Pete Eveleigh's Story: The Fight Against MND

Рет қаралды 57,934

Күн бұрын

Пікірлер: 101

@VivianDanceHobartandBeyond1955 Ай бұрын

A horrible disease have been watching my best friend over two years slowly deteriorate . Wouldn’t wish this on anyone stay strong and keep fighting and hopefully soon they will have a cure . Bless your wife and son ❤

@idrewski6402 Жыл бұрын

I remember Pete from school. He’s so inspiring, but this is heartbreaking. I really hope the trial gives some improvement for him.

@tyianabree1028 Жыл бұрын

#Drchala1 on KZbin channel has the cure for ALD why don’t you try it yourself and stop wasting your money on lad medical treatment

@waynehardiman5443 7 ай бұрын

Seems such a nice family and guy and fit and this happens trials are good but so bad as a lot give you false hope there no cure and I don’t think there will be sad to know your dieing but with the money they’ve managed to have that eased so they can just be a family

@andrewuithaler5928 Жыл бұрын

Keep fighting Pete, we’re willing you along your journey! All the best to you and your family my friend. AJ

@tyianabree1028 Жыл бұрын

#Drchala1 on KZbin channel has the cure for ALD why don’t you try it yourself and stop wasting your money on lad medical treatment

@skygazer6898 10 ай бұрын

My friend's fit and health conscious son started to experience the signs of MND when he was cycling and found that one of his feet could not push the pedal. Who could believe that within the year he was laying in bed, paralyzed from the neck down with a tube helping him to breathe and a tube feeding him. This was a young man, who would go rock climbing, work out at the gym, swim and cycle everywhere and all before that one symptom of MND when his foot could not push the pedal. To say his death was a blessing is an understatement. i hope and pray that more money is pumped into research to help find a cure for this very cruel, brutal disease. Good Luck to Pete Eveleigh, A lovely family and a loving, strong woman by his side. Hoping things are going well for him.

@marykeenaghan8787 5 ай бұрын

God bless Pete and keep u safe ,

@roseyk7677 Жыл бұрын

This family are truly inspirational. What a cruel unforgiving disease. That little boy is a credit to you both, a little darling, eloquent and so well spoken. I pray for your recovery, and hope the interventions are positive. The mind is very powerful, stay strong and together.... God Bless you all on this journey 🙏❤️🙏

@tyianabree1028 Жыл бұрын

#Drchala1 on KZbin channel has the cure for ALD why don’t you try it yourself and stop wasting your money on lad medical treatment

@TheTechnofu Жыл бұрын

the more attention that can be given to the condition to increase awareness and research funding, the better. Keep fighting! I'm glad you have a great family to keep you motivated!

@gwyn6907 Жыл бұрын

Life is so cruel what a handsome man and his lovely family a awful disease

@FredaFlynn2008 Жыл бұрын

Bless your hearts, I hope they find an appropriate trial for you Pete and you can improve. I’ll keep following your progress and want to see you healthy again in the very near future. Good luck hun. 🍀

@ibrahimsahib2831 8 ай бұрын

May god bless him for long long life and get relieved of the disease

@natsmith7220 Жыл бұрын

Such a beautiful family. I'd never heard of MND before, thanks for raising awareness and sharing your story.

@justbreakingballs Жыл бұрын

You'd never heard of motor neuron disease?

@tyianabree1028 Жыл бұрын

#Drchala1 on KZbin channel has the cure for ALD why don’t you try it yourself and stop wasting your money on lad medical treatment

@jayg-lg2ot Жыл бұрын

We don't call it MND that's prob why he's saying that . We call it ALS or Lou Gehrig disease. I myself have als ( my doc highly thinks it's is but neurologist apt is not till Nov) but when you know you know belive me . Symptoms are just super specific. I have them classically to a T! I'm getting my affairs in order as we speak . And yes I know I know what people are gonna say " you don't know for a fact yet !" But I do . unfortunately als symptoms even tho it's liked to believe are just not with any other disease

@justbreakingballs Жыл бұрын

@@jayg-lg2ot let's hope it isn't man.

@Heavyisthecrown Жыл бұрын

@@jayg-lg2otI hope all is well for you ❤

@brandip77 Ай бұрын

He is so young. I only learned of this disease this week, and I hate it. How unfair.

@suesmith4289 20 күн бұрын

What a lovely family, Pete your insirational, be strong keep going and you will get there.Bless you.

@maryhughes7929 22 күн бұрын

A truly cruel disease. Please God they make a breakthrough in finding a cure. God bless him and his family. 🙏🏼⭐️🕯

@allencarter287 8 ай бұрын

His wife is amazing God bless her

@JudiKerestan 6 ай бұрын

Prayers to you and your family .

