Alan's ME/CFS Recovery Story

[@RaelanAgle]

TIMESTAMPS 00:00 Alan’s Intro 03:05 Alan’s life before ME/CFS 05:08 How Alan became unwell 07:46 Alan’s initial thoughts about his illness 08:44 How the illness progressed, how doctor’s reacted 21:49 What this was like for Alan’s wife 22:56 Some of Alan’s symptoms 28:27 How Alan started to recover 37:47 How this experience has changed Alan 47:12 Alan’s suggestions for others facing similar health challenges

[@sla1xyz]

Thank you for the time stamps. I'm so exhausted and discouraged it helps to get to the practical. Has anyone recovered using LDN?

[@betinaskovsted584]

I’ve known Alan since before his illness and am so proud of his recovery journey. On the question on whether he’s changed... I don’t think so... his personality hasn’t changed through all these challenges, he is determined, positive and a real fighter! And his silly sense of humour still makes me laugh! 🤣 See you in London soon! 🤞🏼

[@RaelanAgle]

So nice to hear! Thanks for taking the time to share that, Betina ❤️

[@linebourgeois4905]

It is so helping to hear your testimony because I relate totally to what You saying. Went from extremely active work, social and sport Life to not be able to do anything… CFS/chronic Lyme is an awful disease because it is not written in your face, so difficult to explain to others our situation. Like you, I am lucky because I have a good network but still it is challenging. Thank God after 5 years me too I can now appreciate Little things in Life. Thanks for sharing! You are inspiring!

[@mirjana9664]

Great video very realistic about how everything goes with cfs and how it effects people, l think brain fog is the one of the most hardest thing as the physical disability and everything else but brain fog makes that you can not work that you, can not follow at least mentally anything if you can not at least physiclly, it makes everything so much harder than it already is, the video gives hope

[@myfamily7001]

Frog?? Teeheehee

[@mirjana9664]

Brain frog, OMG l just saw it, l thought that is how you write it in English🙂

[@alanwebb3964]

Thanks for the lovely feedback. Yes brain fog is the worst and noise was also difficult to handle. I hope you start to make a recovery soon. Stay positive : )

[@avamihalik7531]

He is adorable!!! I am so proud of him and so happy for him! xxoo

[@shellbell8062]

It's interesting how a lot of people say that there was "no one thing" that helped them get better, however for me there were several game changers. A huge one was realising that I had leaky gut and doing the GAPS diet to heal my gut. Another was taking zeolites (a lot of us are extremely toxic) and that got rid of heavy metals and pathogens - I made incredible progress after that (be careful with zeolites as there are only a couple that actually work and many are toxic and synthetic) and another was seeing a bio-identical hormone specialist and realising that all of my major hormones were pretty much flat lining. Without these discoveries I would never heal. I know everyone's path is different and perhaps we would all heal in time, with a nourishing diet and the right mental attitude - but I think understanding what is going on physically really short cuts that process.

[@RaelanAgle]

Amazing, great job figuring out all these things that your body needed!

[@shellbell8062]

@J K Touchstone Essentials Pure Body (for the gut) and Pure body Extra (for the blood). I take both and saw great improvements really quickly. This is the only brand I know of that is third party tested for purity, and it is a natural (not synthetic) zeolite. If you are super toxic (as I was) you can have a herxheimers reaction from taking it. Just skip a day and dial back the dose to half or so, and then build back up. I would say that out of everything I did I saw the most profound results with this.

[@cherokeedove]

Shell Bell, are you fully recovered? If so, can I ask what criteria you were diagnosed under (ICC, CCC, Oxford, etc.)? I have some low hormones too, but they predate my ME. Wonder if they're related somehow.

[@6473n64m19]

Hi Raelan, I relate as being a teacher and having my exact “start” of CFS while I was teaching, ive been commenting for awhile here and I’m not quite over with cfs and the mental health challenges that come with but I’m at a point of activity that many would be considered “recovered” despite my symptoms. For example I lifted weights for about an hour and did 30 mins of cardio today, still with the pem, but significantly improved. I’m not sure if you’d but at some point if you would want to do an interview, my story may be quite unique and provide some insight to a lot of people... Cheers! P.S... I’ve also done the Lightning process course and it didn’t quite work for me but I’m still at where I’m at now, which I feel like some of your viewers would appreciate!

