"You mean I'll be paralyzed, bedbound, incontinent, then die?" | The Clinic

[@xoxogiselle]

I’m 39, I’ve had lumbar and cervical disc pathology in addition to central spinal stenosis, since I was 22. Recently, I have been experiencing trouble with walking. I understand this disease very well, and I have so much compassion for anyone going through it. It’s very isolating. Most people can’t comprehend what we suffer through on a daily basis…

[@BestPracticeHealth]

Isolation makes everything so much worse. Stay connected. I hope you have seen a good doctor. Pick a pain management doctor who can follow your problem with you. Best Practice is a pain management who is double board certified in physiatry or anesthesia, as well as pain management.

[@احمدالمالكي-ن2ر]

Iam same age with you and I have same cervical stenosis I had been suffering for seven months I never sleep

[@bugsy2902]

Right I've been ghosted by a childhood friend and her family since I can't stand and walk without pain as it is a drag for them! We were on vacation and they were annoyed with me that I couldn't go on and needed to stop and sit and eventually used a shopping cart to lean on when we stopped at a couple stores a few blocks from the hotel. Never mind the pain I'm going thru!

[@OneWhoKnowz]

@@bugsy2902sounds like u didn’t lose anything. They sound like horrible friends and im sorry you went thru that

[@bugsy2902]

@@OneWhoKnowz Right! They apologized but it wasn't the same. I finally went to the Dr and got an MRI after I injured myself worse gardening and I don't have spinal stenosis, but have neuroforaminal stenosis lumbar back with spondylolithesis ie the vertebrae are slipping on each other and pinching the nerve. I've had PT which helped temporarily and had some facet injections and just had an ablation. It's too soon to tell if it will work, right now I'm still in pain but read that is normal and it may take 2-3 weeks for best results. I just want to be able to enjoy my life and stand and walk without pain.

[@sandh6973]

What a kind doctor. I wish all doctors took the time to explain things to their patients.

[@BestPracticeHealth]

What kind of doctor am I? Disabled. I used to be a neurosurgeon.

[@sandh6973]

@@BestPracticeHealth No, I am saying you are kind. You have a wonderful way with patients.

[@dawnaustin4556]

​@BestPracticeHealth I bet you where an amazing and thorough surgeon. You're still amazing for that matter! Any update on this case? Wishing him the best of outcomes!

[@Merkabah_Ascension]

I would like to thank you for making this video. I live in Washington, and I've seen 4 different specialists about my cervical and lumbar back. You explained more clearly in this one video the diagnosis and treatment than all of my doctors combined. I appreciate your work and educational tools.

[@BestPracticeHealth]

You are welcome! Hang in there!

[@user-ny7cs2dx1g]

This guy speaks the truth. I am a chronic pain sufferer of 28 years and have had 5 back surgeries, including 2 fusion surgeries. Once you have a fusion it’s more than likely you will have others. I am scheduled on Tuesday 9/19 for my 3rd spinal fusion. They’re fusing from S1 through T10. My spine is so unstable and I have fallen just like this guy. This is all from a congenital defect. I will also have to have an Intrathecal Morphine Pump. Back pain is absolutely horrendous and takes a toll on you mentally.

[@BestPracticeHealth]

Hang in there! Good luck in surgery. Please let me know how it goes.

[@imveryhungry112]

I hate spine problems 😢

[@FluxyMiniscus]

At 57, lifelong horse person, Living in Tucson (even though I ride English) I’m facing severe stenosis lumbar spine too…. Just had an EMG (yuck!) yesterday, will see neuro surgeon In December. (He diagnosed me in hospital in October) I’ve been in pain with full body neuropathy for many years now, have had numerous MRIs but nobody could see much other than arthritis. In fact, I’ve had a number of injections and PT courses for SI joint inflammation, with no relief. I’m guessing now that my stenosis “somehow” went from nonexistent to severe overnight? I’m hoping this is the beginning of the end of this pain- I’m ready to get relief, yesterday before yesterday! Oh, and THANK YOU for saying that horseback riding was NOT the cause of this pain! I’m so irritated with people not understanding how much CORE, strength and balance you develop on horseback.

