Shannon Emilia’s ME/CFS Story

In this video Shannon Emilia shares openly and candidly about her 4-year journey with chronic fatigue syndrome (ME/CFS), including the things that have helped her with her recovery so far.
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WHERE TO FOLLOW SHANNON:
Instagram: / cfsandshannon
KZbin: / @shannonemelia
KEY TAKEAWAYS FROM RECOVERY INTERVIEWS ►►
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📖 Check out my book! Finding Freedom: Escaping From the Prison of Chronic Fatigue Syndrome. View on Amazon - amzn.to/2LtzBcl
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TIMESTAMPS:
00:00 The precursors to Shannon’s ME/CFS onset
10:04 The final blow that triggered ME/CFS
13:09 Shannon’s rapid illness progression
17:56 What the doctors were saying
20:38 Shannon’s feelings about getting the same diagnosis as her mother
24:17 What’s helped Shannon with her recovery so far
32:35 Why Shannon shares her story publicly
34:57 How ME/CFS changed what Shannon wants for her future
37:17 What Shannon would tell herself (or others!) if she could go back in time
40:42 How to follow Shannon’s journey and learn more
…
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #cfs #chronicfatigue

[@RaelanAgle]

Thank you in advance for your patience with the sound issues for Shannon’s interview. We had a bad connection and then unfortunately some technical issues with the software I use for interviews (the high quality version of Shannon’s part didn’t save). Shannon has so many amazing things to share - I didn’t want to not post her interview as a result of this! She is also still facing ME/CFS so I of course did not want her to have to redo this interview. Must save spoons! Thanks again for your patience, I will work hard to make sure this doesn’t happen again in the future. (There are timestamps in the video description, so if you like, you can go straight to the parts that interest you the most 😊)

[@birgitlilliehook5139]

I put on my ear phones! Made it easier to hear what Shannon said. Thank you to both of you for sharing.

[@barbarateresarhiannonsreal1756]

It's 2021 we're used to physical, mental & technical difficulties! Like ANS Rewire shows up in captions as Anus Rewire... It sounds so painful! No idea why I'm commenting about this but laughing so hard I'm in tears. Bless you both & THANK YOU! I'm learning to "take it slow" but it's not easy. Thanks again. There are so many of us healing & your videos are helping us on our journey.

[@rebeccaledam7544]

@@barbarateresarhiannonsreal1756 if you know how many times I've thought/heard anus rewire 🤣🤣

[@barbarateresarhiannonsreal1756]

@@rebeccaledam7544 lol! Glad I'm not the only one!

[@stephg4273]

I truly believe that everyone with cfs is in a sympathetic state (constant fight or flight) and the nervous system needs to be calmed. Calm the nervous system and the entire body begins to heal. Not just cfs, any disease! Thanks for sharing your story!

[@forisma]

I do a lot of calming meditations. That alone doesn't heal anything. I need to add physical training to relearn the system.

[@coffeytnmilk7]

Yes, I definitely think that is a big part of it! I remember for years taking short, shallow quick breathes to breathe. It was almost as if I could not take a deep slow and full breathe. I think I was stuck in that fight or flight mode at that time.

[@stephg4273]

@@marmunis4123 meditation has healed so many people of so many things. The key is to visualize in meditations with an elevated emotion. Joe Dispenza teaches a lot of this. Or programs like DNRS

[@mayflower2158]

I'm really shocked people are thinking this is CFS/M.E.

[@stephg4273]

@@mayflower2158 I’m really shocked that doctors that went to medical school haven’t made a better connection with the autonomic nervous system and how to heal 🤷🏻‍♀️

[@BelovedShift]

PACE: Please accept compassion every day, my version 💜 Workings with Jason, has empowered compassion for myself 💥💥💥💥💥💥💥💥💥💥💥 Keep going 👏 Thank you Raelyn, you are a beacon of light 💡 Love your book 📚 Love your book 📖

[@RaelanAgle]

I love this Sylvia! And that's wonderful to hear you loved my book! So glad to hear you are working so hard at your recovery and have this great mindset 💛

[@lynnlasak4089]

The Mum part resonates with me. My Mum had it too, when I was nine. I guess I consider myself lucky, it hit me after 43 and 2 kids.

[@barbarateresarhiannonsreal1756]

This is awesome! Thank you both. Sending healing hugs to you both & to Shannon's mom from Seattle, WA.

[@RaelanAgle]

Glad you enjoyed this, Barbara! And thank you ❤️ Hugs right back at yah!

