Stop Wasting Money on Treatments Before Getting the Basics Right! (Pamela Rose)

[@RaelanAgle]

👉 ✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101

[@Alice-vh4sk]

I'm 3 months into long covid and housebound (with crushing fatigue, post-exertion malaises and brain fog). As you said in the video, there is SO much information available now. It's a bit overwhelming and it's really hard to know what to do in the early stages to avoid making things worse. The fear is terrible. I would love to have someone to talk to about this process, but I don't know where to find someone. It can be very difficult to have a positive mindset every day because this illness makes us feel so alone. It's very helpful to have reassurance throughout the process. Your videos are really awesome Raelan, thanks for sending us so much hope and love. :)

[@legohouse4819]

I did pamelas online course when i first crashed with long covid. It was soooo helpful to help me find my baseline and move forward from there. Im now newrly fully recovered!

[@RaelanAgle]

Wow, I'm so happy for you! Thanks for sharing ❤️

[@imalive5176]

What helped you recover?

[@katalinmcewan]

That’s amazing! ❤

[@kathleenwelch9877]

Thank you so so much for this video!!! I've just realized very recently that I have CFS, as a result of years of coping, carefully pacing myself, consulting with medical professionals, popping supplements, trying different modalities... and making excuses to others when I can't do things. I'm realizing that I had this way back in the 1980s, laying helplessly on my sofa. All these years later, I just wanted to make Christmas cookies. So I read the recipe, leaning against the kitchen counter because my legs wouldn't hold me, and suddenly busting out crying in despair. I'm elderly now, and it's been a very long haul. Often I've just wanted to die; it would be so much easier; but I don't want to abandon my sweet husband. Finding you folks is giving me so much hope! And this particular video is precious, helping us with discriminating, saving our energy, and getting to the real healing process. I'll keep learning and applying the suggestions. Thank you for a much needed shot of empowerment!

[@RaelanAgle]

Oh, Kathleen! Sending so much love to you ❤️

[@MrsTigerbalm]

Kathleen I was touched by your words. You’ve held on through so much with tenacity and love. May you keep hold of that precious hope! I hope you can at last find a GP/Primary Care doc who has some insight into your condition or who will perhaps refer you for assessment after all these years? Have you a friend or maybe your husband whom you’d consider taking with you to an appointment? When you described your difficulty standing I wondered if you’ve ever been assessed for POTS that often accompanies ME/CFS, or other causes for the debilitating exhaustion? Even a diagnosis is a help, not that CFS is a diagnosis anyone would want, but it’s a start! As someone in my autumn years and 31 years with ME I’ve been telling myself that maybe ageing will be easier for folks like us than our peers. After all we’ve had decades of feeling like 100 so it won’t be as much of a shock! Hey maybe with our healing potential we’ll come into our own and take off into our prime! Sending every good wish for all that lies ahead ✨

[@ajthecat2]

Raelan, from time to time I tune in to your channel to hear what you have to say and the reason is you are not trying to sell anything or rip anyone off like so many sites do, I agree do not outsource your recovery because most have no idea what they are doing. ME/CFS sufferers need to identify the cause of their illness before they can develop a plan but the problem is we become desperate and will try anything. I have spent over $17,000 (I just stopped counting at $17,000) and have little to show for it. I have had this condition for at least 30 years and am now finally starting to make progress but do have set backs which I have identified. Over the years I have identified at least eight different causes some of which are very surprising. Just trying to overcome the latest set back, although I know the cause, is proving difficult. Also I agree with the idea of a health coach as you really someone to lean on. I do intend to make a video on the subject but it will take a while because of the current set back. I am not going to go into what I have learned here as it takes far too long to explain but one thing I have learned is that I have no confidence in mainstream medicine, I was just told to live with it.

[@RaelanAgle]

Thanks so much for bringing this up ❤️ Such an important topic!

[@jvvallie]

This was me; I spent about 25 Thousand dollars on stuff before someone showed me the basics. I'm finally healing, but you have to do the basics first.