[@dlg5485]

He actually looks really good for 78. I thought he was maybe mid 60s. I'm 53 and was recently diagnosed with severe lumbar spinal stenosis. The MRI showed severe disc degeneration at L4/L5 and L5/S1, as well as bone growth pushing into spinal canal at those joints. I am terrified of having back surgery, but I fear it is inevitable at this point. I live alone and I don't know how I would manage a long recovery.

[@BestPracticeHealth]

Doesn't he look great! He's really an amazing guy. Thanks for your notes. I really appreciate them. You seen very kind and thoughtful as well. I'm sorry to hear you are living alone at 53. Are you lonely? The quality of relationships has a big impact on our health and longevity. Once you get your back fixed you may want to think about getting out there.

[@dlg5485]

@@BestPracticeHealth Well, there isn't enough time for me to go into all the reasons I wound up alone, but it suffices to say that growing up black and gay in a strict religious household in a predominately white community didn't lend itself to becoming a confident, well-adjusted adult. I'm working on that. However, I'm actually in really good health, other than my back issues. I've spent the last 5 years or so really working hard on it, but then I injured my back at work last year which revealed these deeper back issues that I wasn't even aware of before.

[@lulumoon6942]

​From a fellow pain survivor, my experience is even small changes and small gains stacked can make a BIG difference in quality of life, and positive energy for social and other goals. Wish you the best, and hope you'll remember your unique self is necessary to all of us! 👍❤️🙏💞😎

[@SloopyDog]

I am 76 years old. I was diagnosed with spinal stenosis in my cervical spine and lumbar spine when I was 57. The specialist said I was too old for an operation, instead, I was given several years of physio and traction. The traction did help, however, the physio departments stopped doing traction and my physio was also stopped. I now have severe spinal stenosis in my lumbar spine and cervical spine. I can not walk very well, I fall easily. I have stiffness in my hands and I also lose the use of my left hand and my left leg. Walking is painful and my joints lock. My neck is very painful and I am unable to look up, my head is bent forward and I can not straighten it up. I am seeing a specialist in a few weeks, however, at my age, I don't hold out much hope that they will be able to help me. I can only hope they can as life is unbearable as I also have heart disease and I require shoulder joint replacement. I have already had one replaced in my left shoulder.

[@BestPracticeHealth]

Oh my goodness! I’m so sorry to hear this. It happens quite commonly that someone has progressive stenosis, but just is not medically fit to undergo the surgery. Physical therapy and traction are good treatments, but not first stenosis. Hang in there. I know it’s frustrating. Motion is lotion and you have to be as active as you safely can be. Often times water exercise is a good option if it’s available to you. I wish you the best in this difficult situation. Sending you hope and patience.

[@CarolynAitken-yp2rq]

Thank you Dr you were a great help very informative 👍🏻

[@ma7608]

Going through the same problem and people like us get treated like junkies when we ask for medications. Nothing works anymore and even though I'm not on narcotics I tried epidural injection and no changes at all!

[@BestPracticeHealth]

Good point. I'm sorry you were given injections and narcotics for spinal stenosis as they don't work.

[@karenohler6401]

They want yo put space s in my spine

[@karenohler6401]

And if I don't get this done then what

[@lisatodd]

You are so right.... Treated like a drug seeker...... It plainly says on the epidural injections not meant spinal injections

[@jeannievieira592]

They did the same for me, epidural injection, trigger point injections, physical therapy and narcotics. Nothing works.

[@midnight-in-tx]

Amazing interview. Such a nice couple. I'm so glad they shared their story.

[@BestPracticeHealth]

Thanks!

[@kmartin2988]

Wow! A doctor who knows his stuff, actually likes people, and desires to help and encourage them! One man in a million.

[@BestPracticeHealth]

Thanks!

