This video is about pelvic congestion syndrome - what it is, and how it can be treated. For more information, please go to www.thewhiteley...
Пікірлер: 96
@sabrinaestrada35906 жыл бұрын
The pain from this sucks.
@gardensofthegods2 жыл бұрын
Sabrina ... were you able to get treatment or surgery for your pelvic congestion pain ?
@Milkymilk07Ай бұрын
I’m going through this
@laurenfranks50374 жыл бұрын
You would be shocked how many physicians say, "what is that? Is that a real thing?" Then they see my coils on imaging and really get a surprise.
@j.p.31663 жыл бұрын
Do you feel fine and syptom free with these coils? I ask because next Year I should get them too I am a little scared...
@elelresuli66973 жыл бұрын
@@j.p.3166 hi . It didn’t work for me. I got worse as bad as it does affect my walking now. I’m due for a open big surgery which I’m very scared. Good luck at you . We’re not all the same.
@MaratheSamoyed3 жыл бұрын
yup. mine did this
@gardensofthegods2 жыл бұрын
I'm not sure what you mean by coils ... ? Can you explain ?
@gardensofthegods2 жыл бұрын
@@elelresuli6697 Elel , did you get the surgery and didn't make the pain stop ?
@laurenfranks50374 жыл бұрын
Mine were so bad that the amount of blood pooling in the pelvis caused POTS and massive swelling. A few months after embolization, the secondary POTS was cured.
@sharonadams44244 жыл бұрын
What is pots....???
@samanthawhite84284 жыл бұрын
Are you able to have kids after embolization?
@Poultrychick Жыл бұрын
Just got diagnosed with POTS now getting an eval for this. So curious if I will have this too…..
@xSwordLilyx9 ай бұрын
@@sharonadams4424Positional Orthostatic Tachycardia syndrome. You stand and your heart pounds and you swoon.
@j.p.31663 жыл бұрын
I had them diagnosed "accidently" during laparoscopy, but the doctprs said they have to perform another procedure (intravenous) to fix them because this was not possible during laparoscopy...
@zanniawoodson99472 жыл бұрын
This is the same thing with me. I've been in circles because im only 18 and scared to lose the chance of having my own kids since I have none and always wanted kids growing up. how are you now?
@soldiana16163 жыл бұрын
Could this syndrome be caused by an ectopic kidney, located just above the urinary bladder? The kidney also has enlarged renal pelvic(circa 10cm) and pushes on the uterus and left ovary. Uterus is tilted backwards.
@kerry-annsinclair25893 жыл бұрын
Thank you so much. This was very helpful as I am in so much pain even right now
@Nekozawasenpai53 жыл бұрын
You and me both honey.
@malona233 жыл бұрын
Sorry you’re in pain, I am too, did they give you anything for the pain? 😞
@Nekozawasenpai53 жыл бұрын
@@malona23 they gave 2 opioids and they don’t do anything. One of the opioids was an anti inflammatory too.
@NZKiwi873 жыл бұрын
Sending you a big gentle hug 💚
@kerry-annsinclair25893 жыл бұрын
Infen, a pain killer, we are still going through the diagnosis stages
@taimestrict4831 Жыл бұрын
Can anyone recommend a clinic here in Long Island, NY where they can treat patient with PCS? Need address & contact info. please. Thank you
@mirandaserrano1 Жыл бұрын
Thank you for your video. Can I remove the coils when this worst the problem instead of help?Thank you.
@SW-vu5zh2 жыл бұрын
So when my doctor says the calcified vein in my pelvis is fine and isn't causing any problems? Even though I have about 5 calcifications in my legs and the vein doctor rated my varicose veins an 8??? Is she correct? Or is everything playing a roll?
@najlamohammed31006 жыл бұрын
Thank you so much, you made it breif and informative .
@fxkali93673 жыл бұрын
How do you get this? I was told I have this and I’ve never been pregnant before so kinda confused how I have it
@Nekozawasenpai53 жыл бұрын
They say it has to do with kids but it doesn’t. I know people who don’t have kids and have this and I have it and I have 2 kids
@fluffyflo26022 жыл бұрын
@@Nekozawasenpai5 I think i have this have horrible veins in legs no in y hips. And no pelvic pain.
@Nekozawasenpai52 жыл бұрын
@@fluffyflo2602 just keep an eye out. I’ve had it for over 2 years and they try to give out hormonal birth control to help but from most women and myself, it doesn’t help. I’m supposed to get surgery soon to help with the pain
@gardensofthegods2 жыл бұрын
Can any of you tell me if you get pain in your back and hips ... even when you are not menstruating ?
@zanniawoodson99472 жыл бұрын
@@gardensofthegods I do. Idk if this is TMI but I actually no longer get a period due to depo which is supposed to help however the pain runs in my back , legs and pelvis. however I have no kids and im only 19 diagnosed at 18.
@username42332 жыл бұрын
I was diagnosed during a transvaginal U/S for uterine fibroids. Risk factors do not fit with me at all. I've never been pregnant. I am not obese or overweight. I do not have varicose veins anywhere else that are visible to me. My OBGYN did not help me understand this diagnosis and told me to go to an IR. I set up an appointment but I just wonder if this can be misdiagnoses or can look like something else?
@a.elsagonzalez68242 жыл бұрын
Same girl. Never pregnant. Actually underweight. No varicose veins anywhere else. It's so painful and I don't understand it
@jacvantyne4898 Жыл бұрын
I don’t have varicose veins anywhere else! But I had an ultra sound and was formally diagnosed :/ it’s still possible! Happy you’re seeking treatment and comfort for yourself. It’s also possible to be endometriosis but my doctor told me they are usually treated the same!!!
