PROS & CONS OF A PORT-A-CATH (5.3.16)

[@StaticWolfGirl1]

I think it's so awesome that Peter does so well at accessing your port for you! You two are a true testament to "for better or for worse", and I just think it's so sweet that Peter will do anything to make you the most comfortable :) I hope clinic went great today, and you can sing "I ain't got no needle in my chest" real soon!!!

[@ratmgr2]

As a cancer survivor, on non-stop treatment for the last 16 years, I am on my 3rd port. At first, I hated my port because I associated it with getting sick after chemo and so each time anyone came even close to it I would get nauseated. It even reached the point where I had to be hypnotized before accessing the port. Now after all these years it has become a blessing. Mine is also very close to the surface (I joke that it's my Frankenstein bolt) and you can even see the line travel up and over my collar bone. It shows with most shirts I wear, but I "wear it" with pride 😉. I just wish they would last longer than 5-6 years before failing, but perhaps it has something to do with the toxicity of the drugs that go through it, rather than antibiotics. God Bless

[@Tabbatha.]

I was so grateful to have a port during my chemotherapy. My port would have trouble now & then with blood return also but all in all it was very worth it. Much Love & Happiness To You Both !!!

[@ev65roses]

You are very brave! My son at 30 just had his first picline. He gets very depressed in the hospital. Does home IV's after 5 days in the hospital. You both are wonderful sharing what your daily day is with CF.

[@sarahjeanw]

I got stuck in the rabbit hole that is the medical side of youtube and that's how I became part of the Frey Family! I found you guys by watching medical videos lol

[@HeyyBrey]

I'm with Mary, I LOVE medical stuff. Everything about it fascinates me. :)

[@Gatinha66x]

me too

[@survivor9044]

Me too! I have NF1. & was a St. Jude's patient for 28 years.

[@hannahrobin7449]

I'm glad I'm not the only one who delves into researching illnesses. It's actually how I figured out that I have Ehlers-Danlos Syndrome (I spent years trying to show doctors that I have it and now I've been diagnosed with it). Recently I've been researching CF and Type 1 diabetes a lot.

[@angelayoung2285]

I just think you two are adorable. I have been a nurse for 16 years and I have learned more about CF from your videos than I have learned in the 16 years as a nurse. You two are the cutest! Keep Laughing and Living each day to the fullest! We could all learn a lot from your outlook on life! All the best to you! (Oh! And I LOVE your doggy too!). ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

[@RebelRhiannon]

I may have to port soon, we shall see in a week or so! I have to have infusions at the hospital regularly and we were really struggling to get a vein that would work. I have been ready to port for a while, it would be better than spending 30 minutes almost every time trying to get a vein for an IV. My veins suck :(

[@thefreylife]

A port sounds like it could be a great fit for you! I have been so pleased with mine! Hang in there!

[@RebelRhiannon]

+The Frey Life Thank you!

[@imdrummin1]

My dogs always got crazy after a bath. McKenzie (who was just recently put down) loved baths and would be totally crazy after one. Daisy will only get into the tub if I ask her too. But then afterwards will be very excited. I used to think all dogs did that until my roommates and I got a dog. This dog, named Max, just chills in the tub, and then when he's done he just lays on his towel on the floor.

[@caseyslade2407]

your first video with accessing your port actually provided some comfort for me, because I just had mine put in January 25. my port will be accessed for the first time tomorrow. which I'm nervous about... I had a port put in do to me having polycystic disease. which mine isn't polycystic ovarian or kidney. I have polycystic disease which is a mutated strain thanks to the mayo clinic

[@caseyboyte1984]

Thank you for your videos about your port care! I found your channel through them when we were trying to decide whether or not to get a port placed. At the time, I had to go in for infusions multiple times a week for POTS, and I had at least one vein blow every time. My port surgery went very well! I think my nurses were more excited about it than I was. I was sore for a bit but it was a breeze compared to my other surgeries. Since then, I've learned to access it all by myself with very few problems. I can administer my fluids at home. It has been the best decision I've made for my health. I do still get kind of squeamish when I think about how the tubing coming from my chest goes to my heart. But I can impress my nursing student friends with it. That's the life with a needle in your chest, I guess. :)

[@flj7]

I love looking for new medical videos! I volunteer at a Children's hospital and often spend time with teenagers/ young adults. Some of them love to educate me on why they're in the hospital, so I try to go home and educate myself before I see them again.

