Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers

  Рет қаралды 231,680

Gez Medinger

Gez Medinger

Күн бұрын

If you've been suffering from Long Covid, chances are you've had every man and his dog telling you that what you REALLY need to be taking is Vitamin D. Or probiotics. Or some godawful supplement you've never heard of. And as a result many long haulers have been taking every vitamin and supplement under the sun to see what works. But it's hard to tell through the fog.
In this film I talk to Dr Tina Peers, one of the leading group of doctors with a special interest in Mast Cell Activation Syndrome, who has been successfully treating patients with MCAS for five years. She has lots to say about the comparison between MCAS and Long Covid, and what treatments have successfully worked in her clinical experience.
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The Long Covid Handbook (Oct 2022), by Gez Medinger and Professor Danny Altmann and published by Penguin Books is now available in paperback, ebook and audiobook. A singular resource that brings together everything patients, clinicians and academics have learnt about the condition since early 2020, as well as lessons from sufferers and researchers of ME/CFS and other chronic conditions. It offers world leading expert advice on understanding, managing and treating Long Covid. The Long Covid Handbook is available from the following links:
US: a.co/d/0gvkJCU
UK: amzn.eu/d/9KjurGb
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IMPORTANT: It is ESSENTIAL to talk to your doctor before taking any supplements that you have not taken before, or begin taking them at a larger dose. This regimen is NOT appropriate for children so they should speak to their doctor before taking any of these.
Nicotinic acid / Niacin also has several strong counter-indications, they can be seen here:
www.nice.org.uk/donotdo/do-no...
REFERENCES:
Dr Tina Peers
www.drtinapeers.com
MCAS and Long Covid, Afrin et al:
www.sciencedirect.com/science...
Atopy / Autoimmune conditions in Long Haulers:
• Who Gets Long Covid, a...
Low Histamine food list:
www.mastzellaktivierung.info/...

Пікірлер: 1 600
@MP-py7pt
@MP-py7pt 3 жыл бұрын
Should be up for an award in investigative journalism as well as public health!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Haha, thank you!
@alexhey8277
@alexhey8277 3 жыл бұрын
@@RUNDMC1 Do you have any website as a source to recommend?
@eleanorcoleman284
@eleanorcoleman284 3 жыл бұрын
Thank you for doing this. It’s difficult to deal with long covid symptoms and be treated like you’re anxious or crazy. You provide a glimpse of hope for people like me.
@markchristensen9783
@markchristensen9783 3 жыл бұрын
@@RUNDMC1 important question . My issues are primarily body aches . Is MCAS protocol primarily only applicable to People with respiratory issues ? I’m taking the supplements but for last few days went back to high histamine foods and it’s not affecting me negatively . Having said that , if it’s not a good idea , how long does it take to get bad symptoms again if high histamine Foods are reintroduced. It’s been 3 days and not feeling worse .. any feedback is greatly appreciated!!
@truthseeker6688
@truthseeker6688 3 жыл бұрын
long covid is a leaky gut syndrome. A doctor in pakistan is treating people long covid by prescribing them proton pump inhobitor like pantaprazole, eatung honey and yougurt in morning, eating raw onion and garlic with rice veggies, avoiding gluten, sugar, fast food, using olive oil etc. And people are healing in about 1 month of doing this
@oldArmyVet
@oldArmyVet 2 жыл бұрын
I had long covid, I used copious amounts of vitamin c, pineapple juice, lemon, honey, cinnamon, plus everyday I made a tumeric, milk,and black pepper drink in the morning. I pushed myself everyday, walk until I couldn't walk anymore, rest repeat. I'm now in better shape than I was before I got long covid.
@naturespleasantries
@naturespleasantries 9 ай бұрын
What we’re your symptoms
@oldArmyVet
@oldArmyVet 9 ай бұрын
Shortness of breath, fatigue, weak, loss of smell, taste, joint pain, brain fog wich I still have that symptom and still have some smell deficit.
@downtoearth1982
@downtoearth1982 9 ай бұрын
Hi how are you doing nowadays and did you keep yourself on any antihistamines.H1 and H2 blockers
@oldArmyVet
@oldArmyVet 9 ай бұрын
@@downtoearth1982 doing pretty good, still get winded randomly. No , I just kept the same regiment as above
@nancymccall5209
@nancymccall5209 Ай бұрын
@@oldArmyVet 3:59
@lacisz
@lacisz 3 жыл бұрын
Hey Gez, I know you are hearing it all the time, but your work is essential. You are doing what governments should do - collecting scientific data and making it palatable for all of us. Your way of presenting is objective and trustworthy. I'm also in the club, but after 8 months, I'm using my running shoes again. The brain fog is still persistent, but I'm hopeful. There are some clear minutes daily which wasn't true a few months before. Keep hangin' on, we need you. Thank you.
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Hey, thank you :) And congrats on getting those running shoes on - I’m eagerly awaiting the day I can do the same thing.
@christinechin1909
@christinechin1909 3 жыл бұрын
💯 % agree 👍
@detectivewiggles
@detectivewiggles 3 жыл бұрын
To eliminate brain fog, make sure you're not taking synthetic D.
@lacisz
@lacisz 2 жыл бұрын
@Will Gmail Hey Will. Thanks for your question. It was a long journey, I was constantly monitoring my symptoms, stopped running and other sports, gained a few kilograms :) Physically I'm 100%, but the brain fog still persists. Strangely it's worse when I'm passive. I'm about 65-70% of my old self. A few more years to go :) How about you?
@PATHAN_writes19
@PATHAN_writes19 2 жыл бұрын
@@lacisz How are you now ?? Hope you feel better and get your normal life back ???
@LauraPazzaglia
@LauraPazzaglia 2 жыл бұрын
This video was EXTREMELY helpful! My post-exercise long-covid symptoms were worsening (fatigue, muscle aches, weakness febrile pains) week after week and I couldn't figure out why. This video made it clear. I was reducing my hi-dose Vitamin C that I had been taking during COVID, and fresh tomatoes just came into season and I was gorging on those every day, twice a day - the absolute opposite of what is recommended here (and I was feeling it!). Going to re-up my Vitamin C, double my Vitamin B dosage (I have MTHFR gene mutation) and add Quercetin. I am already taking the other supplements but right after watching this video I also ran out to my terrace, stripped down, and got 15 mins of sun top and then bottom to increase Vitamin D production. I am so relieved to have found the reason I was getting worse and look forward to improving!!!! I was really scared. THANK YOU!!! Ciao from Italy, L
@Aaaaaalex09
@Aaaaaalex09 Жыл бұрын
How are you tiday Laura 9 months later??
@johankrieger2577
@johankrieger2577 3 жыл бұрын
I unfortunately contracted long covid back in March with relapsing remitting symptoms. 3 weeks ago I fasted for 48 hours then introduced a low histamine diet with n-acetylcysteine supplements and within 3 days my GI symptoms resolved, last week the tachycardia, palpitations and POTS resolved and this week the lethargy and breathlessness with speech resolved. Just started climbing hills! It may be anecdotal evidence but I genuinely think that long covid may be a result of the virus triggering mast cell reactivation syndrome!!!
@oibal60
@oibal60 3 жыл бұрын
NAC and D3 are the golden ticket!
@llathem2212
@llathem2212 3 жыл бұрын
Same here. I’ve been eating bananas daily for their potassium and now that’s not something I shouldn’t be eating along with the daily soy milk. I finally feel like there’s some hope.
@johankrieger2577
@johankrieger2577 3 жыл бұрын
Also added in berocca drink with high dose vitamin B { niacin} 3 weeks ago, my energy levels have improved enormously. Also managed to loose 2 stones weight after cutting out all processed meat / red meat/ all dairy and processed carbohydrates. I think we are just not designed to eat that stuff. Makes sense with all the food intolerances, inflammatory diseases, newborns to dairy, risk to pregnancy {bacteria}, Bowel, breast , prostate cancer risk, cardiovascular disease. In hindsight 3 years ago I had a bad viral chest infection with chest pain, lethargy, cough, POTS, waking up breathless at night {airways close without wheeze} all investigations were normal but diagnosed with post viral hyperactivity syndrome. I had lethargy for 5 months {triathlon training ruined} then one night of drenching sweats and woke the next day feeling amazing. Training returned to normal. I do wonder if the T-regulator cells aren't mounting a coordinated effort and there is a residual infection with the energy pathways affected and MCAS continuing to cause symptoms. Really interested in the T-Cell immunity tests that may be released giving a better picture than the antibody tests which I feel have not been the game changer they were sold as.
