Peritoneal Dialysis: Choosing your PD Solution

[@GaryScott-pdx]

I’ve watched a number of your videos and I’d like to congratulate you on taking the time and effort to make the videos. Before I got to the point that I needed dialysis I watched a lot of the videos available on KZbin and they were pretty bad for the most part. Yours are a breath of fresh air. My experiences have pretty much paralleled yours with minor differences. The biggest difference has been that I fight anemia all the time. I’m on and off EPO shots and iron infusions like a yo-yo. My anemia is exacerbated by having Celiac disease so I have to be a little more careful about what I eat. I was wondering how much your PD costs on a monthly basis. I’m on Medicare so mine costs between $450-500 a month.

[@kidneykeeping]

Thanks for all your comments. My insurance won't cover the EPO shots and iron infusion until my Hemoglobin drops low enough. So like you I'm up and down, up and down...

[@ninclarke1357]

Invaluable information. Thank you so much ❤️ Bless you x

[@revahudson9820]

Thank you for this information! I'm on dialysis but it's getting harder to drive myself to treatment.☺️

[@anna.m8]

your videos are really helpful

[@kidneykeeping]

Glad to hear that! Thank you.

[@sovie3988]

Hello friend good morning ❤ thank you wo much for nice sharing 🙏🙏get well soon for us Amiin🤲🤝💪❤

[@kidneykeeping]

Thank you so much for your well wishes!

[@Bella-ng1ef]

Have you ever got drain out less than the amount you put in ??? im struggle with that. fluid hold in my body and went up to my chest. chest pain, coughing and blood pressure is in high zone as well.

[@nukez88]

Ok. So we have it, the shit has hit the fan so to speak and cant change out situation. How do we function? Do we keep working? Are there any employers that will keep us. Part time or full time? There are a lot of topic's to touch on the subject. I was diagnosed in 2018 ckd stage 3c or 3d but I feel I have improved it even thou the blood works stays the same. I'm keeping a healthy diet (lost 20kg/44 lbs), and for now feel ok.

[@kidneykeeping]

I think you're doing a great job. Keeping your blood work at the same level isn't easy. I wrote down all your questions and I'm hoping to be able to make video's that will help. Thanks for your comment!

[@ritabrunton4391]

Your speaking my language

[@insidious6642]

My mother used the 2.5 dextrose and left the fluid overnight, she weighed herself before going to bed and was 64kg. In the morning she used 1.5 dextrose level because her weight was the same and did not have too much swelling, but she had cramps. What dextrose level would you recommend using after this first exchange??

[@Bella-ng1ef]

Hello, how are you?? How are you doing with dialysis so far??? Im doing 3 weeks PD since your last video which i comment and learn more experience from your advice. After 3 weeks trying, im doing really well so far. However, i end up in the hospital due to the uncommon problem, fluid went into my chest. I wasnt sure how that happen. I would be i slept too long during the night and the exchange not on 4-6 hours. Im staying in hospital to get some treatment so far… Please let me know if you got any problem as well??? Any advice to balance the time for exchange???? i could not handle night time well.❤️❤️ thank you for your updating

[@kidneykeeping]

I'm so sorry that you are going through this! It's hard enough trying to recover from getting the Catheter, training and learning to do PD. I hope you have support and help. I'm thinking of you. I luckily don't have any problems. Just when I didn't prime the cycler correctly, but the pain only lasted 2 days. Since doing PD using the cycler it does all the exchanges for me. But I do sleep a lot. I often go to bed by 9:00 because I'm just so tired. Hope your doing better!!!

[@Bella-ng1ef]

@@kidneykeeping I was good when i first start learning PD, everything went good as the instruction form my nurse. However, i think i sleep too much at night so i could not manage my schedule well. Im thinking after all the test, they might put me on Hemodialysis in stead of keeping doing PD due to my body reaction with fluid flush in. Thank you for helping me out some advice and sharing your info. You are doing great. ❤️❤️❤️ keep fighting babe ❤️❤️❤️

[@alphaomega1351]

Any artificial kidney options? Or, do you still qualify for a transplant from fellow human? 😶

[@GaryScott-pdx]

At this time there are no alternatives to human kidney transplant. Currently my wait is 4-5 years after acceptance to the transplant program so you want to get accepted as soon as possible. There is one thing that you can do that has the potential to shorten your wait but it’s not for everybody. My transplant center gives me the option of accepting a damaged kidney. Usually this is a kidney from someone that has had hepatitis or was a drug user. These kidneys go through extra screening and my center has a very good results with these kidneys. I’m 74 so I am willing to take the extra risk to get a transplant quicker.

[@Morris774]

@@GaryScott-pdx I truly hope you get a kidney. I only have one and it’s on a bypass and now my creatinine is elevating my PTH is sky high my vitamin D is super low. So now an endocrinologist. They think a gland needs to come out or a tumor. I know a lot of ppl may not be able to but isn’t there also an exchange if a family member donates a kidney for you to get a match? I’m truly just asking because I do not know. I’m not eligible yet to be on the list. So I am trying to prepare for what comes next. My kidney issue is congenital. But it’s been a battle since 1998. My right kidney died in 2011 and was removed. So my left kidney has a tube in it that drains all the urine out without it, it would collapse. I’m just trying to gather as much information as I can. Because I know my body and I know my kidney is starting to go the same way as my right. I’ve been doing this for so long you just know. So any information anyone can provide I would appreciate it. ❤️🙏

[@zoozolplexOne]

Hello !!!

[@jamilacharles5485]

I think No need daylasis hemo beacuse saved you PT life beacuse just know not need creatine under control

[@jamilacharles5485]

Injection lasix give b d and not give fluid

[@iqherrera]

What caused your kidney failure?

[@kidneykeeping]

I have FSGS. Which basically means my body is attaching my kidneys.