[@CrystalMouse1]

I'm 35 but have had this pain since I was 21. I started using a wheelchair when I turned 30 because I couldn't stand up longer than five minutes. Now it's down to 3 and I have pain even when sitting but it's not as intense as when my posture is good and I'm on my feet. My care team for a decade got mad at me for using a wheelchair and I told them exactly what this patient is saying and they ignored me. Probably because I am also bipolar and have autism. So I sound dramatic. But my newest doctor ordered me a CT scan last week and it showed stenosis, pseudoarticulation in the L4-L5 with a bulging disc in between. I'm angry but I hope they believe me now 😒

[@littlebug1026]

I have had two back surgeries within a year. I am currently off with a 4 level spinal fusion from C3 thru C7. Months before that I had a laminectomy from L3 thru L6. I still have lower back issues and the arms, fingers, hands, arm pits, shoulders, neck etc etc are a hot mess. I can't feel my finger tips much and the more I use them the worse they get. Right now from typing my hands are going dead and the pain climbs up my arm and lodges in the base of my neck on my back and it feels like a big rock is in my back. Complete hell. I feel your pain. I FOUGHT with both of my surgeons nurse practiontioners. Those wenches had NO IDEA how i feel and i cant STAND it when they talk to me like I am making shit up. I can't take care of myself, my house, my car, nothing. But...let's open the borders and give them all some free damn everything! I feel you and I am so sorry for your pain. You have to fight that's all I can say. I have no family anymore so I have to be my own advocate.

[@randykoeller5256]

Gosh hun trust me I know this pain It’s horrible:(((( I’m so sorry !i too have it :((((

[@cecpartygurl]

I've had spinal stenosis for 5 years. I cant walk so i gained a lot of weight. I have to lose 60 lbs to have surgery.

[@powen4040]

@@cecpartygurl😊

[@juliehowell950]

Ive gained. Around 35lbs inn a year since being diagnosed .i fee youbeing​@@cecpartygurl

[@amyfrommn7224]

My husband is 42 and just diagnosed with severe lumbar recess stenosis. Is there hope at all for any normal life? I understand it can’t be healed completely but I don’t want this to get worse. He basically does not have a good quality of life right now, only on the couch. He is young and healthy and it all changed overnight.

[@BestPracticeHealth]

Hi Amy. Lateral recess stenosis is a pinched nerve root due to compression, usually from an overgrown joint in the spine. Transforaminal epidural steroid injection is very effective in temporarily resetting the nerve root pain from this condition. If the pain is bad enough for more than 12 weeks despite transforaminal injection then a minimally invasive spine surgery called laminectomy or foraminal to my is indicated. These days this can be done “through a tube,” by surgeons who specialize in minimally invasive surgery. Where there is life there is hope. With the right help you and your husband should expect this problem to be a nuisance, and to a game changer.

[@l.c.345]

Doctor you explain things so well, none of my current physicians or nurse practitioners over the decades have explained squat nevermind no one explaining my multiple MRI's, CT scans, flexion/extension X-Rays to me. Most importantly, I can tell you consider all aspects of a person's condition, most doctors do not, and I appreciate it as I was an OT for 35 years specializing in neurological conditions primarily TBI before I became disabled. Definitely Barrows by the way, I did my residency there and then went back there to work. Many knowledgeable, skilled doctors well-versed in multiple neurological conditions.

[@BestPracticeHealth]

Thanks for the comment!

[@bruhtay1718]

I'm going through this exact same situation right now

[@BestPracticeHealth]

Want to talk it through? Come on my show. It's free! We can even look at your imaging together. Fill out the form on this page and we will get you on...phoenixspineandjoint.com/resources/best-practice/

[@DonnaF.]

This man is describing exactly what I’ve been dealing with since may of this year. ‘23 Taking Lyrica, 27 weeks of PT. I had injection. I just want to walk again! Weakness in my left leg more than right. Also weak in both arms. Had MRI of neck. Showing disc herniatin, bone spurs at C5-6 and C6-7 anterior and posterior indentation of thecal sac. Also L4-5 S1 nerve impingement. I’m not sure what the plan of care is but soon to find out. I hope you find the right Dr who can help you, sir. May God protect your spine, keep you safe and bring you to a surgeon who can alleviate your pain. The ankle thing is awful, I know😢 Be well!

