Pseudoseizures 101

[@abigalewakeley4625]

I have Pseudoseizures too. I can't go to school, I can't drive, and I'm just having my life taken away from me. thank you for making it have more sense in my eyes. this helped me!

[@goertzpsychiatry9340]

kzbin.info/www/bejne/nZTMoHaggqqkqK8

[@Show_Love_Serina]

Thank you so much for this! This is the best description I've found thus far. And I've looked everywhere.

[@mnieto6265]

Amazing timing to find your video. I am 59 yrs and have been having seizures since 2008. I"ve seen a doctor every two months and have been on medication all of these years. The doctor has never tried to find out why I have these. I took my husband in with me last week and as we were leaving, the doctor said to my husband (married 15 yrs) "these aren't seizures." He indicated it was "just stress." I have been so incredibly upset since then. My husband has missed a lot of work because of me. I feel so embarrassed and wasted everyone's time and compassion. Thank you for your video. It really made me think. Best wishes to you.

[@greatnakaya]

Thank you so much for your video. My daughter has been struggling with this for about 6 months, and it has been very trying to say the least. I thank God though that she is a senior and although it has affected her life in so many ways, she is still going to graduate with honors, and I pray that whoever is going through this know that life does not have to pause, get the assistance you need, and stay prayerful. I pray every time my daughter has an episode, and it calms her down. It works.

[@goertzpsychiatry9340]

kzbin.info/www/bejne/nZTMoHaggqqkqK8

[@thefungizen]

Hey everyone, I have been dealing with pseudoseizures for about 7 years now. Blame and embarrassment have always been issues with me. Only recently have I taken the blame off of myself and accepted that it is not my fault, and this doesn't destroy my life. Acceptance and an understanding with yourself is the best way to cope as you go through this. Public episodes do happen sometimes, but there are things that you can do to prepare. Having a "safe room" you can go to if feel like you're going to have an episode and being around people who know you and understand that that could happen to you are always things to keep in mind. Although I don't advise it without experience, having your episodes alone will bring the anxiety and panic down so it may be shorter and less violent. Just because you have an episode doesn't mean that you're not working hard enough or that you're giving in. It's a battle every time. I have gone from having multiple pseudoseizures every day to once every two months or so. It is a tough disorder to deal with, so take pride in your accomplishments as you work through it. Good luck to everyone who is dealing with PNES, keep your heads up, and be proud of yourselves. Thank you for posting this Danielle Nightingall, that's very brave of you. Aside from a diagnosis, these kind of videos can sometimes help people more than doctors can. Well done! -dz

[@daniellenightingall9973]

Derek Zeller Thank you so much and thank you for sharing your story :-) stay strong!

[@johnleathers8113]

Well said! Those words of wisdom will stay with me in my fight. Thank u and God Bless

[@johnleathers8113]

Thank u Danielle for an informative video. You're bravery gives me hope! God Bless

[@firerose7639]

Derek Zeller i got diagnosed about year ago and i just recently had one and i cant remember things and its scary and i feel bad my mom and my sisters and my bf say its fine but they dont understand how could they and no one ik has it so i cant talk about it and its scary keeping this bolled up sorry im telling you this i. Dont know what to do and my conclers call me crazy

[@Iskippu]

I was diagnosed with pseudo seizures about a year ago from 2019. It’s difficult because I went through a lot and they’re triggered easily.

[@nadinezucco7751]

i got diagnosed with them today. i pass out everyday 2-3 times a day due to my high stress and anxiety

[@goertzpsychiatry9340]

kzbin.info/www/bejne/nZTMoHaggqqkqK8

[@bobbyfishes1976]

I understand completely God bless you my wife has the same symptoms over 1 year, it's gets easer

[@mayokayoh4284]

I am very glad you did I can relate to all of it, I just finally got diagnosed the correct way but that right Dr... after all these years of being misdiagnosed it was very depressing thank you so much from Minneapolis Minnesota

[@daniellenightingall9973]

I'm really glad that I could help you :-)

[@hannahjacobs2685]

I was diagnosed when i was 16 im now 28 i have 2 children and barely have them its been a long road to recovery but life does get better thank you

[@yvettequintana4156]

Make more videos! Love what your doing! My sons gf has this and she, been to hospital many times with no answers so frustrating!

[@lacytrowbridge4843]

I love this so much. Thank you for sharing your experiences.

[@alaina1093]

Oh my gosh! This sounds like what I experience minus the shaking and convolution. Wow! I was diagnosed with Neurocardiogenic Syncope instead, but I've always said it was a wrong diagnosis.

[@skyenichols6524]

this video helped me stop much! I have been diagnosed for about a year now and have never met anyone else with this.

[@tamekahenry6205]

I had one today. I had been a long time since I had one. I was having a great day too. I do have great support from my husband. I don't like my kids to see them even though they are teenagers. Its really hard on them to see. Stay strong!