[@licha987]

Having a picc line for cancer treatment for one year was not fun can't imagine 11 years with a port your awesome Mary!

[@Emmz1l5]

So today I went out and bought a slow cooker (crock pot) and made your salsa chicken! 1 word amazing! New favourite meal I think! Thanks for the idea :)

[@thefreylife]

+emma nock So glad you liked it!

[@sidneyglasshoff4469]

OMG! I jump into the KZbin rabbit hole too. I will spend hours watching medical videos! I just found your page a few weeks ago and love your videos!!!

[@kenaitapolyai7251]

My dad's golden doodle does that as well. We absolutely love it.

[@kalilee18]

I have a port because of seizures and frequent hospital stays. It's the best decision I've ever made. Mine has not drawn back blood a few times, but we found out that if we flush it with extra saline it'll usually work after that.

[@ChristinaMaki]

Doing a little dance before accessing is a very important part of proper sterile technique.

[@MsRespect247]

right!! makes it all beter

[@zoepointon2035]

I found out about cf in that rabbit hole of medical stuff and that's how I found you guys, I'm so glad you guys make me so happy

[@thefreylife]

+Pineapple Kiwi So glad you found us in a rabbit hole :)

[@anovemberstar]

That Mary loooks up different medical things and wants to learn all about them, and spends hours watching to learn what other people go through? That's exactly how I came across these blogs :).

[@MsRis2793]

Was talking a drink of water while you asked if anyone else gets post bath craziness, and proceeded to then spit water everywhere when you said peter ran in the yard after a bath. Because of my laughter hahahahahaha thanks Mary!!

[@purplewillowart]

Cooking With The Frey's...That would be a fantastic weekly segment....And yes...After I shower, I am compelled to run into the backyard and roll in the dirt...haha

[@shonay5419]

I would love to hear a port video. I currently get picc lines but in future i would consider a port.

[@sandsyland]

I love the cooking/recipe clips you do too! I tend to make your meals for my family and they always loves them. Your lettuce wraps is now our family's fave!

[@533134]

I had a port-a-cath 15 years ago for chemo treatments, I loved mine!!

[@jordyn3341]

I was just visiting my grandpa at the hospital, I noticed that a section of the hospital was named Frey Family Patient Care Center! I assumed no relation considering I'm on Long Island but made me think of you guys! 💕 hope all is well!

[@brendametube]

Great job accessing Mary's port Peter! So glad you didn't feel it much Mary and I'm so thankful you still have those needles!RE"KZbin rabbit hole"… She's only nine, but Mae Li does the same thing! She has so much compassion for people who suffer illnesses. Her compassion and her eagerness to understand what others go through is so real and because of this, although I still supervise thoroughly, I never have to worry about where she goes on KZbin. Oliver got a TAXI! Sooooo cute! OX OX OX

[@brookewalters-schmidt177]

Thank you for sharing about your port experience! I had mine put in about 8 months ago and it has been such a blessing!!! I have several medical conditions that often. require IV fluids and blood draws. I'm amazed that yours has been fine for 10 years! One if the Bard Power-Port clinicians said they knew someone who had one for 21 years! That's amazing and I hope mine holds up that long! :)))))

[@thefreylife]

+Brooke W. I'm glad you are liking yours!!!!

[@hannyiesz]

Such a caring Husband you have. Mary, you are so blessed. Lots of Love from Singapore!

[@wolfsrule100]

I always use PICC lines so far. I've had 12 (last one just this past week) I prefer PICCs because even though it's a pain to get a new one every time I like the fact that once it's out no traces are left behind.

[@thefreylife]

+wolfsrule100 That's a great perspective to share with others when they are considering a port or not.