[@lucybrowne62]

He looks really ypung for 78!!

[@Darth-Betta]

Hope he went on that spring cruise. ❤❤❤

[@BestPracticeHealth]

Me too.

[@templeray5754]

I am 38 years old and was told yesterday by a chiropractor yesterday that I have severe stenosis and if I just get punched it could make me paralyzed been worried ever since.

[@BestPracticeHealth]

Hmm. Did you have an MRI? Stenosis can be suspected by history and exam but MRI is needed for confirmation. Do you get punched a lot? If so, that seems like a bigger issue than stenosis right now. I love your questions. A lot of people has this or something similar. I'm going to wirte a blog about it. Please follow my site to see it: www.bestpracticehealth.tv

[@templeray5754]

@@BestPracticeHealth no just got into it with someone should of never happened had the fight won easy. yes they did a MRI on me

[@Chipper1807]

I am having an abalation done on my lumbar and s1. I did the test block and that helped completely

[@200Nora]

After an accident and an MRI I was dx with lumbar stenosis with the 5th the worst. Dr assumed, I was having lots of pain. I am lucky that I can walk, and pain an discomfort only after doing repetitive bending and movements that I should not do. I do not take any pain killers and tylenol only occasionally, but mainly for headaches. At 65 I went for my first medicare visit, and I was diagnosed with prediabetes and osteoporosis. At that time, I was experiencing righ knee/hip pain with limping too, which I thought was OA, but xray showed no OA. I went into a research mode, and find that a moderate ketogenic diet (low carbs, sugars elimination or severly decreased, wholesome foods (with plenty of fatty fish), Vit D, B12 (I was low), physical therapy helped me a lot with my musculoskeletal and my prediabetic problems, and for the last year, I have barely notice any discomfort at all. I continue my diet and exercise, and so far so good and more energy. This is my experience while trying to avoid any major interventions for as long as possible. I like the level of patient care shown in this video.

[@BestPracticeHealth]

You are awesome! Thanks for the comment. Have you tried turmeric tea? It's a natural anti-inflammatory that is great for joint pain and inflammation. kzbin.info/www/bejne/jnrVYmiJfLSjqbM For more info on an anti-inflammatory diet, check out this playlist: kzbin.info/aero/PLsYo8ENYsvpxVcbe0sgzqWtmomOMAHWsx I'm excited for you... please let me know how your journey progresses!

[@200Nora]

@@BestPracticeHealth Yeah, I drink turmeric and green tea.

[@marlenevanjaarsveld8658]

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[@rebeccarussell9618]

Hi i have been diagnosed with spinal stinosis for an mri..im only 41 and have 2 and a 5 and 18 year old children..im on gabapentin and cocodimail..but still in pain..i also have loss of feeling in areas ..on and off..

[@BestPracticeHealth]

Wow! You have your hands full! Most people don't become aware of stenosis until their 50's. Has anyone else in our family had it? It does seem to run in families. Gabapentin started out as an anti-seizure drug, and is safe to take for long periods of time; however, it's a "dirty" drug, meaning it can have a lot of side effects. Headache is the most common one in my experience. A loss of sensation, even if it comes and goes, is also concerning. Check your MRI report. IF the stenosis is described as "severe" or "marked" then you really need to be careful. That mean seeing a spine surgeon or neurologist periodically, and having MRI periodically to keep an eye on things. You're so young to be dealing with this! Keep your eye on the ball. Get re-evaluated immediately if you sense a change in symptoms, and know that changes in bowel or bladder control, including slow urination or not emptying fully, may be due to stenosis. A lot of patients who had surgery told me they wished they had done it earlier.

[@morseventurechannel1365]

I was told to take Tylenol

[@ACH1970]

I have severe stenosis at multiple levels. I had C-5&6 surgery a few years ago. I just had another MRI, & it’s severe at that level, so I’m a little scared of more surgery.

