Resident Artist, Anthony Carbajal presenting at Stanford Medicine X

[@SleepyMechanic]

Hey buddy. You randomly came up in thought at 1am. While I don't have ALS my kidneys and liver are failing at a progressive rate. Before I learned about this I wanted nothing but to die. Now that I've been presented with my wish, I want nothing more but to live. And people like you make me realize that I still can. So thank you. I don't think I'm the only one who thanks you for that reason

[@kaitlin722]

Hi Anthony. First of all, your pictures are great!!! I took photography classes in high school for two years and mine don’t come close. When you started talking about the perspective you’ve gained, and how short you realized life is, i full on started crying because I know how it feels. I myself don’t have ALS, but my mom does. I’m 20 now, but when I was 18 and started my first day of college, my mom found out she had ALS at my colleges hospital. I didn’t know until a month later, she told my older sister and I in a restaurant. My life changed that day, and while of course I still struggle daily, I am also keenly aware that the worst of any situation CAN HAPPEN. I am so much more grateful for small things, and I try not to take them for granted. My mom is 54 and living with her sister in their hometown. She had made an amazing independent life for herself and provided well for my sister and I. Watching her lose her independence, her physical and mental strength has been painful to say the least. I took care of her this past summer, but just being at college for a month and coming back, the decline was obvious, and soon after she decided it was time to move in with my aunt, a nurse practitioner. As you well know, uh, this shit fucking sucks! But as you mentioned, we are blessed with perspective, and cherish beautiful things in life because we live with the ugliness and unfairness that can happen in life. I’m sorry, Anthony. For you, for everyone who has the disease or experiences it along with loved ones. I’m so happy for all the amazing attention and awareness you’ve brought to the struggle, however. I wish you luck and happiness in the rest of your journey. 🖤

[@acarbajal945]

your words mean more than you know... I empathize with you. My mother also had ALS when I had to leave home for college. .. I always felt so guilty being away, but my mother wanted me to finish school and always had to reassure me. I learned that love has no expectations of guilt and the it's hard to be happy when you are carrying it... an important college lesson I guess. Continue sharing your journey... especially when it is difficult.. Showing others they're not alone in their adversity is a courageous victory for your you and your family, and the entire ALS community. Tank you for being so vulnerable! Btw I typed this with my eyes... Took a while but grateful I still can. So sorry for typos lol

[@chaaarleeee]

I just met Anthony and his mother today. This family is so amazing. Anthony and his mother are very strong people and are so very strong. Anthony, if you’re reading this, keep pushing forward and keep being the awesome person you are.☺️😊

[@cherylboinske3411]

God has blessed you with an insight that only some of us get, the fact that life is short. I too have ALS, I was diagnosed back in 1999. Mine came on spontaneously right after I gave birth to my son. I can't imagine the guilt your grandmother and mother must have felt knowing that the family had a 50-50 chance of getting it too. I like to look at everything I have learned by living with this disease that I never would have known had I not gotten sick. God bless you and your mother.

[@shannoncrittendon5928]

Thank God for you! I'm in the prossese of diagnosis.I just recently had 2 doctors mention that I need checked for als.The neuros say could be ms but no lesions. I have been tested for lyme,sjogrens, lupus,MS .It's very scary.So thank you for your inspiration and just know God has a special place for u in heaven!

[@dzind]

Your photos are beautiful. Thanks for your inspiration.

[@cvrlygem6850]

I WAS JUST THINKING OF YOUUUUU I MISS YOU SO MUCH ANTHONY

[@kokokhan22]

cvrlygem 6 where did his wife go?

[@procrastinationvacation7163]

I remember seeing your video in 2014 when I was around 11 or 10. I'm 17 now and had to return to your channel to see how you are. Your story was so inspiring and brave it hadnt left me for 7 years.

[@okinawachick]

I don’t know if you remember me Anthony, but I met you briefly at an ALS charity event for your mom last April 2017. I attended with my mom who was diagnosed with ALS and I remember her telling me that you gifted her a speaker for her to talk into so that she wouldn’t strain her voice so much. It’s been since February of this year that she’s been gone and I started to think about you today and how my mom had always encouraged me to watch your videos. Well, I’m so glad I finally did. This video is so beautiful and you are amazing. I know without a doubt my mom would have loved to watch this video and she and I would have cried happy tears together for you. You are so strong 💪🏻. thank you for being such a positive force in this world.

