Pudendal Neuralgia - Symptoms, Causes & TREATMENT

[@nahidtoubia1644]

I am a 70 years old retired woman surgeon. I have had irritable bladder and detrosal muscle symptoms for a few years. About two months ago I started experiencing perineal pain and severe urethral irritation with frequency. I had no urinary/bladder infection or cystitis. I saw a urologist and a gynaecologist who found all is normal including abdominal and intra-vaginal ultrasound. Paracetamol eased the pain a little. I researched my symptoms and believe I had pudendal neuralgia which as you say is twice as common in women but frequently passes undiagnosed. I started exercising my pelvic muscles and continued with my stretching exercise routines. The pain subsided completely within a week and I have been pain free since then. Of course it may return. Thank you for shining a light on this distressing condition that is rarely considered particularly by general practitioners.

[@aidplan]

Thank you for sharing your story with us, Nahid! In fact, far too many women and men still suffer from pudendal neuralgia and unfortunately, the ailments often go undiagnosed. But like you said, there is a way out! It went surprisingly quickly for you, but even if the treatment is more time-consuming, the most important thing is to become active yourself. With our online course, we hope to be able to make a small contribution to this. All the best to you Nahid :)

[@ammarahafzal7082]

Nahid toubia , can u please share Ur exercises. I'm a physician and started having it 4 months back . I have endometrios , deep infiltrative and had a UTI after ocps withdrawal after which I strated having severe right labial and right sides vaginal pain which would get worse on sitting , improve on walking. Also had burning at the same site. Later started having pain in medial calf and last two toes , the sacral plexus has something to do with it I consulted pain management and they said it's pedundal neuralgia , took amitryptalline and walked , things got better but now again after I sat for a long time things got worse. Would be a great help if u can let us know how u got rid of it

[@smokeyjoe3947]

What exercises or stretches do you advise . Thanks 🙏

[@morningwithgracie7870]

@@aidplan sir do u think yeast infection can cause this?

[@Jonjonjonny]

Can you share the exercise and stretch routine you have been following or maybe post a link? Thanks

[@Shadsapirate]

This is literally the most complex and simplistic explanation I have ever come across. Spectacular presentation, thank you much!

[@midwestmurph]

I was in tears watching this - thank you for being so clear and thoughtful in your explanation. This is EXACTLY what I’m going through and I can share this with anyone who needs to know. I’m hoping the exercises and movements will help and hoping I can find some helpful treatment. THANK YOU again for this video. I need some hope to cling to and this helped.

[@talhagillani5720]

can you help me

[@MdnightWnd]

I was finally diagnosed with this condition late last year. I think I've had it for a long time, but the symptoms have come and gone over the years. Of course I went through multiple courses of treatment for things like bacterial infections first, but I knew it wasn't any of that due to the symptoms and finally a urogynecologist suggested it was a neurologic issue. I started looking around myself and found pudendal neuralgia. It matches my symptoms almost perfectly. A burning pain - for me in the vagina in the urethra area and closer to the perineum with urinary urgency - all of which is made worse when sitting and eases or goes away when standing, lying down or sitting on the toilet. The pain is usually completely gone overnight and slowly comes back as I start my day. Basically everything he said. I went to a specialist for multiple nerve block treatments, I use muscle relaxing suppositories at night, take pregabalin and I'm doing pelvic floor PT - which has revealed a lot of tension in my pelvic floor. My therapist thinks all of the coughing and sneezing that I did when really sick made the pelvic floor very tense which irritated the nerve. I will say that all of these things have made an improvement. I'm still not pain free, but it's much better than it was before I started treatment so hopefully with time it will ease and I can feel normal again.

[@wildlifepk]

I am facing the same, I also have PCOS So I thought it's pain in my ovaries but, I feel fatigue and pain around my vaginal area and in my hip, I've been listening to anti cancer frequency thought it's cancer, but I get relief when I listen to peripheral neuropathy frequency by Good vibes on KZbin. But I don't listen to consistently that's why the pain comes back.

[@alexandradelcastillo5553]

Disculpa cuántos bloqueos hiciste y cuánto te salió cada bloqueo y que doctor los hace y con que especialista fuiste.y tenías dolor anal

[@seematripathi368]

Hlo dear do u have any swelling around your genital area?

[@slametparjoto6615]

0

[@Trish.O-q3h]

Hi, how are you doing now? I have been suffering with this for so long. Are you feeling any better?

[@aliciam6725]

I’m in a FB support group for PN and in all of us there are so many differences in what aggravates it, what helps the pain (including meds) which areas are painful and which are pain free. However, in 100% of cases, upon waking the pain is entirely absent, for moments only. What happens in the brain during sleep (not relaxation since we’re still relaxed when the pain reappears just minutes after waking)? If we could answer this, that would be valuable intel on what is going on that so affects the nerves to cause such horrific pain.

[@robertrodriguez8082]

Whats the groups name

[@aliciam6725]

@@robertrodriguez8082 Pudendal Neuralgia Hope.

[@michaeltaylor8204]

can come from nowhere walking just fine then scream the ceiling off shopping centre can happen anywhere massive electric shock in testies _ wow yes I understand. can get itch lying in bed pins and needles in backside and pennis horrific. so I go to the toilet and do internal massage horrible but stops the itch. life can be a bitch but it's bearable not worth hurting yourself over life's just to beautiful cheers lol Australia.

[@tonifranzell2003]

I was treated for fungal infection, yeast infection, herpes and clamydia and everything under the sun to find out why I was feeling this way. I thought I was crazy at first. I ended up not having any of them in the end, the doctors said I have this!! Its bad now but I’m just glad I don’t have any STIs. Thank you for your help :) I will be getting treatment.