[@noesis1230]

I am 36 years old. I have Bilateral L5/S1 Herniations. I got bilateral TFESIs about a month and a half ago. I have had manageable pain until the other day. And, this morning, I woke up at screaming, and instantly alert in excruciating pain. Have laid in bed all day. Pain radiating to the front and even in the groin right now. I have these issues due to an auto accident, and I am currently waiting for the paperwork to go through to get Bilateral Discetomies. I wish everyone of us dealing with these issues the best of luck. I am scared myself. And now, Im going to the ER and who knows what will happen.

[@cherylcampbell7495]

I started taking vitamin K2 and peptide collagen with bovine for energy. I have too much calcium. The vitamin K2 has dissolved a cyst on my right wrist and I no longer walk bent over. No pain. My chiropractor took X-rays and after eight weeks I feel better and no more numbness in my right arm.

[@BestPracticeHealth]

I’m glad you’re doing well! I hope it keeps going that way for you. Congratulations.

[@sherrybaby9123]

How much K2 do you take? I feel hope watching and reading the comments. My pain is so much that I cry most of the day. I have a lot of support around me, but I went from healthy to this, 3 yrs ago. Please tell me more about the K2

[@kathleenhuston9942]

Ihi, I am a 79 yo women that has spondolithis and a discectomy. At l3-4-5. Now I I need surgery again. I enjoyed your presentation as you explained things so well. I have severe spinal stenosis and scheduled for surgery in 6 more weeks. I am really having problems with walking. When I go to stand up after sitting for a while , example. Car ride, I cannot get my right leg to want to move. . It takes a while to get it started again and it fells like it is going to collapse after a while. I enjoy walking and was walking about 3 or 4; miles a day. But now my legs are weak and get tired so fast that it seems impossible to get the mileage in. Is it natural to have our leg not want to move?

[@BestPracticeHealth]

Absolutely, it sounds like surgery is the right path for you, and I'm glad you're taking that step. Hang in there, and please keep us updated on your progress. Additionally, we'd love to hear more about your experience afterward. If you're willing to be interviewed on the air, please don't hesitate to call us at 602-256-2525. Sharing your story can be incredibly valuable to others going through similar situations.

[@xoxogiselle]

Praying for your success and speedy recovery from surgery ❤

[@albertascott99]

I'm 48, was told last week I have severe central spinal stenosis at L4-L5. I deal with a lot of anxiety, so I really hope there is no scary stuff like paralyzed. I have some pain but not too bad and I get some numbness in legs when standing too long. I'm following up with my dr soon..Please tell me I'm okay for now

[@BestPracticeHealth]

Spinal stenosis is slow moving. I'm glad you are taking good care of yourself and seeing a doctor. We have decades of knowledge and experience about spinal stenosis. Your doctor will guide you through this process safely and securely. Our hope and best wishes are with you as well. You've got this! Hang in there and let us know what the doctor says, especially if you have any questions after seeing them.

[@AmeliaThatsMe1]

I had Spondylolisthesis L4 causing lumbar spinal stenosis which caused lots of leg pain, feeling like my left leg will buckle , Trendelenburg gait, on and on and on. I was told the stenosis may lead to incontinence and possibly paralysis. I put it off for a year because I'm 62 and live alone with three dogs. Anyway, I was terrified of surgery and terrified not to have it. Anyway , I finally decided to just have the lamenectomy and the L4L5 fusion. No choice. Hospital one night. Painful for about 5 days. Still a little bit of nerve pain on my legs. The problem is 10 days out I'm walking and now have low back pain.

[@FlaWebmaster]

You are just about the age where I started to have problems like yours. In my case, it took twenty years before I had to have surgery. Everyone is different, so you may avoid surgery altogether. If you do have back surgery, find the best surgeon you can find and do what he tells you to do. It may take you a while to see him. These guys are busy. I'm 76 now and in good health. I am not paralyzed and I am very much alive.

[@katygirl9221]

I'm trying so hard to be able to walk more than 4 steps without debilitating pain. I'm on pain pills and going to PT 3 to 4 times a week. MRI stated bilateral foraminal stenosis and herniated disc. I can't take the pain anymore 💔 I need help please. I need to get to Arizona?