[@acarbajal945]

okay, I'm crying lol thank you for sharing this... I remember your mother very well, she was a beautiful soul and made an impact on my life. so so sorry for your loss.. Sending lots of love and strength to you and yours.

[@atheistmommy3710]

You are an amazing photographer! I'm thinking of you warmly and wish you all the best, Anthony.

[@irenejimenez7881]

You are courageous and this video is so very humbling.

[@BCIGuy]

This is a wonderful video and very inspiring. Stuff like this is what pushes us to work on neurotech in the hopes that it can help anyone and everyone communicate better and interact with technology better

[@failburgerz]

You are a LEGEND, your photos and your personality is amazing.

[@CarlsSimGuides]

One of the most emotionally gripping speeches I've ever seen Anthony. You're an inspiration and you have so much to share with the world because of your unique perspective. Thank you.

[@lisacruikshank]

You are amazing ! Fellow Wedding photographer here but haven’t done a lot lately ... I’ve been going through test for 2 years now . I have leg weakness , twitching and now my thumbs are jumping when I use them . You are an inspiration ! Still Pearl Photography . Love and hugs !

[@luna26160]

Big hugs from Mexico 🇲🇽

[@ozneozkan1263]

You're brave heart Anthony

[@chriswhamilton]

I came across your first video of when you were first diagnosed from 2014, then clicked your channel and see how quickly the disease takes over. Your pictures are fantastic. Keep it up.

[@rockerdude86]

Beautiful photos. Beautiful person. 🙏

[@danieltuben]

The photos are also incredible

[@valhallabownd]

My best bud called me today to tell me he has ALS (31). Found your channel, watched you first video, watching this now - seeing how things have progressed, your perspective is passionate and strong way to be. I also see you are having to rock a chair. You do it well. Thx for sharing. I'll do some digging and learn from you and your struggle be it care for fam or your own exp. god bless

[@75redknight]

I was diagnosed in May. I admire your courage and attitude in facing this horrible disease.

[@jabberthereader]

As always, I'm coming after everybody... I just your video about ALS, wanted to check on you, just to see how you were doing. Physically bad, of course. But what I see is power. Power in you, power in your photos, power all around you, and that's amazing.

[@GetToDaChoppa-k5r]

Your photography skills are awesome! The subjects are alive and you capture their humanity very well. It is great to see how passionate you are despite the illness. Bravo young man!

[@GetToDaChoppa-k5r]

I sent a donation your way as well. Take care.

[@ashleyashley6396]

So glad to see another video of yours again. Thank you so much for sharing your story.

[@zahrajasim2373]

God bless you. Thanks for sharing, this help the newly diagnosed to cope with the disease. Wish you all the best ✨

[@greendaysss]

Such a beautiful person!!!! Beautiful soul...GO ANTHONYYY ,YOU HAVE ALREDY WON!!!

[@sunnylilme]

This is just what needed to hear, right now. Thanks.

[@MrJking065]

Anthony you are an amazing Artist. The great thing about KZbin your family will always have you to listen to and watch.I wish you well.

[@sheilaajohnson]

You are still the most amazing person I’ve ever seen. I love the raw joy in your heart and your willingness to share your pain. Always in my prayers..

[@acarbajal945]

thank you my friend.

[@whereisthebeach8664]

This was beautiful, thank you for allowing us to take a peek into your life and share you amazing photos. Many blessings and prayers sent to your beautiful tribe.

[@dawndouglas922]

It is a life lesson and a valuable one.We should practice kindness and the world would be a better . Anthony enjoy your life now as you said life is short

[@williamstorch5310]

In a world so littered with hate and pointless desire for wealth and status, you are a pure and beautiful person. How anyone can be so strong and inspirational really baffles me. I lost my brother and father these last few years and had a scare with als that turned out to be Lyme disease. These things wear on me and make my life feel worthless. People like you exist to remind people like me that life is truly a gift, and is short for us all. You have truly inspired me over the last few years. You are a very important part of this world and I want to thank you from the bottom of my heart.

