OTOSCLEROSIS QUESTION AND ANSWER

[@allthemananas1998]

Thank you for making this video. For someone who is shy to be in front of camera, you come across as incredibly genuine and relatable. I was recently diagnosed with bilateral otosclerosis and you've allieviated many of my fears and reassured me that things can get better. Thank you for taking the time and having the courage, while going through what you're going through, to help others. Big ups.

[@edwardclark7705]

Thank you for making these videos. Going through this alone sucks, so this helps a lot.

[@garysidhu6186]

just had my surgery...recovering well

[@SG22ND24]

Hi Andrea, how are you.. I just my surgery done today.. I saw your first video after surgery two days before before surgery.but then I planned for surgery. This video I am looking right now after the surgery, I hear you, can understand.. Thanks a lot for putting the videos for all of us and others who need it. For me immediately after surgery I can not imagine I cane here from my right ear.. when now I am seeing your emotional video oh my god you are such an amazing person… you came out of the shell and posted public videos.. kudos.. you are incredible, you are brave, you are strong… ❤… Hope I shed get courage after my recovery to post some blog on this surgery..

[@bitcoinmiser]

Thank you for taking the time to make these videos. You have been very helpful and I have been able to relate. I am trying to wrap my head around losing my hearing now in my 40’s. It’s an insidiously evil disease and it certainly affects your psyche. I’ve had my share of issues, but this is life sucking as it robs you of what you once had. You are an inspiration, thank you.

[@andreamartin6841]

Julian It does suck!! Thank you so much. I hope you find something to help you and I hope you have support from your friends and family !

[@carolinapepsi3507]

@@andreamartin6841 I was so excited until I found out about something being implanted in my ear😲 So I came here and stumbled across you. And I know you're saying don't be nervous but I had no clue that it's 90 mins for surgery??? That'll be the longest one I've ever had! And they're gonna cut my earlobe and stuff my ear for a week??!😫 I can't put anything in my ears without pain from the pressure as it is! Getting my CT done next week and now I'm freaking out😖 Would it be so bad to say "huh?" forever?? Hearing aids?? Not because you but just me... I'm crazy 😖 Your videos were super informative and you're so happy now so that's the only reason I'm not running to hide under a rock... But some ppls comments were not positive experiences😬

[@neverfeltthisway3650]

I had the surgery 13 days ago. The operation was performed under general anesthesia. I didn’t feel any pain after the surgery. I’ve stayed in the hospital for 1day. I’ve experienced a massive vertigo right after wake up. It went away slowly on the recovery period. On the 5th day, i was able to spin around myself without any dizziness. I started driving on the 7th day and did not experience any taste issues. I feel the operated ear is kind of blocked but my doc said it will go away in time. I feel some sort of improvement in hearing low frequencies however i hear everything distorted such as like loud microphonic (or robotic) sounds.. the doc said it will be balanced in 3 days. I’m waiting patiently and hoping to recover well..

[@abhikiwi]

Whats latest please?

[@abhikiwi]

I had my left ear operated two days back (27 May). I am asked to lay down all the time but I am doing short walks in flat to stretch, and short breaks to eat / loo. I have lost all tastes except Sweet. I am 41 yr old, male. The more I read, the more i am finding about sound effects. Before surgery i just knew about risk like no benefit or complete loss of hearing. But i never knew about about vertigo, loss of taste, loss of face muscle control or feeling blockage in ear. So i will now stick to my doc’s advice of complete bedrest on opp side for 7 days and except that nerves recover fast and no other issue apart from loss of taste occur. 🙏🏻

[@Sashenco]

Did your taste improve?

[@gianipirva1476]

Hi Andreea, I am in the same situation as you were 6 years ago and I am going for my first ear hearing loss in for surgery on tomorrow morning. Could you please tell me how did your second surgery went. Did it improve your hearing just like the left side? How long it took to recover from the second surgery? Appreciate your response. Thank you Giani

[@oneacre2760]

I go in for my first stapedectomy in three days. I like the insight you're providing and I can totally relate the the issues you have pointed out in past videos.

[@andreamartin6841]

I hope it went well and you're happy with the results! Happy hearing!

[@erinwilcox6517]

Im still struggling with haering cuz i did surgery on left ear i have implant and fill like i still have hard time haering and having to trun Stuff up lound i dont know if my right ear going to eat this or now how do i know

[@arialigi6391]

Thank you for the information. My doctor said the risk is total hearing loss in the ear or ears and lessening of the muscles in your face. (which would look like you had a stroke). I read that loss of facial elasticity can fade, but I wondered if you experienced it.