@kadieHutchings 6 ай бұрын

Oh wow Pete teached me for a while at Exeter city school he was one of kind ❤

@kellyofthehead Жыл бұрын

I'm exactly the same. Started with muscle fasciculations around 3 months ago, now i have weakness in my left arm and right leg. Keep almost falling over and dropping everything. I'm terrified. I had two spinal surgeries last year, I'm sure it's triggered it. I'm at the consultant 15th of August. I'm 44 xxx

@garethwilliams4682 Жыл бұрын

Me too. My appointment is in September. Wishing you all the best

@kellyofthehead Жыл бұрын

@@garethwilliams4682it's scary, I'm hoping mine is benign muscle twitching but I also suspect an undiagnosed B12 deficiency. Hopefully one of those. Good luck to you also 😊

@denvik Жыл бұрын

how are you now? what doctor said?

@kellyofthehead Жыл бұрын

@@denvik they couldn't give me any answers, the fasciculations are just as bad, sill unsteady. No wastage, so I guess it is benign muscle fasciculations, really frustrating not having answers xx

@ClaiLou22 4 ай бұрын

@@kellyofthehead how are you now? I have an EMG tomorrow but had a Consultant do a examination before and he said BFS

@allionseatfirst9721 Жыл бұрын

What a guy and a strong women next to you , I pray 🙏 for a cure x

@tyianabree1028 Жыл бұрын

#Drchala1 on KZbin channel has the cure for ALD why don’t you try it yourself and stop wasting your money on lad medical treatment

@debbiebrannon8874 Жыл бұрын

Praying for a healing for him amen

@Inspirational-360 Жыл бұрын

Brother you great you have a great family ❤

@lisaloughlin4841 Ай бұрын

My Grandpa died in 2013 of MND hardest thing to watch your loved one die like this infront of you eyes

@LisaDancer Жыл бұрын

So inspiring thank you for your video my husband has MND can you please tell me where you got breathing and hand equipment from… my husband is Turkish and not entitled to any benefits because of his visa but the MND association have helped us

@Inspirational-360 Жыл бұрын

I have incurable motor neurone disease. My entire body is slowly becoming paralysed. I am 23 years old and my father has abandoned me. I really need helps. please someone help me. God bless you always

@michaelsinnott2226 Жыл бұрын

That is terrible when your father abandoned you when you are ill with the decease. That is wicked of him

@sue5980 7 ай бұрын

Can you contact the MND for help? God Bless 🙏

@marykeenaghan8787 Жыл бұрын

God bless u and ur family, Pete hope u get a cure in the very near future,,,,,,,,,,,,,,,,

@maggiereising9253 4 ай бұрын

My husband Andreas and myself went through this. Such a cruel cruel disease 😢

@myahowlett6995 5 сағат бұрын

It's already affecting his speech, an incurable illness awful, not a long life expectancy either God love him ❤

@Northern-Nevada Жыл бұрын

I was given a diagnosis of MND in June 2022 by my neurologist. Here in the States, the diagnosis must be confirmed by a “higher level of care”. After months of waiting, I finally got a zoom appointment with a neurologist at a prestigious ALS Clinic at a university medical center in California. Early in the zoom appointment , the neurologist, (without an in-person exam or repeat testing), declared that I didn’t have MND. As my husband broke down in sobbing relief, I asked her how she could know that? She said it was because she’s an “expert”. When I further pressed her, she said that it was because I was able to stand from the sofa without using my hands. Everyone is thrilled except me, because my symptoms continue to worsen. I feel like I’m “twisting in the wind”, without the benefit of a diagnosis (of any kind) or hope for support or treatment. No other doctor will question the opinion of the expert.

@denvik Жыл бұрын

so what is the current status? is there mnd ?

@Northern-Nevada Жыл бұрын

@@denvik Don’t know. My new neurologist (the original one moved away before I was “undiagnosed”), sent me to an orthopedic surgeon thinking it was radiculopathy or myelopathy. The orthopedic surgeon didn’t think so, so he sent me for a second opinion at a medical center. That ortho said this is not an orthopedic issue, it’s a neurological condition and to go back to my neurologist. I’ve given up even though things are getting worse. It’s too expensive, exhausting and depressing to continue for now.

@janheard3826 Жыл бұрын

@@Northern-NevadaSo sorry to hear your story but I have to say it makes me relieved to live in the U.K. I have gone private and had NHS treatment and honestly those NHS doctors really care about providing good health care, not the money aspect that the private doctors only want at the end of the day.

@lindymcdonald8945 5 ай бұрын

Did you take the vaccine ?

@deanawells4395 4 ай бұрын

Keep seeking your diagnosis. For every professional that doesn’t listen someone will. I am sorry the healthcare system is failing you. Now in the USA unless you are rich, famous or a politician you are back of the bus. 😢.

@CarolsDaughter85 8 ай бұрын

Heartbreaking to see such a fit, active young man with his life ahead of him be physically destroyed like this. This has to be the worst disease ever.

@bastian6173 5 ай бұрын

I'd be careful with "worst" or even "worse" or things like that. It's all bad. Look up EB. That stuff is genetic and affects the skin which is not sticking to the body properly so people affected are left with open scars and much worse... Jonny Kennedy. Look him up. He's a fighter

@chantalhounsom744 9 ай бұрын

I'm so utterly sorry for you and your family. This is probably one of the worst diseases to negotiate (my sister was diagnosed with it 😢😢). May God be with you all.

