so maybe i need time for it to sink in but yeh. I was wandering if you could help me with any tips on how to adjust with friends and in school, and really just how you managed to keep you head above water! Oh and with how your cochlear implant sounds now, do you think i'll still be able to play piano? and do you think it best for me to start learning BSL? Thanks so much for your time, Boe
@barrytaylorprofoundlydeafi24792 жыл бұрын
Hi Boe I hope you don't mind me replying as I have been deaf for over 30 yrs,I wear 2 powerful BTE hearing aids! I have a 110db loss in each ear! But earlier in the year I lost nearly all my remaining hearing,I am profoundly deaf! It will take time to adjust,you will be in denial for a while,like once I get powerful hearing aids at least I will hear a bit,you may hear a tiny bit,also since covid the waiting list to see an audiologist on the NHS can be quite long! But the good thing is your 17 right on the cut off point in getting a cochlear implant in both ears! I do believe after you reach 18 the NHS only implant one ear! Nelle is the person to chat too & learn about cochlear implants plus you might want to watch her hearing loss videos from the start they all have closed captions/ subtitles! I wish you all the best on your hearing loss journey & it's great that Nelle decided to share her experiences as there are very few sudden loss videos out there for younger people! And they even help old farts like me 😊
@nellefindlay2 жыл бұрын
Hi, that's pretty much exactly what happened to me. I'm not a very good musician, but I really enjoy music and I would consider music one of my hobbies, so I can understand a little bit what it must be like for you. Obviously, I have no idea what I'm talking about, but I imagine you would still be able to play the piano. There are loads of deaf musicians out there and I mean it didn't seem to stop Beethoven. Music is harder to hear with an implant. With regards to classical music, which I would assume is what you're interested in, I find that when there is a clear melody I can hear it pretty well. Sonatas and stuff are fine, really busy symphonies, less so, unless I already know how it goes in which case, I'm fine. With school and helping everyone else adjust to your hearing loss, I think the main thing is to try and just still act like the same person as before and try to keep a sense of humour about it. The main thing is making sure your friends don't feel awkward talking about it. Also download live transcribe on your phone. It's a lifesaver. If you'd like to contact me, because there is more to this situation than I can really cover in a youtube comment. I would really appreciate if you sent me an email at nelleswebsite@aol.com or message me on Instagram @nellefindlay I wish you all the best. Thank you for sharing your story. Nelle xx
@nellefindlay2 жыл бұрын
Hi Boe, I really hope you decide to get in contact with me. I've also spoken to my mum and she would be interested in talking with your mum if that's something she's interested in. No pressure, of course, but both me and my mum would really like to speak to you and see if there is anything we can do to support you and your family. Best wishes, Nelle xx
@chemistryphysics7162 жыл бұрын
feeling 'pretty normal' is amazing. good for you.
@nellefindlay2 жыл бұрын
Thank you!
@Helenmaryjo2 жыл бұрын
Congratulations on the job Nelle! Good to have something to focus on. Your videos continue to inspire me and you are beautiful xx
@nellefindlay2 жыл бұрын
Thank you!
@davejenkins8732 жыл бұрын
Congratulations on getting the job Nelle. You play down your achievements (like we English people do!) but you are doing amazingly well. I will look forward to your future videos.
@nellefindlay2 жыл бұрын
Thanks. I'm not really sure cleaning toilets part time at a 3 star hotel is my greatest achievement to date (not that I'm ungrateful to have a job or anything). I'm glad you're looking forward to my vidoes. Nelle xx
@danclark31442 жыл бұрын
Thank you so much for the update. Your videos have been inspiring and helpful to me on my journey. You're doing an amazing job! Please keep up the good work.