[@bethnalley5799]

I am right there in the same rabbit hole as Mary!! My latest kick is Cystic Fibrosis, thanks to Mary! I found you guys probably about a week ago and I am now addicted. I watch tons of youtubers daily but you guys are the only ones I can watch 500 videos in a row and not be tired of by the end!! Love you guys and I would LOVE to meet you one day!!

[@leejohnson5988]

Peter God bless you,the support that you are giving to your wife, well you know. My self I think that I would not be able to do what you do. God be with you both and God bless Amen👍

[@christienbbrooks7334]

I'm so thankful for my port it's so much better :) I hope everything goes good at the cf clinic tomorrow :))

[@mathildamarigold2911]

Mary is absolutely precious every single day and I love her personality💗💗

[@anitab5531]

Your video made me smile today. Thanks.

[@KaleighRings]

I hope the clinic went well today and I'm sure get to see it in tomorrow's vlog :) I do love your cooking it always looks so tasty so Im definitely looking forward to that video as well!

[@joyssmith9030]

Ollie found a taxi under the couch.....lol.... that was so randomly awesome.... I love the way you two work together....you are so in tuned and fluid.... it is so intimate when you two get your port ready for the clinic or hospital... I appreciate all of the knowledge you are sharing about CF... I am learning so much... good luck at clinic today...you are probably already done but I feel the need to say it..... See you tomorrow

[@margaretc2015]

Hope clinic went well today..looking forward to the video tomorrow

[@debbiehellenbrand-klooster3303]

I have eds and they just told me I am getting a port a cath this week for NACL IV. Thankx for youre video so I can be just a little less nervous. xxxx

[@larachatman418]

We need a Frey Life cooking book! Yall could put some of your recipes and we could send some of ours!

[@lucywoolhouse3123]

Hi guys! Just wanted to say have started watching your vlogs daily rather than binge watching them every few days, I wanted to let you know that they are getting me through my dissertation and keeping me focused :) as strange as that sounds I always say that I'll see you tomorrow too :) Hope clinic went well today Lucy

[@thefreylife]

+Lucy Woolhouse So glad we can be helpful with your dissertation!You totally got this!!!

[@lucywoolhouse3123]

+The Frey Life thanks :) final two week push! CF and exercise effects :) Thank you so much for your input by the way!! :)

[@MadHatterDJ-]

Oh yes, I know all about the crazy dog after bath thing ahah! You guys are awesome, just needed to put that out there x

[@amandaeliz5069]

Mary you are seriously so tough!! I admire you so much!! And Peter you are such a great husband!! If I get sicker in the future I hope my husband can do what you do for Mary!!!! You seriously have so much patience and kindness towards your wife its so refreshing! Mary, good luck with the clinic! Love from California!!

[@kristinramos7260]

Peter take good care of you. I am glad he knows so much, my husband is the same way. Some times I have to ask him questions.

[@robinmanthey9951]

Thats funny when you mentioned watching others with various things.. for me it's humbling also.. I don't have CF but I do have Obstructed Hypertrophic Cardiomyopathy and will be having a septal myectomy the 24th of this month one of our children have it also and two of them have enlarged aortas .. I had cancer in 2012 so I venture on KZbin to learn etc and that's how I found the Freys =)

[@gregfoulke1799]

Ollie is so silly when he snuzzles. He must love getting his head rubbed and that's a good angle.

[@muffet90]

I hope this comment is acceptable...I don't have or know anyone with CF and I'm learning so much. I don't remember how I came across your channel but I found the videos informative and above all you guys are super fun! Thank you for sharing the Frey life!