[@lmfaowtf2]

Hi Anthony, greetings from Turkey. I have spotted your video from one of my favorite channel ‘evolution tree’ (Evrim Agaci - original name) . They’ve chosen your videos to create an awareness about ice bucket challenge for the people who don’t know anything about it and who thinks it’s a challenge / fun between friends. I’ve never heard about ALS before, now I do. You made me aware... Don’t know what I can say to make you feel better, it made me feel so bad witnessing your progress and gave up sleeping and decided to find u n send you a message to show my support bro. You’re the reason I’m aware of ALS, you did it from thousands miles away and I’m not the only one. Be proud of yourself for not giving up. You’re a very very strong man and you got millions of beautiful hearts praying for you. Be proud of yourself. You do deserve it bro. Don’t give up. There’s much more you will be able to do and miracles are for the ones who believe in it.

[@opiniiionated]

You are such an amazing person! I wish you all the best

[@CrystalNicole13]

Thinking of you and praying for you, Anthony! God bless you❤️

[@jojoscogsable]

My beautiful mother was being treated for depression right up until 2 months before her death in 1990. In those days not much was known about ALS or MND as we call here in Australia. Looking back now and being a lot more Knowledgeable and older , I can’t believe doctors didn’t pick it up. She couldn’t swallow her food nor breathe towards the end. She died in less than 2 years after symptoms set in. Today they can prolong a reasonable quality of life, but the out come is always the same. I live in fear that I will have the same fate as my mum.. Every sinister flickering of a muscle brings on a panic attack. I looked after mum full time in her last year of life. It was so hard and sad. You feel helpless. I gave her all the love, time and energy that any human can possibly give, making sure she was surrounded in my love . She wanted to die at home, and on the very night before her passing, hospice had loaned us an oxygen tank. She passed away peacefully during the night, surrounded by her loving children. I held her in my arms as she took her last breath. That was 28 years ago and I still cry for her. ♥️

[@acarbajal945]

reading this sends chills... Wish I had the perfect words to ease the pain. I believe suffering can be enlightening when viewed at the right perspective. Do your best to surrender to what's beyond your control. I transformed my anxiety into motivation to make the most of this present moment... that journey has brought me to a higher level of contentment, fulfillment and peace and maybe it will for you too. ALS can't take the mind nor spirit. Sending you all my love and strength.

[@EyegazeEdge]

You are an inspiration Anthony. Stay strong and thank you for sharing this video.

[@HWolfe]

Sending you a hug and a prayer tonight, bless you and your tribe. Keep photographing such amazing things and people of life! You are loved❤

[@shellyortiz1977]

Hola anthony sending u many blessing that each day you get stronger .and im praying that soon we get the best doctors to find a cures for als..que diosito te de muchas fuerzas..

[@jimtheedcguy4313]

Here I am throwing my life away doing drugs, and this man is dying from this cruel disease that he didn't bring onto himself, when he would cherish the ability to have a normal life. You're a strong man! God bless!

[@wendyannh]

Maybe he will inspire you to ditch the drugs and do something with your own life. It *is* possible to kick them, you know ;-)

[@yesterdayitrained]

So so so glad to see a video from you! You are a “one in a million” person- and I am thrilled I came across one of your videos last week. You are so honest, so raw, I feel like I have known you for a long time. You are open and forthright with your feelings, your disease, and yourself. You kindly guide people to a new understanding. I love the themes of your speech- vulnerability and perspective. We do get lost in our phones- I cannot tell you how many times I have seen parents recording their kid’s recitals, orchestra concerts, or chorus performances- all the while watching their children THROUGH their cameras. They are missing life- the ‘real life’ occurring right in front of them. Your speech was truly enlightening- you made a really good point about how we choose to experience life- and that every moment is worth our attention. Your photography is incredible- you capture life in a unique and deep way. I hope you stay as well as possible, for as long as possible, and continue your journey with the humility, honesty, and grace you have shown the world. You are in my thoughts.

[@Ghost_GAME-X]

I’m astonished at your look out on life. You are a very amazing person keep on living dude

[@AstroRoxy]

Beautiful photography

[@blizzarduk]

You are an amazing man Anthony, what a speech. Also I love your photography and wish I could take as good photos. That one with the girl and the cigarette is just so good, the look in her eyes. Hope a cure comes soon my friend.