[@BestPracticeHealth]

It sounds like you have unbearable sciatica pain due to a herniated disc. That is an indication for microdiscectomy surgery. Let's look at your images together and get a plan going. I can see you by video tomorrow or Friday. Submit your question by video through this link bestpracticehealth.tv/

[@RoboNurse84]

I hurt my back when I was 25 (I’m almost 40, now) and had an MRI that showed degenerative disk disease and spinal stenosis. For a long time both of my feet felt like I was walking on fire. Then, that feeling starting moving up both legs. About a year, maybe 2, ago that changed to numbness (I was relieved that the pain went away) which gave way to motor loss in my left leg and muscle atrophy. Now I’m experiencing power loss in my right leg, have noticed decreased walking/standing stamina, and have had increasing bouts of instability and have caught myself from falling. I’m worried that I’ll end up in a wheelchair. So, either this guy has actually gone through similar events, or he’s a damned good actor because I can hear the frustration and pain in his voice!

[@luzvargas1063]

It's hard to believe patient suffering from it a long long time and never got to a Doctor!

[@darrencrisp7656]

I'm 34. Had surgery. I'm on 3 per day 10mg Hydrocodone, 2 per pregabalin and 3 other medications. In alot of pain. Can't walk, sit or stand long. My MRI is 2.5 pages long. I have a 13, 14 and a 15 year old. Doctor said no more surgery will help me. Injections don't help. My L5 to S1 is destroyed. My neck is destroyed. Any tips?

[@BestPracticeHealth]

Find a doctor to help get off your meds. Narcotics are not appropriate for chronic pain of this type and usually make things worse in the long run. We had over 100K deaths of despair in the US last year due to "overdose." I'm worried about your safety, and not from the spine stuff.

[@jamesjohnson427]

This guy has real and permanent pain,and your worried about addiction? Gees, Overdoses today are mostly due to street drugs not prescription drugs. That was true not long ago, but things change

[@nagibkanaan2464]

Typical stupid reply Guy in pain

[@dawnmorning]

Was told 2017 get ready for chair. 42 now seeing surgeon 26th... will see what Dr says.

[@BestPracticeHealth]

I'm so glad you are taking good care of yourself! With proper information in the US we should never see someone left bed bound and incontinent due to spinal stenosis. Despite all the hoopla on the internet about "non surgical treatment for spinal stenosis," the only way to make a small hole wider is with decompression surgery. Stenosis should never reach the point of putting you in a chair because there is plenty of warning ahead of time to get the treatment you need and deserve. Please let us know how things go with the doctor. Best wishes. We are hoping for the best for you.

[@dawnmorning]

@@BestPracticeHealth insurance, medicaid, ssdi dictate my care. In trying to bring awareness about ppl with disabilities being less than humized. Got appointment in 19th, week earlier now. Standing and walking taken for granted by too many. Thanks for you channel.

[@BestPracticeHealth]

BTW, it's not a treatment for stenosis, but check out our new series on CBD for the treatment of joint pain due to arthritis here: kzbin.info/www/bejne/rHu2hmekj8SIY5o

[@dawnmorning]

@@BestPracticeHealth Great CBD video. I work with Indiana NORML... Would you be willing to share what you know. Indiana is noj medically legal and we are trying to change that.

[@dorothybeveridge3133]

Hi . Iv been told I have stenosis by my physio. I’m waiting for a scan which could take long enough. I’m on tramadol plus other painkillers. I’m like that man , when I turn I nearly fall. The same if I step back. Please let me know how that man got on . Did he get an operation & did it help . Thank you .

[@BestPracticeHealth]

Hi, Dorothy Beveridge! Nice to meet you. Unfortunately, I can't share any follow up on him. However, laminectomy is highly effective treatment for spinal stenosis. Watch out for tramadol! Its listed as an anti-inflammatory but it acts like a narcotic. That means it can be addictive, and doesn't get at the root cause of the pain. Please feel free to check in once your imaging is done and let me know how you are doing! I wish you the very best. It's horrible to have this problem, but the treatments are good, effective, and safe. You have every reason to hope for a great result once your treatment is done.