@marinbilen1935
@marinbilen1935 3 жыл бұрын
Congrulations... Can you describe / explain how you fasted 2 days? What have you drank (or eat maybe)...just water or something else with it? What are n-acetylcysteine supplements exactly? Thank you for your answer. I hope and pray we all get better.
@paranoid77904
@paranoid77904 3 жыл бұрын
I am literally crying reading this. Finally, some hope.
@a.g.9919
@a.g.9919 3 жыл бұрын
@RUN-DMC I had post viral fatigue or ME in the early 90's for 2 years full time, and then relapses, pre internet and i had everything - from shortness of breath to brain fog, diarrhoea, insomnia and crippling exhaustion.Yes and very poor tolerance to exercise. Any exercise would set me back for weeks apart from very gentle walking if i had the energy. Big meals would also set me back for weeks, i would ache all over for days after a big meal. When i finally found a book in a library explaining about post viral, chronic fatigue, i cried with relief just to know I was not alone, but trying to convince a doctor was something else entirely. Also everyone around me thought i was making it up because i always looked so well. I tried exclusion diets, and very strict regimes and whilst they helped the game changer for me was total fasting and acceptance. People talk of acceptance but somehow that really does allow the body to heal.It's like you have to tell your own body ' I know i am ill and very tired, and i accept that, I give in, I will not fight against it, and i will be better in the future' And fasting helps very quickly, well it did for me. One supplement really helped me too, and that was Q10. I would even say that with a very good diet that was the only one i needed. But certainly I did try all sorts of vitamins and supplements. I did not find anti - histamine foods the culprit. Avocado, tomato etc, these things are fine. And white rice was very healing for me. Heavy oils and raw onion was bad for me. But the main thing was to have very little food. To fast. And when eating to eat very slowly and to learn to stop before being full, and then eat more if needed after it was properly digested. And if i felt a bad bout of exhaustion etc coming on - to fully fast. I know its boring but so better than being unwell. I highly recommend when you can (when we are allowed) going to thailand and doing a 7 day fast and having some colonics. I swear this will really help you heal. It's a miracle (well it was for me) Another thing very good for ME or Post Viral - is cold showers and a sauna followed by cold water plunge pool - i think it has been proven to regenerate the immune system (also was good for me)
@kevinagee5085
@kevinagee5085 3 жыл бұрын
has the viral fatigue went away since then?
@latestlindsey5620
@latestlindsey5620 3 жыл бұрын
My doctor told me that quote "my husband and I do not look like people who have mast cell syndrome" and he does nothing for us, thank God for your videos! Since I started treated us, my rashes went away, the chronic fatigue went away, and my flair-ups are a lot less! I really am grateful your sharing this and I've been telling everyone I meet with long covid to look into mast cell syndrome.
@latestlindsey5620
@latestlindsey5620 3 жыл бұрын
@Elizabeth Fondse it was sort of a weird white peeling rash all over my arm. I ended up using milkweed from a plant and it took it away, but I heard it can have a reverse effect for different people. I basically followed her advice, low histamine diet, Quercetin, zinc, vitamin B and vitamin C and I'm on a 0 histamine probiotic and I'm finally healing. 😊 I also did a 2 week cleanse and it worked wonders. For the first time in 13 months, I can drink coffee again!
@sonofherne
@sonofherne 3 жыл бұрын
I don't have LC but my health was ruined by a terrible virus 18 years ago. Very similar symptoms. One single dr decided to try giving me H1 and H2 blockers for Mast Cell. Since then, my fatigue has lifted enough to give me a far greater quality of life. Not perfect but I don't need to sleep every afternoon anymore. My brain fog is less, my skin rashes are gone.
@NoesKicker
@NoesKicker 3 жыл бұрын
@@latestlindsey5620 YOOOO Congrats! I still drink coffee even though I can tell its a trigger for me. I really need to stop or at least get my health back in order first lol
@latestlindsey5620
@latestlindsey5620 3 жыл бұрын
@@NoesKicker thanks so much! I know it sucks but now I'm back to 5 cups a day lmao, you'll get there 😂😂
@joeorler4097
@joeorler4097 3 жыл бұрын
Get a new Dr
@meirwilenkin9218
@meirwilenkin9218 3 жыл бұрын
You’ve been so incredibly helpful to many of us suffering from this. Thank you thank you thank you
@kaylabryson1932
@kaylabryson1932 2 жыл бұрын
My son is a year long Covid sufferer. He’s on a strict low histamine diet and doing supplements. He is still struggling …. He’s found the answers trial and error after his MD just brushed him off as anxiety problem.
@ezzovonachalm9815
@ezzovonachalm9815 9 ай бұрын
kaylabrison anxiety is the normal reaction to the postcov syndrome and its bunch of symptoms. A medic who diagnoses PCS as a manifestation of anxiety should be obliged to restitue his medical diplome and go back to the medical faculty to renew his / her medical diplome.
@barbiegott8847
@barbiegott8847 7 ай бұрын
I don't have the energy to pull out all my vitamins
@janicemaceachern1004
@janicemaceachern1004 3 жыл бұрын
This makes so much sense to me. I always believed there were a few common denominators that were stirring up so much misery in my life.
@scsu11iv
@scsu11iv 2 жыл бұрын
Gez - this entire series is totally amazing and has helped me get back onto my feet after suffering for over 6 months with long-COVID, including getting blown-off by several doctors. Can I send you some money or something? I mean - this work is absolutely fantastic! Please keep up the great work - you are truly serving humanity and you work is greatly appreciated!
@RUNDMC1
@RUNDMC1 2 жыл бұрын
No need to send money, just get better - that’s all I want for all of us!
@celestine.love88
@celestine.love88 2 жыл бұрын
how is your progress now?
@GlamandFabQueenTV
@GlamandFabQueenTV Жыл бұрын
Pls share what you did. What supplements you took? How much mg a day? What food to avoid etc Thanks
@scsu11iv
@scsu11iv Жыл бұрын
@@GlamandFabQueenTV I did the vitamin stack for NAD+ deficiency. It's in one of Gez's videos. For me, the nicotinic acid was the key. I've actually been increasing the dosage of that lately, as it truly helps with my fatigue after physical activity.
@marisademore468
@marisademore468 Жыл бұрын
@@scsu11iv What is the name of the video please?
@matthewhenry4729
@matthewhenry4729 2 жыл бұрын
THANK YOU for your research. You sir, have helped me alot along my journey to recovery as a Long Covid patient. Keep up the good work!...
@brittanykidd1336
@brittanykidd1336 3 жыл бұрын
Really appreciate what you’re doing!! Thank you for keeping our hope alive!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thanks Brittany!
@alisonreed4408
@alisonreed4408 3 жыл бұрын
This is brilliant as always Gez, thank you! One thing that wasn't so clear in regards to MCAS - is it a lifelong management? I know the partial answer was that once the mast cells are replaced in 6 months they can be less sensitive, but wasn't quite clear if that means they would no longer need to be managed..
@nomebear
@nomebear 3 жыл бұрын
I have directed my physician to view your interview with Dr. Tina Peers. This video answered so many questions.
@mariarooney6262
@mariarooney6262 2 жыл бұрын
Unbelievable. I never heard of long COVID. I just went to the doctor today and he said I have it, with all the symptoms I have. This video is excellent. Thank you. I already do the diet and vitamins but I eat alot of Avacados and bananas so I will stop them and do the rest of the protocol. The best health to all who have this and hoping you will be well sooner than you think. ❤️
@carolenmarch-williams7417
@carolenmarch-williams7417 3 жыл бұрын
Very interesting. Yet another excellently produced educative film on Long Covid, sighting MCAS as the probable major underlying culprit , with very accessible advice on how to manage it via diet and supplements. Hopefully, this advice will be a major breakthrough for many. Thank you so much for doing the research to elucidate this for Long Haulers but also for those of us that have EDS
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thank you Carol! :)
@carolenmarch-williams7417
@carolenmarch-williams7417 3 жыл бұрын
@@RUNDMC1 Keep taking the tablets! Cx
@sinnombre-wy5fv
@sinnombre-wy5fv Жыл бұрын
Thank you for this video. I am at the end of my rope here with 2 yrs of long covid and vids like these keep me going.
