Long COVID: All you need to know

[@SabineHossenfelder]

This video comes with a quiz which you can take here: quizwithit.com/start_thequiz/1700725855464x623569205927563300

[@dtsai]

What evidence do you or they have? I have it and went to the doctors. They didn't do anything except make thousands off me and then I realized rhey were playing me to make money off me and said I had nothing! They were just running their regular tests Pre Covid! I used to ride 26 miles just before Covid and now can't walk the dog!

[@ToninFightsEntropy]

Ah I was hoping this was to help people assess whether or not they had it. Though that is the reason I'm watching, and might not be the most common reason this video is watched.

[@TheBlackIdentety]

Could you please look into the relation between increased cancer cases and Covid and the Covid vaccines? I keep seeing these claims and I'd like to hear someone credible talk about it.

[@osmosisjones4912]

long COVID is affects of COVID vaccine

[@jacobwilson6296]

Wait? YOu didn't Fudge chicken nuggtin Beleive that this was BS from the start? I O h ASW the message

[@aromaticsnail]

Dianna aka Physics Girl has long covid for a few months and it's heart-breaking to see someone so energetic and positive in her videos to be bedridden and suffering so much. Her family and friends have posted some tweets and videos with updates on her condition that illustrate how terrible this illness can be. Stay safe people

[@aleXXblume]

It's 1 1/2 years right now! And it's getting worse. 😔

[@davidbarnett8617]

@@bslturtle But but but...we were told that is a horse dewormer! No wonder no one takes this covid nonsense seriously, except for Biden supporters.

[@MusicalZombie]

@@InfiniteNallidge Stop spreading such stupid misinformation and implications.

[@PMA65537]

tweets or xweex ?

[@harpfully]

@@InfiniteNallidge Go somewhere else besides a science channel to spread your pernicious nonsense. The pro-fact audience here ain't buying it. Try a conspiracy site.

[@CHex.]

Thanks for bringing up medical gaslighting! I don't know if I even suffered LC or still do, but I relate to mental fog for a few years now and doctors telling me I'm stressed. This is not only happening in countries where you pay for medical attention. I live in Spain and medical assistance is a right, paid by the state. Still doctors treat you with contempt too often.

[@cassieoz1702]

Mine wasn't covid related but long-standing brain fog just disappeared on a ketogenic diet (started 6 years ago now)

[@There-Is-No-Virus]

Long covid = vaccine damage. That's all you need to know.

[@EaglePicking]

Same here. Intestinal inflammation is a major cause of brain fog and changing your diet really helps. @@cassieoz1702

[@davidk7529]

I’ve suffered from brain fog for decades as one symptom of cPTSD, but have had to self-diagnose the underlying issues because the psychiatric institutions in the country where I live said they suspended diagnosis services due to an excess of demand and are now only offering therapy. I don’t want to pay outrageous prices for therapy that isn’t based on a thorough analysis of the problem… but this is where we are right now. And too many of the people working in the therapy industry are just doing it to keep making a living for themselves because they happened to pick that route for higher education, not because they’re necessarily committed to understanding and addressing the actual issues of individuals. It’s essentially just another racket. Good luck to everyone who’s (still) trying to figure this stuff out without professional support, all while battling the adverse effects on daily life and basic survival.

[@kagitsune]

Yep, this pandemic has shown me that, no matter your healthcare system, doctors absolutely hate a problem that they don't know how to immediately fix. 😑

[@BeersyPaints]

Thank you for covering this. If you develop MECFS not only are you going to suffer immensely without any real hope of treatment, but you will see an ugly side of humanity that healthy people never will.

[@jong2359]

The worst thing about long covid is, even if you get someone to listen, you still have extremely limited options for recovery. Doctors don't know anything about this, and don't seem to be seeking information.

[@timogul]

Well, there are studies, but most doctors are just not set up to handle unique cases. If there haven't already been research doctors that have figured out treatment paths to follow, most doctors just don't have any idea what to do. Answers will come over time, but right now, it's just too new and the data doesn't exist.

[@zyrrhos]

Kinda like excess deaths and the possible tie to either vaccines or Covid. No one seems interested in finding out. Wonder why.

[@cagnazzo82]

I think it's linked to people who had parasitic infections prior to Covid, but that's just my opinion.