[@mariannahanley500]

hi Anthony, I just feel so so bad. I wish I could something for you. I watch you from the beginning and seeing now the way you are I really feel so terrible for you. You are such a good photographer. Your breathing seems so laboured, so bad. O, I really wish I good help you. I think about you all the time. Thank you for everything. With love from Canada.

[@genisedavis527]

Very Beautiful and powerful speech, God bless you Anthony 🙏

[@arnoldmatthews834]

Missed you Anthony. Good to see you upload again. God bless

[@Amanda-pe8cq]

Thank you for sharing ❤️

[@halflight87]

My brother I'm so glad to see you!!! been looking for a vid of you or an update. your amazing man.

[@speedking4951]

I hope my words can bring you comfort and support. You are one strong dude. Hang in there bro. All the love and support!!!

[@incredibleindia9350]

Happy to hear from you. Its been long time ever since that interview

[@youssefmhamdi700]

Such an amazing and strong person wish you all the best keep uploading and giving news about you when you can ❤❤❤

[@Beatrix501]

You have a beautiful soul. I' d love to meet you. Good luck, Anthony. I think about you so many times...

[@emsbrelopez0711]

God be with you 💙

[@alenalee1943]

I am so HAPPY to see you! It’s been so long since you uploaded. Anthony, you are an inspiration to so many, including myself! You are an incredible man, a very talented photographer! Would love to hear more of your wise words here on the net ❣️ Sending my love & Prayers

[@Cletuskeller]

WELCOME BACK

[@danielc7773]

Genuinely inspirational. Superb photography, too. You're like a suburban Vivian Maier.

[@12oq]

You’re amazingly talented in photography

[@replicacity92]

This will be the ALS speech heard forever! Almost like a MLK speech.. you will forever be remembered because of this speech. WE WILL FIND A CURE

[@aeliayousaf]

Welcome back brother! hope all is well - keep up the amazing work!

[@isidoraedwards9615]

beautiful pics and speech 💞

[@jadohoops1625]

Hope your doing well, glad to see ALS is getting some attention.

[@tomikajones25]

👏👏👏👏👏👏👏👏👏👏👏👏👏👏you’re AMAZING and very strong 💪 thanks 🙏 for giving me hope to except what I’ve been given....

[@RobbyJHope]

I love you Anthony.

[@surand3311]

God bless you

[@shadow03clb]

You remind me so much of Jason dasilva. He is very active in spreading the word about Ms. He made a documentary that's called when I walk, and speaks at many functions, though his speech is becoming impeded by the disease and hard to understand. He has very aggressive multiple sclerosis and has been in a power chair for years, his speech greatly affected, and no longer has use of any of his limbs. I know this because I also have an aggressive form of MS where I have the use of one arm left. Sometimes I tell people that MS and ALS are such similar creatures. Some people with MS are fortunate to have a relapse remitting form, but 5% to 10% have what is called primary Progressive multiple sclerosis. It robbed me of my legs and my arm Within 4 years. I too, have to only drink with a straw so I don't choke, gets hard for me to breathe because of my weak diaphragm, and have to be very careful when I swallow food because my tongue gets weak. I've watched videos that you've made and I'm really going to try to live each day to the fullest even though I'm so nervous about the future because I know the inevitable is I'm going to end up in Assisted Living or a nursing home. I am fortunate right now to still have my mom and my family who do many things for me, but I find myself getting sad because it is too hard for us to get out because of my mobility issues. If it's one disease I hate more than MS, it's ALS. I just wish so much that they could come up with a cure for these diseases, not only that, but at least a treatment for ALS. There are about 16 treatments now for MS. Unfortunately, none of them will have an effect on my course of disease because I'm too far beyond the disability scale. But at least it gives those with the beginning stages of Ms hope. I often tell people that I feel MS can be a very long, drawn out form of ALS. What an inspiration you are. And you're so handsome and intelligent. Thank you for sharing your story. I may not have the same disease, but I do have many of the same exact symptoms and it's hard to "put one foot in front of the other" as they say. No pun intended. I haven't walked since 2015.

[@lauraherman8169]

Do you have your photos for sale anywhere? I am very interested :)

[@MichelinaRyan]

Were there any specific symptoms you notified first Anthony? I’m 27.