@jaynetan6589
@jaynetan6589 3 жыл бұрын
Wow, cheers to Dr Tina Peers, she really knows what she's talking about and thank you for having her on your show/ channel!!
@Anamaria-ew8lh
@Anamaria-ew8lh 3 жыл бұрын
Thank you again for the most important research for us, the long haulers! Hope we get better, soon!
@jaisarmiento1188
@jaisarmiento1188 3 жыл бұрын
What are you issues?
@Anamaria-ew8lh
@Anamaria-ew8lh 3 жыл бұрын
@@jaisarmiento1188 At 8 months after Covid, I still have troubles with fatigue, chest tighteness and, sometimes, digestive issues.
@patrickhall7884
@patrickhall7884 2 жыл бұрын
Hallelujah for this interview!!!!!!!! Finally someone that is saying what I have been thinking all a long with my 5 years of ME/CFS Dr Peers you are a godsend
@Whistlewalk
@Whistlewalk 2 жыл бұрын
Thank you so much!! I've been feeling so abandoned. I'll be on this tomorrow for sure.
@TALKCalgary
@TALKCalgary 2 жыл бұрын
This has to be some of the most informative information I've come across throughout this entire pandemic. So refreshing to to know that there are still a few people capable of thinking outside of the box and not just regurgitating government propaganda.
@cealy6669
@cealy6669 3 жыл бұрын
Thank you for this work that you are doing. I find your information more helpful, information, and cutting edge than what is shared via most media platforms.
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Pleasure - glad you’ve found it helpful!
@jzinser-mandala9117
@jzinser-mandala9117 3 жыл бұрын
Wow. This was really helpful.I have been eating some things I thought were really good for me, but are not. And, no tea for now. Your podcasts have been more helpful than many others..or even my doctor. Thank you!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
It’s a pleasure.
@santoshingle3989
@santoshingle3989 3 жыл бұрын
This guy deserve noble prize, what a useful information
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Haha, thank you Santosh!
@2000disneyland
@2000disneyland Жыл бұрын
I agree! I was close to giving up until I found this channel. His research & information have given me hope.
@drclareharley
@drclareharley 3 жыл бұрын
We have two 9 month long haulers in the family, this is incredibly helpful and high quality info, thank you so much!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
That’s alright! Got some very good data on the efficacy of the treatment too to show in my next film
@TheBushRanger.
@TheBushRanger. Жыл бұрын
How are they now Clare?
@dont_shoot_the_messenger
@dont_shoot_the_messenger 3 жыл бұрын
You’re a hero, being ill yourself I think the effort you put in these videos is incredible 🙏🏽
@cliffolson3229
@cliffolson3229 3 жыл бұрын
The symptoms you explain are so similar to the ones I have had for the last 10 years after recovering from alcohol induced pancreatitis,it's unreal.The fatigue,itching,brain fog,stomach,rapid pulse,.....I was diagnosed with Fibromyalgia but have always thought it much more to it than that.Thank you so much for this video.
@Tinyteacher1111
@Tinyteacher1111 Жыл бұрын
Dr. Frid in NY claims that fibromyalgia is actually a symptom of something larger. I believe her. I have it, and I didn’t get it until I got breast implants, which are so toxic inside the body, I got sicker and sicker with autoimmune diseases, mold toxicity (saline), and infections. I lost so much, I’ll never recover my family, friends, relationships, money, etc. 🥲
@charlieb9144
@charlieb9144 Жыл бұрын
Hi, hope you're well now. Alcohol really depletes B1 thiamine - which causes fibro symptoms. If you still need help check out Elliot overton on KZbin he talks all about high doses of B1 also Dr Eric Berg has a few good videos on it. Wish you well
@michelleg4895
@michelleg4895 3 жыл бұрын
Nice one Gez. As always, articulate, succinct and full of information. Thanks!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thanks Michelle!
@Patrick33456
@Patrick33456 3 жыл бұрын
Just found your channel, thank you for giving me hope. I changed to a mostly carnivore diet out of desperation when I thought this must be auto immune related and people had success. I felt much better. The problem is anytime I have a small amount of carbs, almost all the symptoms come back within a day. I keep thinking about how I really hope I don't need to eat this way forever. The bit on cycling MCs in 6 months gives me hope that I can overcome this and slowly bring other foods back in. Keep up the content, you're doing an amazing job!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thanks Patrick. Best of luck with your recovery.
@myotherusername9224
@myotherusername9224 3 жыл бұрын
I've eaten nothing but meat for he last 2 1/2 years. It cured my gout and my cholesterol is perfect. I still caught COVID and am slowly getting better if I take it slow - no crazy exertion. As far as carnivore goes, it can be sustained indefinitely, in most people who try it. YMMV. Carbs mess me up too if I test them in larger than about 5o mg/day test dose
@tamzidmafiz6259
@tamzidmafiz6259 3 жыл бұрын
Excellent interview and content!!! Thank you both very much :)
@teresa4957
@teresa4957 3 жыл бұрын
I'm so tired of feeling terrible. So grateful to hear what some of the triggers are for long covid as well as what vitamins can address my symptoms. It's exhausting to not feel good all the time. Thanks for your information and expertise.
@RUNDMC1
@RUNDMC1 3 жыл бұрын
That’s ok - I know how you feel Teresa. Best of luck with your recovery.
@user-kg9nd3vs6g
@user-kg9nd3vs6g 2 ай бұрын
I’m the same 4 years no one can understand how bad it is 🙏
@janealbinson7190
@janealbinson7190 Жыл бұрын
I have had ME/CFS for 14 years. I’m aware of the similarity between Long Covid and ME and when I heard Dr Peers talking about MCAS the symptoms were almost exactly those I suffer from. Thank you for your work and for this very useful video. I’ll be following the recommendations and reporting back.
@kenziemackmusic
@kenziemackmusic Жыл бұрын
common conditions miss diagnosed MCAS x
@ebaldwin-charles9804
@ebaldwin-charles9804 Жыл бұрын
Hi @janealbinson7190 any update? Thanks so much
@charlieb9144
@charlieb9144 Жыл бұрын
Hi @Jane Albinson - did you follow this and has any worked? I've been diagnosed with ME since 2012 but had it years before. Has anything worked for you? I'm so fed up of the fatigue. I'm currently trying nega dosing B1 (Elliot overton yt and Dr Eric Berg.) To see if that's a piece of the puzzle. Hope you're doing ok
@celestine.love88
@celestine.love88 6 ай бұрын
​@@charlieb9144hi, is B1 works for you?
@al-zd1zh
@al-zd1zh 3 жыл бұрын
Really appreciate your personal drive & commitment to supporting long Covid recovery. Living with this bizarre menu for 8 months now. Rest & pace aid basic functions. Does anyone know of a blood test - private or otherwise - to support the mast theory. Great work & admire you dealing with fatigue but delivering your much needed videos.
@alicequayle4625
@alicequayle4625 3 жыл бұрын
I think Tina Peers might mention someone that does tests on her website.
@krg9942
@krg9942 Жыл бұрын
I followed this regime and I feel so much better! THANK YOU! After my first night time Benadryl, I felt 75% better. After a week, I feel 90% better with my energy! Before, I was so exhausted, I went from the bed to the couch for over 2 years. Gez, you and your research saved my life! Forever grateful, Kim. Update 9/16/22: After learning that benadryl is super bad for your brain, I switched to Allegra, unfortunately it only helps about 60%. At this point anything is still appreciated, but I went back to bed / couch, unless I need to struggle along in a task. I have added in Nasalcrom nose spray & Alaway eye drops, as they are mast cell stabilizers. Desperately trying to get back into life.
@renovatingspaces7067
@renovatingspaces7067 Жыл бұрын
I take 1 chewable children benadryl and seems to enough! Sometimes 2.
@RunningWithSauce
@RunningWithSauce Жыл бұрын
Hey KRG, I'm a systemic mastocytosis patient. We have this same problem for years. What is prescribed is TWO antihistamines for us. Whats called an H1 and an H2. It takes time to figure out the right combination for you. I'm currently taking Famotindine 20mg every 12 hours and Xyzal 5mg every 12 hours as needed. NSAIDS are triggers for many of us, so I stay away from them, but many also take a baby aspirin with this combination. Hope that helps. Benadryl is reserved as a "rescue med" only for a really bad flare up or before any invasive procedures like surgery. I hope that helps
@pattijesinoski1958
@pattijesinoski1958 Жыл бұрын
Sadly, long term use of benadryl can cause long term constipation.