@nickywilks7928 Жыл бұрын

gorgeous brave guy.

@misscaulkhead 8 ай бұрын

"MND is NOT going to decide my fate" I refuse to put myself and put my family through watching me slowly die so when the time is right for me I will do VSED. VOLUNTARILY STOP EATING AND DRINKING. I will choose how and when i check out NOT MND 💪😊

@heatherstalcup665 6 ай бұрын

what is the hand stimulator called, god bless

@fernemcallister6774 Жыл бұрын

So wish a cure can be found quickly.

@RobHolt-l6g Жыл бұрын

Is it right me saying your twitches was first symptom with no weakness ? I have cfs cramp being faciculation syndrome diagnosed September but get scared my heart goes out to you and your family

@CarolsDaughter85 8 ай бұрын

The information I’ve read is that the weakness comes first… twitching without weakness doesn’t indicate MND. The twitching with MND happens because the nerves are deteriorating, therefore the affected limb would be weak before the twitching.

@markdavis865 Жыл бұрын

I’m sorry if this is inappropriate. I was just curious of something. My father also has Parkinson’s. I am also going through a DX process of something Neurological/muscular. I was just wondering if possible how to ask you some advice? Again I’m very sorry for bothering you. Thank you for being so inspiring.

@lynnelliott-e2p 11 ай бұрын

How are you doing now Pete? Hope the trial is working

@cfield1468 4 ай бұрын

Is there an update? Sept 20,2024?

@nyx3967 2 ай бұрын

This is the latest video on KZbin kzbin.info/www/bejne/nXrKgqycps6djMUsi=87Ezhd7Yv3U1r-c3

@janheard3826 Жыл бұрын

What a handsome man…my heart goes out to you and your wife.

@nonyabusiness3859 2 ай бұрын

How can I contact him

@jenwhitehead4092 Жыл бұрын

Terrible cruel disease. X

@missmagikal164 3 ай бұрын

Pete have you heard about MND reversal? Please have a look at a man called Mark Manchester and he’s reversal story x

@lorriebirdwatcher7778 Ай бұрын

Praying for you and your family in Jesus name!

@garyh5541 Жыл бұрын

🙏🙏🙏

@il3mendo 3 ай бұрын

Which type of motor neuron disease does he have ?

@nyx3967 2 ай бұрын

It's most likely Amyotrophic Lateral Sclerosis (ALS), that's the most common type.

@jplad8289 Жыл бұрын

Life is so unfair...

@hens13 Жыл бұрын

It is, he gets to have a wife and I’m an incel.

@maxdowney3717 9 ай бұрын

@@hens13he's virtually paralysed right now unable to cuddle his own son and you're complaining about your life. Vile.

@hens13 9 ай бұрын

@@maxdowney3717 Of course, guy had years of joy, I get none

@lindymcdonald8945 6 ай бұрын

There is an awful lot of young healthy people developing MND in the last few years in the wake of the vaccine rollout

@KatieBarnes-nz2hz 5 ай бұрын

Stop your ridiculous nonsense

@lindymcdonald8945 5 ай бұрын

Do your own research .There is a clear link between neurological conditions and the vaccine .And that comes from credible medical organisations .

@lindymcdonald8945 5 ай бұрын

As a library, NLM provides access to scientific literature. Inclusion in an NLM database does not imply endorsement of, or agreement with, the contents by NLM or the National Institutes of Health. Learn more: PMC Disclaimer | PMC Copyright Notice Logo of kansasjm Kans J Med. 2023; 16: 69-70. Published online 2023 Mar 15. doi: 10.17161/kjm.vol16.18969 PMCID: PMC10035647PMID: 36970039 New-Onset Amyotrophic Lateral Sclerosis in a Patient who Received the J&J/Janssen COVID-19 Vaccine Elio Junior Feghali, M.D., Abhiram Challa, M.D., Mahmoud Mahdi, M.D., Eric Acosta, M.D., and Jennifer Jackson, M.D., FACP Author information Article notes Copyright and License information PMC Disclaimer Go to: INTRODUCTION Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease, is a rapidly progressive

@lindymcdonald8945 5 ай бұрын

@dawnbaker7861 Жыл бұрын

Is MND like ALS

@Sub-515 Жыл бұрын

Yes, just a different name.

@jenniferbowie2773 Жыл бұрын

Exactly the same disease

@nyx3967 2 ай бұрын

ALS (Amyotrophic Lateral Sclerosis) is a type of MND (Motor Neuron Disease) there are a few types of MND. ALS is the most common. Characteristics: Affects both upper and lower motor neurons. Symptoms: Muscle weakness, spasticity, twitching, and progressive paralysis. Onset: Can be limb-onset (affecting arms or legs first) or bulbar-onset (affecting speech/swallowing first).