Predictive Genetic Testing: Would You Want To Know? (Full Docudrama)

A documentary about the complex emotional, ethical and psychological issues surrounding the new frontier of predictive genetic testing. The film follows three families who have been confronted with the decision of whether or not to be tested for Huntington's disease - a degenerative neurological illness that is akin to having ALS, Schizophrenia and Alzheimer's - and one of the first diseases people could be accurately and conclusively tested for, before the onset of any symptoms. As scientists discover more ways to identify diseases before we know we have them, "do you really want to know?" will be a question more and more of us will face.
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[@jdmmg4904]

It's not just a question of passing it on why one shouldn't have kids but also the fact that the kids they'll have will have to see their parents suffer and might even have to get into some caretaker role is why those ppl unfortunately really shouldn't have kids. Don't be selfish!

[@lindamitchell-fox1926]

If you have the ability to stop a disease in your generation, why wouldn’t you do that? I’m not taking about not having children, I’m talking about taking not taking a chance on passing HD to them. By the way, life can and is very good without having children too.

[@shanittathompson2039]

The problem of passing the gene is that your kids could get JHD. That is so wrong!

[@ILoveLenin]

I agree w you

[@marynafe7418]

I dated a man who had Huntington's, his mother passed away from it. Both of his siblings had it too. They have passed away within the past 5 years, all of them had children and grandchildren. This is such a terrible disease to inherit. I sincerely hope a cure is near.

[@katherinestrotman1162]

My dad has HD...and it's in my entire family. We didn't know that it was in the family until literally the grandchildren were having babies, and boom, we all found out. My sister had already had her kids, and I had not even started a family yet. I had two choices, test and find out if I have it or go through IVF and have them pick out embryo's that don't have it. I decided to just go ahead and test myself because I had an obligation to my future kids if I decided to have them, so I tested. So last month, I finally got my results....I don't have HD. I can't even begin to describe how the world just opened back up to me. For the longest time, I refused to think of myself as an old lady. Then in one quick minute, I found out I get to be an old lady. I despise HD. I despise what it did to me, and my family. I despise everything it's taken away from but I'm so thankful that I escaped it's wrath. It didn't win this time.

[@MariaMaria-wv1sy]

How did they have babies, used her eggs and a Dona, meaning not her husband sperm.

[@fernemcallister6774]

Unfortunately, children who have a parent with HD and they themselves do not, have not escaped. They are probably going to have to watch their parent suffer, and possibly become caretakers.

[@brera2434]

But they at least won't have to care for them willst constantly having their own future in Front of their eyes.

[@alexcarter8807]

For stuff like Huntington's, Lou Gehrig's, etc oh hell yeah. According to testing, I have the gene for phenylketonuria which means if I procreated with someone else who has that gene also, our kids would have the actual syndrome. I think it's handy to know things like this.

[@lizzzzzzzz]

my best friend's mother and uncle, as well as her grandma had HD. my friend and her sister both do not have it. it''s kind of hard to believe!

[@janroach1852]

The results and testing should be blind tested so insurance companies do not know who you are and cannot discriminate against you. It is unfair, inhuman. Test only if you can test anonymously.

[@rebecca2930]

My family was featured here (Jeff Carroll’s family). This is why, before some laws had changed, we did our test results in Canada even though we’re from seattle .

[@vivalaleta]

Her face when she watched him fall. ❤❤❤

[@kawiirainbownewko]

Oof why did this come up on my feed. I relate a lot. I’m a carrier of a disease that causes neurological (cognitive and motor) decline and other medical issues primarily in males as it’s an X linked condition and can vary in presentation and age of onset. Females can have issues/decline too but nowhere near as severe. My dad has been having a sharp decline due to this and I’m in caregiver mode now and it feels like I’ve already lost him. I also recently started the journey to get genetic testing (which was positive) and start the process of PGT and IVF. It’s a lot to deal with, but this video made me feel less alone.

[@rebecca2930]

Hi my family and I are featured in the documentary and I wanted to say don’t feel alone. Talk to someone if need be. I hope you are well.

[@Redhead77]

Oh what precious, precious little ones! ❤

[@ninorcairam]

22:51 that’s Salem, MA. My hometown

[@fernemcallister6774]

Horrible, hateful, evil disease.

[@coreydempsey4660]

zzZZZZZZzzzz