@anasoares9387 Жыл бұрын
My varicose veins were barely noticeable and I'm slightly underweight too and never been pregnant, so much so that I went undiagnosed for 6 months. It was disheartening to hear doctor after doctor tell me there was nothing wrong with my leg when I was in so much pain, I could barely walk. The leg pain went away after sclerotherapy but I started to have heaviness in my lower stomach similar to my leg when standing up before my period. Turns out my issue is pelvic congestion syndrome, probably caused by the inguinal hernia mesh and adhesions from that surgery, who knows?... You were very lucky you caught it early before it started to damage your leg veins!
@jenperez1140 Жыл бұрын
@@anasoares9387 hi my doctor just told me the i have pelvic congestion syndrome I have so much pain n my legs 😩she just told me to take vitamins E
@ladyo7254 Жыл бұрын
@@a.elsagonzalez6824 you don't have to have children for this to happen
@johnnysleiman16682 жыл бұрын
I'm a male and I have this ,
@AngelasMixedMediaArtist7 жыл бұрын
Very informative thx👍🏻
@babyluvv777 Жыл бұрын
I’m a medical student and today we were in the OT for a C section and there was enlarged veins next to the fallopian tubes , and asked us what is this , we just said enlarged veins lol 😭 later our teacher told us it’s PCS!
@Milkymilk07Ай бұрын
I just got diagnosed with this
@Mrs.Milkins23 Жыл бұрын
I have been diagnosed withr EDS POTS irritable bowel syndrome And interstitial cystitis I wonder now! Omg
@HCM1986 Жыл бұрын
Same with me!! 😢
@Mrs.Milkins23 Жыл бұрын
@@HCM1986 🤍😔
@Nekozawasenpai53 жыл бұрын
I got diagnosed with this. All they did was put me on birth control. It hasn’t helped and I do have varicose veins in my legs.
@gardensofthegods2 жыл бұрын
Gabrielle ... can you please tell me have they done anything more to help treat your pelvic congestion .. you said the birth control pills aren't helping ... some have gotten surgery . Can you please tell me if it gives you any pain in the spine and hip joints ?
@Nekozawasenpai52 жыл бұрын
@@gardensofthegods yes I’ve been waiting to get surgery on both sides. They are going to put coils to block the bad veins. They done a CT scan with contrast dye to see how bad.
@Nekozawasenpai52 жыл бұрын
@@gardensofthegods I have pain in my legs, feet, and back yes. As well as my entire female system. Especially when I stand for a long time.
@gardensofthegods2 жыл бұрын
@@Nekozawasenpai5 Gabrielle thank you for explaining that ... I'm sorry that you have to go through that and be in so much pain , my dear .
@gardensofthegods2 жыл бұрын
@@Nekozawasenpai5 wow ... I hope everything will work out really well for you . Maybe after you have the surgery and some recovery time you will come back here and tell us if you are feeling a lot better ... if so that would be great .
@trinakozak45573 жыл бұрын
Are there any herbal remedies to help with correcting blood flow in pelvic area to alleviate swollen pelvic areas as well as hemorrhoids?
@gardensofthegods2 жыл бұрын
Trina... I don't know if this will help or not but you might want to try it anyway ... ... from the ayurvedic canon of medicine from India . Manjistha root powder ... it's sort of a reddish color and has a strong flavor sort of like clove . You mix some with water and drink . It is very good with healing and purifying the lymphatic system and getting the blood flowing and so I'm wondering if it would help you can look at videos about it ... it's also supposed to be good for the skin .
@dragonking8935 Жыл бұрын
Look into Dr. Cabral. He does a podcast about this. He listed a few herbal remedies as well.
@theryans8086 Жыл бұрын
Has anyone on here found a more “natural “ fix for this? Blood pools around the vaginal area and I’m in so much pain..
@kimtarrant7371 Жыл бұрын
Can this present as a prolapse?
@liliangel3551 Жыл бұрын
How can I check it?
@lynndeatherage3792 Жыл бұрын
I had uterine fibroid size of cherry 🍒 and I bleed heavy and pain is bad. I had this done before and I have no doubt about that I had doctors and my primary doctor 😷 found it. As adult.
@anmolkaur41772 жыл бұрын
my mother doesn’t bleed just have pain ,does she has to go through surgery ? please help i dont know what to do . is there any medicine for it?
@ash0me1 Жыл бұрын
Hi anmol how is your mother now, did u get any treatment for her
@tiffanyreynolds33712 жыл бұрын
I’ve been diagnosed with this syndrome but have no varicose vains so it’s strange
@KT-ng7sm2 жыл бұрын
I have no visible varicose veins either!
@maine4472 жыл бұрын
Me too
@nidhisindhwani987110 ай бұрын
@@KT-ng7smMee too r u fine ??
@nidhisindhwani987110 ай бұрын
@@KT-ng7smplz help n guide
@bwanikajulie81274 жыл бұрын
Okay ntegedde
@glambusiness2 жыл бұрын
Nange ntegedde. Hehe
@romamalik8636 Жыл бұрын
I have pelvic vessels congested
@mdmasummasum13113 жыл бұрын
i m female i have da same issue pelvic congestion syndrome wat i do help me please
@aimees49903 жыл бұрын
My doctor says hormones or pelvic vein embolization
@fluffyflo26022 жыл бұрын
What are your symptoms??
@mehrunnisakhan78592 жыл бұрын
Thank so m
@ashleyh46998 жыл бұрын
Ultrasound? NO NO NO
@leoromanenkov49452 жыл бұрын
9 of 9
@macminator3000 Жыл бұрын
why was this recommended to me ;-;
@lovelymoore76742 жыл бұрын
Can you have children with this?
@theryans8086 Жыл бұрын
I did. It actually helped but almost a month after I gave birth it came back.