@nellefindlay2 жыл бұрын
Thank you xx
@barrytaylorprofoundlydeafi24792 жыл бұрын
Hi Nelle💗I can't believe it's nearly a year since you lost your hearing! I have followed your journey since the first video! It did not help being in the middle of covid & lockdowns so it was hard to see an NHS audiologist! So you had to go private for hearing aids,in your last video you said the NHS was sorting out your hearing aid to help with your implant did they manage that? How do you think you would have managed a year on if you only had powerful BTE hearing aids & no implant? But well done for getting a job,it helped you working with the public at the dentist! Plus you passed your driving test! Also well done for getting in to university & to learn more BSL & it's good there is a big deaf community at the university your going too.. do you think once you learn more BSL & pass all the exams when your with the deaf community do you think you will sign more & be less verbal? With the cochlear implant can you hear your own voice? Since I lost virtually all my hearing I cannot hear my own voice,I am told I do speak very loud & I speak like I have a cold! Haha! I can't hear your voice at all now so one bit of advice going forward is to make sure you keep working on your speech! I can see your now getting fed up with the hearing aid! I don't even know if mine help now but the audiologist said I must wear them or my auditory processing nerve will die! Do you have an idea what career you want to do after leaving university? A dream job? I hope that implant people change their rules or you find the money to get the other ear implanted as that would help you no end! But to sum up the year I think you should be proud of what you have achieved & what the future holds! I know what it's like to lose your hearing,the anxiety & I ended up on anti depressants! Amytriplene..finding out I am on the autistic spectrum,having a form of dyslexia! I hope you make further videos sorry this was a longer ramble than usual,a family member is close to death & on palitive care in the hospital she started to get dementia & suddenly stopped eating she is 83 so I not been on social media much but wanted to reply to your video! Stay safe 🤗
@nealeburgess67562 жыл бұрын
Hola Nelle, mi alegro que hables Español. I think the fact that Spanish is spelled phonetically, and that you already have a reasonable level of understanding, will probably make your journey easier than it would be with other languages. I hope you do well and enjoy Uni. Spanish is an important language spoken in many places in the world. I enjoy living in Spain, and being able to speak the language enriches the experience. Maybe one day I might be able to travel to the Americas to enjoy other Spanish speaking areas. (My brother lives in Mexico, that would be a nice place to visit). Best wishes to you, Neale
@nellefindlay2 жыл бұрын
Hola Neale. I think Spanish should be okay I have spoken to a few Spanish people since losing my hearing and they have said that my voice sounds fine and I am okay understanding what they are saying, although I do find it more difficult than English. I've heard anecdotally that tonal languages like Chinese are harder for cochlear implant users because we can't hear pitches as well, so I'll just avoid those for the minute. I would be very interested in visiting the Americas. Maybe in a few years I'll do it. Best Wishes, Nelle
@NessasLifescape2 жыл бұрын
I’m glad to hear that you are adjusting well! I can relate to your experience with phone calls. They can be quite the challenge at times. I try to stream my phone calls to my cochlear implant and hearing aid but I have to have that all set up in advance for that to work. Sometimes I don’t have my artone neckloop or it’s not connected to my phone and then I can’t stream. Then it’s even more of a challenge. Sometimes putting them on speaker phone helps when I can’t stream.
@nellefindlay2 жыл бұрын
My brand of implant streams directly to my phone which is really useful but still sometimes I struggle with it depending on the other person's voice. I'm glad I'm not the only one! Nelle xx
@englandcalling97212 жыл бұрын
Doesn’t time fly? A whole year, 12 months, 365 days.... anyway, delighted you’re making progress. I’m sure the hotel work and life at university will give you new perspectives and increase your confidence. Hopefully, at some point, you get the opportunity to embarrass your brother at university, that seems like too good an opportunity to miss! Thanks for the update and here’s to a fruitful year.
@nellefindlay2 жыл бұрын
Thank you. I'm pretty sure I embarrass my brother just by existing in the same general vicinity so I don't believe any extra effort is needed.
