Parkinson's, DBS and Me - Episode 2: The Beach

[@LoisDavies-t7k]

Waiting for a DAT scan but have started on madopar. Probably had symptoms for at least 15/20 years now I’m putting the pieces together. My dad was a Parki I initially felt shocked when it was mentioned. Then scared because I have seen too much and know too much. But then I remembered I’m me. Not Dad. I also have right foot dystonia the madopar had helped this I would say by 95%. Thank you for sharing your experience so far. I’m in North Yorkshire too

[@matteagles35]

so candid , really well shot and very moving . All the very best Jo x

[@michaelpericles8704]

We are praying for you from St Petersburg Florida

[@joyaldren989]

Thanks so much x

[@premaramakrishnan2434]

4

[@sheikhhome9584]

Hi my wife aged 38, also got PARKINSON and she been on medicines for five yrs and now she is getting very difficult to manage herself and also get difficulties to look after my two lovely childs but she is fighting with this PD and I look for this DBS device and seem to scare what will come up after this surgery but there is no any other option unfortunately.... Hope thing get better and ease her and let her better with device...

[@larkshairi5817]

God bless you 😊🙏

[@jerrym1070]

Hope it's a solution . Prayers

[@joyaldren989]

Thank you x

[@kevinharrington5011]

I had dbs last August, but I can hardly walk and my arms are virtually useless.

[@joyaldren989]

I'm so sorry to hear this. Sending my best wishes

[@marianneditorofbarfordnews1845]

​@@joyaldren989 Hi Jo. I was diagnosed with PD aged 38 in 2010 and had DBS and the John Radcliffe in Oxford last April. It is amazing, life-changing doesn't even cover it. My tremor has gone and a load of other symptoms are either improved or gone as well. I have a remote control with 3 different programs on it so, sometimes, switch between depending on how I feel, my husband says he wishes it had a mute button as well. Wishing you loads of luck for the operation, Take care, Lucy