[@MichelinaRyan]

Anthony how are you! I’m still undergoing my diagnosis. First signs widespread twitching and right arm weakness now having severe spinal pain. The twitching is everywhere I can’t imagine what your going thru well see if I might one day, I know the process takes time. But I’m having symptoms doctors are monitoring them. I pray for you and this horrible disease. Disease suck, death sucks. We all die and you are so strong. I’m trying to have faith and keep it but so many diseases have taken my family members aswell. This one is a hard one.

[@littlebird8346]

Spinal pain is not part of ALS... and over 90% of twitching is benign. Unless you start getting 'foot drops,' tripping and falling and not being able to button up your shirt or pants I wouldn't worry.

[@Irene-cc8ve]

You're amazing!

[@danieltuben]

Beautiful speech

[@pennydaytreasures8173]

So powerful❤️

[@marilyncatalano9910]

They say that my God doesn't make mistakes, however, that's not always so. God didn't make any mistakes by allowing Anthony to get this dreaded disease. The only mistake God made was taking this 👼 angel way too soon. His gratitude in his attitude is what makes this man unique. He can sit in his chair and tell us if the "blessings" ALS have him. He can sit in his chair and reach out to teach me about perspective. I'd never looked at life through perspectives before but now I know what that means. He's right. If I look at something some kinda way and see it as bad luck, or that could never happen to me. If I look at it negatively, I will perceive it to be bad. But, if I look at something as a learning experience, I feel much better. I've heard of the WORD perspective, but I didn't really think about what it truly meant and fir me, I guess it's like looking at the glass half full or the glass half empty. It's all in how I see it and Anthony, thank you kindly for opening my eyes. This is something I can wrap my brain around. God bless you in heaven 😇 and God bless your family.😍

[@sanghyukkim6169]

Has he passed away?

[@acarbajal945]

I'm not dead, yet. Lol

[@acarbajal945]

@@sanghyukkim6169 still alive and kickin!

[@sanghyukkim6169]

@@acarbajal945 good to know man! Give us some updated videos soon!

[@IvanaGirl]

Anthony Carbajal LMAO! Thanks for sharing your amazing photos each one of them truly seem to tell a story. Amazing

[@iramfatima1767]

In India dr. Tomar is very good for ALS... you can search him on you tube channel

[@deseraek6191]

I want to tell you my story...I have not been diagnosed with ALS, but I have had the fear of it now for over a year. In March of 2017 I got my first faciculations. They began in my calves and over months spread to the rest of my body. I, like most people, resorted to Dr. Google for a diagnosis, which was the worst thing I could have done. I started researching and reading and watching videos and you were the one person I came across whose videos and photos spoke to me. I saw your happiness and willingness to educate while hiding your fear of this debilitating disease. Over the last year, I have out of fear refused to see a doctor after my first visit (and being told I had benign fasciculation syndrome) because not only am I more scared of death than anything else, but the idea of leaving my two children makes me feel guilty. I do not feel weakness to this day, some pain here and there, I am hoping it is fibromyalgia, but no weakness yet. However, EVERY SINGLE DAY I fear the worst. I fight the tears and the fears and put on a smile for my family. Of course I in no way have any idea what you are going through (I've even avoided your videos to stop the reminder of what could be) but I hope you know how much you having a voice can make a difference for people. Me as one of them. I cannot imagine the world of hope and happiness you give to those who are in fact diagnosed with ALS. You are an inspiration and your pictures are by far the most beautiful and natural I have seen. You have made a difference and an impression on many. I hope you remember that for the rest of your life. Thank you for sharing your life ❤

[@greendaysss]

Dez K-B I go through the same thing...fasciculations&more but no als or something...and i am fighting like you. Of course, nothing compared on what Anthony is going through! BU T he is an inspiration for everyone, even me. ps. Sorry for my english :)

[@deseraek6191]

Have you been told by any dr what they think you might have? And your English is perfectly understandable!!!

[@greendaysss]

My neurologist after 6 months with synmpthoms, at the second visit, said i had something like depression/anxiety ...actually i made a therapy with antidepressives and it helped me so much! But I still have facsiculations and sometimes a little weakness at legs but i think is related with my lumbar spin area, cause i have some protrusions/hernia...