[@octaviawhite3302]

My doctor has prescribed antivirals for me for herpes and wants me to do a swab but I know he’s wrong. I know I have PN. The pain is like no other. However, I still have pain at night; it doesn’t cease at night

[@elizabethmcleod246]

Nothing helped me and I had pain 24/7. I ended up having severe PNE. The nerve was decompressed in three spots during my decompression surgery. I had my right pudendal nerve pinched by ligaments. My inferior rectal nerve was involved as well.

[@Ann_chrstineMoberg]

Äntligen en läkare som kan förklara det som jag har mistänkt. Har aldrig haft så ont och ingen som förstår Detta tillstånd. Behöver hjälp.

[@jamesmcrorie9413]

I can not thank you enough for this. After years of being told by doctors this pain "is nothing, it's all in your head" I think I have found a great starting point. You are describing exactly my symptoms and with this I think I can start finding appropriate treatment. Thank you again!

[@brandonmorse9000]

Pelvic floor therapy has helped me reduce most symptoms by 75%. I went 4 months with severe pain.All test came back showing good health from 3 different urologist. My 4th urologist suggested pain management and pelvic floor therapy. Starting my third month of treatment now. I have good weeks and bad weeks but no where near the pain before treatment started.

[@szh4834]

А какова терапия тазового дна?как происходит лечение?

[@brandonmorse9000]

@@szh4834 it’s stretching to release the muscles then exercises to strengthen to keep body in proper place.

[@hcs.c]

​@@brandonmorse9000how r u now?

[@brandonmorse9000]

@@hcs.c 95% better now. Little to no pain each day. Pelvic floor therapy in addition to breathing exercises to calm my nervous system really helped. I used wim hof method for breathing and a program called heal pelvic pain for men (online course) in combination with a local physical therapist. I had three flare during the couple months of recovery but now they have stopped.

[@dinajuliano7953]

What stretches and exercises do you do?

[@alcurtis93]

I developed this at age 16 after suffering chronic constipation for a long time and running excessively, stress plus a strong enema at the hospital to try and relieve acute constipation. Nobody could tell me what caused the condition. It made my life hell. I had to drop out of sixth form and give up on going to university. I found it so stressful that it lead to chronic fatigue syndrome. I now understand this condition and started to in early 20s thanks to the headache in the pelvis book.

[@AsimKhan-ub5mj]

My brother also got this because of chronic constipation. What treatment options are you pursuing? Nothing has worked in my brother's case unfortunately. We are hopeless as of now.

[@felipemelchorhernandez6998]

I ve been suffering this for 13 years and I got constipation always I thought this maybe be related to constipation and finally I found someone who had this because of constipation I don't know If I will get cure from this some day I feel like will never end I do stretches helps a bit but never can come back to normal

[@alcurtis93]

I think meditation with the pain is very important to be able to let go of the resistance to it and the guarding against the pain which keeps everything tense down there. Paradoxical relaxation you'd call it. For me stretches tend to aggravate things so I just do gentle yoga in the mornings. The meditation that I find most beneficial is called soften and flow. Focus on the area of pain, breathe into it, then on the out breath gently say in your mind soften and flow. Don't expect miracles but over time as you get more used to sitting with the pain rather than distracting or running away from it, things will improve.

[@LexiNc8284]

How to fix the chronic constipation?

[@alcurtis93]

daily ground flax seed for me on top of my porridge. One tablespoon@@LexiNc8284

[@theresabutler6408]

Look up the sacrotuberous ligament. Chiropractor did a technique to release that ligament and it instantly gave me relief from the sacrum and groin pain from the pudendal nerve.

[@alex180384]

Where is this chiropractor located? I am battling this for 5 years with no results.

[@user-yi1nf4cc1x]

Thank you. I will.

[@krystalgardiner5591]

Thank you so much! This is affecting everything in my life.

[@Akunei]

I think this is what I’m experiencing. After two years of pain and research I feel that this moist describes what’s happening to me. I hope I can see a doctor soon and mention this. I’ve actually lost my physically active job and health insurance due to these complications.

[@SouravMax-dt8xn]

how are you now..... what treatment option do you taking

[@doowopbabyt]

I’m 78 and just now going through the process of figuring out why I’m in such pain like you described. Your video has helped me understand it. Thanks. 🙏🏻

[@joankinyua6843]

This a very tricky condition before you get there you are treated for many unending ailments and done many tests...may God add a lot of wisdom to our doctors..thanks alot doc I now understand whats my problem through your videos.

[@annie.bo.briggs]

Thank you. Mine isn't worse when sitting. It's worse when standing or laying on my back. Laying on my tummy feels best. It's been 2.5yrs and it started after rotator cuff surgery. I'm getting a diagnostic pudendal nerve block next week. I'm in perfect health other than this. I'm praying 🙏

[@LisaCSCO]

How did the nerve block go? Did you get relief?

[@annie.bo.briggs]

@Lisa Colorado I did not get it. It's a small intestine problem. I'm fasting right now then going gluten free forever and milk/cream free for a couple months.

[@suzieshreve4464]

I have hyper mobile joints everywhere. Did you find yours through MRI or do you have EDS?

[@annie.bo.briggs]

@@suzieshreve4464 I have hernias. They are being repaired in two weeks.

[@staceypollack808]

Wow that’s interesting how it started! I have chronic neck and back pain and now this.