@pattijesinoski1958
@pattijesinoski1958 Жыл бұрын
Taking allerga above suggested dosage by manufacturer can cause tachycardia, sleep deprevation, and heart palpitations. I had patients using toxic dosages.
@RunningWithSauce
@RunningWithSauce Жыл бұрын
@@pattijesinoski1958 i take up to 12 times the recommended dose of antihistamines. This is my prescription from doctors because I have a very rare incurable disease called systemic mastocytosis. It causes the same cytokine storms that covid has only I get them constantly. I have zero issues. I get blood work every 3 months plus a dexa and PET scan to be sure. Zyrtec or Xyzal plus Pepcid up to 4 times a day. No side effects at all.
@omarbradford6130
@omarbradford6130 3 жыл бұрын
Thank you so much Tina and RUNDMC. I've been experiencing long covid symptoms for around 7 months and this series as well as this video in particular has given me a lot of hope.
@edanuryeniMCFC
@edanuryeniMCFC 3 жыл бұрын
Did you follow their suggestions? How are you feeling?
@Ma1efcent
@Ma1efcent 3 жыл бұрын
How are you doing Omar?
@frantapolak
@frantapolak 3 жыл бұрын
Yes, how are you doing? :)
@fearless6947
@fearless6947 2 жыл бұрын
hello?
@dmerojas
@dmerojas 3 жыл бұрын
I'm an MCAS/Ehlers-Danlos patient. My MCAS is FORTUNATELY well managed now, but it took a long time and lots of suffering to get the treatment right. Thank you to my great immunologist, biweekly Dupixent injections, quercetin, vitamins C&D, H1 & H2 blockers, famotidine, and taking precautions before eating/drinking that might trigger my mast cells.
@larasita11
@larasita11 3 жыл бұрын
Wonderful information, thank you! Great questions, so good to be starting to hear some answers from practioners who have actually been trying to find treatments. We know they are out there and having successes... we need to hear their results and their voices! Love all your videos! Top go-to channel for fresh thinking during all these days.
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thank you! Hope you’re doing ok :)
@evanmaxwell4649
@evanmaxwell4649 3 жыл бұрын
Thank you so much for posting this!!! I’ve had debilitating long hauler covid for almost six months! The brain fog is INSANE!!
@drew2fast489
@drew2fast489 3 жыл бұрын
I'm sorry, man. I know that has to be tough.
@merrick51
@merrick51 3 жыл бұрын
Yeah it’s completely paralyzing
@LordVeroeven
@LordVeroeven 2 жыл бұрын
What’s up Evan - So I just recently nearly passed from Covid Delta 2 SARS 2, or whatever they want to call it. Anyways, I am now in recovery phase, but some things I’m dealing with are Confusion, Irritability, Anger, getting worked up easily and my hands / head / body will start sort of shaking, maybe like nervousness, etc. How long did the fog last? I call it Covid Confusion / Feeling Lethargic.. I’ve never been sick before, so this has all been a culture shock for me.. Thanks, Brother
@PATHAN_writes19
@PATHAN_writes19 2 жыл бұрын
@@LordVeroeven how are you now ?? Did you recover fully and get your normal life back ?
@PATHAN_writes19
@PATHAN_writes19 2 жыл бұрын
Did you feel any improvement ?
@oliverneech3950
@oliverneech3950 3 жыл бұрын
Thank you for all of your videos. You truly are an awesome guy!
@joannarichards6245
@joannarichards6245 6 ай бұрын
This was so so helpful. My symptoms had improved until I stopped taking the vitamins and I feel like I’m back to stage one and I couldn’t remember the regimen. Thanks so much for doing all the work you have compiling this resource, I always trust what is here amongst all the endless information. X
@caroliner2029
@caroliner2029 2 жыл бұрын
Thank you! Thank you! Thank you! I have a chronic mast cell activation syndrome from the first dose of AZ "vaccine" which I lined up for seven weeks ago. Brain fog, fatigue, lightheadedness, headache, eye pain, swelling and itchiness, nausea, neck stiffness and pain, and tingling in my face, tingling in my arms to fingers.
@rosalindmartin4469
@rosalindmartin4469 3 жыл бұрын
Well done, Sir. Thank you. Walk tall, as is said in Jamaica👍
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thanks Rosalind :)
@novaaahd4834
@novaaahd4834 3 жыл бұрын
I had covid in October with few symptoms and was nothing more than a bad cold, then I got worse with headaches, heart palpatation, body twitches, chest pain, fatigue ,anxiety and depression.I had a severe headache for 3 months after which led to me having a brain MRI but everything was normal, it does get better, im 5 months down the line and am a lot better but still got a bit more to go👍🏻
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Glad to hear you’re recovering!
@aminagundes6234
@aminagundes6234 3 жыл бұрын
Happy to hear that you are recovering
@caelyndisanti5595
@caelyndisanti5595 2 жыл бұрын
Did you follow a low histamine diet or what did you do that helped you get better? I am suffering with daily headaches everyday for going on 3 months now and am thinking of starting a LH diet.
@lukesmith3283
@lukesmith3283 2 жыл бұрын
Hi Novaaa how are you doing?
@jadedavis6961
@jadedavis6961 2 жыл бұрын
I know exactly how your feeling I’ve been going through the same exact symptoms including internal tremors. My headaches have improved and I no longer have palpitations. We will get through this!
@gillianbradbeer4752
@gillianbradbeer4752 3 жыл бұрын
Another great video, thank you so much Gez, your videos have helped me so much these past 8 months. I really don’t know how you’re managing it!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thanks Gillian! Hope you’re seeing some recovery.
@amyjoon4687
@amyjoon4687 3 жыл бұрын
Thank you for this ibfo!! Altho, if your MCAS has salicylate triggers, watch the quercetin. And im so grateful for this information. I've been watching long covid triggering mast cell issues and since covid, I'm now ragingly reactive to salicylates. And my quercetin was giving me raging nerve pain. You are an ANGEL!!!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
I’m glad you’re getting on top of it Amy!
@tuulalarson2625
@tuulalarson2625 10 ай бұрын
I´m salicylate sensitive, plus I´m diagnosed with histamine intolerance by my allergy doctor. I have had covid for 8 months now and my main symptom right now is vertigo. I walk like a penguin. When my covid started, I had a huge histamine release with itchy rash on the inside of my arms and on my back. Recently, I bought the enzyme DAO, diamine oxidase (made of kidneys from pigs), and I noticed an improvement after only one day! After five days the itchy rash was gone! Then I tested what happened without DAO and the itchy rash came back. And then I started to take three pills DAO per day again and the itchy rash disappeared again. Now I´m trying to find cheaper replacements for DAO.
@tinker3962
@tinker3962 3 жыл бұрын
Brilliant analysis. Finally a coherent post infection strategy.Thank you so much for sharing this
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Pleasure Tristin!
@sleepsmartsmashstress740
@sleepsmartsmashstress740 3 жыл бұрын
There is no single perfect post infection strategy Humans are a not homogenous cluster so there are subgroups and outliars . Even if an approach works for most it may not work for a quarter to half of the population. Tailoring is required. Rules of thumb to not work on all ten digits as only two of them are thumbs
@tinker3962
@tinker3962 3 жыл бұрын
@@sleepsmartsmashstress740 You are your own laboratory. At birth no one came with an owner's manual. However, we do learn through the shared experiences with each other. In undertaking a healing journey, a great deal of therapeutic insight can be gained through the personal testimonies of others that have sorted out things that worked for them.I value greatly the efforts of others in bringing health to those around them.
@dedesunbeam9361
@dedesunbeam9361 3 жыл бұрын
This video may well have changed my life. As soon as I saw it my partner and I started to follow the advice. We are both long-haulers (since March/April) and both have mild asthma, bad allergies, and he has rheumatoid arthritis. He developed covid toes/fingers which were diagnosed by our doctor as eczema and successfully treated with a topical cream. We are changing our diet and buying the supplements. I can't begin to tell you now important this video was for us. I think even if it's not a perfect cure, it will improve our health. Of all the media sources on L-H Covid, you are the single one who's helped us. Please keep posting - I look for a new video from you every day.