[@cybervigilante]

Probably because insurance companies don't pay for it, just as they discounted CFS for many years.

[@RikSolstice]

@@timogul It's really important for the LC patients to keep pushing for more research to be done, no matter what country you life in. We've been through this with ME/CFS, after 60 years or so we still don't have treatments because some people completely derailed research so their own little niche(psychology) could profit some. You're sort of lucky that you're with so many and a lot of people with LC have experience as a researcher, so can quickly see the flaws in studies. Doesn't mean you don't have a fight on your hands though, on top of having a life-ruining disease.

[@CG_Hali]

I had meningitis at 4, barely survived. Life-long worsening chronic fatigue syndrome. When I read the list of Long Covid symptoms, except for those relating to lungs, it's dot for dot the same. Post viral syndrome need to be acknowledged more widely and studied! Turns out covid and meningitis and a host of other illness that attack the brain use the same pathways in the brain. I don't think it's a coincidence when afterwards so many develop similar symptoms, especially the central nervous system disorders like dysautonomia. Cheers and thanks for talking about it! The more research is done, the better chances for all the other post-viral syndromes without solutions out there.

[@iconoclad]

I'm 76 and had meningitis as a child. Covid 12 months ago and have had a list of symptoms ever since including dropping off to sleep for up to four hours in front of the TV after lunch. I've often wondered if some of it was meningitis related.

[@grantm902]

Same for John Lydon, aka. Johnny Rotten as a child

[@juniperpansy]

For ME/CFS the initial damage (in the case of Long Covid - lung damage), is irrelevant. It's the continued disease state without known etiology that comprises me/cfs symptoms.

[@BoDiddly]

I have Gulf War Illness/Syndrome which also has a lot of the same symptoms, specifically Chronic Fatigue!

[@kirstinstrand6292]

Curiously, I got the anaphylactic shock to prevent seizures following brain surgery. All this happened prior to Covid was announced. Everything in life is a mystery.

[@michaelatherton6055]

Thank you for presenting this. I have served on the board of directors for the Solve ME/CFS initiative for a decade and my wife has had ME/CFS since 1995. Solve has completely embraced the Long COVID community including significant support for the Long COVID Alliance. Short of a cure or treatment we seek a bio marker to catalyze much needed research. Yes, many improve over time but for others it is a chronic condition that only gets worse with time. The cost to individuals and to society is extraordinarily high and warrants a more significant investment in research.

[@sebastianboredal7486]

Hi! Thank you for serving on solve. I wrote my own comment on my experience and research in to longcovid/ post viral fatigue. I'll share it here, maybe it's something you'll find interesting, maybe not. "Disclaimer: Personal story and hypothesizing, should not be regarded as medical advice. I suffered from long covid, a.k.a. post viral fatigue, and simply did not get better. To make a long story short, it turned out to be a one carbon donor deficiency. The one carbon donors are a set of nutrients that serve as the drivers of the metabolic complex "one carbon metabolism". They are Folate/vitamin b9, cobalamin/vitamin b12 and the amino-acid methionine. Folate and methionine are cyclically metabolized and connected by a cobalamin dependent reaction called methyl group transfer, forming the complex as a interdependent whole. Other nutritional cofactors for enzyms in this process are the minerals copper, zink, molybdenum and the vitamins riboflavin/ vitamin b2 and pyridoxine/ vitamin b6. I addressed it through some dietary changes and supplementation, and got better. My hypothesis as to why this happens is as following. Covid, or any virus, needs to leverage this system to meet the demands for replication of it's DNA or RNA, as it is required for the synthesis of the molecules bases; nucleotides. More specificity the base thymine. Then, with covid being a novel virus it would have more time to replicate before sufficient immunological adaptation would occur to halt the infection, leading to overall greater depletion than a familiar virus, explaining the prevalence rate being higher for post viral fatigue after covid then flu viruses for example. Another process that meets these criteria are pregnancy (higher demand for DNA synthesis), which would explain the prevalence being higher in women. It's also worth pointing out that a deficiency of these nutrients has matching symptoms with post viral fatigue and provides a mechanistic reasoning for them. Some examples: The system is involved with energy metabolism through atd > atp regeneration by roles in providing phosphorus donors. Involvement in Neurotransmitter metabolism by providing the universal methyl group donor sam (s- adesonyl methionine) and the cobalamin dependent myelin synthesis pathway( a nerve insulation fatty acid) explains neurological and psychological symptoms. Impaired glutathione metabolism (the "master antioxidant", protecting our cells from oxidative stress, which is naturally ocuring as a byproduct of all reactions involving oxygen.) explains pain and inflammation. Glutathione requires the folate cycle to be regenerated." Research in to intrecellular levels of the one carbon donors could be used to check this. A baseline for a specific cell type would be needed to be established; for example red blood cells in afflicted individuals could be compared to a healthy control group. P.S. I've been recovered for quite a while know, so this is written from memory and there might be some technical errors.

