Recovery From Gentamicin for Meniere's | How debilitating is it?

[@jlgracegrace]

Hi Kelly, you're so precious and thank you for being available for so many of us. I'm going for 6 PT visits to help my balance. Thankfully my balance isn't very compromised. Just diagnosed with Menieres about 10 months ago. Praying for you for relief from your symptoms and that you'll be vertigo free after surgery. And belated happy birthday too! :)

[@IncredibleAnyway]

Oh thank you for your kind words and your birthday wish!! That means so much to me. I hate you live with Meneire's too. I hope the PT helps you! Let me now how it goes. Thankfully I am now symptom free after my body adjusted to the gentamicin!! YAY! I'm hopeful it lasts until I can get surgery.

[@kylo_null_pointer]

May the strength be with you, warm greetings from Poland!

[@IncredibleAnyway]

Thank you!! I'm so glad you are here. Warm greetings back to you.

[@helenneemeyer1602]

So proud of you! Keep up the faith you are so strong and you are definitely INCREDIBLE ❤

[@IncredibleAnyway]

Thank you! I'm fighting!

[@FairyGodpa]

Gosh that's so hard! This was so interesting to learn about though. Wishing you well always!

[@IncredibleAnyway]

Thank you! It is hard, but thankfully a good outcome even if temporary.

[@MsBlackRose]

So proud of you keep your faith and positive thank you for always trying with the contents🧡🧡

[@IncredibleAnyway]

Thank you!!💜💜

[@hersenwikkelspunteu]

Your always soo good at explaning these things. 👍 I hope for and with you that the positive effects of the gentemiacin holds on long enough to get you in with the new doctor. 🤞🕯️ Hugs Marloes❤️

[@IncredibleAnyway]

Thank you - that means a lot that you would say I'm good at explaining things. I try really hard! I'm hoping so too! Hugs!!

[@vanessabuckland7372]

I had my second injection 11 days ago. Unfortunately I contracted Covid at one week and have been weak and sleeping a great deal. At first I thought my constant dizziness was a side effect from the covid but realize it’s from the injection! I mean I can’t sit up, walk by myself or even move my head side to side without spinning. I’m absolutely despondent. My question is, what can I do to encourage my healthy ear to perform the correction? Do I need PT? I totally enjoyed your video. It was very helpful. I will share it with my loved ones so they get it.

[@IncredibleAnyway]

I'm sorry I'm late in replying. That is horrible that you got Covid on top of recovering from Gentamicin. How challenging. What you described sounds very typical to recovery from Gentamicin. It takes time for the vestibular system to recover. Yes, vestibular physical therapy can help. Making sure that when you can, you get up and do what you can to give your healthy ear a chance to learn and compensate. How are you doing now?

[@vanessabuckland7372]

@@IncredibleAnyway The same, unfortunately. Today is 3 weeks!!

[@EmilysLifeOnWheels]

It must be really tough mentally to do this to feel so miserable and be like ohh that means it’s helping my gosh 😮

[@IncredibleAnyway]

Thank you - it is really tough mentally. Thankfully it is temporary, but in teh beginning I certainly wonder - why am I doing this again!?!

[@muhammadusama2062]

I am taking betahistine and it has pretty much worked for me.. And despite of having good balance i am afraid to get off of betahistine.. I am reducing the dosages though.. Had my last vertigo attack in May 2022. Since then, no major vertigo, but sometimes get dizzy and off balance which is not too severe... been living with it since 2017.. I hope never to get vertigo attack ever again, 🤧

[@IncredibleAnyway]

THat is wonderful that betahistine worked for you!! I can understand why you are reluctant to get off of it. At least you know that if you get off of it and get more vertigo again, you can go back on it. But I truly hope you never get another attack again! They are horrible.

[@Sarainvt]

Hi! Just discovered your channel. I’m having an injection in September. I only have 20% vestibular function now… Do you think because I already have lost so much that the injection might be a little easier for me with post injection symptoms?

[@IncredibleAnyway]

Do you mean: do I think that if you get another (2nd) gentamicin injection, it might be easier for you with post-injection symptoms? I think it is possible. Your brain will still be dealing with the loss of that 20% you have left, so it will still be challenging. But it might not be ask challenging as losing the 80% that you did. Let me know how it goes if you decide to get a 2nd one.

[@roopabuggana4183]

Hi Kelly! Was it a low dose gentamicin that you were administered… I took a low dose one two days ago, have been having disequilibrium since then… waiting for it to subside…😟

[@IncredibleAnyway]

The time I was discussing in this video, it was definitely high dose of gentamicin. I hope that the disequilibrium evens out for you soon. Hope it gets rid of your vertigo too!

[@roopabuggana4183]

@@IncredibleAnyway Thank you

[@dawooddawood3578]

Hi Kelly I had gentamicin injection 10 days ago, actually I started feeling unbalanced and vertigo so please how much time this symptoms takes to recover 😢

[@IncredibleAnyway]

I'm so sorry my reply is delayed. How are you doing now? It is different from person to person how long it takes to recover. I would say it took me about 4-5 weeks. But it is different person to person. You can ask your doctor about vestibular physical therapy and that can sometimes help with recovery. But it does take time for the brain to learn how to compensate.

[@EmilysLifeOnWheels]

Wow to go from 1- 49% is crazy

[@IncredibleAnyway]

For real.

[@JanitaGutierrez]

Just found you from your NDPH video how is that going ??? I been suffering with daily headaches since July of last year 😢

[@IncredibleAnyway]

I'm so sorry you have daily headaches. Such a tough things. My NDPH is the same -thank you for asking! Have you found a doctor or a treatment that helps you?

[@nicplanet7764]

Does your hearing and tinnitus continue to decline following gentamicin?

[@IncredibleAnyway]

With Meniere's, yes, hearing continues to decline no matter what the treatment. I don't know that tinnitus would get worse. Hearing can be affected by Gentamicin but only those hwo are genetically predisposed to have hearing loss from Gentamicin (4% of the population).

[@skldmatriz]

Hi Kelly, i am at 7 days since since my first gentamicin injection, but still i can't feel any imbalance symptoms. How many days did it take you before feeling some effects ? i am worried it didnt work

[@IncredibleAnyway]

I am SO sorry I couldnt' get back with you sooner. I have been very ill and then had surgery and couldn't look at my comments til now. Sometimes it took 10-14 days for the gentamicin to kick in for me. Sometimes as short as 4 days. Have you experienced any symptoms yet?