MND researcher Justin Yerbury’s fight to find cure | Australian Story

  Рет қаралды 66,111

ABC News In-depth

ABC News In-depth

Күн бұрын

Пікірлер: 73
@sandrograndi6638
@sandrograndi6638 Жыл бұрын
just watching this after learning of your passing. Justin if wherever you end up eternally resting you read this I'm full of awe, admiration and gratitude for you and for your unflinching resolve to face your genetic enemy. You are Truly one of the most remarkable men i have ever had the heartbreaking pleasure to read about. I hope you rest in peace and that peace finds its way in the heart of your family and those who loved you.
@pattykochenower4222
@pattykochenower4222 4 жыл бұрын
Hope he finds the cure , his pure passion for this is amazing . Amazing man .
@SoloBench
@SoloBench 11 ай бұрын
There is hardly a cure for anything so why would there be a cure for this? People need to stop playing into the hands of the medical industry
@andymcgovern6615
@andymcgovern6615 3 жыл бұрын
I have survived 43 years with the ugly thing. Diagnosed in 1978. It has destroyed my arms, hands and shoulders. So far, my speech and swallow are not affected. "Yet,". If I am of any help to you. You can get in touch. Andy McGovern. Longest survivor in the world at the moment. (Since Stephen Hawking passed on)
@fourshore502
@fourshore502 3 жыл бұрын
sounds like your upper neurons were largely unaffected then for some reason they seem to be the most important ones since they are in the brain and control speech swallow and legs, the lower are in the spine. any theories to why you made it for so long? i think i have pre-als symptoms now, any advice for me?
@kityumcashcokityumcashco5740
@kityumcashcokityumcashco5740 3 жыл бұрын
Amazing!
@jimmiehines6563
@jimmiehines6563 Жыл бұрын
Curagious .
@jimmiehines6563
@jimmiehines6563 Жыл бұрын
Are you on a vent
@narellepipes927
@narellepipes927 Жыл бұрын
Hi how are you what are you doing that helped
@amberfoster8089
@amberfoster8089 5 жыл бұрын
What a wonderful man and family. So heartbreaking 💔
@AnEmmeni
@AnEmmeni Жыл бұрын
What a wonderful human being. RIP Julian
@Marc-io8qm
@Marc-io8qm Жыл бұрын
It’s Justin
@atheistmommy3710
@atheistmommy3710 5 жыл бұрын
It will happen one day soon, we're getting closer and closer to getting the cure. Thanks to scientists and people like Justin.
@shikhasaxena5062
@shikhasaxena5062 2 жыл бұрын
What a brave man he is... Amazing Justin.
@clpr2023
@clpr2023 Жыл бұрын
Much respect Justin. Cruel disease. I hope you’re resting peacefully.
@janewerikhe9528
@janewerikhe9528 Жыл бұрын
Oh dear may the cure be found
@florianwolf9380
@florianwolf9380 Жыл бұрын
Justin, I hope you were able to achieve what you had set out to do. MND is an absolute shit-disease, and while you were able to fend it off for quite a while finally it got you. Your courage, your enthusiasm for your research, and your indomitable spirit are your legacy for your team and will inspire them to continue your great work. You were and are a most remarkable man; fly high, and wherever you are please rest easy. Love, peace and hope for you wife, your children, and your extended family.
@richardblackledge7402
@richardblackledge7402 5 жыл бұрын
Get behind this effort for the cure.We have to find it.We are losing too many people.
@VJRavi-ig8iu
@VJRavi-ig8iu 5 жыл бұрын
I lost my nephew recently due to rapid deterioration on MND. It was very sudden because of Cardiac arrest leading to brain damage. Very deadly disease. Justin's story is very inspiring to read more about this deadly disease.
@madeleine8977
@madeleine8977 4 жыл бұрын
I knew little about MND. I am aware now, and will contribute what I can to help find a cure. Professor Rowe explained it perfectly. The puppet imagery was visceral so I won't forget.
@fourshore502
@fourshore502 3 жыл бұрын
thx. how is it going so far?
@jimmiehines6563
@jimmiehines6563 Жыл бұрын
Actually everones mnd is different
@GTschumacher
@GTschumacher 5 жыл бұрын
A Great man !
@suecollins8199
@suecollins8199 Жыл бұрын
RIP Justin.😢
@breeyerbury3191
@breeyerbury3191 5 жыл бұрын
An inspirational man!
@anita5087
@anita5087 Жыл бұрын
Vale Professor Justin Yerbury
@mstarr4812
@mstarr4812 5 жыл бұрын
You champion Justin - you still have an amazing life x
@applejellypucci
@applejellypucci 4 жыл бұрын
Someone said this was the 7th worst disease in the world, but I can't think of a worse one.
@californiadoll6273
@californiadoll6273 2 жыл бұрын
Just because this 1 is bad, doesn't mean it's the worst. There's other's way worst. There's 1 disease in particular that can't be tested for because there's no way to test it but people that suffer from it will get full body burn pain, described as being burned alive. The disease is so bad that everyone that's suffered from it has taken their own life due to there being no way to treat the pain of being boiled alive. (I forgot the disease name but im sure you can easily find it)