[@billyballsup2685]

Obviously you haven't done any home work on vaccine injuries. I'll help you. kzbin.info/www/bejne/fIPckn2obZqkgposi=CsjzLzZTM5oFW0km

[@mikev751]

long covid religion. not community. wokism at its best.

[@flagmichael]

A man I worked with 40 years ago and his wife had ME/CFS symptoms for months. He was eventually diagnosed with "chronic EBV" which at least got him insurance coverage of his treatment. After a year or so he was okay in everyday life but his tower climbing days were pretty much over. Long COVID may finally get ME/CFS research the support it needs but what a terrible price to pay. Thank you for being there!

[@billyballsup2685]

@@sebastianboredal7486 long covid is bullshit. It's vaccine injuries. Don't listen to these liars. You have to have rocks for brain ns to trust anything coming from these unaccountable criminals.

[@rereout3415]

Just sharing here in case it might help anyone: After a bad covid this summer I felt my digestive system had been affected. I couldn't tolerate some greasy foods, and alcohol suddenly made me very sick. My doctor told me my covid infection probably left me with a destroyed microbiot. I took high quantities of pre- and pro-biotics during two months, and was extremely cautious with my diet (lots of veggies, no sugar, few carbs, only healthy fats like olive oil)... Everything is now back to normal.

[@JesusOurKing]

Thank you. Bless you 🙏

[@lambdasun4520]

Same, alcohol is a major offender, causes severe crashes the day after. I think it's the histamine. Try a low-histamine diet PLUS pre-probiotics. I still have to solve it.

[@RickJones-m6o]

Same here @64 Used The Same As You Did And Added Alot of raw Garlic daily ,Doing ok so far 4 months flu like COVID ..Will not have not vaccinated...have good days rough ones .rest and exercise eat right ...

[@dan-bz7dz]

Did they give you antibiotics?

[@rereout3415]

@@dan-bz7dz No, useless

[@JeffreydeKogel]

As someone who's life has been pretty much ruined by Long Covid over the past two years: thank you for this video!

[@ingo_8628]

Are you vaxxed?

[@glen.simpson]

organic, low acid, gluten free, whole foods....add chevre goat cheese.... heal your biome..... get back to me

[@jeffmcdonald101]

@@glen.simpson Stop giving BS advice. This is most definitely not the answer.

[@jefflittle8913]

@@glen.simpson The way you heal your biome is with lots of different types of plants. Cheese is unhealthy and is certainly not "low acid".

[@RBzee112]

@jeffrey has you checked your a1c and fasting glucose? Chronically high insulin suppresses your immune system.

[@jswij]

Thank you Sabine for bringing this under the attention. As a father and husband of two long COVID patients I can really appreciate it. Having become a bit of an expert on this by necessity, I can say that I found your video accurate and well balanced.

[@DavidHRyall]

The vaccine injured them

[@Skovy1961]

Were your "two long covid patients" vaccinated? I'm still waiting to see a study distinguishing vaccinated from unvaccinated.

[@jswij]

@Skovy1961 Most LC patients are from the pre-vaccination era. My loved ones did not get LC after a vaccination, but it can happen (although that is even more rare than developing LC after an infection).

[@Paulomedi]

Brazilian Neurologist here. Contracted COVID five times during the pandemic, working in the ICUs. I have mithocondrial disfunction because of COVID. And I'm one of the lucky ones. Saw it all, from COVID alopecia to COVID ungueal dystrophy on the toe. Till this day I treat the poor chaps that have long COVID. No cure in sight, but I have some success with vortioxetine, sulpiride, l-carnitine, biotine and coenzime q10.

[@markvietti]

you sure its covid that causes this and not the MRNA vaccine?