@arturoromero93092 жыл бұрын
Thanks for the update. Like watching your videos. I have hearing loss since birth but it’s getting worse and I am looking into getting a cochlear implant’
@nellefindlay2 жыл бұрын
Hi, thank you for your comment. I hope my videos help you coming to a decision about getting an implant. I have had a really positive experience with mine. Best of luck. Nelle xx
@justmeonly986 Жыл бұрын
Good day Nelle. Thank you for your videos. I've been interested in deafness ever since I was in 1st grade and learned about it through the Helen Keller story -- I'm 66 so that was a long time ago. I do know finger spelling and still use it. I have a several questions. The first is about multiple conversations. When you say you have difficulty understanding in a crowd, is it because the cochlear processor garbles the sound making it sound like the din of a crowded room? Also, many people who have never heard prior to having an implant say voices sound robotic. That's an interesting description/reaction as those who have never had hearing would not know what a robot sounds like. So, would you agree or would you describe the processor sound differently? Three, now that time has passed, how has the sound changed, including your own voice. Finally, you once discussed music and that it sounds different. Is it possible to ever hear clear melody or vocals or is it always changed by the processor? Thank you for your answers. You are in a unique position to be able to answer given your recent but profound hearing loss. I also want to say, as a visual person, sign language looks beautiful. Merry Christmas 🎄!
@nellefindlay Жыл бұрын
Hi, thank you for your questions. I'll do the best I can to answer them. There are two reasons I struggle to understand when there are multiple people. The first is exactly what you said, I can't pick out the individual speech, it just sounds like noise when there are lots of voices at the same time. The second is that if there are multiple people in a conversation, I can only read one person's lips at a time and if the conversation is moving quickly, it takes too long for me to figure out who is speaking to look at them. I would say 'robotic' is a good description. To me when it first was switched on, it sounded like one of those voice changer toys that kids have, now I'm used to the sound but occasionally it still sounds robotic on certain sounds. I of course had hearing before so I can't describe it from the perspective of having only ever having heard a cochlear implant my entire life. When I first got my implant switched on, it sounded really weird, but I have got used to the sound now so it just seems normal to me. I'm not sure if the sound has actually changed or if I've just got used to it. Music is difficult to describe. Because it has lots of different sounds at the same time, I don't think it will ever sound completely clear through my implant. I can sometimes pick out a few words and the general tune and stuff, but it doesn't sound perfect. I would describe it as just sounding like it's coming through the worst tinny speaker you can imagine. I do still listen to music and enjoy it, but some people with implants say they really can't stand the way music sounds through an implant. I hope this answered your questions. Nelle :)
@tsnXn2o2 жыл бұрын
Thanks for the update video! Do you think that, as time passes, your overall dependency on lip-reading will diminish? Assuming you keep doing exercises and such.
@nellefindlay2 жыл бұрын
Hi, thank you for your comment. I don't really know 100% but my mum says she is noticing my speech understanding slowly getting better. That might be because my hearing with the implant is improving, or it might be that I'm just getting better at lip-reading. I guess only time will tell for certain. I hope this answers your question. Nelle xx
@kilgary2 жыл бұрын
I lost my hearing in my left side 2 months ago. I’m currently debating whether to get a BAHA or cochlear implant. It’s good to understand the limitations of cochlear implants. Your “robot voice” video was eye opening. I definitely miss bi-neural hearing but wonder if I’ll be able to adapt to the type of hearing the implants provide.
@nellefindlay2 жыл бұрын
Hi, I hope you end up happy with whatever decision you end up making. I'm deaf in both ears and only have one implant so I can't really speak to how well implants help with binaural hearing. There is a youtube channel I've seen called 'Travis & Vanessa' that shares Vanessa's experience getting a cochlear implant with an asymmetrical hearing loss (although I think she does still have a bit of hearing loss in her other ear) so maybe she could be helpful for you. Best of luck. Nelle xx
@dgson91462 жыл бұрын
Nelle, i suffer from severe tinnitus that I have a hard time to handle. Just want to say that you are so inspiring to follow. It is really amazing what you have been able to accomplish under a year. Did you have any tinnitus with your hearing loss? Did it get better with the implant?