[@tracyhunley2042]

I love watching and being a part of your world!! I want to thank you for educating us about CF and I personally want to say thank you for helping me as I am about to graduate nursing school and I have had many CF questions that I can answer easily thanks to you guys!!! Thanks again you two are amazing and truly an inspiration to us all who watch!! 😀

[@chronically_living_life]

Hey Mary! I know this is an old video, i get my port placed next week, so im watching all the port videos. I want to do my own port care and infusions at home. How do i go about bringing this up? my dr has done a lot of medical gaslighting lately

[@MissJenMarie]

I'm the same love watching how other people's chronic illness effects there daily life and how the deal with it gives me better ideas how to cope with my own. I'm to a zebra having EDS. you guys really make me smile and feel positive. your both amazing people :-) and Olivier is an amazing dogie 🐕🐩

[@lizzybelle11]

Lol Mary my dad showers with our dog too! Its SO much easier than giving an actual bath, and I feel like my dad thinks its bonding with him and his hunting dog lol

[@latypeofgirl9382]

So glad you explained this! Taliajoy18 had one but she didn't like to talk about it.

[@jenr4683]

at 6:18 your create sign looks like CF with the blue basket in front of it

[@thefreylife]

+Jen R oh haha, how appropriate!

[@MsCrystal1980]

I love my tunneled line!! Port would be crazy for me to have since I'm accessed all the time for TPN, but watching your videos I wish I had a port so I could have free hours some. Love your inspirational videos. I don't have CF but other major problem and I love learning about medical things. We could probably be nurses!

[@adrianadominguez3933]

OMG LOL when they bumped heads!! i love you guys

[@KristinaApril]

Hope the clinic is goin' well for Mary today and I can't wait to see the food video!

[@Rawr98]

My old poodle used to do that greeting thing, too haha. It was awkward with new people

[@kattieanderson5809]

Peter you are such a wonderful husband..you all make a great team! :)" Ollie found a taxi under the couch" lol love you all!

[@lindseytaylor3793]

I just love your personality so much! You are always so happy and optimistic even though you've been through so much. Every time I watch your videos it makes me so happy because you are just so inspiring. It just amazes me how happy you seem even though you've been fighting cf for your whole life and it must get so frustrating sometimes. Stay strong 💕 (and I apologize for my English if there's any mistakes)

[@sarahvanorden670]

I'm definitely a medical junkie too! Knowing people have a crave for that knowledge is why I publish Morquio A videos!! I'm glad you have enjoyed, there's a whole website devoted to Vimizim and my story is one of the patient stories!

[@MisWheezy]

I LOVE my port too!

[@rebeccapayton2260]

I watch your videos every day and you guys make my day

[@enlightenedbygrace4U]

It is my hubby's birthday month as well.. woot woot! BTW I made the chicken taco via the crockpot ya'll shared! yummy! We are eating that for dinner today! I love seeing you guys cook too. My mom had cancer and had a port. BUT everytime she had a needle put it, the nurses numbed it with a special spray... SO I don't know if you need one...

[@thelifeofpug8689]

I'm on my third port! My first one lasted 5 years (on my left upper front) but that got fused so can no longer have one on my left side as my artery is blocked by the tubing, my second was on my right (just under my arm pit) and that lasted for 3 years the tubing fractured where it comes up over the collar bone, and my third one I had in October and it is my left upper front and have so far not had any problems! I hope this one lasts a while! Fingers crossed!

[@usernamehasbeenvoid7671]

I have had my port for 12 years and love it! The only issue with mine is that because I was 11 when it was placed, I have a baby port. It can move when accessing. It usually gets one poke. Last December, I was in the hospital and needed it to be reaccessed after 7 days. The PICC nurse had already left for the day so a charge nurse tried... and tried... and tried... and failed to get it placed. I ended up bruised and sore and caused infiltration by flushing when it wasn't in. The PICC nurse got in in the next day. Unfortunately, I needed an IV because I had antibiotics due overnight. Other than that, my port is great! I go in the hospital about 3 times a year, so it works great for me.

[@thefreylife]

+McKenna Hardy (TheSaltyMutantEats) Hey McKenna! I have a pediatric port too, and I've thought about when/if I need to replace this port I still want a tiny peds port :) Hopefully the surgeon will be willing :) I just want you to know I've been thinking of you and your family since David's passing. I hope your heart is finding peace as you grieve. Sending you a safe hug through the internet ( I promise I won't send my germs in a real hug :)

[@QuinceyG]

Hope your CF Clinci visit went well, Mary? Was thinking of you.

