Understanding Trigeminal Neuralgia

[@KarenRead.is.innocent]

I suffer from this horrible condition. It's ruined my life. I suffer greatly. It is the most painful experience. It is cruel and no one understands what I go through. 💔

[@leeroy5665]

Many understand what you go through, you need to find and connect with them and discover their tricks if any at all

[@margaretpeelen3968]

I understand you . I am sorry that you are also suffering of this terrible pain.keep strong xxx

[@luanarose1957]

I do 😢 I have also.

[@ROGER2095]

When my friends see me clutch my face, drop to the ground, and groan and grimace, I think they get an idea of the severity of the pain.

[@MichelleBoblitt]

I got mine after my COVID booster shot.

[@Rutterford90]

Excellent video, very clear to follow and informative, this should be one for all GPs / Pain specialists to watch as there's a lot of misdiagnosis with TN - Hopefully there's more treatment options developed and trialled too as there's so many still suffering on the current options!

[@abbasjabbar9050]

Can you tell us what treatment options you know

[@babyluvv777]

@@abbasjabbar9050there is peripheral nerve block , trigeminal nerve decompression surgery and another one where we cut the branch of the trigeminal nerves

[@tanichiro]

Great to see this come up, my mother was diagnosed with this several years ago and had an operation but sadly didn't do enough to address the problem

[@melodyfleck9368]

You are smarter and offered better insight than an ER doctor, my family doctor and an opthalmologist. Thanks you for this informative video.

[@oshenone6947]

My grandmother suffered from this in the last years of her life, if hurt to see her pain. I hope she's free of it now.

[@royajunique]

Hi. Is she fine now.

[@oshenone6947]

@royajunique when I said free, I meant she passed away

[@royajunique]

@@oshenone6947 Sorry. Did she pass away due to this condition.

[@lovefaith1794]

Ive got nasty TMJ, eat thru my gaurds, my kids as well. This was amazing & how u break it down for some of us (for dummies😂)❤

[@CancelledExplorer]

Tmj is different

[@Noor-mu1bl]

thank you so much for this short and very informative explanation!!

[@paulalaurie7935]

My dad developed this after a tooth extraction. Nothing took the pain away. He was eventually listed for a surgical procedure on his face and just before they took him into Theatre they found out that one of the diagnostic machines they were going to use, was broken. They sent him home. He told me that if he had a gun he would shoot himself but he didn't need to, he died a few weeks later and I was so happy for him, no more watching him bang his head on the walls infront of my young children. He was free from this devastating pain at last. 😢❤

[@Stayhumblestayfocusedstaybless]

I have a Tiny vessel noted in close proximity to the cisternal portion of the right trigeminal nerve, approximately 5 mm from the nerve root entry zone,and am getting all the symptoms

[@danetterosswatson4243]

This video was very helpful! I have had no idea what I am dealing with and it is hard for others to understand my pain because there is no outward detection or warning as to when it will hit me! I try to go about my life, but it is extremely difficult and frustrating when my vocation is to talk to people. Hurts to talk, chew, swallow or just walk sometimes. Pain just hits out of nowhere! The only silver lining, is that I've lost 15 lbs in 4 weeks of dealing with this! Can't eat and have to drink nutritional stuff like Ensure to keep my stomach settled from the pain meds. What a life - NOT!

[@evansongaga1925]

That's exactly what i went through few months ago.

[@adambrodman6229]

omg

[@CynthiaNadineLovesLife]

Same with me, i can only eat soft food. Normal food is so painful to eat. Or fluid food i use.

[@GamingAdrian5250]

@@evansongaga1925did it go away?

[@evansongaga1925]

@@GamingAdrian5250 yes.N never returned

[@stum5033]

Really good video, thank you

[@CynthiaNadineLovesLife]

I was just diagnosed by the doctor, from this disgusting illness. The pain is hell. It started after my dental surgeon extracted a wisdom tooth with root. Damaging my nerve in my face. The doctor said it can take months to years before it gets better. Medication is not an option for me, as i have 11 more chronic illnesses and i can’t use these with it. Not mentioning the side effects, no thanks.

[@benhoffman8264]

Very interesting because I had my wisdom teeth removed and about a year later I started to suffer from this pain. Wonder if it's connected

[@CynthiaNadineLovesLife]

@@benhoffman8264 I am sure it is related. At the moment the pain stopped, thank goodness.

[@benhoffman8264]

@@CynthiaNadineLovesLife I'm glad you're doing better. How long were you in pain before it got better? My pain has been going for about 9 months now.

[@CynthiaNadineLovesLife]

@@benhoffman8264 2 Months. And then it stopped. I hope it stays away.

[@ameriswiss4676]

To whom it may concern, - For over 10 years I have suffered mind bending pain with the only relief of a daily amount of a rediculous number of drugs. I am about to undergo surgery next week at JohnsHopkins in Baltimore. The surgery will be done by Dr. Judy Huang. What sold me on their team at JohnsHopkins was a 1 hour video. Their team answered over 10 years of agumulated questions. Be encouraged to do your homework. There are surgeons that can give you your life back. Do not give up! - Karl

[@vishalchaudhary-nf6gr]

Great explanation! Trigeminal neuralgia was incredibly painful for me, but Planet Ayurveda’s herbal supplements made a huge difference in managing the pain. My uncle also saw improvement with their products. Truly worth considering!

[@melissamiller6182]

This is awful stuff!! The medicine is horrible..stops working. Its hard working full-time with trigeminal neuralgia and addison's disease.

[@shayminnix8618]

Has this condion ever gotten better for anyone

[@SusieCarmichael8]

I used to have really bad episodes, but now they have drastically calmed down. I still have them here and there, but the pain is not as intense. I'm currently on duloxetine and lamotrigine.

[@deloresc6374]

No, it doesn’t get better. So far the excruciating pain comes about every 2 years. I have pain in between but not as bad.

[@newroseneuros]

yes i have cured mine and it took more than 6 years. i had pain withdrawals

[@williewonka6694]

I have this, and it seems to come and go over the years. They gave me an MRI, and found an unrelated brain tumor.