[@marilynmonroe1375]

Hey lovely lady. Thank you so much for posting this. Hope they are going better now for you. I've been having mine for over a year now and they suck slash no idea why I get them.

[@elfonashelf255]

Thank you!!!! I just got diagnosed...it all makes sense now😊very helpful video🙏God Bless You 🙏

[@autumnnixon830]

1st I was just diagnosed with this . You helped me a lot . I can finally understand. Thanks you . 2nd The mortal Instruments girl . 😍

[@daniellenightingall9973]

Autumn Nixon You are more than welcome :-) I know right! one of my favourites :-)

[@goertzpsychiatry9340]

kzbin.info/www/bejne/nZTMoHaggqqkqK8

[@katieb777]

in 15days it'll be the 16th anniversary of a grandmal seizure i had i saw a neurologist who gave me phenytoin ( HORRIBLE side effects!) *sigh* i dont have epielpsy i was later diagnosed by the neurologist that it was pseudoseizures i later saw a psychiatrist with 40+yrs experience THUROUGHLY evaluated me and diagnosed me with mild autisim i reserched autisim and i seem to hav some of the symptoms . for years i was cool and ok having 0-3 seizures a year i was doing very very well not having any for 5+yrs since i would exercise everyday + i was physically active at past job *sigh* but i smoked quite a few cigarettes starting at 15 i would also socially drink when i was 15 and increased the ammount of drinking alot alot in my late teens * sigh* and now at 25 i im now disabled with multiple sclerosis since summer 2018 *sigh* i often think it was the trauma my brain went thru having teh grandmal seizure ? or the HORRIBLE side affects of phenytoin ( IT felt SO BAD everynight at bed time i prayed and begged god to plese not let me die !) *sigh* im sure it was alot of trauma also when i drank heavily 3-4 x a week :( ( i been sober since 5/20189 and cigarette free since 9/2019) *sigh* to those reading this PLEASE try to go for a walk each day i highly recoend that you just walk indoors like room to room for YOUR SAFETY & if you have pseudoseizures be cautious of the triggers to me is lack of sleep , stressfull situatuations , excess tv / computer time , and DONT TALK when you feel really stressed *sigh* my first seizure 11/12 2004 couldve been prevented if i DIDNT TALK too much when i was stressed ! i drank chamomille often for years during my sober years . it SAFELY makes you feel CALM RELAXED i make my tea this way get a coffee cup add chamomille tea bag to cup palce in microwave 1 minute 45 seconds let tea bag sit in cup 20+minutes before drinking that tea works very well also to imrpve sleep ! when its an emergency i have some chamomille tea stems i get a small small ammount of the stem chew on stems and swallow just saliva to FEEL CALM much faster ! nice writting to you'all YOUR PRETTY BTW Danielle! Katie ( babyangel)

[@Diago.K]

So Pseudoseizures are like a nervus breakdown but a little worse. A doctor diagnosed me in the mid nintees with having them but I never knowtest myself getting any. But I used to take Depacote. Not diagnosed anymore thank God

[@sarahjaynexxx708]

I've had them 11 yrs now ... horrible to live with, but hate it when I'm out I suddenly feel unwell and I know I'm gonna have one.

[@alien-ann]

I have pesudo seizures and temporal lobe epilepsy both rip. Keep fighting girl

[@MountainMama915]

I have them as well and the only thing that I can treat them with is literally anti convulsant medication, same as for epilepsy. I have Bipolar as well. I have dealt with these since I was 22 years old, I am almost 40 now, they can be quite terrifying. Not just for those of us that have them, but for those that care for us as well.

[@rileylynn9901]

I got diagnosed about a week ago and its getting to the point I cant hardly breathe/talk/move for quite a while

[@sally-annebrown1298]

Rebooting after trauma. Fun times

[@Sumaya54]

I have tonic clonic seizures. After I seize, I am exhausted and every muscle in my nody is sore. This week is the first time I've heard of pseudo seizures. I cannot imagine having even a few seconds to lie down before seizing. My first thought is to wonder whether one reaches a point where you feel the aura and can ward off a seizure.

[@laurenshaughnessy6705]

I know this was like 2 years ago since you made this, but I have been going to a phychiatrist for over year now for panic attacks cause that's what my doctor said I had (bearing in mind he's never seen one of these episodes) but my mam wasn't convinced, then the other day, I was at a concert and I had an episode and a paramedic said I had a pseudoseizure so I Googled it when I got home and it said "fake" and stuff like this..surely they do not think I faked this traumatic experience?? 😭

[@Dustydawdy]

My daughter has been having several seizures since this past Wednesday. We have 2 hospitals, one being top 10 hospitals in country, both have EEG machines but we do not have a pediatric neurologist here. The hospital nurses just plain out say that she is faking it. I watched her heart rate go from 80 to 200 in 3 seconds. Any ways besides therapy sessions that can help?

[@christinehodges9506]

I have psuedoseizures too. Was diagnosed with them several years ago. I take seizure meds for them too!