[@waynebevan2574]

Hey , I’m on Tramadol, doesn’t work I’m finding

[@erajeannsepada5555]

Hello... I have been diagnosed a year ago that i have cervical spinal stenosis specifically at c3 to c5 and i was advise for surgery but sad to say i got pregnant im in my 3mos. Preg. I am actually worried coz its been a week that my head aches and my buttocks i felt the nerve and run through my knees.. i am worried if i go to cs section

[@BestPracticeHealth]

Hi back! Very nice to meet you. Sounds like pregnancy was not on the top of your list. My family started at a tough time in my life as well... but thirty years later I wouldn't trade my kids for anything. It's actually common for people to deliver with stenosis. Believe it or not, C-section with anesthesia is typically safer than vaginal birth with regard to stenosis! Once things settle in with your new little visitor don't forget to follow up with your surgeon about the stenosis. It may be helpful to find a neurologist to follow you during this time... not to stereotype but if you find one who is a young mother herself you can be sure your doctor gets what's going on with you. Mark your calendar to repeat an MRI of the neck within 6 months of delivery to see what's going on.

[@angiehorn9417]

Had the fusion surgery 30 years ago on lumbar now have arachnoiditis with severe back pain. Can’t find any doctors that want to treat it - they don’t wanna touch it. I get that but can’t even get pain management to help. The only thing they offer is a pain simulator and I’m totally afraid of having anything else done to my back. I have issues all the way up in my cervical and thoracic. Would be nice though to find a doctor that could at least help with the pain and the flare ups. 😢

[@lulumoon6942]

I had a decompression for Chiari Malformation, and 2 revisions, with the last one leaving me without much sensation below the waist and extremely spastic, and also in a chair. I now have Syringomyelia that is rapidly progressing with no given hope for slowing it down, or pain or symptom relief. My quality of life has majorly diminished, especially since Syringomyelia has few real treatments. Stenosis as you explain it in these videos sounds like some of the scariest of my symptoms. Any thoughts, understanding it's NOT medical advice? 🤔

[@BestPracticeHealth]

Progressive syringomyelia after Chiari decompression is usually treated with a shunt from the inside of the cyst. These operations are done only by a handful of neurosurgeons. Have you seen a neurosurgeon who does syringopleural shunts?

[@karenohler6401]

This is what I feel

[@BestPracticeHealth]

Gotcha. Have you had an MRI?

[@JaneBell-y2f]

Am 85 yrs with fatal stenosis,Dr. Can on keep me from pain.what is life span when nothing else can be done.

[@BestPracticeHealth]

Light exercise like water aerobics really help. Motion is lotion. Also, make sure you see a physiatrist or urologist for bladder management. Infections are often fatal.

[@imveryhungry112]

I got severe stenosis in my neck and lower back and im only 42. Lucky me 😢😢😢😢

[@BestPracticeHealth]

Yikes. Sounds like you inherited a narrow spinal canal. Does anyone else in the family have it?

[@imveryhungry112]

@@BestPracticeHealth No they dont. But I got several injuries in the military especially to my neck.

[@lewiskrammer7157]

Mine feels like electricity & burning at times. I've heard stem cells are a great way to go.?

[@BestPracticeHealth]

Stem cell treatments are showing real potential for herniated discs causing sciatica, and torn discs causing discogenic pain. But they're not likely to help much with stenosis - the problem is the spinal canal is just too small, and no amount of stem cells make it larger.

[@keithnielsen4776]

Mine is electric and weakness

[@keithnielsen4776]

Also it feels like something is pushing my body to the ground weird

[@larryprimeau5885]

severe cervical stenosis can cause dementia.

[@BestPracticeHealth]

I’m curious to hear more about why you think that. I’d love to learn about your experience. From my understanding of the nervous system, there isn’t a plausible mechanism by which cervical stenosis could cause dementia, but I’m always eager to learn something new!