[@RC-bw7zz]

One of the most intelligent explanation

[@rachelcubanita898]

What a wonderful content. I am a 39 year old woman, I have started with a pain in the hip area, but under the Gesäßmuskulatur. Any doctor can tell me what it is and for that reason I am trying to find out what it could be. this video is fantastic. So clearly and in detail everything explained. It is also amazing to understand and know more about the human body even if you are not a physiotherapist or a doctor

[@aidplan]

Thank you very much!

[@XanArt21]

It ruined my life, started in 2015... but I continued my biking exercises. I just quit biking after 8 years.. so I will see what happens next... Thanks for this video ❤

[@onesht4209]

Same case brother how are you feeling now

[@alvinparrish9906]

Have y’all tried releasing pelvic floor muscles during exercise

[@opt4heavenhearts4thehomele27]

So grateful you explained this! Mine is constant, sharp. Worse than childbirth on BOTH sides. Everyone says they have pudendal neuralgia like I do but they’re symptoms are very mild and only occur during sitting. Mine are constant and torturous

[@onesht4209]

How are you doing now

[@POCKBA]

Mine as well. No medication have work for me hoping botox will work.

[@opt4heavenhearts4thehomele27]

@@POCKBA please stay in touch and let me know how things go for you. Having constant pudendal nerve compression is the same suffering as stage 4 cancer but often we are left without any compassion from doctors or others because the compression is so rare. I’m here for you anytime! Hugs

[@opt4heavenhearts4thehomele27]

@@onesht4209 same, i am doing ketamine infusions biweekly. I’ve tried everything there is! I’m here for you if you have this too and ever need some one to listen or boost you up. This shit is not for the weak so if you’re still here and have this, you’re already victorious for staying alive. Hugs

[@LexiNc8284]

@@opt4heavenhearts4thehomele27will you get berve decompression surgery?

[@libellula3313]

I've started this symptoms recently after laser treatment for a large kidney stone, a month ago, my urologist says 'it will settle, my own doctor treated me for fungal infection. I have had repeated UTis for 6 months before the kidney stone was found. Does anyone know if there is a connection with shooting burning pains down my right leg to shin and toes, like an electric shock. I'm on muscle relaxants various pain killers and treatments for constipation? I need to go back to doctor as nothing helping. 凸 回

[@aidplan]

Hi @libellula3313. Thanl you for reaching out. The issue you are describing is probably not related to the pudendal nerve, as it does not innervate the leg or shin. However, kidney issues can produce all kinds of back problems, and back spasms can sometimes cause peripheral nerve issues, potentially leading to shooting pain down the leg. Please note that this is only my assumption based on the symptoms you described and not a diagnosis of any kind. Diagnosing via KZbin or without seeing and assessing you in person is not possible.

[@MikeConner.akaRadio]

My insurance company demanded an EMG before I could have a block. I went to the EMG specialist, and I had to show the dam doctor a picture of the nerve. He never heard from it. I was beyond pissed off. I live daily in extreme pain, waiting to have this block done.

[@inthekitchen8842]

Find exercises on YT. They help!

[@Rollwithit699]

Mine is bad when sitting and even worse with lying down. Have to sleep with ice bag in rear area to dull the burning throb.

[@aidplan]

Hello @Rollwithit699, have you seen a doctor already? Icing for relief means typically something could be infected...

[@Rollwithit699]

@@aidplan It's been there ever since a very difficult childbirth in 1974. Has worsened through the years. It's been MRI'd and revealed no obvious cause. No one suspected pudendal nerve damage until recently.

[@aidplan]

@@Rollwithit699 Our AidPlan-Courses might give a well deserved relief, they adress the situation around the pudendal nerve. Since you have had issues with that for 50 years now, it will still take time, I am afraid...

[@Rollwithit699]

@@aidplan Yes, but possibly worth it. Thank you!

[@aidplan]

@@Rollwithit699 Get in touch with us via [e-mail], hope to hear from you soon

[@isapalmer]

After having a bartholin gland abcess for 3 weeks, two incisions and drainage that were unsuccessful and then it drained on its own a week later. 3 weeks after this I started experiencing all the symptoms that are explained in this nerve irritation. My gynecologist pressed on the nerve but no pain, but it comes and goes and is less in the morning and gets worse throughout the day. This is a tricky situation when nothing is felt at the gynecologist in the morning but is painful for the rest of the day.

[@jacekwozniakowski8370]

Great explanation without mumbo jumbo. Down to earth and realistic

[@adityaa9178]

Pregabalin works like a miracle for me the pain started when i used to do heavy gym especially the legs

[@marceloferraresso6834]

@@jeehpradoonormally in 2 weeks

[@pb.f.1]

I've just started pregabalin for this ,can you please tell me how long it takes too help

[@MdnightWnd]

I've noticed some relief with this medication as well. I'm on a very low dose, but I started feeling improvement within a week. And far less side effects than I had when I was on gabapentin.

[@pb.f.1]

@@MdnightWnd I've not noticed a improvement yet be taken pregabalin since the start of December on 100 mg per day with no side effects and they don't make me feel hungry which is a plus hopefully they will help

[@MdnightWnd]

@@pb.f.1 My dosage is only 50mg per day and thankfully I haven't had any weight gain or increased hunger. However, I also take hydroxychloroquine daily as well and that suppresses my hunger so that might be contributing. My doctor told me it could take a month or more to get any relief from the pregabalin and also said the dosage might have to be increased. So hopefully with a little more time it will start to help you.

[@Yovanny0390]

A can relate to the guy you mentioned at the end of the video 😔. Same symptoms. I told the Doctor this could be my problem but he doesn’t now much about it. Doctor keeps telling me all my exams came up good, but I know what I feel and it gets me depressed having this pain and nobody be able to help. How did the guy you mentioned heal of this terrible problem?. I need help 😔.