[@d1psfx880]

Christine Hodges do the meds help? And what meds?

[@lamamasota5280]

My daughter just started with these and you just clarified a lot for me. I've been to the hospital 3 times this week and no one was able to give me a concrete answer. How long do yours usually last?

[@diannacorrea1311]

Mine has lasted 3-4 hours. If im not convulsing, my legs are immobile and I still have that "aura" feeling that goes with it

[@jaimee-leacovers8070]

I have epilepsy and psuedoseizers I had a seizure in front of the whole school even the bullies came up to me and said are you ok I hate it when I drool it's so embarrassing.

[@Diddly_The_Beast]

I have it too i find it hard to cope with

[@ehartmiller]

Your story is mine so before I saw this I felt no hope...you give me hope!!! What meds you take?

[@goertzpsychiatry9340]

kzbin.info/www/bejne/nZTMoHaggqqkqK8

[@LisaMLisa79]

Afterwards do you kind of get anxiety or feel embarrassed or strong anxiety? The neurologist said I get these and I get embarrassed and have lots of anxiety when I start to come around.. 🙄

[@amberwright701]

I have epileptic seizures and non epileptic seizures and I can tell the difference between them .

[@brianbutt9475]

do you get this after head tramua my doctor doesn't know if it is seizures 's vs preseizure

[@skatrees]

I'm a lil difderent, I have aspergers so, sometimes it can be like a seizure, accept, I'm conscious so I have so of the pain from it, and I usually can't talk afterwards and usually sleep for a while, so while I don't know the exact thing I still have quite hard time going through life, thank you random friend that have not met yet to read this comment, not that you waisted your time on me most likely though

[@Str0ngertogether]

i’m australian as well. may i ask where you’re from??

[@roozief9349]

I have found that if you have someone with you that knows you have them squeeze the skin between thumb and pointer finger. I have a tat of a button that says help press here. and it helps bring me back

[@Me1forpresident]

I dont leave the house either. It sucks.

[@lindabrincken1677]

What med u taking ? Pls pls let me know

[@clubdredd1337]

Thank you! I have videos if you would like to use any!?

[@judyparedes22]

I was just diagnosed I'm getting on the right meds and working through it I hate the headaches ive been dealing w this since I was 16 ugh

[@marilynmonroe1375]

Judy p may I ask what type of medication? I'm on antidepressants such arnt working

[@judyparedes22]

Marilyn Monroe gabapentin clonipin oxcarbazepin

[@helendonphoe545]

Thank you for your video it was very helpful

[@thebipolarbear2639]

My pseudoseizures make my seizures worse and more frequent, as I panic about having one SOOOO much, that I end up having one. My doctor prescribes me three 5mg Valium per day. It's the ONLY thing that has ever helped me. I hope this helps someone. Cheers from Australia.

[@arelymota3356]

I have tonic clonic and absence seizures

[@kristinamarie111]

Do you bite your tongue during a seizure? And if so how long does it take to heal?

[@diannacorrea1311]

Have you gotten better?

[@ttvgod6812]

I have stress seizures

[@Wowzing4544]

will these seizures stay for my whole life

[@missmalicious5040]

I was diagnosed 2 months ago, they hurt me......they scare me

[@missmalicious5040]

Danielle Nightingall they are just so hard to deal with....especially in school.

[@daniellenightingall9973]

I completely understand, I was in the middle of my HSC year when I was diagnosed. The best you can do in regards to school is to make sure that your teachers and the higher ups (like the principal) know about and understand your diagnosis. It's also good to have a couple close friends around who know about your condition, you don't have to tell every one of your friends but perhaps one or two whom you really trust, having that support can do a world of good, it will make things much easier. I'd also suggest reaching out to your school counsellor as pseudoseizures are a mental disability and a counsellor is going to be the person who understand your diagnosis the best. After talking to teachers and the counsellor I'm sure there can be some sort of understanding that every now and then you may need to leave class without giving a reason and if it comes to it and you end up having an episode in class or during lunch etc there is always someone around who understands whats happening and came help you work through it. I hope this has helped, keep your chin up and remember that this too shall pass.

[@rob-karenkennedy-parker3166]

is this the same thing as conversion disorder?

[@dylan1marvil]

Rob-karen Kennedy-parker yes

[@hopemalfitano5388]

i have that too 😥

[@daaiyaconnors5703]

Thank you

[@mari-iw6gj]

omg you look like a danielle

[@LisaMLisa79]

Afterwards do you kind of get anxiety or feel embarrassed or strong anxiety? The neurologist said I get these and I get embarrassed and have lots of anxiety when I start to come around.. 🙄

[@LisaMLisa79]

I said anxiety twice... Ooopps

[@dennislane4972]

Yes But When I turned to Jesus Christ My hole life changed . Not the new aged Teaching Jesus no Jesus'Christ . And My Father in Heaven and Father's Holy Spirit and His words AKA the Bible . It's Amazing