PRP Round #2 Update (with C0-C2) & Intubation Tips/Emerg Surgery with Craniocervical Instability

[@paulwelch9906]

I totally understand what your going through. I have it as well and it is totally disabilitating. I have had prolotherapy with no success so far. I live in the U.S.A. in Texas and every doctor i see thinks im crazy or knows nothing about this issue. If PRP or stem cell do not fix your CCI. I have only found 1 surgeon in the U.S. that does this surgery. He is in New York and his name is Daniel Riew. I am still trying to find out how i can get insurance to see this surgeon. I seen video of CCI patient that had great success with him. I pray for healing for you.

[@ItsStabilityTime]

@@paulwelch9906 thank you for your prayers Paul. It is a very scary journey. The stem cells are slowly helping me alongside multiple other therapies. What caused your CCI?

[@ItsStabilityTime]

@@paulwelch9906 wishing you the best with your healing, keep the hope! It’s one of the most powerful things we have from within ourselves

[@paulwelch9906]

@@ItsStabilityTime I believe it first started with bad posture. Then I had had 2 major car accidents which I injured my neck in both. But what really knocked my atlas out of place was a seizure I had sitting up right. My head jerked down violently several times. When I woke up I had clicking in the back of my skull and my head felt severely loose. After Digital motion Xray. We found that my atlas pops out of place moving forward. I have many of the same symptoms. Dizziness, tachycardia, trouble walking, blood pressure swings, and more. Thank you for making these videos. I havent found a lot of places that treat this condition. I have had to travel out of state to get help with Prolotherapy. I believe the worse thing is that doctors don't believe you and think your crazy in my experience. Just seeing your video helped me, by just knowing someone understands my condition. So I just wanted to say that your not alone and I understand yours.

[@discerninggift76]

​@paulwelch9906 I also heard of the surgeon you named and heard the same great things about him and the success his patients have had after the upper cervical fusion. Maybe an option if Regenerative medicine doesn't work out.

[@analyticalhealth]

Yay an update - you're awesome and we all support you!

[@ItsStabilityTime]

Thanks so much!!! We got this! What a wild ride

[@StarHarvestOfficial]

Awesome to see you going on this journey! Where did you get PRP in Canada?

[@discerninggift76]

@StarHarvestOfficial I believe in one of her other videos, she got PRP at Regenexx in Colorado.

[@rich.mahogany]

Thanks for posting this, I know it’s very hard. Would you mind sharing your who your AO is?

[@ItsStabilityTime]

Sure thing! Dr. Rosa :)

[@fdauti_ca]

You are very brave ❤, hope picl would be a game changer for you

[@ItsStabilityTime]

You are so brave too! I hope you’re doing well. It’s a really tough journey. CCI is a beast

[@Pavel_Franta]

hey, that means everything sux but you try to stay positive? Any new update?

[@kimberlyrolon4328]

Where did you get your PRP done?

[@Cat45078]

She went to regenex in Colorado I think. I got my prp at c1 at ROSM in Maryland in case you are the east coast

[@troymcl81]

Im in British columbia and having the same problems with doctors. just saw another neurologist that asked me if i tried ibuprofen.... i shutdown immediately just knowing hes not the doctor for me.

[@ItsStabilityTime]

Hey Troy! I’ve sadly experienced similar reactions. I still can’t comprehend how such a serious condition has no proper care. I’m rooting for you and hope you can see someone who knows about CCI. I got prolo in BC if you need any advice

[@troymcl81]

@@ItsStabilityTime you got c-0-c2 in b.c or states? i got prolo but only up to c-2

[@ItsStabilityTime]

Yep, four rounds below c2 and three above c2 in the USA!

[@discerninggift76]

@ItsStabilityTime Where did you do your prolotherapy in the U.S.? I believe the main problem for people is finding the right doctor for help. Most are not educated or informed about CCI and are dismissive. Which can be very frustrating and lonely.

[@simo-dv5xk]

Do you have any bulging discs in your neck as well? Thanks.

[@ItsStabilityTime]

I don’t have one in my cervical neck ( prolo helped prevent this I believe), but I do have one in my lumbar spine!

[@michaelsmith2057]

you need stem cell therapy i had it it will fix you i went fourteen years like you now i,m back to normal

[@ItsStabilityTime]

@@michaelsmith2057 that’s amazing! Yes, I’ve had my first stem cell procedure!

[@discerninggift76]

Hello @ItsStabilityTime I have CCI and was diagnosed thru Regenexx in Colorado. I wanted to know before I book the PICL procedure if it worked for you? How are you doing? Hope to hear back. Thank you!

[@ItsStabilityTime]

@@discerninggift76 hello! I’m so happy you got a diagnosis, it’s the first step! The PICL number one at month four caused me to be upright longer. But I still experience bobble head severe, dystonia and neuro symptoms. I am upright but mainly homebound all the time. The outside world is too much for me at this time and I’m healing my nervous system. I had number 2 in august and am waiting patiently to see if it helps. My case is very severe. My doctor said I would need a fusion of this doesn’t work but I know it will! It’s just complex and takes many treatments at once of mental health, regen medicine injections, spinal rehab etc

[@discerninggift76]

@ItsStabilityTime Thank you for the update! I believe hope is a powerful thing, and pray for your success and improvement. Keep the faith🥰