Patient & Family Webinar: The Future is Looking Bright for Myeloma Patients!

Our May 1, 2021 IMF Patient & Family Webinar features exciting, late-breaking news about CAR T-cell and other promising therapies: Who are the likely candidates for these treatments and how can eligible patients access them? Dr. Durie will also share important updates on COVID-19 vaccines and variants. For newly diagnosed patients, “Myeloma 101” offers a simple introduction to what can be a complex disease, while a myeloma patient shares personal insights. Our expert panel will answer your questions on what to do when myeloma comes back, how to stay safe during a COVID-19 summer, and more.  
Speakers and Topics:
0:00 Intro
3:36
Brian G.M. Durie, MD
Myeloma 101
25:57
Maddie Hunter
Navigating the Journey: A Patient's Perspective
41:48
Brian G.M. Durie, MD
COVID 19: Vaccine & Variant Update
1:15:15
Tom Martin, MD
CAR T: Using Your Own Immune System to Fight Myeloma
1:37:12
Nikhil Munshi, MD
Treatment When Myeloma Comes Back
1:59:08
Patricia Mangan, RN, MSN, APRN-BC
Supportive Care Updates: COVID, CAR T & More
Download slides: bit.ly/PFW-Bost...
with support from:
Amgen, Binding Site, Bluebird Bio, Bristol Myers Squibb, Genentech, GSK, Janssen, Karyopharm Therapeutics, Oncopeptides, Sanofi Genzyme, and Takeda Oncology
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[@kerethab4590]

I was very happy to hear more about multiple myeloma .My aunt diagnosed with the desease.6year.with mastasis of the bone.choose therapy spread allover the body

[@thetruthalwayswins340]

May God helping you to find cure this disease, thank you 🙏

[@kerrymaher9140]

Thank you for this information! I'm being treated by a lovely, caring doctor here in Korea, but I appreciate getting updates in English from other sources. Your time and insights are sincerely appreciated!

[@alexanderkapphahn6258]

Thanks for uploading this!

[@michelsooriah692]

Future looking bright🙏🙏

[@IMFMyeloma]

Our pleasure!

[@liliaequipelag6975]

Thank you for information on mm,I was diagnosed since 2015

[@lroseberry8346]

Why wait to use cartcell therapy for relapsed/ refractory ? It seems that earlier treatment would put patient in medication earlier. I just don’t understand this

[@Livetoeat171]

In 1982, I knew a man who had no symptoms other than fatigue and he went to the doctor and found out he had multiple myeloma and he was dead in two months. I wonder why he didn't have any more symptoms, and why it spread so quickly. He had no time to even treated it

[@rosmerymelendez1427]

You go to the oncology/hematology department

[@lroseberry8346]

I am being treated at MDAnderson by a “team”. But I am feeling very cut off because I only interact with a dr assigned to me I dont know who is on the team and I feel like maybe I am being ignored surely that is not the case but answers to my questions are minimal So I am looking for better communication and a mm soecialist

[@IMFMyeloma]

Our IMF InfoLine Coordinators can help you identify a myeloma specialist. Please call 800-452-2873 or email [e-mail].

[@lynnargain5748]

So outstanding a presentation -- I'm a rookie and often got confused with all the different drug names but you managed to breathe an air of optimism into my very soul. I am going on my bone marrow biopsy in couple of weeks. How can I identify a myeloma specialist in my area?

[@IMFMyeloma]

Hi Lynn, Our InfoLine can help you with that! Please call 800-452-2873 or email [e-mail]. Our InfoLine Coordinators can help you identify a myeloma specialist.

[@declanwatson9325]

@Maddie, where are you receiving care/treatment in Philadelphia? I live in Philadelphia but but based in London for 3 yrs (half way thu) and underwent DRVD and today I am D+13 following ASCT.

[@declanwatson9325]

Just want to respond to a question that asks what D+13 means. This is the standard way of measuring the time post stem cell transplant. So D+0 marks the start i.e. the day you receive the transplant. So today for me marks 64 days post transplant D+64 and things continue to go well and numbers are rebounding

[@milatealemu7586]

Hi my name is Mulu Assefa 57 years old i live Ethiopia i am patient multiple myeloma

[@lroseberry8346]

How do you find a myeloma specialist

[@IMFMyeloma]

Hello L Roseberry Thank you for your question. Our IMF InfoLine would be happy to assist you in finding a myeloma specialist. Please call or email at 800-452 CURE (2873) [e-mail]

[@samsen3965]

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