Post-Polio Syndrome: Changing symptoms?

[@boblewis9757]

Thanks Doctor I came down with polio in 1955 @11months. PPS started approximately 15 years ago. My biggest mistake growing up was thinking I could work out till exhaustion and by doing that I could improve my strength. Very big mistake. I’ve had to learn to accept the fact that I need assistance with various devices including my lovely wife. I’m currently going through a spike in my disability where not only my legs but different parts of my body are being effected. Chronic Fatigue and Chronic Pain are my biggest challenges. Can PPS appear in areas that I did not initially have polio? Ie: breathing? I’m using a BIPAP at nights but my breathing issues continue to get worse. My life is so blessed and I know my situation could have been much worse. Sometimes I feel that I’m one of very few polio victims still around. Thanks very much for your insight.

[@lunartears6761]

I’m almost certain that my grandfather had this. I don’t know for certain, but he had nearly every symptom. He was very active in his young age. My parents told me that he started to have problems with walking and difficulty even with simple movements at least a decade before I was born (1997). I never got to really see him without a cane or a walker. Even when I was very young, I always remember seeing that he struggled to move at times. He never really complained about it, he just said it was part of getting old. But I clearly remember times where it looked like it was painful to even move his feet. He died of leukemia around 2007. I will not say that my grandfather had it for certain, but I do clearly remember the struggle to move starting years before he was diagnosed with cancer.

[@Selowoctave]

Hi Margaret hope everyones well . found and shared this specially the save and love your shoulders. and yes she did let me write on the PHI page. (: None yet i dont have PPS symptoms afetr 34years of initial diagnose but i continue my Physical therapies regularly and KAFO tune up or changing it every now and then...ohhh and swimming and stretch exercises helped a lot and faith a lot of that and people/ angels around me 😉

[@charlotterohde7383]

Thanks so much for this video. I was diagnosed with PPS in 2005, continued working till 2010. Have used indocine for pain, but now finding more challenges with more pain. Heard that some folks are using cannabis, but wondered what kind?

[@gabrielwood9345]

I would like to thank Marley, so much. You have answered all my questions. Drs will not help you. I just don’t trust specialists anymore and WHO and MAYO.. They tell you it is highly contagious, which is not true. My left knee and hip from putting all the weight on it. The Loss of vision, they never mention it. God bless you and thank agan❤❤❤❤❤❤❤❤❤❤

[@Amit-i6i9u]

"If you’re looking for a holistic approach to tackle Post-Polio Syndrome, Planet Ayurveda’s products are a great choice. I've seen noticeable improvement in my mobility and energy levels!"

[@acrtez]

I got polio when two years old and recovered and now I'm 39 I'm having a lot muscle related symptoms specially swallowing difficultly that makes feel like I'm choking doctors can't do anything. Don't know what to do I can't eat or drink im dying.

[@irisetpoppy9956]

So sorry for you- there are ups ans downs... Can you find a spécialiséd doctor. Avec mes amitiés

[@alisonsaunders1393]

I am now getting serverve back pain which I believe is due to PPS

[@nanaprn7809]

I had severe back pain as a post polio survivor which turned out yo be spinal stenosis. Do not assume that all pain can be attributed to post polio syndrome

[@jayendepersil6607]

I realize what you're saying. But "what you are saying" can scare people without cause. And lots of 75 year olds aren't drunks!