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Hi Dede, gosh I’m so pleased to hear it’s helped but do wait on improvement in symptoms before you offer me any credit! And if you subscribe you don’t have to look every day 😊 Best of luck with your recovery.
@tammysellars1348
@tammysellars1348 2 жыл бұрын
I’m very happy to see this video! As soon as I heard about long haul Covid symptoms I immediately thought of MCAS! Thank you for sharing! 🙏
@RUNDMC1
@RUNDMC1 2 жыл бұрын
Thank you Tammy!
@MR-hr6pp
@MR-hr6pp Ай бұрын
I successfully improved my post COVID immune response with a water fast. On the second day migraines occurred which disappeared after drinking a small glass of distilled water as mast cells burst consequently. At least in my case the symptoms improved tremendously after water fasting for three days and it had a sustainable effect. I know there are so many different remedies being praised on the internet what makes people sigh and resign, but this is what helped me speeding up the recovery process. I was struck by the coronavirus two times in 2023 and still struggle with the consequences. Maybe this is helpful to at least someone, so I just wanted to share this.
@tacocat8608
@tacocat8608 29 күн бұрын
Can you tell me exactly how to conduct a successful three day water fast? I was literally thinking this is something I need to try, just earlier today. 🙏🏼
@MR-hr6pp
@MR-hr6pp 29 күн бұрын
@@tacocat8608 Don’t eat but drink water instead. My body told me with intense feelings of hunger when to quit. When I felt weak I did push ups because this stabilized my cardiovascular system. You need to drink plenty of water. I drank about 4-5 liters per day. A pinch of salt without additives a few times per day did also help me stabilize. It also helped me with headaches. When they got heavy on day two and three I had a small glass of distilled water to ease the pain. The distilled water destroys mast cells in your blood which build histamine what is responsible for your headaches during the fast. But be careful with the amount you take because distilled water can be dangerous when consumed in large quantity.
@jdragyn720
@jdragyn720 3 жыл бұрын
WOW. I am the person with the MCAS before the COVID. I got COVID in March, was super sick, got a bit better, then worse again. Repeat x 2. Started finally feeling better, until 2-3 weeks ago, started low grade fever with worsening of cough. Cannot express how fatigued I am. I have Fibro, MCAS, Eh-Los Danlos, Hashimoto's etc... Yeah, having the MCAS helped, because I was already on meds. Harder, because all my symptoms were to the Nth degree. I identified with everything she said- totally hit the spot. Would like to add Mangosteen power is a Mast cell stabilizer, and so is marijuana. I use both daily. I am getting better, just the 2 step forward, 1 back is, well, adding to fatigue. It will get better. Slow and sure. Just wanted to let you know I hear you- and I needed to hear you. thank you all- JAFO
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Great to hear that JAFO :)
@2000disneyland
@2000disneyland Жыл бұрын
Thank you for your post, including the marijuana bit. I have access to it, but didn’t know if it would help. I’m willing to try, along with the other protocols. I’ve been to the point of giving up, but this channel has given me hope.
@JamieGerig
@JamieGerig 2 жыл бұрын
i have been researching my nightmare symptoms for 8 months now... and in 5 minutes this video has nailed it... thank you so much!
@celestine.love88
@celestine.love88 2 жыл бұрын
how is your progress now?
@LongCOVIDAdvocator
@LongCOVIDAdvocator Жыл бұрын
I know for a fact I have long COVID. I've had repeated wet dreams and nightmares every night. I've never had it before in my life. Covid really did me dirty.
@19grand
@19grand Жыл бұрын
How you doing now?
@David-uf8ex
@David-uf8ex 3 жыл бұрын
What a great video very helpful 👍🏻 Thank you
@ryancparker
@ryancparker 2 жыл бұрын
I was suffering from long Covid. Going on a low histamine diet with vitamin D, C and Zinc supplements worked wonders for me. I felt better every single day until after a week all my symptoms were completely gone. Thank you!
@samanthar5123
@samanthar5123 2 жыл бұрын
What were your symptoms
@ryancparker
@ryancparker 2 жыл бұрын
@@samanthar5123 chest pain, numbness in my left arm, tightness in my shoulder, nausea, diarrhea, and just generally feeling like hot garbage every day
@andrewjones3826
@andrewjones3826 2 жыл бұрын
Did you eat any meat?
@ryancparker
@ryancparker 2 жыл бұрын
@@andrewjones3826 my primary meal every day has consisted of eggs and broccoli cooked in olive oil with an orange on the side. I’ve started eating some chicken breast and apples as well. I’ve been experimenting with other foods to mixed results. Peanut butter and tomato soup are off limits, but pizza surprisingly seemed okay. Alcohol is off limits. One of my worst nights during long covid was when I got home after drinking five beers. At the time I had no idea why I felt so horrible. Before I went on a strict antihistamine diet I was eating a banana every morning along with tomatoes, avocados, spinach, whole wheat, and sliced chicken breast unaware that they were high in histamine or that histamine could affect my body the way it did. Something else to note is that I had an allergic reaction to the J&J vaccine as well. The side effects were very similar to what I experienced from long covid and lasted about five months.
@andrewjones3826
@andrewjones3826 2 жыл бұрын
@@ryancparker glad for you. I'm only 4 weeks in but I know I'm not shifting it. Been on low Hist diet for 3 days and the vit stack. Feeling better I think but still have moment I feel like death for an hour. I too was pounding down the spinach and avos, plus bread. Hopefully in time I'll feel normal
@alexhey8277
@alexhey8277 3 жыл бұрын
This is so helpful. It mirrors all my post covid problems, as a allergic ridden person in bloom.
@2000disneyland
@2000disneyland Жыл бұрын
Allergies plague me too, which seems to contribute to Long Covid symptoms.
@BarryOGrady
@BarryOGrady 3 жыл бұрын
Thanks again, Gez. Great video. Three months with Long Covid (and have asthma since childhood). Fatigue is the main thing. Hits me at about 4pm every day and the legs have that feeling you get when you've got lactic acid built up after a series of uphill sprints. Tina is right - I go for a walk, and the next day I am wiped. Anyway, I will give this three/four step plan a go. You need a rack for your nice marathon medals! Can't wait to be back up training for one ...
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thanks Barry - Tina is right, you have to really reduce the amount you’re trying to do. And yes those running medals are a mess, I ought to sort them out!
@captmorgan2063
@captmorgan2063 2 жыл бұрын
Barry how are you doing now?
@BarryOGrady
@BarryOGrady 2 жыл бұрын
@@captmorgan2063 Thanks for asking. Still fatigued with sore muscles and the ankle and hip joints are sore each evening. Got ultrasounds (to check heart), X-ray (lungs) and bloods twice, nothing showing. Going to long covid clinic next week. Paying, coz you'd need a detective to find any long covid services in the public side. Regarding work, I have v understanding staff, so they are taking work off me :-) and have a lot of good projects going on with great people, so lots to distract me. Wiped every evening so bed at 9ish.. (not that I sleep). Am running - but no marathon in 2021 (real or virtual). Hopeful! And aware there are others who are a lot worse, so not complaining!
@captmorgan2063
@captmorgan2063 2 жыл бұрын
@@BarryOGrady hate to hear that but keep the positive attitude I'm going through the same thing I am 9 months post covid still can't work out and dealing with mcast histamine like issues
@BarryOGrady
@BarryOGrady 2 жыл бұрын
@@captmorgan2063 You able to get help? As per Gez's suggestion to me, I took it real handy and upped my running v v gradually. Now and then I crash for a few days by overdoing it, though. Yeah, stay positive. I have continued on the Vit D and C and then a generic every-vitamin tablet each day.
@paulp1372
@paulp1372 Жыл бұрын
I absolutely relate to the 'getting of histamine high foods' . When Long Covid hit me hard for three months from early January 2022 - it was straight after a slightly binge based Christmas period - of increased dairy, meats and alcohol
@joelrookwood8583
@joelrookwood8583 3 жыл бұрын
Very helpful this. I've had longcovid for nearly 10 months, and will be applying some of the suggestions here.
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Niacin (nicotinic acid) and low histamine diet shown to be the most effective by the subsequent study I did
@DeadlyCyanide1
@DeadlyCyanide1 3 жыл бұрын
I am eds, mcas and pots I can't thank you enough for this. This is the best ever and I learned somethings as well
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thanks Amanda, I really hope it makes a difference for you!