[@andreamartin6841]

Hey, yeah that’s why they usually operate on one ear, wait 3 months and then operate on the other ear so if there is an issue with hearing loss on the first one then you can opt out of the second one. I’ve had no loss of muscle in my face, I can smile or frown just like I could before surgeries

[@arialigi6391]

Thank you for your response and for the information. Results from the comments I read here seem to vary. I was advised to try a hearing aid first, which I am doing, although hearing aids can be expensive. @@andreamartin6841

[@wunchh]

Good luck on your surgery tomorrow. Please let us know how it went

[@andreamartin6841]

wunchh thank you so much! I’ll update as soon as possible!

[@Tina-yw9ds]

Hi girl! I loved finding this. I’ve been diagnosed with otosclerosis a few months ago. I kept feeling weird noises in my ears, like crackings and stuff. And just can’t understand people when they talk in certain volume, but it really hasn’t even been that bad or impairing. I guess they just looked for it because my mom has it and hers is bad, she almost can’t hear in one ear. But I have only a 30% loss in one ear and on the other one I don’t really remember. I was offered the surgery and I’m going for that, but they are hesitating about if they do it now or later after I’ve lost more hearing. I don’t really know what to do, should I get it now and just get it over with or like, wait until it actually affects my life more. Idk why I would wait but they are giving me that option for the surgery to be more “justified” because it doesn’t really affect my quality of life that much. Anyways I don’t really know what to do, I was just wondering what you think about it. Thanks

[@andreamartin6841]

Tina hey! Sorry I’m a little late on this, I’m not sure on the effects that it’ll have if you get it done before your hearing gets worse. I wish I had an answer for you. If it’s not affecting your daily life so much now then I suppose there’s no harm in waiting but I also think it’s completely up to you!

[@abdo26376]

Hello, did you have surgery for the right ear, how are things going, did your hearing improve well?

[@christinebirchfield8527]

Did your ear surgery effect your taste? If so, how long before you could taste again?

[@jaberahmed300]

I have done my stapedectomy left ear 3 months ago , hearing improve but tinitus exist still,how long it will take time to go away.

[@orviskid]

I wentto the doc, i have something else. He thinks the bones became disconnected

[@Waah_Indiaa]

How many days it took your dizziness to go off fully? Kindly reply.

[@neetinaik1865]

Hi, i just got my surgery done a week back. Could you please help understand how's your experience been since the surgeries (over a long time now). How has life changed for you? Are there any dos and don'ts recommended? Any activities you should avoid or ve careful with?

[@abhikiwi]

Kindly share your experience here.

[@not_name7421]

I have a question: What is your future regarding flying in an airplane? Airplanes and scuba diving (which I don't do anyway) were advised against in my doctor's meeting.

[@MrWynand2010]

You can fly 6 months after surgery but to diving as the change in pressure can cause harm.

[@nithyaranjit]

What was the gap between ur surgerys

[@andreamartin6841]

naomijuas minimum of three months!

[@dariamancini963]

I keep looking through your videos to figure out why you needed a revision

[@andreamartin6841]

I never needed a revision. It’s two surgeries, one for each ear

[@wunchh]

How did your second surgery go?

[@andreamartin6841]

wunchh I’m sorry it took so long! I just finally posted a video. Thanks for sticking around!!

[@wunchh]

Andrea Martin no problem. Im 6 weeks in and I see no improvement unfortunately.

[@cindyochoa5510]

Got my surgery October 2018, my ear feels clogged and I can’t hear that well now... did you ever feel that ?

[@ShaileshWagh123]

I feel that my ear is full of something or clogged

[@cathyabraham9110]

I have that feeling 24/7. Feels like my ear needs to pop like after getting off an airplane but it never happens

[@Sonugaursinger]

were u able hear clearly after the surgery ? my relative gone through this and she was able to hear . but after 4 hours of surgery she lost hearing again. doctor said it will 3 weeks to recover hearing after surgery. is that similar with ur case?

[@Maha_Teacher]

dr. Advised me to have a stapedectomy as i have hearing loss in both ears and a month ago it automatic started tinnitus ....what to do i dont know..please let me know whether it is safe or else.... Please reply

[@arjunm1842]

I got surgery of stapedectomy...its been a week ...It feels me like something blocked my ear ..wat s ur opinion

[@cathyabraham9110]

Same. It’s been 22 years and my ear still feels blocked.

[@abhikiwi]

@@cathyabraham9110omg

[@mariasmian]

Was the surgery painful?

[@andreamartin6841]

Maria Mian hi! Surgery isn’t painful. I was under general anesthesia. Pain can vary during the healing processes but after a 3 or 4 days it should subside

[@mariasmian]

What was the pain level on the scale of 1 to 10 after surgery and how dizzy you felt?

[@zainabmosul7707]

🥺🥺🥺darling.. I have otosclerosis as well

[@erinwilcox6517]

I just found out i have otosclerosis

[@Bhupendrasingh-kb6cr]

Why these weird sounds in ear even after 45 days of surgery

[@yashrajtalks]

Did you get your hearing back