[@MariaKousar-k3x]

How is ganica and neuropathy??? Do these effect the fertility? Please help me im in pain it's very much worse when i sit please help me 😭😭😭😭

[@aidplan]

Hello @MariaKousar-k3x, what do mean by your first sentence? The pain is typically more intense while sitting, as the sacrum is subjected to greater stress. The weight of the upper body rests on the pelvis, and the potentially overstimulated gluteal and hip muscles are mechanically strained even further. Ergo: The already stressed pelvis experiences additional pressure while sitting, resulting in increased pain.

[@MariaKousar-k3x]

@aidplan what do you mean to say ? Please clearly Say that

[@aidplan]

@@MariaKousar-k3x I didn't get your first sentence: Quote "How is ganica and neuropathy???"

[@MariaKousar-k3x]

@@aidplan means do these Capsules Effect the fertility?

[@aidplan]

@@MariaKousar-k3x we provide a training program, not pills...

[@sissi3342]

suffering from bilateral pudendal neuralgia right now as well as sacral neuralgia, waiting for infiltration first, but my doctors told me I need surgery and I am devastated. Its gonna be my 4th major surgery [not for pn but in total]

[@alexandradelcastillo5553]

Disculpa que clase de médico mira esto

[@sissi3342]

@@alexandradelcastillo5553 sorry I only speak English

[@SnehaDLalwani]

​@@sissi3342 did you get the Surgery done ? I got diagnosed with it too post my second endometriosis surgery

[@Me_ThatsWho]

This pain is truly a type of hell on earth. I have had it for 5 years, but it probably developed over a period of 30 years from intense mtn biking. I have had to become an expert on the subject, unfortunately. This is the sad reality: there is only pain management, no cure. Many providers promise cure, but the literature indicates cure is rare. Suggestions: nerve blocks, medications, lifestyle modifications, psychological treatments for pain management, PT, stretching, and avoiding hip flexion (like squatting, bending). I'd also recommend joining a support group because this condition raises risk for suicide, per existing research. Just don't give up seeking help- if you can cope with this, you can deal with anything else life throws at you ❤

[@aidplan]

Thank you for your comment!

[@michaeltaylor8204]

had it for 18 yrs _ hit me aged 44 now 62 full time cyclist. first sign came from nowhere hit the bedroom ceiling electric shock in testicles_ beginning of the nightmare. yes the pain is overwhelming at times but manage as it comes and goes. sex is the most soul destroying pain is just to much to cope. no actual pain sitting it's when I get up walk I'm crippled with spasms shopping centres restaurants etc. made my own seat/pad with a 2 inch gap I carry around in my bag ( seriously life changing ) I tell people I have a broken coxic bone which is actually true broken age 16 which I believe has contributed. so I'm back to the pool exercises etc drugs dnt work. my biggest concern is in my older age on my own how will I cope if in pain_never considered hurting myself as I have lived in chronic pain since a child and have copping mechanisms but I appreciate the living hell people go thru but there are solutions just takes mindset and dedication. mine flared up with vengeance after 2 good yrs_ so back to the drawing board but I know it will get better _ that bloody bike.

[@aidplan]

@@michaeltaylor8204 Thank you for sharing! It is encouraging for others to hear these stories - people out there, you are not alone. Be brave enough to talk about it too 💪

[@KevinHani]

Hi, thanks for this video, I have one question regarding the story you mentioned about the young guy who used to bend his leg. Can you please explain more what is the treatment plan/exercises that he did? And how much time would it take?

[@aidplan]

Hi @KevinHani, thank you for asking. The treatment plan combined a lot of stretching and foam rolling for the adductors on a daily basis. We added light strengthening exercises over time (he is now working out with the Copenhagen plank). We treated the obturator internus muscle, gluteus medius, and piriformis. Additionally, we introduced light strength training gradually. His commitment was amazing, as he learned how to meditate (not an easy task) to reduce his stress levels and improve his awareness of sitting and standing posture. This helped him decrease the provocation of the afflicted area. He also has been on some meds in the beginning but reduced the intake over time. we experienced some flare ups, but in the end he was good to go

[@marks7654]

Thank you for this VERY informative explanation

[@aidplan]

Thank you!

[@annie.bo.briggs]

Wearing heels helps too. It must take pressure off the nerves. What do they teach in med school anyway???

[@Supbag2021]

Thank you for clarifying this unusual condition.

[@iwituazon10]

What pressure technique specifically was done for the patient you were talking about? I’d like to know please thank you!

[@jordanswenson5073]

I'm a 26 year old man and not ashamed to admit but I've felt this condition on my right pelvic region, feeling a sharp, prickly pain or sensation emanating above and intermittently towards the right testes. Thank God the "ball" itself is fine but still the nerve pain persists, at least occasionally now thanks to more stretching. Any other recommendations would be helpful 🙂

[@onesht4209]

How r u feeling now

[@adrigomez2393]

Un fuerte dolor en el testiculo derecho junto con muchas ganas de orinar. Pasé unos 5 meses sin saber que me pasaba, von visitas a médicos, urologos, ecografias, radiografias.. Hasta que visité a un osteopata y solo con una sesión, me liberó del dolor en la zona testicular. Voy una vez al mes y aunque no me he curado ddl todo, he mejorado muchisimo y puedo seguir haciendo ejercicio

[@windassangma1033]

Thankyou sir for your video on pudendal neuralgia I'm having a similar similar symptoms.

[@Madsids07]

One of theeee best simplification..

[@vincentconti-jb3hd]

Very nice! Mine was caused by my posture over the years.