@DeadlyCyanide1
@DeadlyCyanide1 3 жыл бұрын
@@RUNDMC1 thank you me too
@josephinethornton3823
@josephinethornton3823 3 жыл бұрын
The trifecta! I too have the trifecta and am here for this man's work. Both SO and I got Covid-19 and it's been fascinating to see the way it's been affecting us differently. He's experiencing dysautonomia for the first time, and mine is WILDLY out of control, as is my mast cell. I often wake up with parts of my face swollen, which is shocking to see in the mirror. SO notices the chest tightness right before he leaves for work (he was bedridden for 3 months, and it's 6 months he's upright since then. He can work, but that's all the energy he has, and back to bed until work again). I suspect his chest pain right before work is due to the stress of trying to get ready for work, rushing to try not to be late, etc, and the stress of it causes a mast cell reaction.
@DeadlyCyanide1
@DeadlyCyanide1 3 жыл бұрын
@@josephinethornton3823 if you're mast cells are going out of whack you might not be on the right protocol and if you're not on a protocol you must be you have to find the right doctor to get you on the right protocol everybody is different so different protocols for different people it's all about trial and error in the beginning . If you don't have a Mast Cell Doctor please get one and the pots need to be taken care of by a cardiologist first and then a neurologist afterward if everything is okay with cardiology.
@ivocx2228
@ivocx2228 3 жыл бұрын
Thanks to your info and the long covid FB group, where I learned about it, I managed to move from lying flat on my back for whole day to functioning almost normaly within months. I am able to do long walks again :-). Another thing that worked for me was fasting. I used to fast 2 days a week before Covid and as soon as I switched to low histamine diet and started to feel better, my body kinda required it again. What I find interesting is that in the days when I fast, I can push myself physicaly without negative effects the next day. This is how I was building my stamina: normal days taking things very easy, fasting days exercising more (within limits, after spending 2,5 months in bed, even a brisk walk is an exercise). Perhaps this may help with your running.. BIG THANKS for your tremendous work!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
So glad to hear you’re recovering! Fasting does seem to work for a lot of people
@carolreilly5458
@carolreilly5458 Жыл бұрын
Thanks for this. Explains the symptoms I'm having before and after covid. Will try your recommendations and hopefully will improve.
@chenanigans
@chenanigans 3 жыл бұрын
Excellent content! Thank you for all you are doing!
@sputster
@sputster 3 жыл бұрын
Finally, there is a light at the end of the tunnel! Been sick with covid since March 2020 and I showed this to my doctor!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Best of luck with your recovery!
@myopinonz
@myopinonz 3 жыл бұрын
Yes, I had it as well since March, I get extreme fatigue, bit the main issue is I can't catch my breath, I feel chest crushing tightness as if I ran a marathon and I just got moving!!
@manindermanku8667
@manindermanku8667 3 жыл бұрын
@@myopinonz how are you how is your breathing do you feel breathless when you walk around or when you even sitting down
@manindermanku8667
@manindermanku8667 3 жыл бұрын
Sputster how are you feeling now I am also suffering from nearly four months
@sputster
@sputster 3 жыл бұрын
@@manindermanku8667 I used to do cardio twice a week and weights three times a week. Today I feel far from how I used to be. I have days where I can run with no issues and other days where I can't even go up the stairs without being out of breath. I have started the intake of antihistamines to confirm what they say in the video. It might not work for everyone, but I am no doctor.
@DeirdreSM
@DeirdreSM 3 жыл бұрын
Looking at the low histamine diet…that's already what I'd been doing for the most part, though I do like my legumes. This could explain why I feel better when I'm taking antihistamines regardless of whether I have active "allergy" symptoms or not.
@annarivera912
@annarivera912 3 жыл бұрын
Sooooooo informative. I love this channel. Thank you for sharing! 😊🙏🏼
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thanks Anna!
@amadorklan
@amadorklan Жыл бұрын
THANK YOU GEZ!!!!! I watch all your awesome videos often,to remind me of the great information. I have been struggling with Post Covid syndrome since 2020 and have been forced to take medical retirement from my 27year profession👮🏻🚓. Worker's Compensation laws in California 🇺🇲 make it very difficult to obtain specialty medical care.
@RUNDMC1
@RUNDMC1 Жыл бұрын
I’m so sorry to hear this Luis - I really do wish you the best in your recovery.
@aoifel77
@aoifel77 3 жыл бұрын
This was amazing 👏 thank you so much for all your videos and research. I had Covid in March & was on treatment for Lyme disease just prior to contracting it. This information is gold to me xx
@truthtriumphant5503
@truthtriumphant5503 3 жыл бұрын
Hi fellow Lymie!!! I hope you are recovering well from both...but, seeing how you are on a site for long haulers...seems like you are having overlapping issues too...Have you noticed how much the symptoms overlap? I'm new to the site and am exciting about learn too : )
@aoifel77
@aoifel77 3 жыл бұрын
@@truthtriumphant5503 Hi Debra, the symptoms definitely overlap like fatigue and joint and muscle pains but the lung pain and breathlessness are unique for me to Covid after effects. I'm 9 months post Covid & post Lyme treatment. Still struggling a lot some days but definitely improving. Wishing you healing & health x
@truthtriumphant5503
@truthtriumphant5503 3 жыл бұрын
@@aoifel77 ...I don't know what route you are taking in getting the Lyme into remission. But, some of the things that have really helped me are bi-weekly coffee enemas (to get the built-up toxins out that cause a lot of the pain and to increase the glutathione levels 700%)...I use ozone insufflation afterward. Have been doing them for over 4 years now...and it really does help. Hubby and I also use a Rife machine and infrared sauna...along with a boatload of vitamins/minerals. One thing that helped when I was bedridden with fatigue was Meyer's cocktail IVs...I had to use a roller walker if I went more than from the bed to the couch. Since so many of the symptoms seem to overlap...and like with Lyme...so many people have different symptoms that can be caused by so many different personal issues in the body. This COVID long haulers is going to be very difficult to treat in a modern medical environment. Hubby and I were sick for 1 month with a fever with COVID and two more months of severe fatigue...I'm sure if we had not been detoxing with the Lyme...it would have killed us. I hope you get to feeling much better and thank you for replying : ). How long were you sick with Lyme before being diagnosed?
@aoifel77
@aoifel77 3 жыл бұрын
@@truthtriumphant5503 oh wow thanks so much for all the information. I've not tried most of those things but have read about them and would love too. I did antibiotics for 5 months, then herbals.. I take a ton of supplements and sea swim, do Yoga & breath work, Salt baths, CBD oil, I honestly think Lyme is under control with me now bar a few flare ups. The Covid long haulers symptoms are hard though and much like Lyme very hard to get help from traditional doctors. I'm on Instagram if you use it might be easier to chat. My ig is Efaphotography11 xxx
@truthtriumphant5503
@truthtriumphant5503 3 жыл бұрын
@@aoifel77 You are welcome...I use to be on a lot of Lyme groups when I was really sick and unable to function. My experience with traditional doctors is not good and because of that ...I no longer trust a pill or an ill : ). The symptoms of COVID are probably like Lyme and has multiply issues going on than just a virus. The virus is just showing where the problems are. For me to get better I had to have all of my amalgams and root canals removed...when I did the MS/Alzheimers/dementia symptoms went away. When I started the coffee enemas ...the Fibro pain went away...when I started high dose vitamins (like with the Meyers Cocktail) ...my energy got a lot better. You are probably young by your pic and not as toxic as a 66 year old...that makes a difference. I am sure we would have died from COVID had we not been dealing with Lyme for all of these years...correcting what was causing our immune system to falter. It concerns me for those with COVID long haulers ...if they rely on traditional medicine..they probably will never truly get better. See, I think the makers of Lyme and COVID are the same..bioweapon has too many things in common. Did you ever go down that rabbit hole? If not check out Plum Island. Stay well..and check out www.drjaydavidson.com He was my Lyme doctor and has a lot of good videos/articles that are very interesting and helpful.
@stephieg
@stephieg 2 жыл бұрын
This totally makes sense. I have long covid and was diagnosed with MCAS about a year after I got covid. Also have had autoimmune diseases and allergies for years although my immunologist says my immune system is very peculiar and based on biopsy results and so on my autoimmune dieases are not tied to my MCAS - he says it is almost like I have two different immune systems.
@EmuEmi
@EmuEmi Жыл бұрын
Did you try the low histamine diet? Did it help?