@mark-ish
@mark-ish Жыл бұрын
​@@californiadoll6273nope, it's just you who "knows it".
@frontlinersaudi8076
@frontlinersaudi8076 Жыл бұрын
I didn't want to open the comment section, to read that he have passed away 😢😢😢. I can't afford to know that we lost a good man by this tormenting disease. Lord help Justin save other families please.
@mstarr4812
@mstarr4812 5 жыл бұрын
...Cu ATSM: what is happening with this drug right now (2020) and how can I get someone on a trial.
@jamesjones3371
@jamesjones3371 3 жыл бұрын
What a brave family people think they have probkems. This family had no choice but face MND head on brave and Amazing .
@aliciam6725
@aliciam6725 8 ай бұрын
I’m a chronic pain patient who cried this morning over my constant pain but it’s not lethal. I want to take those tears back. Who the hell am I with my little nerve disease?
@mathematicalmuscleman
@mathematicalmuscleman 10 ай бұрын
What an Amazing Scientist!
@mohammedismail8127
@mohammedismail8127 3 жыл бұрын
my father identified with MND
@fourshore502
@fourshore502 3 жыл бұрын
stay strong, a lot of positive stuff happening right now!
@SanPot123
@SanPot123 2 жыл бұрын
My father too :(
@amberlynn8591
@amberlynn8591 2 жыл бұрын
@@SanPot123 I am so sorry, how is your father doing?
@louiselunardon7097
@louiselunardon7097 2 жыл бұрын
What a great human being, please read revelation 21:3,4, as this is a comfort to me that things that we as humans suffer, sickness and death will not always be.💖
@wuzhai2009
@wuzhai2009 Жыл бұрын
RIP
@vivi6121
@vivi6121 Жыл бұрын
OMG, horrible disease, if u have a dog or cat or any animal sick like that, u would eutanise it. Why do they let human to suffer that much. It's horrendous even to watch
@Chad121130
@Chad121130 4 жыл бұрын
I am so confused by this I’ve never heard of this in the US is it the same as ALS?
@ramachandransankar750
@ramachandransankar750 4 жыл бұрын
Yes,ALS and MND are interchangeably used
@Chad121130
@Chad121130 4 жыл бұрын
Ramachandran Sankararaman thank you
@karnemelk66
@karnemelk66 3 жыл бұрын
ALS is subtype of motor neuron disease.
@jimmiehines6563
@jimmiehines6563 Жыл бұрын
We R aye stupid worthless people in the Unized stats
@margaretstaino6277
@margaretstaino6277 Жыл бұрын
Is Justin still alive
@tonychorley4936
@tonychorley4936 Жыл бұрын
Maybe someone like Elon Musk could fund something useful like research into treating and perhaps curing diseases rather than shooting rockets into space.
@michaelgann8070
@michaelgann8070 Жыл бұрын
Justin is a legend. I had him in my class in Yr.7 in 1986. I left that school at the end of '86 to go to Newcastle Uni. I never forgot this mature, tallish year 7 kid who spoke to me about basketball. I went to his funeral at Wollongong Uni and bought his book. A fantastic read.
@aliciam6725
@aliciam6725 8 ай бұрын
Would AI make a difference in these treatment-elusive illnesses?
@aliciam6725
@aliciam6725 8 ай бұрын
If that’s a stupid question I apologise. It’s a genuine question - genuinely stupid question?
@DrumsBah
@DrumsBah 8 ай бұрын
​@aliciam6725 I have expertise in AI but not neuroscience. I lost my father to MND. There is a possibility for AI, more formally Machine Learning and Deep Learning to assist in this space, indeed it already is. The biggest challenge is that these techniques thrive on data and MND, compared to other neurological conditions, is relatively sparse in data. But this is improving over time! Expect drug discovery and gene detection being low hanging fruit for these techniques, as well as using AI for earlier assisted diagnosis (critically important in MND) as well as the numerous ways that AI can assist patients with loss of function (e.g predictive text, speech to text, predictive sensors etc.)
@SoloBench
@SoloBench 11 ай бұрын
Why on earth would she have the gene when she's not genetically related to him
@DrumsBah
@DrumsBah 8 ай бұрын
What are you talking about? That's literally his biological sister who was worried.
@hollydisanto9148
@hollydisanto9148 Жыл бұрын
🙏🫶🏻
@danniieem2840
@danniieem2840 Жыл бұрын
RIP
Fiona MacDonald confronts motor neurone disease | Australian Story
29:28
ABC News In-depth
Рет қаралды 110 М.
We Attempted The Impossible 😱
00:54
Topper Guild
Рет қаралды 56 МЛН
Une nouvelle voiture pour Noël 🥹
00:28
Nicocapone
Рет қаралды 9 МЛН
This Man Became A Scientist To Save His Family From ALS
29:59
Journeyman Pictures
Рет қаралды 31 М.
ALS hasn’t won - ALS ONE! | Kevin Gosnell | TEDxBeaconStreet
16:22
Inside ALS: The neurons behind the disease
3:28
nature video
Рет қаралды 279 М.
Living with ALS: Clay Ahrens' Story
10:10
ALSMNNDSD
Рет қаралды 74 М.
Anna's Motor Neurone Disease (MND) Story
18:29
Anna Penhall
Рет қаралды 98 М.
The courageous Dr Ian Davis: finding a MND cure | 60 Minutes Australia
14:07
60 Minutes Australia
Рет қаралды 69 М.
We Attempted The Impossible 😱
00:54
Topper Guild
Рет қаралды 56 МЛН