[@MountainGirl7771]

I also like to look at medical vids. They are so interesting, especially the neurological ones. The awareness ribbons for the two things I have (Lupus and Arnold Chiari Malformation) are also purple! May is Lupus Awareness month for me. :)

[@DolphincutieWorld]

Hello Mary and Peter! Hope you having a great day! :)

[@anitasmith6726]

I find the good in life every day my favorite thing to say is , Life is an occasion, so live it.

[@megantridgell5931]

Hey hope u two are having a nice day

[@utoobjunkie4902]

Hi Mary and Peter! Sorry about your missed medication Mary ! ) I won't keep ya long. Wanted to tell you I saw your video from a while back where you made "Shepherds Pie" . I have always wanted to try it so I followed your version of it and wanted to tell you my son's loved it! The oldest eats constantly, he is 13. The younger 1, who is 10 , can be picky. But they both LOVED it and so did my husband! No left overs at our house last night ! 😄😆❤❤

[@brendavoshel9423]

I hope everything went well at the clinic today! 🌈

[@elygale2001]

I always have problems with my pic lines and have wondered what having a port would be like. I would love to hear people discuss pros and cons and just experiences of different types of iv access type things. Oh, I also love medical videos, the more unusual the illness the more I seemed to get lost in the KZbin and then internet rabbi hole!! And, another also :), my Airedale always did the after bath running around, be silly and hyper thing. I wonder why they do that?

[@kateszczepaniak9795]

I’m getting a port in a few days I have mg I’m getting ivig every 3 weeks

[@BNHAalltheway]

You and Peter are a great team Mary how You handle CF is amazing and of course Ollie is the cutest ever

[@lauriebrester4508]

Mary when I'm only 9 and when I get older Im going to be a surgen and hopefully save CF people pluss i love the videos. God Bless Mary Peter and oliver.

[@momluvssuspequenos132]

My pros from my port was less bruising and sore arms another pro it's way faster other pros had to be easier blood draws n easy access t receive my chemotherapy cons mine was always so itchy and sometimes it was sore to the touch I had chemotherapy everyday another con was my nieces n.nephews not understanding that I was sick n always gave my port kisses for my ouie omg I'm tearing up my healing took months when I first got my port and when I got it taken out I'm praying for you and your family

[@tinmanlover1994]

The Fray life I just got my new port on 1/23/18 it's a power port it's my 2nd port I had a port when I was little then got it removed when it stoped working after 10-12 years in 2008. I started sub-q at home in 2008 after 6 years in 2015 I went back too IVIG in the hospital in my hands and arms but now I got my port.

[@artemisalexandria1399]

I have a thing that Mary can research! Epidermolysis Bullosa. It's a rare genetic skin disorder that I have. Just thought that I'd post this in case you haven't heard of it already! :)

[@dawnmcgrew2874]

Wow, he absolutely adores her! That is so awesome :)

[@hayleyhowell12]

I enjoyed your, "What is Cystic Fibrosis" video. I enjoy watching medical information videos, too! May is also Ehlers-Danlos syndrome awareness month, which I have. I'm thinking of maybe making a "What is Ehlers-Danlos Syndrome" video. If I do I'll post it to your Facebook so you can watch it. :)

[@Francis-vu3vd]

OH MY GOD YES YOU SHOULD TOTALLY DO THAT. I'm an EDS zebra and proud. You go girl! Xx

[@ellietheanagirl4982]

Yes, you should do that! It mental health awareness week, I'm considering making a video on disabling anxiety

[@xlipsyalicex]

Yes totally I just commented eds I was thinking of making a separate youtube channel all about eds and it's complications especially gastroparesis

[@hayleyhowell12]

+Ellie the Ana girl A mental health video would be great. I also suffer from anxiety.

[@hayleyhowell12]

+xlipsyalicex There can be a lot of complications of eds. I have dysautonomia, but people can also have heart issues, Chiari malformations and gastroparesis. I have wondered about have gastroparesis myself, but am not sure that I do.

[@mariekedufresne53]

I've had a Hickman and two Broviac central lines (currently had a Broviac still) I use it 3x a week. Wish I had a port though so I could go to the pool.