[@aikot.8816]

When I was 7 or 8 years old I fell from the top of a tree all the way to the bottom. I hit the bottom branch in saddle position. Ever since then I've had immense pain that I don't know how to describe, i'm 20 now. Its like a constant uti and the left side always feel like my underwear is cutting off circulation but it isnt

[@aidplan]

Did you get your sacrum and coccyx bone checked yet? Sometimes nerves running through that area get irrated through even minor bony changes due to hard falls...

[@laurasoftheart]

Great explanation for this condition. I subbed because of this video.

[@VelkePivo]

What a wonderfully clear and sensible explanation of the problem. Thank you.

[@dumitrustoica-n7g]

Omg i have been waith burning pain for 9 weeks on my Pennil and rectum , first was told by urologist I have bacterial infection on my prostate 4 w on antibiotics and nothing second opinion says pelvic floor.. in the morning before getting out of bed is all ok after 30 minutes the burning pain starts sooner or later laying down gets better ..

[@RobZombie3344]

Excellent video! This is a great explanation of the condition we're dealing with.

[@alvinparrish9906]

How your symptoms goin?

[@staceypollack808]

Where’s the video to release this nerve??

[@crocusancyrensisr]

Thank you. This makes so much sense!

[@lindsaymarie7238]

Why Is nobody talking about the fact that sexual activity is a definite no go and non-existent and also having bowel movements are nearly impossible now?!?! Has nobody dealt with this as long as I have and nobody got into this point yet. And why is mine so bad and why is there nobody in my area that even knows what a prudential nerve is??!? Why have I been to 10 different specialists and nobody even knows what this is much less how to help me???! I am flat out telling these people what is wrong with me and they still can't. What open a book open Google??? I'm diagnosing myself For Fuck Sake!!! I did the hard part. I just do them to do the research on how to help me! I've been living with this for 20 years looking for answers!

[@flifluflofli]

You should thanks the Internet.. it is not common and nerve trigger stuff all over so need nerve specialist

[@rishinshah3770]

dear I am also suffering of sciatica and pudendal nerve issues as I am suffering of L45and S1 disc issue ..but still I am trying to manage ....yes ur sexual activities may compromise but still u can manage with fascia release and physical therapy only..if don't wannt to go for the surgery

[@POCKBA]

I have pain 24/7 if i not sleep it was not so often in beginning. No medications help. Is so bad pains lt have give me tics and psygogenic sezures. Is exhousted i have pain all the time but get worse if i stand up, walk and especelly if i sit. My pain came after surgery.

[@RedaReda-uj9bb]

Doctor, what is the relationship of Liorizal 10 to the pelvic nerves?

[@psmmartin4940]

Do you refund if no success….i already saw a lot of scam business about PN like DCT for example

[@Fronteracherryvlog]

Thank you very much. It hurts bad. But thank you for explaining

[@spardanemesis]

Excuse me the course of cure pudendal neuralgia can be in spanish?

[@bluenation6379]

hey puedes mandarme tu contacto por si quieres traduccion

[@Raiders555]

I have PGAD caused by the Pudendal nerve. I get injections and take oxycodone three times a day. Otherwise I'd go nuts with this rare issue.

[@aidplan]

Hey @Raiders555, thank you for sharing. Hang in there! If you would like to reach out, please do so: [e-mail]. All the best!

[@opt4heavenhearts4thehomele27]

My pudendal seems to be compressed near the sitting bones Bilaterally but no one can explain this! How can this happen or what can compress it near sitting trochanter areas

[@PuffKitty]

I'm in the same boat and it ruins your life! I'm on year 5 and nobody has any answers 🥺

[@john24gold1]

Have recently been diagnosed with this . I have s1 and s4 disc bulges , and the nerve has been affected somehow . I get the feeling in the end of the penis , and it seems to be worse in the morning . When I walk and move gets less . I have been diagnosed with prudential neuralgia; but still having issues helping it .

[@aidplan]

Hello John, great to hear from you! Did you already start our online course to cure pudendal neuralgia? Also, feel free to write us an email and talk about it. Happy to hear from you :)

[@oksevartgallery2162]

Hello, John. Can you send me an email and talk about a little. I have the same problem. Also if you want Instagram or something other. I will be happy to ask you some questions because i do not find anybody here with this problem. I will also ask @AidPlan. Thanks in advance!

[@akolley1]

@@aidplan Can you please give a link for this course, and perhaps some more info? Thanks

[@jaimerodriguez9900]

Hi John, I am having the same symptoms. Any luck?

[@muhammedberinloshaj9061]

@@aidplan Can i have your e-mail, i need som help plz... Thanks

[@alshimaaeleffish3205]

Thank you for your videos. It is very informative 👍. I fall over my back 2 years ago and after three weeks of the accident I felt pain around my vulva and during urination and around urethra. My doctor told me I have descending perineal syndrom and rectocele and the descending caus a nerve stretching. And told me that the fall was only a trigger point for the prolapse to become systematic. My question is ? Is it the fall or the prolapse which caused this firing pain??? And does physics therapy can help with the enormous pain I have lived with the past two years.

[@thelaceygirl]

I have something very similar. How are you now?

[@DominicBanks-go6bw]

Hello. Thank you for this video. Everything you have said here is how I'm feeling. I have gluteal minimus tendonopthay and para tendinitis bilateral. Can this cause pudendal neuralgia? Thank you.

[@siddharthmohanty1604]

I have pins and needles.. Burning sensation in my pelvic area but it happens for 10-15 mins n goes away... It has been happening since last few days.

[@christianalexander4010]

Does this make your dorsal nerve stick out ? I’ve been having penile pain and my dorsal nerve recently starting sticking out while flaccid and also erect

[@aidplan]

Hello @christianalexander4010, does your condition still persist?