[@nolamayer4101]

Oh how I wish you ladies were around 26 years ago but that wasn’t part of my journey, BUT here you are now and I feel so lucky , onwards and upwards 💃💃💃💃💃

[@ambermartin3961]

Uff da! I still struggle with balancing "healthy control." I am an overdoer, tend to carry an excessively heavy mental load, want to do everything at once while fighting being sort of frozen, and have the high H form of ADHD. This video popped up in my suggestions at a perfect time - between semesters, I want to make up for all the stuff I had to let go in order to have energy to keep my university teaching job. Yes, this is a great reminder. And I think my GI stuff has settled enough that I can focus on food again in a relatively normal way. The ulcers have healed. My appetite is normal again.

[@AnrupB]

We exchanged a few emails when I had inquired working with her, and she’s absolutely lovely. Openly helped with some guidance about what the best options would be for me and some insights to consider. I didn’t end up working with her due to another diagnosis that needed to be addressed first, but otherwise would have. Very appreciated!

[@pamelarose229]

This is so kind of you to say! I hope things are going well for you 😊

[@AnrupB]

@@pamelarose229So much better on all fronts! Just the info in interviews have been helpful, so thank you.

[@beverleylewis469]

Thank you for being the only light I can see in this storm!

[@anthonyw6488]

I've had long covid symptoms for 10 months (head fog, memory loss, CFS type malaise/tiredness, weakness, cold sensations from the waist down especially the feet, as well as anxiety, lack of motivation and I'd say a mild depression as a result. I felt stuck. I had tried so many things will little results. Acupuncture worked for a hour at most, supplements such a alpha lipoic acid and a few others only kept if from getting worse. One day just before thanksgiving, a link popped up for a 3 day fast by a Dr Sung, and I'm like "Hmmmmmmmmmmmm" To cut a long story short. It's been two weeks since the fast and I feel 20 years younger. I have so much energy and focus now. The only symptoms remaining are the feet coldness but that feels slightly better and hopefully will improve over time. I was close to losing hope I'd ever feel better. And I am loving your posts Raelan, keep them up!!!

[@isemaelielafrance7365]

What is the link please i had long covid for 13 months 😢

[@LaraHastings]

Please note that fasting is not for everyone. I tried it and it totally flared up my symptoms, I was really worse off. Fasting may freak out your nervous system into even more vigilant survival mode in the beginning stages.

[@PeaceIsYeshua]

Maybe I wasn't listening carefully enough, but I listened to the video and am not really understanding what the basics are besides rest, diet & trying to put yourself in a place of calm? If so, I definitely agree to start with those things first. Pamela is absolutely lovely, and you can tell what a loving person she is. 💗💗

[@IvyPlans]

I had a Qi Gong teacher that always said all healing starts from with. I believe that. However, a lot of people on this path do not believe it whole heartedly. For them it may be best to have an adjunct to there “basic recovery”. Nonetheless, I appreciate your effort to help people see the power they hold within.

[@LaraHastings]

I am in one of those programs she is talking about, been having long covid for 2 years now. For me at least it's helping a lot. Before I was just flailing around and just stuck in the push and crash cycle. Great interview, everything in a nutshell of things that help ua heal.

[@tammygravis1462]

I'm trying a new treatment I'm excited about. I have a lot of hope. Hey I listen to your videos in the hbot every day.

[@Healwithbear]

Great stuff Couldnt agree more regarding getting the basics right

[@RaelanAgle]

Right on, Bear! ❤️

[@pamelarose229]

So important!! 👍🏻

[@LoobyLoo71]

It’s good to get tips from here and there and other places if you can’t afford a coach. So appreciate this video. Highly recommend Dan Buglios fast track videos. I’m having some success watching him. And it’s free!

[@alicequayle4625]

Some really useful tips. Thanks to both of you.

[@pamelarose229]

You're so welcome!

[@jackiegroden416]

Yes!!!! I couldn’t wait to see my friend Pamela again!!

[@pamelarose229]

I hope I didn't disappoint!! Thank you for always being so lovely ✨

[@jackiegroden416]

@@pamelarose229 u were wonderful

[@90mustang135]

Thanks for your videos

[@RaelanAgle]

You're we welcome, Kevin 🙏

[@pamelarose229]

You do such an amazing job of keeping the content coming @raelan! So helpful for everyone ✨

[@EverydayBeauty2024]

Tanner Murtagh is a canadian therapist who has a great mind body channel. He teaches things like somatic tracking and lots more, which is very helpful for us who can't afford joining a program or having a coach. Just listening to him is calming 🙏 Would make a great interview on this channel.

[@RaelanAgle]

Agreed! Thanks so much for the suggestion, Johanna!