@serendipertity
@serendipertity 2 жыл бұрын
I admired what you have done. Thank you and a warm hug if I may!
@lynnehill652
@lynnehill652 13 күн бұрын
I've had long covid for 2 1/2 years, with all the usual symptoms. Breathing and heart palpitations are the worst symptoms, but I also had severe fatigue until I discovered the amino acid, glycine. I take a spoonful three times a day in warm water. It has been the only thing that has helped me. I still am out of breath and I take metoprolol for my heart, but my energy is much better.
@kaylacarpenter272
@kaylacarpenter272 2 жыл бұрын
I have MCAS from black mold poisoning and Lyme. I was at the best I've been in years, then got Covid. Recovered great, but then MCAS came back with a vengeance. Suicide fuel. Haven't slept in days. Already had severe insomnia. Not even a bar if xan knocks me out after this Covid MCAS.
@marycolhenry
@marycolhenry 3 ай бұрын
So how do you no mold caused the mcas and it wasn’t your nervous system.😊
@michellemoore7053
@michellemoore7053 3 жыл бұрын
This was really helpful! Thank you. I was fortunate to stumble on MCAS as a possibility in late April and strictly followed a low histamine diet (and vitamin/antihistamine routine) for 6 months. As a former tea addict I feel for you :). I went 6 months without a cup of tea, but have finally reintroduced 1 cup a day in November (major victory.) Good luck!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thank you Michelle!
@ApprendreSansEcole
@ApprendreSansEcole 3 жыл бұрын
Do you feel completely recovered ?
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Apprendre Sans Ecole No, I’m a long way from that!
@michellemoore7053
@michellemoore7053 3 жыл бұрын
@@ApprendreSansEcole I am really close. Just very minor things left.
@sharonproctor4079
@sharonproctor4079 3 жыл бұрын
Why no tea?
@thomsonmaclean2041
@thomsonmaclean2041 2 жыл бұрын
Dr Tina Peers is on to something. I believe I contracted CoV 2 two years ago. initially I thought I had Arthritis and long haul. Now, after doing my own research, discovered I have Ehlers-Danlos Syndrome Hypermobile Type. I am now clinically diagnosed by genetics department. I suspect there are going to be a lot of people who will also come to realise they have genetic conditions.
@shamitamandal665
@shamitamandal665 3 жыл бұрын
Very much informative and useful for public health. Please continue your work to boost all in a better way of medical education to public
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thanks Shamita!
@lillimay5
@lillimay5 3 жыл бұрын
I cannot thank you enough. My doctors who even know MCAS couldn’t figure out why I wasn’t responding to my normal meds after my illness
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Hope that this helps you - my symptoms have definitely been improving since changing diet and taking supplements
@MrLuca18
@MrLuca18 3 жыл бұрын
@@RUNDMC1 what diet you on and supplements
@tonymack66
@tonymack66 3 жыл бұрын
Maybe it was coincidental, but I started to feel consistently better after starting to eat more fresh fruit on a daily basis; I had been unwell with long Covid symptoms for 4 months up until that point. All in all it took me six months to get my fitness levels back up to where I was prior to being unwell, that is, from the end of March to the end of September this year. I wish all long Covid sufferers an eventual recovery and soon !!!! Peace.
@petinapowers2869
@petinapowers2869 3 жыл бұрын
I am happy for you. Seriously. I had a timeline for building my health back. But, it is not working. I have tried several paths. Right now, it seems, I have to focus on my physical activity level or my cognitive activity level. I am going with the cognitive level for now. However, over winter break I am going to experiment more with my physical activity level.
@tonymack66
@tonymack66 3 жыл бұрын
@@petinapowers2869 I roadwalk every day up to 10 miles a day and this I could not do anywhere near a few months ago when I was unwell; even mild exertion would set me back almost a week every time. So, with regards to physical activity I say take it easy and don't push yourself too hard. Good luck.
@lacisz
@lacisz 3 жыл бұрын
It's good to hear, that you are better. For me, It was almost 8 months to get back to running (5km, daily). But the "brain fog" is not lifted. I still feel if I'm away from my life. I just wonder, will it go away?
@petinapowers2869
@petinapowers2869 3 жыл бұрын
@@tonymack66 It is a lovely day in north Texas. I just finished a short walk. One block. That is all I can manage. Thank you for giving me hope.
@petinapowers2869
@petinapowers2869 3 жыл бұрын
@@lacisz Lacisz. I am the opposite. My brain fog is less frequent. I can mentally multi-task at times. I am still disorganized though. That is not normal for me. My physical activity is the primary issue. So, perhaps one area recovers first, and the other later? Also, congratulations on your physical recovery!
@kyloren2093
@kyloren2093 Жыл бұрын
God Bless you Gez ! thank you so much for this.
@MadWolfMike
@MadWolfMike 3 жыл бұрын
The info provided here makes so much sense... Extremely Helpful Video! Thanks very much! I assume you're still experiencing symptoms of Long Haul Covid? For me its been around 8 months now...
@miguelnunez2623
@miguelnunez2623 2 жыл бұрын
Had mild covid in January then in February I got pots symptoms and shortness of breath . And couldn't exercise . I would get short of breath and weird anxiety after trying to exercise even lightly. Fast foward to this may and I decided to take benadryl cause I got shortness of breath after eating food. Took it cause I heard it was good for anxiety and it helped me breathe ALOT better . She's definitely spot on. This is a mast cell issue
@felipejotz7054
@felipejotz7054 Жыл бұрын
How are you doing today, Miguel?
@EmuEmi
@EmuEmi Жыл бұрын
Thank you so much for this video. 7 months in and am miserable. I’ve lost so much weight because of the mcas symptoms. Hoping to recover and get my life back
@wematter4870
@wematter4870 2 жыл бұрын
I became better by cutting wheat , coffee , spinach , I take multivitamins with minerals , vit D , zinc Spring is my favourite season The worst symptoms were anxiety , palpitations, mood swings , tinnitus , arthritis, GI problems . When I am under its spell , I fast , then I feel much better . I had long covid , same symptoms but more debilitating . I think now I had these symptoms all my life , and managed them by fasting , or cutting food I felt affected me badly , supplements. Thank you for this eye opening video
@kd2533
@kd2533 6 ай бұрын
Her protocol has helped me immensely with long covid from both the virus itself and the shots,, EDS and MCAS. I'm grateful.
@ebsage6390
@ebsage6390 3 жыл бұрын
You are so great. Thank you. You are changing lives.
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Very kind. Thank you 😊
@jondavies1593
@jondavies1593 3 жыл бұрын
Literally have nearly all these symptoms. GP is absolutely adamant theres nothing wrong!
@jzinser-mandala9117
@jzinser-mandala9117 3 жыл бұрын
My doctor is less than helpful. Decided I had sleep apnea though I have no symptoms for that. I had COVID before the recognition and so, no positive test months later. Testing was rare for some time anyway. Without a positive test, but most of the symptoms, I am treated like a hypochondriac. That attitude certainly doesn’t help my determination to recover.
@jondavies1593
@jondavies1593 3 жыл бұрын
@@jzinser-mandala9117 I've had blood tests, ecgs and chest xrays, all have come back absolutely clear yet I'm still getting bad headaches, keep going light headed, stomach ache , ribs ache and chest aches and get short or breath easily, along with being constantly tired. GP says theres too many symptoms to diagnose me with anything!
@christiangranqvist2350
@christiangranqvist2350 3 жыл бұрын
Jon Davies Seems like the doctors are leaving the battlefield on walkover. I guess some other professions will have to take up the slack. A lot of money in this if one would have a protocol for recovery.
@melanieberlier8487
@melanieberlier8487 3 жыл бұрын
I went undiagnosed until my late forties. There are some wonderful supportive groups on Facebook and www.TMS.org (the mastocytosis society) is a wealth of information and lists of doctors who work with us mast cell patients. This is how I finally got help that put me into remission. I still have flares and need to take extra care but I’ve been able to have a mostly normal life.
@jamiedorn4105
@jamiedorn4105 3 жыл бұрын
@@jondavies1593 I too have had rib aches/ chest aches along with shortness of breath etc. My pulminologist diagnosed the rib and sternum pain as costochondritus. It can be triggered by respiratory viruses or harsh coughing. If you look it up on you tube there are stretches that if done consistently should help along with anti- inflammatory supplements like turmeric.