[@joseguillen3597]

Sorry still learning english don worry I had the same problem and I was scare to have this desease and ai went to the hospital I told them my symtons and they do me electrolytes blood test and my magnesium was low and gave me a pill but I fell same so I went again and they gave me a another at the next day I was good but I was really scare to many fasuculations

[@joseguillen3597]

I was weak confuse many fasicukations I was sacre to sleep until I went to the doctor Im just saud do electrolyte test just saying It could be the same

[@patriciaalmiron997]

YOu are beautiful and powerful!!! Love you!

[@littlebird8346]

Hey when will the new video be up

[@gizliadam5485]

how long have you had this disease? and what was the symptoms?

[@alenalee1943]

Gizli Adam You can find all that info out by watching some of his other video 💞

[@gizliadam5485]

Spoons&Brooms i can not speak english i write that from google translator

[@gabK008]

Wondering how you are Anthony. Haven't seen a video in a while.

[@gabK008]

Found your Instagram :) much love and unending support. You have an amazing family and truly an amazing mind. You can beat ALS. It just needs the freakin money.

[@c956rubber]

Looking back to your viral video to now...it freaking sucks Anthony. I wish I knew the cure for ALS, I pray God gives me the answer...I just want to tell you to hang in there and If I ever get blessed with a cure I'll make sure you get it.

[@MrRs-jo4es]

stay strong bro! love you man. F ALS

[@c.a.m4151]

awesomeness

[@iramfatima1767]

Hi Anthony m from India

[@chaaarleeee]

Anthony, your not handicap, your handiCAPPABLE !!!

[@bkomola]

Beautiful ❤️

[@harasnicole]

💜💜💜

[@Gigi55Florida]

❤️❤️❤️

[@thanoschipchin5073]

Don’t worry man I help find a cure your gonna be okay alright your gonna be fine your gonna live just think of living the cure is not far away

[@HamDansfamily4]

All those suffering from any physical, mental, spiritual illness or black magic should listen surah AL REHMAN a recitation by Qari Abdul Basit( 21 minutes without translation) three times a day for 7 consecutive days with closed eyes. Every time after listening take half a glass of water, close eyes and say 'Allah' thrice in heart and drink in 3 sips. For non-believers or atheists say you own name and drink water. Before listening to this therapy please forgive everyone who has done anything bad to you ever in your life. Clean your heart from revenge,grievances,envy,hate etc.

[@michelleryan607]

Having muscle pain, with severe twitching 24/7 from head to feet, it feels like little worms in my skin. Some spinal cord pain, with right arm weakness. I am 27 year old girl very concerned it may be ALS saw a doctor he didn't know have an emg soon. He saw fasciculations during my visit. No family history of ALS. I guess it's a wait and see thing. Praying for people who have this. My twitches are very very noticeable and every five minuetes

[@littlebird8346]

Twitching is not a big concern, over 90% of twitching is benign .Unless you start tripping and falling or not being able to button up shirts or pants there's no reason to worry it's ALS

[@replicacity92]

WE WILL FIND A CURE!!

[@longdongsilber]

NO WE WONT!!!

[@longdongsilber]

keep dreaming ya dumbass!!!

[@loralynlaurie9158]

Maybe try black cumin seed oil. www.omicsonline.org/open-access/neuropsychiatric-effects-of-nigella-sativa-black-seed--a-review-2327-5162-1000209.php?aid=67144

[@rotiwithas1672]

Anthony u r so cute may Allah Pak bless u do one thing as a medication listen sura rehman on daily basis n pray to God for health n cure from this disease I believe it works this surah has healing power this is the Noble gift by Allah for mankind

[@93DNA94]

"For God so loved the world, that he gave his only Son, that whoever believes in him should not perish but have eternal life. John 3:16 ESV

[@ellevi3268]

Tu sei meraviglioso, anche se la vita è una merda

[@Thehammm_]

[@waynevevo4582]

Refuel😀😀

[@bulletproofkam7931]

Why does it take so long for him to post videos, I want yo see your struggle friend.

[@Davidjohnson-o6g]

You are a horrible piece of shit and you are reported

[@therapture87]

people “littered with tattoos” poor choice of words there

[@acarbajal945]

You're absolutely right.

[@therapture87]

@@acarbajal945 its no big deal though man, we know what you meant. ive been following you for years now ever since the ice bucket challenge. you're the strongest, bravest, and most compassionate person i have ever come across. much love man.