[@RaelanAgle]

Hey Nick, this is amazing!! I'm so happy for you, this is such incredible progress. And it's very brave and wonderful of you to want to share a bit of your journey with others. Why don't you shoot me an email and we can chat more? [e-mail] 😊

[@6473n64m19]

Raelan Agle sounds good!

[@HelgaIsHealing]

how are you now?

[@kathystoner5239]

This was such a great interview! Thanks so much! Alan do you have an example of your log book?

[@alanwebb3964]

Hi, my log book is basically a note book. I write down what I have planned for the day and if I have achieved everything. For example a weekend would be - I cooked breakfast, cleaned the house, rested for an hour or two then met up with friends. That’s a good day. I would see patterns over the weeks if I have pushed myself too hard or eaten foods which led to a migraine followed by fatigue. It’s allot of trial and error but over time you can see the achievements and this really helps you on the difficult days. If you want to chat more just drop me a Facebook message 😀💪

[@kathystoner5239]

@@alanwebb3964 thanks that really helps!

[@jennymcguigan7329]

Great interview thank you Raelan and Alan. Alan your story was particularly interesting to me as it had alot of similarities to my own. Initially I was also diagnosed with labrynthitis. You give me hope and it's encouraging to think I'm hopefully heading along the same path. All the best with your continuing recovery. Xxx

[@elw4632]

Thank you so much Alan and Raelan for this! You are so strong Alan and I am amazed by how far you've come, very happy for you and giving hope. Also you wife is amazing and its good that you are highlighting that our partners and supports are doing a wonderful too. I have a question for you, I am also experiencing that things on screens are just moving around, but it is getting better! Some people think I can be at home and watch TV but it just does not work, as the picture does not make any sense to my brain and is too draining at this stage. Very happy to be able to do a wee bit of writing and reading now. I am wondering if you did a graded approach to bring back reading, writing and being able to look at screens again too? My fiancé would love for us to be able to watch a movie again so I'd like to work on this, if you have any advice (I will still use my own judgement of course because I know you can only share what worked for you) 😊 thanks 😁😁

[@RaelanAgle]

Thanks as always, Elin, for sharing. These are great questions 😊

[@alanwebb3964]

Hi Elin, thanks so much for the positive feedback. Yes in the early days of the condition I suffered with serious migraines that stopped me from being able to read or concentrate for any amount of time. For me it was introducing it gradually, a minute or two on good days and with my balance exercises for BPPV which to be honest took me a while however, over time I gradually became more tolerant and now it doesn’t affect me so much. Yes I still have migraines but nowhere near as bad as before. Diet changes was also key. Cut down on sugar : )

[@elw4632]

@@alanwebb3964 thank you so much, this is really helpful! I definitely relate to the migraine and brain fog part being the worst so your story gives me hope ( I think I was able to walk 10 min a day before I could cope with a screen long enough to press my pin code on my phone!) I wish you all the best on your recovery journey and much happiness. Thanks for being brave and sharing. 🌸🌼 I'm sure you'll get to where you want with some more time!

[@alanwebb3964]

@@elw4632 very kind words Elin, I hope you get to where you want to be soon. Keep pushing through and all the best for the future : )

[@myfamily7001]

Hey Alan.... I'd love to know what sort of info etc you were offered by the occupational therapist and the specialists. Is there any where I can access this information? I was referred by the NHS to the specialist in my local area (North east) who was an occupational therapist also, but wasn't at all helpful. Any help would be very much appreciated!

[@alanwebb3964]

Hey I hope you are having a great day! Search for me on Facebook and I can dig out some info for you no problem : )

[@lynnlasak4089]

I had an ear infection and vertigo aswell.

[@Music-jj2em]

Haha ”I should watch some of my own videos” 😅 Yes I’m learning to listen to my body too. :)

[@kviklunsj1953]

Did you had brainfog? And What helped with that?

[@michaelnotinger1954]

You can resolve mental fog with anything that resonates with the third eye chakra/pineal gland.