@chucklangworthy4118
@chucklangworthy4118 2 ай бұрын
Thank you for all of your work and for your posting.
@jedbennett4912
@jedbennett4912 Жыл бұрын
I’ve been at my wits end for months after countless Doctors visits and 6+ trips to the E.D when my symptoms spiral out of control. 12+ blood tests 24 hour ECG + Cardio Angiogram and still all the Doctors and my GP have been stumped and telling me this must be Psychological. I’m so happy I’ve come across your video tonight and finally have some answers as this condition has scaring the cr*p out of me - Even more so with the lack of information available! I’m the last week I’ve started taking NAC, prior to that it was B vitamins, Magnesium and ZMA, CQ10 so I was nearly on the right path and was seeing some improvements. Thank you so much for your time and effort in researching this. I’m going to adjust the vitamins and add in some antihistamines and 🤞🏻 the symptoms start to disappear! I’ve heard fasting is great to reset the mitochondria but I’ve been reluctant due to the symptoms I’ve been suffering but it might be worth giving it a go this week. Thanks again!
@revelation1215
@revelation1215 4 ай бұрын
How are you doing now? ❤
@tripityourself
@tripityourself 3 жыл бұрын
Excellent content, as always. So soooo helpful. Thank you so much for putting this together for us. Very grateful :)
@RUNDMC1
@RUNDMC1 3 жыл бұрын
It’s a pleasure Kekil!
@kineretweiss4883
@kineretweiss4883 3 жыл бұрын
Thank you for this! Would love some info on mitochondrial dysfunction and the extent this affects long haulers. The extent to which normal activities need rest to be able to get up again for normal around the home activities 9 months later, makes me thing there’s something wrong with how our body stores energy and I would love to know more about such theories and what we can do to help ourselves if that is one of the issues here. Thank you for all your research and time you put into all of this!!
@kenziemackmusic
@kenziemackmusic Жыл бұрын
I am so grateful to have an appointment with this Dr in Jan.... I have hEDS and MCAS and have gone as far as I can with the NHS (I'm in Scotland) I also caught covid .... please share this far and wide x
@charlieb9144
@charlieb9144 Жыл бұрын
Hi, did you get help from her? Is it working for you if so. I'm considering booking an appointment. Does it cost a lot as I can't see any prices. Thanks so much and wishing you well!
@kenziemackmusic
@kenziemackmusic Жыл бұрын
@@charlieb9144 I did i had a phone appointment it was worth every penny and i got LoTS of help... it is £340 for first consultation but she is booked months n months ahead so plenty time to save up, u can also pay it up, search Dr Tina Peers, 92 Harley st for her office number.... good luck x
@petinapowers2869
@petinapowers2869 3 жыл бұрын
RUN-DMC, MCAS as a part of the problem makes sense. I brought this up to my PCP (GP) and he just brushed the idea it off. (Honestly, as most of you know, it is exhausting to work and study, much less be your own monitoring device and specialist.) I cook with chilies on a daily basis, but I also eat bananas and citrus on a daily basis. So, maybe they were counteracting each other. On another note, I believe my recent episodes with hypersomnia were triggered by increased activity. The upside is that every time I emerge from one of these episodes I improve cognitively. I am still disorganized though, and out of breath after a block or so of walking.
@nayhoward424
@nayhoward424 3 жыл бұрын
Thanks brilliant work as always ☺️
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Thanks Nay!
@AndyConwaySinger
@AndyConwaySinger 2 жыл бұрын
I've had literally every symptom on this list. Some have gone away, some have went and come back. So shortness of breath and fatigue, gastric issues have been the ones that are lingering the last 2 years. I'm taking PPIS for GERD (Post Covid) and antihistamine. I'm also trying a low histamine diet. Sick of it. Agony. Also I'm 35 and was very fit before covid.
@RUNDMC1
@RUNDMC1 2 жыл бұрын
Know how you feel Andy!
@christopherm6725
@christopherm6725 2 жыл бұрын
Yep same Andy! I was healthy before except for some anxiety issues. Fatigue is brutal. Heavy eyes, muscle issues. It’s awful. Praying for healing for u
@zacs5773
@zacs5773 3 жыл бұрын
Thank you and keep up the good work 👍🏻
@judygmiller
@judygmiller 3 жыл бұрын
I followed the suggestions and my long covid symptoms lifted 95% across 2+ weeks. I didn't know about low histamine diet and needed very simple due to brain fog, so I just ate fresh cooked beef 2x a day while I studied. Now trying one new food a day. But I feel great!
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Very glad to hear it!
@judymiller5154
@judymiller5154 3 жыл бұрын
@@RUNDMC1 surprising benefit - the bedtime tachycardia I've suffered in clusters for years and was quite constant in past 6 months has disappeared suddenly with the low histamine approach! I was told by a doc 30 yrs ago my heart is fine, avoid alcohol (only trigger mentioned) and learn to live with it. May God abundantly bless you for all your effort helping us and bring you total healing! ❤🙏❤
@jessicam807
@jessicam807 3 жыл бұрын
Thanks for your hard work! I noticed a difference in some of my neuro symptoms following a low-histamine diet so I'm sticking to it. But I'm really worried about the virus lingering in our bodies, in my case this is month 8 and the cough came back. GP has no clue about it. I think it's pretty obvious at this point that we need massive research about viral persistence ASAP.
@RUNDMC1
@RUNDMC1 3 жыл бұрын
Agreed.
@headfullofmusic422
@headfullofmusic422 2 жыл бұрын
how are you doing now? are you feeling like your normal self again? and could you share some anti histamine recipes?
@jessicam807
@jessicam807 2 жыл бұрын
@@headfullofmusic422 hello! I am feeling much better since I started taking Famotidine (h2 blocker), honestly I am a really lazy and bad cook, I just eat simple things like chicken and steak, potatoes, I can manage to include tomatoe a few times a week. That's pretty much it. Cereals or porridge for breakfast. I also stopped coffee and tea 100%, which was super hard but I feel the difference. I still have some symptoms but I reached a point where I am able to work/clean/have a pseudo normal life.
@teddybearroosevelt1847
@teddybearroosevelt1847 2 жыл бұрын
@@jessicam807 So tomato is high histamine. You may wanna avoid it altogether if you wanna alleviate your symptoms
@ikyathay2998
@ikyathay2998 2 жыл бұрын
I'm trying to follow it. But I'm already underweight. So I don't know where this will go
@merrynhopkins1162
@merrynhopkins1162 Жыл бұрын
Thank you Gez I’m a long hauler in Australia - treating myself watching and reading as much as I can You both have given me hope There’s absolutely no long covid understanding or MCAS here even at the clinics - the UK and northern hemisphere countries are so far ahead !!! Many thanks Merryn
@RUNDMC1
@RUNDMC1 Жыл бұрын
Best of luck to you Merryn!
@letsgobrandonpodcast
@letsgobrandonpodcast Жыл бұрын
be careful who you tell your symptoms to in Australia... These MTHFR' Doctors wouldnt know what a MTHFR was if it hit them in the head! kzbin.info/www/bejne/qHfOh3h4h8uXr9U - getting taken to Psyche ward kzbin.info/www/bejne/bHXQc5SGmqyXn9E - Dont go telling your crazy symptoms to just anybody
@briechilli4496
@briechilli4496 10 ай бұрын
How are you now ? I am in Australia too 😢
@phxx3054
@phxx3054 3 жыл бұрын
Hey Gez, I'm following your Covid related output from the first video on and I'm glad and grateful that your content has become such a valueable ressource for the long hauler community! When my partner and I were contacting the Fatigatio e.V. in Berlin in May who are comparable to the british ME Association we were advised to also do a MCAS screening. However only just after your video it occured to me that even before my first post-viral episode (with a different set of symptoms) two years ago I was showing signs of a potential MCAS. This is absolutely intriguing! Thanks a lot for re-adjusting my attention to this! May I ask since when you are on your low histamine diet? And do you take H1- and / or H2-antagonists?
@phxx3054
@phxx3054 3 жыл бұрын
@Tomas Muir for me it also resembled a psoriasis arthritis but interestingly also combined with urinary problems. It took me months until I could walk again. That happened after an influenza in 2018. Also long before that I'd have reoccurring rashes that were most of the time to insignificant to raise much concern on my side.
@gilliancorkhill5480
@gilliancorkhill5480 3 жыл бұрын
Thank you...very interesting and great that diet and rinks are primary considerations
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