Thank you for making this video together. It’s really important to share how we feel and how we adapt to our new realities.
@wendybird51049 ай бұрын
Also, my husband and I have been through almost everything you talked about…. We are seven years in, still seeing doctors that say is anxiety, in my head. I have FND, my husband deals with it so much better than me ❤❤
@gerb3664 Жыл бұрын
And it is not just being disabled. This reasonates with just the aging process too. It seems like we are always making adjustments. Thanks.
@kattybent Жыл бұрын
Thank you, thank you, thank you, I love this q&a, its resonates so much with us too. Mr R you smashed it! We have ended up with such a dark sense of humour, but it helps us so much! The medical profession have so much to answer for, they can cause so much more damage than the actual condition itself!, with all the gaslighting that goes on!
@SearchForSilverLinings Жыл бұрын
So glad you enjoyed this! Laughter real helps a relationship doesn’t it! And do t get me started on medical gaslighting 😬
@veemcg3682 Жыл бұрын
I have been going through this Fnd nightmare and have been fortunate to have care and support from my siblings. Sadly we have lost our eldest brother and sister and the tremendous support and companionship they were able to provide so an awful lot has landed on William shoulders. Luckily for me he is very level headed and resourceful. I never in a million years would have imagined how drastically my life could change but here we are early retired no use to anybody and terrible dread of where do we go from here.
@SearchForSilverLinings Жыл бұрын
I'm glad you have your William xx It's a very difficult condition especially for others to understand. Sending big hugs xx
@isabellerice2597 Жыл бұрын
Heartwrenching journey you’ve had/are having! Thank you for sharing, very informative!
@SearchForSilverLinings Жыл бұрын
It’s definitely a journey! So many ups and downs but I hope that overall we are coming out closer than ever before 🤍
@jowarren4437 Жыл бұрын
Thank you for doing this q&a, a lot of the things you touched upon really helped me understand that what I'm feeling is normal. I'm a single mum of two only just adult children and I also hate asking for help my 18 Yr old daughter says I'm too stubborn lol. X
@SearchForSilverLinings Жыл бұрын
Echos of my own children! I’m so glad our little chat has helped you feel less alone - that’s all we hoped!
@janemay5401 Жыл бұрын
Thank you so much for posting this vlog. It resonates with my husband and I. My husband still struggles with understanding the impact of my conditions. Going from an active person to someone who is in chronic pain etc. It would be helpful if you are able to do an FND vlog. I finally got my diagnosis after 3 years. Kind regards, Jane
@SearchForSilverLinings Жыл бұрын
It’s not an easy transition and we are most definitely still finding our way - with a few wrong turns still getting thrown in! But it helps to laugh when we can and keep remembering why we’re doing it - for love ❤️ I’m glad our video has helped a little bit and we thank you so much for watching 🙏
@SearchForSilverLinings Жыл бұрын
Oh and a dedicated FND chat, ok we can definitely do that! What a difficult condition to live with from all respects 😳Sending support and spoons!