[@christianalexander4010]

@@aidplan yes it’s been 3 years

[@aidplan]

@@christianalexander4010 I you wish to get in contact with us, please do so via our website www.aidplan.com and hit the "let's talk" button ☎

[@canergunay3047]

Hi doctor, can an ingunal hernia affect pudendal nerve?

[@30atwill91]

I get this sporadically, I’ll feel it for a few seconds, then I won’t get it again for months, for me it usually happens when I sit down too long and then I stand up and stretch my abdomen, it’s like there’s a rope attached to the left side of my lower left pelvis and runs down to the tip of my penis and it’s getting pulled casing a burning stinging pain on my penis tip to my lower left pelvis. I’ve been trying to explain this to people for so long and I get laughed at, they think I got a std, or they don’t know what I’m talking about and find it weird.

[@gildog]

That's a nice gentle cramping on his nerve. I got a serious injury.

[@andrecortez4888]

Is better try to walk every day with no effort, than stay put?, Just laying down? I have this condition for many years. I get cornered. Do you think it's better to keep moving, taking short walks every day?

[@NYG5]

always better to keep moving as long as you aren't damaging something

[@annie.bo.briggs]

Thank you for you. Mine isn't worse when sitting. It's worse when standing or laying on my back. Laying on my tummy feels best. It's been 2.5yrs and it started after rotator cuff surgery. I'm getting a diagnostic pudendal nerve block next week. I'm in perfect health other than hypermobile SI joints . I'm praying 🙏

[@Evonius1]

Did it help you? My gf got one a couple of months ago and it has hardly made a difference for her.

[@annie.bo.briggs]

@@Evonius1 I had 3 incarcerated hernias. They're all fixed now.

[@adrigomez2393]

Bloqueo del nervio te refieres a operación? Como has conseguido que te hagan esa intervención?

[@naturallaw1580]

I am a 40 year old male who has been dealing with penile pain for the last 4 months. It all came about as a result of excessive rough sex/masturbation and the use of a penis pump. The pain is felt after urination and upon arousal. There have been a few instances that the pain went away four hours after straining during a bowel movement. Does this sound like pudendal neuralgia or just penile nerve damage?

[@aidplan]

Hi @naturallaw1580, from your brief descriptions, both nerve damage and damage to the blood vessels in the penile area could be causing your symptoms. The erectile tissue itself might also be affected. Please consult a doctor for an accurate diagnosis!

[@juliemixon9627]

Can it cause significant muscle atrophy in the left side buttock and thigh?

[@canergunay3047]

Hi sir, can indirect inguinal hernia affect pudendal nerve and cause pelvic pain and numbness? İ have one on my left side but it is not visible from outside.

[@gaylelizabeth]

I had my rectum anus and spinster muscle removed due to sepsis. The wound opened 11 days after surgery and took 10 months of nurses coming to my home every other day unpacking and packing the wound because of this I have severe adhesions entwined with not only the prudential nerve, but also all the nerves of my Pelvic floor and all the nerves that were left all those nerves that control the movement and the peristalsis my doctor did not dissect he cut through all of the nerves horrendous is that and I am left with crippling pain thank God I am an optimistic and positive person and I am working through this as best I can. I was 100% normal before this surgery, riding horses travel to see my kids and my grandchildren walking 10,000 steps a day taking care of the elderly volunteering so many things cooking going grocery shopping he took them for me and I am still going to win somehow I will win!!! Even my bladder is affected.

[@aidplan]

Thank you for sharing, I am amazed how strong you are! Hopefully times will get better for you soon 🏆

[@gaylelizabeth]

@@aidplanthank you so very much for your kind words and encouragement. I’m truly grateful. Words are powerful ! ✨

[@elliefrangoulis2228]

But why does no one say if it can be healed naturally? Can it go away on its own within 6 months of injury?

[@AhmedAbushaab]

You will recover in a few months, don't worry

[@tommylandrix6070]

So you guys can help if the compression is muscle related, but what if it's compressed in Alcock's Canal or between the sacrotuberous and sacrospinous ligaments? In that case wouldn't it make most sense to get an ultrasound guided prp hydrodissection?

[@shaleeenbaudin3860]

Tommy did you find our what to do? I think mine is caught in between scarotuberous and sacrospinous

[@mjd4074]

In hope of an answer

[@elizabethmcleod246]

You need a guided nerve block done transgluteal via your buttock with anesthesia and steroid

[@jaehoon115]

I only have pain when I sit on driver seat. It really drives me crazy. Any treatment?

[@TheAbhimait]

Pudental nerve irritation can cause recurrent UTIs in both men & women. Urologists often diagnose this condition as Chronic pelvic pain syndrome (CPPS) in men. I have been suffering from cpps from last 13 years. I am 32 currently. Pain used to happen in my groin area & it was in vericose vein. Doctor classified it as vericocele but even he wasn't sure about pain because it was constant. Thankfully, I had the surgery in 2014 & pain never occurred again. I still have recurrent UTIs though. I would have a pelvic MRI & will look into this information that you have shared. Urologists across the world are stupid it seems.

[@stonecold3979]

What is the name of the operation

[@bluenation6379]

hey where was the surgery and what was the name

[@TheAbhimait]

@@bluenation6379 Vericocele surgery. I had it in India for about 1000$ .

[@TheAbhimait]

@@stonecold3979 replied!

[@morningwithgracie7870]

Do u think yeast infection can cause this?