[@gregfoulke1799]

I do love your cooking videos; they are well done n cool.

[@Owen02_]

I can't wait to get my lung transplant as when I get the new lungs my port gets took out as I will never need it again and I am a marvel fan so I remembered in the first iron man film his reactor gets put in a glass cube and I told my transplant surgeon to keep my port so I could do the same and he said that's a really good Idea (I have CF too) :)

[@georgeeden5835]

Good luck buddy I will be thinking of you, let me know how you get on

[@kuhriynuh]

I love it!!

[@shlorp3976]

+SUPERSTORM owen Good luck!

[@ashlee_ellis7570]

Good luck!!!!

[@alyssarogers9460]

I will be praying for you :)

[@saharab5081]

As a. EDS and POTs patient we use ports for IV hydration

[@BabyThespy]

I do the same thing! All things medical interest me as well, so I fall down the medical KZbin rabbit hole all the time! I used to be a medical assistant and was considering going back to school to become a nurse (though I was actually taking a couple classes for fun to improve my acting and musical theater performance skills and was hoping to get into community theatre since singing/acting has always been a huge passion of mine and, as a child, I had dreams of Broadway) before my health spiraled downhill and I became unable to work or even go to school about 5 years ago. People think I'm weird though because my absolute FAVORITE thing to do as an MA was to draw blood and I was really good at it too! Patients that were hard sticks ALWAYS requested me. But, since I'm not able to do any of that anymore, I turn to KZbin to watch educational videos about medical stuff. At the very least, it helps expand knowledge so that I can discuss things with my doctors at a more in depth level.

[@millymcbug]

I just got the feeling that you guys had uploaded:) and I checked, and voilà!! :)

[@MsRespect247]

medical stuff is awesome if you don't have it. I do the same as marie. it helps me feel not alone with medical issues an plus you can learn alot on other medical stuff. if it's wasn't socail (I have autism, high functioning) I would do a doctor or nurse training! but I do plan to become a vet tech for animal health! !

[@elliottjames301]

Peter is really helpful.

[@cynthiabromback8854]

you're awesome Peter! yes..we do love it when you guys cook and when we get our daily dose of Ollie, lol.

[@Pilaze245]

was Oliver named Oliver when you got him, or did you name him?

[@matildablomqvist7555]

i stumbled on this video! I would love a pros and cons with port, thinking about getting one!

[@christyinthecarolinas]

You should look up complex regional pain syndrome (crps). there are some videos on KZbin. I have had it for 9 years. I'm the same way when it comes to learning about different disorders/diseases. that's actually how I found your channel! I find all medical stuff sooo interesting!

[@KristinaApril]

Can't wait to watch!

[@pyramid-ukulele-group]

I love having a port it was one of the best decisions i ever made. Its been over 20 years now and am on my 2nd one. My first lasted over 10yrs. It was being used for iv antiobiotics almost every month, and the problem i got was the skin over the port in the left side of my chest started to die, my nurses had noted the skin going black, and my poor nurse got a shock when she removed the needle the skin had eroded so much that it tore and as the needle came out the port came with it ! My nurse went white and all i was thinking was oh great this is gonna mean a hospital stay ! I was at home at the time so my nurse drove me with her back to the hospital. The port was removed the next morning and had a central line put in temporarily to complete the IVs i needed. I went home with the central line and was admitted to specialist hospital about a week later to get a new port this one is in the right side of my chest and have had no problems with this one so far in 10yrs. Having IVs and blood draws is so much easier for me with a port.

[@kristinamchale7727]

LOL Ollie found a taxi under the couch !! :) :)

[@gracekelly6761]

Starbucks gives you a free drink on your birthday!!! My birthday just passed and you get one!! From having there app and a gift card!!:) #facts love you guys!!!

[@heyyou1198]

I'm with Mary medical everything fascinates me! I'm a documentary junkie, medicine, airplanes, bridges, buildings, ships, anything lol.

[@ministercrystalhelpinghand4580]

I love watching you both much inspiration