[@michellehawkins3592]

This is me!

[@steveclare116]

I see you refencing MISS - Minimally Invasive Spine Surgery..... How about MILD (Minimally Invasive Lumber Decompression)... Looking at that route - but was informed my insurance [Horizon] ONLY pays for MILD procedure for Medicare.... Im 54..... I dont understand - either procedure is efficacious or not - how is age a variable.... Regardless, is MISS covered by Insurance (or only Medicare eligible)....

[@BestPracticeHealth]

MILD is really interesting. I think we need more data and doctors need more experience with it to be something I could recommend. But if it appeals to you, it seems safe and worth a try.

[@steveclare116]

@@BestPracticeHealth -- Thank You..... It seems perverse that Horizon and others ONLY cover it for Medicare Patients..... I cant think of any medical reason for this.

[@CaramelSunflowers]

How scary! I had a neurologist tell me that my moderate to severe foraminal stenosis at C4-5 and C5-6 was normal aging (i'm 50) and nothing that would cause any of the arm numbness issues that I have (and possibly the leg numbness and weakness). I have been diagnosed with nTOS, though clearly some of my symptoms would be from this including both arms going to sleep at night. I guess neurologists are better for other things! Time to find a neurosurgeon.

[@sherizazzetti1824]

8:12 8:14 8:15 I just found out that I have narrowing of my spine I pee my bladder doesn't I don't feel like when I have to go when I pee I'm 42 I have to wear diapers when I go to bed or and if I don't during the day I'm changing constantly I got pain running from my lower back down to my leg she said I have no wrong of the spine is pushing on the nerve and on my desk I've been doing the other shots for 2 years and don't work the last shot that I got. I felt like it made it worse and now I'm peeing on myself constantly I can't hardly lift up my feet going up the stairs I walk into the stores I'm tripping over the carpets I'm falling down the pain is getting worse I know I'm on gabapentin but I don't know what else to do but I'm tired of living in pain I take Tylenol Tylenol does not touch it I'm in and out of bathtubs using Epsom salt any idean and the pain runs all the way down to my right leg all the way down to my ankle and my heel and then when I get up out of bed in the morning I can't hardly put my feet on the ground because it hurts so bad any ideas suggestions I can tell my doctor, I cry its that bad i use muscle rub , It hurt just to touch my legs my incaance ,didnt pay for a shot agaim bu it dont work i shouldn't be peaing and loose balance, or fall by a rug because my feet. Any ideas I can tell my doctor. , I have pain on my lower back I'm desperate.thank youv

[@susannec659]

He looks good for 77.

[@Torn-i8f4f]

I’m 11 and I have it what dose that mean

[@cherylcampbell7495]

We loose our spinal cord fluid with age.

[@BestPracticeHealth]

You mean the cerebral spinal fluid? We have it throughout our lifespan. Is that what you’re referring to? What do you mean?

[@annanicole1717]

I had to be able to activate twice I two different surgeons. The first one I had was extremely extremely painful. I mean I would have wished that somebody took me out to the pasture and shot me. The second one was painful, but not like the first.

[@sudipahalder5004]

My father have severe Lumbar Spinal stenosis..now he have pain while standing and numbness..but not willing to get the surgery and doing physiotherapy...how long should i wait for surgery?? Fearing with spine surgery and its success rate

[@carolinewolf565]

Not so great news. Only 48, but had since my 30’s never knew. Most seem so much older.

[@buck2559]

I have stenosis in my back, but i have congenital cervical stenosis and foraminal stenosis in m neck and it is a heck of a lot worse in my neck which effects my shoulders and hands.i am continually dropping things and clumsy Ness in my hands i had a plate and acrews and cadaver bone put in unfortunately it didn't help and i am getting worse.

[@BestPracticeHealth]

You may need a neck decompression (laminectomy). Have you spoken to a good spine surgeon? Dropping things can be a sign of myelopathy, which is spinal cord compression, and is often not reversible. Make sure you get an excellent doctor to take a look at you ASAP.

[@AnnemarieMytka]

He is so arrogant