Recovering From Non-Hodgkin Lymphoma: Jonathan's Story | The Patient Story

Jonathan was only in his 40s when he was diagnosed with stage 4 diffuse large B-cell lymphoma (DLBCL), a subtype of non-Hodgkin's lymphoma. His story is full of twists and turns, as he dealt with a secondary cancer, CNS lymphoma.
In this conversation, Jonathan shares going through R-CHOP chemotherapy, high-dose methotrexate chemotherapy, focal radiation and a stem cell transplant. He also discusses the life lessons he learned from his cancer journey.
Full story & transcript → www.thepatient...
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[@brooks6348]

Best wishes for a continued recovery!

[@dudiyalov]

The most important thing about these stories is the feeling that you are not alone.

[@ThePatientStory]

We are so happy to hear that! Thank you so much for watching. Please let us know if there is anything that would be helpful for us to cover!

[@leegd5]

Same story. Intense shoulder pain, lots of diagnoses and missed opportunities to find the real cause. (Stage 4 diffuse large B-cell lymphoma.) Many visits to emergency rooms and sent home with pain meds and told to get PT. It took six months for anyone to take me seriously. I wake up every morning and can't believe I'm still alive.

[@deborahk7134]

Going through the same but without a diagnosis still! Going to meet with a surgeon next week to have lymph node removed. I already had a core biopsy but sample was too small to rule out lymphoma. I have so many symptoms and I suffer in pain everyday. It’s so frustrating when I look well on the outside but awful inside. I know my body and I feel something is going on. Wish could find out.

[@Araksi_N]

Same situation , shoulder pain for a year and I was sent home with Voltaren . I had the headache for years , nothing is done , itchy feet nothing is done they keep prescribing antifungal medication. I’m gradually getting worse

[@deborahk7134]

@@Araksi_N I never had my lymph node removed and it’s still swollen. Did you ever have a biopsy? I am also gradually getting worse each day.

[@preese100]

These stories you and patients share are very educational. We walk away with knowledge of those symptoms to look for which is extremely beneficial to avoid waiting too long to be checked. I, personally, cannot thank each patient for their courage and transparency in sharing what sometimes seems sensitive details of their journey. Kudos to them!

[@ThePatientStory]

Thank you so much for watching!

[@rebeccadavidson4435]

Jonathan - you are an amazing man. Thanks for sharing your story. I wish only the best for you and your family. God Bless!

[@marina_m11]

Thank you for sharing your story, Jonathan! I’m sure it is going to be very helpful to many people. Best wishes as you continue to recover 🙏

[@faithf5846]

Thank you for sharing and speaking so clear. Praying for the best God will give you & your family 🙏❤️

[@Angela-rf5dj]

I hope he is still doing well. I'd love an update on this!

[@suzannemeub4470]

My husband kept going back to ortho for his shoulder pain.. weeks went by and finally I told him not to come home without an mri .. his scapula was fractured from stage 4 metastatic lung cancer … we had 6 teenagers at the time .. the kids were great .. I still miss him everyday ..

[@jaypalnitkar4400]

Omg .. nobody could have thought this as the reason. Cancer is totally unpredictable. I really wish u & your daughters well

[@jillian4292]

I am so incredibly sorry for your loss. ❤

[@rdizzy1]

Having to be in the hospital for weeks at a time is the worst part of this to me personally, I can't stand to be in a hospital setting, it makes me panic to even think about it.

[@pm2886]

Most cancer patients don't spend time in hospital other than for any surgery or for complications of chemo. Most treatment is outpatient, and the majority get through it all as outpatients.

[@nathaliemann3145]

So scary. I have all of these same symptoms. I m so tired of going back to square one each time I go to a doctor. No one listens to me , they can not see anything on the x rays therefore it s in my head. I have children , my youngest is 15. 💔😢 sending this young man positive vibes his way. Get well.

[@deborahk7134]

I feel the same! Good luck to you and I will pray for you🙏🏻

[@yinnei1]

One of the most difficulties in diagnosing cancer is trying to find where the referral pain originated from. With shoulder pain, it can be anything from muscular strain to arthritis. There is also a rare lung cancer, pancoast tumour causes shoulder pain without a cough.

[@ThePatterofTinyPaws]

What an inspirational man.

[@susanbrown4137]

All the best, you seem like a really nice guy, thankyou for sharing so much.

[@ottoavila9895]

This guy has great insurance!

[@kc7339]

Thanks for sharing, wish you the best

[@dianewristen]

THANK YOU WITH BLESSINGS

[@stevenmay-pw4mn]

Thank you this helped lot!!! 🙏🙏

[@cozettalandry3429]

I had the same but my mass was wrapped around my exiting nerve roots. And it was in my sacrum. Bone marrow biopsy is not pleasant. 1 week after my infusion I would crash end up in hospital. Had the intrathecal injections. I required 2 back surgeries. 4 rods in my lumbar3 into my sacrum. God Bless you. I have a 30% chance of it returning. Met the 5 year survival rate. My cancer was due to taking Humira for 10 years for Crohn’s disease

[@patrickboudreau3846]

I feel for you and hope you are well.

[@stevenmay-pw4mn]

I just found lump under my arm!!! I’m waiting on the doctors’!!! 🥲