[@mayanksingh6663]

I have similar extremely bad pain in my genital and started in year 2020 when i was sick may be due to corona and then i started cycling too much in weakness and everyday i come home with swelling in genital and soon i started having pain after sitting in morning in office for few hour and initally i thought its urology problem and was given too many strong antibiotics for year , then after 2 year of very bad pain everyday i realize myself that in night pain goes away on sleeping and its not antibiotic which is helping and no neurologist or urologist able to diagnose every report come good and doctor say i am perfect , this is my exact problem for 3 years and i am still suffering every day , please help me with any medicine or exercise as i am very depressed

[@nandu9351]

Try varicocele surgery.

[@osheenchander9095]

Hello doctor, I fell of from stairs and got myself injured and sit bone near tailbone got injured, but after few years i started getting bladder spasms with frequent urination and stiffness near tailbone. It happens mostly with sitting and during night time i feel completely fine. And also my hip flexors are tight, I also use to sit with crossed leg all the time in the office.Is that pudendal nerve causing this stiffness?

[@spardanemesis]

Sure.

[@theresabutler6408]

I just learned my systems were from the sacrotuberous ligament. Chiropractor did a technique that released the ligament and gave me instant relief. The ligament is attached to your sacrum so your sacrum could be moved just a bit.

[@walterfortuna6821]

🙏thank God respond well with 100mg tramadol 3 times daily🙏

[@cmraman6704]

Any side effects after taking Tramadol 100mg. Constipation will be there. I am taking since last 13 years for PN.

[@smokeyjoe3947]

Will there be a follow up video of the exercises to do .

[@aidplan]

Hello Smokey Joe, we have a whole series on this topic :) You might want to check our online course on treating pudendal neuralgia. Go to our website or click the link under the video for further information. Maybe see you soon in the online course :)

[@dbrown1500]

Can Pudendal neuralgia cause pain in the sacrum??

[@aliciam6725]

Gabapentin might help but it robs me of my memory, balance and gives me peripheral oedema.

[@jonas-j3h]

Pudendal Neuralgia is TMS (Mind+Body Syndrome). AidPlan does not recognize this, and the effectiveness of the treatment is thereby limited.

[@americandream9473]

This is the case when u have tight pelvic floor bacaude of anxiety.

[@jonas-j3h]

@americandream9473 Anxiety is usually a part of the TMS mechanism, yes. I had pudendal neuralgia on my left side for years, diagnosed by numerous professionals. It was all TMS, though, and disappeared completely after 2 months of following a TMS protocol.

[@preetsharma7457]

@@jonas-j3h what is TMS protocol?

[@nomanmohd4589]

​@@jonas-j3hplease tell me what should I do to help me relieve from this

[@Tempplee]

Hi, I have already read about TMS, including Sarno's book, but the symptoms still persist. Can you please tell me the protocol?

[@octaviawhite3302]

A scan revealed that I have a bilateral fracture in my L5 which sits just above my pelvis. My doctor doesn’t think the fracture is significant enough to cause nerve issues. I beg to differ. Combined with internal haemorrhoids and bowel issues, I am convinced that something is definitely going on with my nerves. When I had a flare up, it was as though somebody was inserting a hundred hypodermic needles into my vagina and anus. My vagina was completely numb and I could feel pins and needles at different times running through my back. There was also a rash which covered the inside of my bum cheeks and spread onto my vagina which drove me insane - the itching and burning was horrible. I also suffered 2-3 UTI’s with my urine showing up with blood. Sleeping at night was difficult and I would resort to putting a bag of frozen peas between my legs and up against my vagina and anus which gave some relief. My doctor wants to treat me for herpes with antivirals but I know his diagnosis is wrong. I haven’t had sex in 5-6 years and a test done 12 months ago revealed I have no sexually transmitted diseases. It’s frustrating trying to get help.

[@aidplan]

Hello Octaviawhite3302, thank you for sharing. You can email us via [e-mail] or book a call here: aidplan.com/personal-consultation/getting-started

[@katemak7411]

14 years of pn entrapment....floss & pelvic therapy

[@cmraman6704]

What are you doing to control pain. I too am suffering since 14 years. I Tramadol both the times, siltz bath as and when required. No sitting at all. Hollow cushion for limited sitting for dining etc. Pain is unbearable during cold months and in hot summer I am able to manage better. Are you in India?

[@katemak7411]

I am not in India. I rely a lot on my guashua, simple stretches, yoga, prayer. Ice packs and warm baths (Epsom Salts or Soakness). I receive Pudendal blocks at the hospital when I can no longer tolerate the pain. I also get therapeutic massages which help the myofacial restriction.

[@opt4heavenhearts4thehomele27]

Personally I have yet to find anyone who can even prescribe an MRN for pudendal neuralgia to find the places of compression

[@costless-vs3js]

Is it treatable??

[@lukemarshall118]

So is this program designed to cure the condition or just manage it? Because I have had this for almost a year and I am fed up with it past my limit.

[@scotteranger4524]

No cure. You'll have to buy the program. Suprise, Suprise.

[@soufianerhafour9821]

Peace be upon you, Doctor, 14 months ago I had prostatitis and I went to a doctor who had an anal ultrasound. He began to apply pressure and I screamed in pain. Since then, strange symptoms appeared, and I began to suffer from pain in the anus and perineum. I cannot sit at all, and any wind or cold, even a slight one, increases the symptoms. Urinary tract and pain. Is there a cure for this problem? Is it possible that I have an infection in the pelvic nerve?

[@garyjohnson5869]

Yes. I got this. Try Surgey. May 29 2020 Help me

[@garyjohnson5869]

Got this pain. After. Injection. For. Low back spazzing.

[@scottmcclure4153]

May I ask.. what kind of surgery did you get?