@nellefindlay2 жыл бұрын
Hi, I'm sorry to hear you're going through that. Tinnitus is awful. I have it, but thankfully, it's not that bad. My cochlear implant has really helped, I don't really get it at all when I have my processor on. I'm glad you enjoy my videos. Best of luck with managing your tinnitus. Nelle xx
@paulahurst44342 жыл бұрын
I had a lot of weird noises before I lost fifty per cent of my hearing. One night I heard a jackhammer outside except that there wasn’t one
@dgson91462 жыл бұрын
@@paulahurst4434 Did it go away?
@paulahurst44342 жыл бұрын
@@dgson9146 eventually but was replaced by other sounds. Right now I hear a sound kind of like the wind blowing
@reallyreallygreatguy Жыл бұрын
Firstly, thank you for sharing your story ♥️ I'm wondering if you had tinnitus during your SHL? And if the cochlear implant helped with getting rid of the whooshing noise?
@nellefindlay Жыл бұрын
Hi, I'm glad you enjoyed the video. I do have tinnitus due to my hearing loss. My cochlear implant has definitely helped, but only when I have the processor on. When I take it off at night I still have tinnitus. Also because I only have one cochlear implant and I'm deaf in both ears, I still have constant tinnitus in my left ear, that is part of the reason I am pursuing a second cochlear implant. I hope this helps. Nelle :)
@reallyreallygreatguy Жыл бұрын
@@nellefindlay I'm so inspired by your story, my family member has recently gone through SHL and is trying to find what her new normal is at this point, id love for you to share on video or text how you deal with your tinnitus, and perhaps how you fluctuate from 8or9/10 bad to a bearable 3or4 /10 - and how you deal with it. Thank you for sharing your story it's so helpful to know you're out here. Merry Christmas Nelle - Max from Toronto
@grizzley1092 жыл бұрын
I was going to go to community college for asl last September but backed out because I realized I can still hear pretty well and the program I was going into had no one with hearing loss or similar experiences as me… So I decided to switch my current major to geology because you don’t need to hear or listen to rocks to know rocks , unlike psychology - if you know what I mean? And my professors are very accommodating at my school, specifically in the geology department . There was a time in my radiation and environment class that the professor whipped out a Geiger counter (?) and placed it near a uranium ore rock and I was like 😐 while everyone else was like 😲
@nellefindlay2 жыл бұрын
Hi, thank you for your comment. I'm glad to hear that your college is accommodating. Geology is really interesting, although I'm more of a palaeontology person myself. It's a weird experience when you are in a room full of people and everyone can hear something but you can't. Nelle xx
@grizzley1092 жыл бұрын
@@nellefindlay I’ll have the opportunity to take palaeontology next year, I have already taken a course on dinosaurs! Geology is kind of broad And yes, it is very difficult at times , especially when it’s time to put the fm system around my professor’s neck in front of the whole room Have a nice day ~
@paulahurst44342 жыл бұрын
Do you hear a weird whistling noise without your implant and hearing aids on? I hear this whistling noise
@nellefindlay2 жыл бұрын
Yes, I do experience tinnitus. I have it in my left ear all the time even with my hearing aid, but in my right ear, I don't really have it except when I take my implant off.
@iluvj502 жыл бұрын
Very inspiring. I had something similar happen four months ago - not as challenging as what you experienced but still quite serious - and have questions I'd love to ask you. Would it be possible to contact you via email?
@nellefindlay2 жыл бұрын
Absolutely, you can email me at nelleswebsite@aol.com or send me a private message on instagram whichever you prefer. I'm sorry to hear you're going through something similar and I'm glad you enjoyed my video. Nelle xx
@jt_rooster32282 жыл бұрын
Oh ya. Worst part about hearing loss? Right when it happens.
@paulahurst44342 жыл бұрын
Background noise is awful. Since I still have some hearing I take out my hearing aids in restaurants and the noise goes away but I can hear the people I’m eating with. Masks are the worst
@nellefindlay2 жыл бұрын
It is really difficult to deal with background noise, especially because it's really difficult for people to understand that I can hear some things but not others with my implant. I'm planning on making a video to try to demonstrate how background noise affects cochlear implants.