[@EverydayBeauty2024]

​@@RaelanAgleThank you, Raelan❣

[@drew2685]

Great videos! Yes, lots of us long covid folks are over achievers 😂

[@briechilli4496]

Is this the same if you are dealing with long covid ?

[@LoobyLoo71]

Raelan what are your thoughts on tracking health data?

[@veronicaostling5194]

Well, there are different order for different people. So I do not think you can say that someone are doing things in the wrong order..Sometimes you have to do trial and error.

[@pamelarose229]

Oh gosh absolutely!! But from my experience it's never wrong to focus on the basics first. Otherwise our systems are very possibly not steady and stable enough to receive the wonderful benefits of the other healing approaches. But yes, every journey is different - I'm yet to see two the same. Testing and learning and refining is a key part of anyone's approach. I wish there was a blueprint for this stuff!

[@loganmartin7440]

Hi, I’m curious are u saying that brain training in super early recovery IS okay?

[@pamelarose229]

Some form of mindset work is really helpful early on. But the deeper brain training is often more helpful later in a journey. No two people are the same though! So this is just a general view of what I see working for most 👍🏻

[@didimehner6919]

I am wondering if Pamela has opinions about recovery with hEds or if you have learned pacing and all of the strategies with stress, changed your life, diet etc and seem to gain ground but always have setbacks? I am wondering lately if a connective tissue order may be more at play than I would have hoped.

[@Truerealism747]

I have heds I have researched alot and still learning it's related to Asperger's ADHD for which one diagnosed late and lost my mum to severe ms Asperger's heds to now my son's just diagnosed Courtney Snyder is good for vitamin side it's all related to subconscious mind threw collegen I've had CFS b26 fybromyalgia 6 but both the same to me I've also had pots

[@Truerealism747]

Have you look d into the rccx protocol to seams it's all in our families to but stress in this gene makes it go haywire

[@corinasepulveda97]

Do you do 1 on 1 coaching ?

[@tessreynolds6356]

I keep looking at some help but don't know where to start...plus I can only afford one thing ....stuck after nearly two years of long covid..... any advice?

[@beautifully_wonderfullymade]

I didn't really improve until I rested, reduced my stress levels and worked on my digestive health. I am still on the journey, but I am now in a better place than what I was when my body was needing rest and my digestive health was so bad.

[@briechilli4496]

@@beautifully_wonderfullymade insomnia makes it challenging to rest. Did you experience insomnia ? How to deal with it ?

[@tessreynolds6356]

@@beautifully_wonderfullymade I'm working on the stress and rest thing... coming up to Christmas and it's affecting me emotionally as I can't be with family and I live alone, looking forward to it being over tbh.

[@beautifully_wonderfullymade]

@@briechilli4496 yes I did unfortunately, for about 7 months. I only slept some nights out of exhaustion. I am on slow releases Melatonin, however, I only found that mildly effective for going to sleep. I kept waking suddenly with a jolt/startle about 3am and I would be wired. A few fellow sufferers recommended 1-2 Zyrtec before I went to sleep. This stopped the sudden wakings. LC is a weird thing, what works for one person doesn't for another. Insomnia is cruel, I hope you find something that helps, it is incredibly hard to recover without decent sleep. I only have trouble sleeping very occasionally and when I forget to take zyrtec. Another thing I love in helping me relax is one of those spike mats (acupuncture mats). I lie it on my pillow and bed, so I feel it on the back of my neck and upper back. I have fallen asleep on this several times.

[@maryjohnson753]

Pamela, maybe you could look into the dangers of using those ear pods. The EMFs are bad for your brain & immune system. My Aunt died of brain cancer because of them.

[@Wds__99]

If you’re about to comment you’ve had CFS for 40 years and it gets worse everyday, don’t.

[@seanm.collins9888]

So Maeve Boothby-O’Neill should not have complained?

[@KylieBling1]

What even is this comment? Severe people have a right to exist on KZbin too, ya know… christ!

[@Yentl-gx2cm]

Genuine question what do you mean by this?

[@ashmeadali]

🤍🤍🤍🙏 Perhaps, for many this is a test of faith? Graduating from the ubiquitous religion of medical science to confidence and belief in oneself. The science belief system, embedded into school system, presents a challenge to jettison its outdated beliefs and controls programmed into young vulnerable minds, now manifesting in older years?