[@garyjohnson5869]

The Plastic Surgeon did a Reconstruction. Told me. So the pain at the tip is bad when am sleeping. I feel sometime I want to rip off it’s so bad Thank you for talking to me.

[@demetriusmcfadden]

Wow why do I feel like this is me. I want to tell my doctor but I don’t want to annoy him

[@aidplan]

Hi @demetriusmcfadden, this is about you. If you have concerns, please to talk to doctor! I wish you all the best!

[@jaxcoles7060]

Agree with you. They hate you going in saying what is wrong

[@aidplan]

@@jaxcoles7060 In the end you need to stand up for yourself, but at the same time it is important to stay friendly and open - maybe your doctor is able to recommend/refer you to someone else you might be able to help...even if he/she does not believe in what you tell him/her

[@annie.bo.briggs]

It also moves around making it so confusing 😢

[@jaxcoles7060]

Yes I get pain different places how odd

[@annie.bo.briggs]

@@jaxcoles7060 I understand now it's because it's nerve pain.

[@sarty23]

Does neuralgia cause urinary symptoms. Like hardness of peeing?

[@flifluflofli]

Yes

[@annie.bo.briggs]

Also heat compression relieves the pain

[@Djsoulful]

What if there is no pain, but lack of erogenous sensations and erections?

[@Deepu-h4h]

I don't have any pain during sitting but only symptom is pain in penis during urination which get worse after cumming ,weak pee stream , symptoms comes and goes from last 5 months. Could this be pudendal neuralgia or CPPS?

[@flifluflofli]

I do have same kind.. I did all test and I am all ok. I think I do have this story cause I sit like shit and I need to stretch and find the way lol..

[@alvinlam5054]

Hi Doctor, I had a fall 3 months ago. After a couple of days, I had a fever which lasted a week. And I felt discomfort burning sensation on my testicles, inner thighs, and anus. I also noticed the vein on my head of penis is very obvious and feeling a little swollen. Now, the feeling just comes and goes. I also have a very sore back pain as well as knee pain. May I know what condition am I having? I'm feel very lost and depressed.. 😢

[@norbertduverge4815]

I have the same symptoms like u

[@norbertduverge4815]

But no fever

[@nomanmohd4589]

Do you have any solution for this ?​@@norbertduverge4815

[@costless-vs3js]

Does this go away??

[@Jasmiinnnnn]

Thank you! Im waiting for the next video.

[@ThorOdinson]

Does someone have the link to the video where they talk about the cure?

[@aidplan]

Hello @ThorOdinson, we are sorry to not provide sufficient information in our video for you. Those videos are made for the broad public and we are not getting into every medical detail, also because symptoms and causes may vary vastly. However the latest article we found very well researched is this: pubmed.ncbi.nlm.nih.gov/32965917/ We hope that helps you. All the best.

[@darrenwayne8263]

This is an incredible light bulb moment for me. I, a man, was sitting with my right leg crossed underneath my left thigh, for years. That must've contributed to what I went through recently. Am improving, just some pain and discomfort which will disappear, I believe, with simple correct sitting. Sitting on a travel pillow (donut u shaped) is recommended. Thank you doctor.

[@SouravMax-dt8xn]

how you now

[@darrenwayne8263]

@@SouravMax-dt8xn healing very well thanks. I think what happened was stress, caused temporary issue for months with peripheral nerve, which affects pelvic floor function, and continence. As body went into repair mode, everything got better. A big thing to do, at least a few times, is pelvic internal therapy. Use finger or pelvic wand, even better, into anus, and do myofascial release of any tight pelvic muscles.

[@SouravMax-dt8xn]

@@darrenwayne8263 dude what ws your symptoms before.... do you had sitting pain... or urinary problem.. i have pain while sitting in hard surface.... and urinary urgency... what you suggest me to do... get rid of this pain...

[@darrenwayne8263]

@@SouravMax-dt8xn I had the incontinence, pelvic pain, couldn't walk properly for a couple of months. I'm not an expert, but it sounds Ike it's your pudendal nerve. Fortunately, the pudendal nerve regrows and heals. The amount of time it takes differs depending on severity, but you will heal. For now, meds can help. I took pregabalin, was good, still taking for a bit longer. You'll get better for sure.

[@SouravMax-dt8xn]

@@darrenwayne8263 yeah... thanks dude....

[@richyperalta]

Who treated this guy, im literally that guy early thirties and 4 years of this pain. Where is this guy i will go there

[@danlayal5212]

Does it affect fertility?

[@ChrisKadaver]

I don't have pain. But get relapses of back pain and have chronic hip pain. When I get relapses of back pain I get a complete erectile dysfunction. The function comes back somewhat when the pain subsides. But I have to tilt my hip/pelvis sideways while trying to achieve an erection. If I don't do this, nothing happens. I also sometines get like static electrical impulses pulsating down into the left leg and/or the penis. Pretty subtile but during these periods I also get a complete ED. Since I at these periods doesn't get nightly erections either it has started to shrink in size when I have periods when I can get it up. I think I've lost 2 cm in a year. >.

[@andrewmaple9863]

I'm getting juddering from my penis and back side had the pain in my back side for years maybe it could be this ?

[@flifluflofli]

Did you sort out... I feel compressed from sports and actually pain not while sport but next day. I start to make some pelvis exercises to release pain

[@surajkumar-kd1hm]

Sir I have same problem as you described..... I had gone through various urologist and Neurologist for last 7 years but nothing helped. Currently I am of 31year and my life quality has totally destroyed. Plz extend your assistance

[@SouravMax-dt8xn]

hey i am from india also.... can you please tell me what your symptoms...?