[@Jane-pg8jv]

Thank you both so much ❤️❤️🙏🙏 Lots of love and blessings 😘

[@RaelanAgle]

Same to you, Janna! ❤️

[@viviennebedford6280]

Thank you Shannon and Raelan. Wonderful interview x

[@RaelanAgle]

So glad you enjoyed it, Vivienne!

[@finnroohomebrewing1846]

So much enjoyed this episode. Thanks Raelan, and Shannon

[@RaelanAgle]

Wonderful! So great to hear 💛

[@katieemmaw2001]

Amazing interview, so entertaining and relatable, thank you!❤️

[@RaelanAgle]

Thank you, Katie! Apologies for the technical issues 💓

[@lynnlasak4089]

Me too! 30+ intolerances, 2 years in I can tolerate most foods, but I don’t risk it… I keep it very clean

[@heatherhartman6474]

I LOVE YOU GUYS! You both are great people and people have a lot to learn from you both. Thank you!

[@RaelanAgle]

aww thank you so much, Heather! 💓💓💓

[@heatherhartman6474]

@@RaelanAgle You're very welcome💓

[@StephdeIcaza]

I send my love to you both and Shannon's mom! ❤

[@RaelanAgle]

How kind of you, Steph - sending love right back to you ❤️

[@dorishangel3661]

Great video - again I resonate so much and it gave me great input and I feel so much understood

[@RaelanAgle]

So glad you like it, Doris❤️

[@antoniaf1886]

Can’t express how much I loved watching this! Such a relatable video, both Shannon and Raelan are so inspiring. I always struggle with not being able to take the time off that I need because I have to work, but I’m going to find a way to make it manageable. I’m sure you’re helping so many people keep fighting in all the ways they can. Even if it’s just for pasta 😂Thank you 💕

[@RaelanAgle]

Hey Antonia, I'm so glad you enjoyed this video. Wishing you all the best with your own recovery journey ❤️ (towards pasta! haha)

[@TheBlondiekitten]

Thanks to you both 💖💗💕

[@RaelanAgle]

💓💓💓

[@lynnlasak4089]

Well done, realizing we are not what we do… but who we are…

[@ellahopkinson]

Just an FYI for anyone struggling to hear- the captions are fine 🙂

[@amandabaus6513]

Thanks so much for all of your great content, Raelan! I wish there was such a thing as a pacing coach. Maybe there is and I just don't know about it. Waking up and - if I have energy that day - attacking my to do list isn't working. I just end up crashing hard when it's over. On the contrary, the to do list doesn't diminish by much with pacing. It only helps me maintain. 😕 Is there more you can share to help with this?

[@RaelanAgle]

Hi Amanda, this is a challenging one that I think most of us (all of us?) struggle with. I am working hard to put together more on this topic 😊

[@amandabaus6513]

@@RaelanAgle your efforts are so appreciated! 😊

[@nolamayer2493]

Have you checked out Pamela Rose who is a pacing coach as well as other healing?

[@grahamkeil2253]

Thanks

[@RaelanAgle]

Thank you once again, Graham! Your generous support of my channel means so much and makes me smile every time ❤️ Sending some of that love right back at you!

[@DKANBU]

I’ve gotten better than before but not quite yet. I’ll say like 40% and I want to share my story with, it’s been a journey and can’t wait to talk to you one day. you’re inspiration to all, ty you so much 💜

[@RaelanAgle]

I'm so happy to hear about all the progress that you've made. Great work! 💓

[@Bachconcertos]

It's crazy thinking u have to keep up with everyone else and if u don't u will be shamed as lazy or a failure - but the truth is no one cares. Yes I took a long nap this afternoon - I had no choice - that is what was required - it rained during my nap and when I woke up the rain had stopped and I felt better. Not completely but much better.

[@irenepapaspyros4847]

I hate pacing too!!!! 🤣

[@RaelanAgle]

AMEN!

[@ShannonEmelia]

Thankyou so much for having me on Raelan! 🤍

[@RaelanAgle]

💓💓💓

[@rowdavies7772]

You are great Shannon! Can I just ask how easy it is to come if the PK or Keto diet you’re on?

[@nolamayer2493]

Loved your honesty, I think you are very brave.

[@WoofChaqueJour]

issue is with going back to food that previously made u ill is very counter productive. Clearly they are stressors for your body, even if your "recovered" its not like u cant tip the bucket again. I wouldnt look at it as "Im having to restrict my foods just to be healthy", rather see it as "i have to eliminate all this garbage in order to maintain an optimal diet". Gluten being a huge one.

[@Bachconcertos]

U need to make decent money so a degree & job is important - poor people cannot pay rent take time off buy suppliments organic foods take brain training courses etc