[@dante7228]

Have you had any positive feedback from a treatment with nattochinase?

[@Paulomedi]

@@dante7228 didnt tried it yet.

[@eschurma]

Low dose naltrexone has helped many of my LC friends. Covid caused an EBV reactivation (confirmed with a test for EBV EARLY ANTIGEN D AB (IGG)), and for me LDN plus high dose valacyclovir brought me from fairly bedbound to almost 100%- lifting weights, exercising, etc. Within 36 hours I was feeling significantly better.

[@dunnbradstreet4106]

​@eschurma Hope you won't mind Qs': What dose/protocol for valcyclvir? LDN...Would the normal Rx NTX not work?

[@cs5384]

My son was 16 when he got covid in 2021 and he's been sick since then. He couldn't finish school after being an honor student. He didn't even have a severe case. I almost died at the time after covid-related pneumonia and I have struggled too, but he was formally diagnosed. There was no help for him with our horrible US state insurance. He had 8 weeks of PT but that was about it. He's so out of it all the time now he says its dissociation. I wish I could help him. We are doing the exercises but it's exhausting and he often struggles through it. He's just so weak and it's stolen his teen years. All his friends moved on and went to all their proms and dances and he's just gone through test after test, repeated labs and brain scans with allt hese specialists and all they can come up with is long covid.

[@cs5384]

Oh yes and they did try to make out like it was psychological and they prescribed medications that made him a lot sicker. The daily nausea leaves him so depressed but it's even worse when he can tell the doctors don't believe him. But I knew.

[@cs5384]

Also the Long Covid Alliance isn't really that helpful anymore. Mostly just tips on applying for disability help, but my son was already turned down twice because they think he can work, even though he can barely make it across the room and forgets everything minutes after it happens. It's quite distressing. He had so many hopes and dreams and plans for his future. Now I have to beg him not to end it all. He said it's not worth continuing to be this miserable.

[@mhult5873]

​​​​​@@cs5384I'm so sorry for both you and your son. I wish I could help in some way. I got long-covid, got sick march 2020. After the 2nd mRNA shot I improved somewhat, it was a clear improvement but I was not 100% healed. I hope mRNA vaccination will help your son too. I had symptoms getting better from when I got sick all the way until today, I'm not 100% as before I got sick march 2020 but alot better and can live nomally, albeit more tired. Lets hope there will be more treatments in the soon future. I have taken total of 5 shots of mRNA vaccin, in accordance to my countrys health care reccomendation. Long covid got clearly better after 2nd shot. And somewhat better after the 3rd, 4th and 5th shot I believe. At first I got worse a few days, like normal symptoms of vaccine, but nothing even close as bad as when I got sick. The symptoms were similar to when I was sick, but much less and gone in a few days. This happened all 5 times I got vaccinated with mRNA. My second infection also had similar symptoms as first infection and vaccines, but lasted longer than vaccine symptoms. I'm thankful the vaccines exist. I wish you both the best and improvement of long covid soon. I wish I could give more help. Please take care.

[@kevinmurphy5878]

I'm 22, trying to finish college, and was extremely healthy and athletic before getting COVID 2 years ago, so maybe somewhat comparable. I'm still pretty messed up, with fatigue and neurological symptoms, but my general advice is look to manage inflammation with whatever means necessary. Experiment with different things. For me, ice baths, very consistent sleep schedule, carefully monitored diet full of vegetables, daily probiotics, light and carefully monitored exercise, and over the counter anti inflammatory drugs when needed have made enough of a difference to keep me just barely getting by. Also fasting and supplements have helped. Turkey tail mushroom, chaga mushroom, vitamin E, vitamin K, and tons of cacao (raw beans made into a drink). Those were the ones that helped me, but I hear different people have had luck with different things. Another weird one is drinking water with semi fermented lemons in it. I saw someone mention it on Reddit, thought it sounded suspicious, but it was easy to try so I did it, and it helped. I have no idea why. Basically I fill a plastic gallon, cut a lemon in half, and leave it in the water overnight, then drink that over the next day, and reuse the same lemon for a few days. Some herbs that are good are thyme, rosemary, licorice, and lavender, for when the neurological symptoms are too strong. I would make them into tea. Look into the feedback loops involving mental state, activities, and inflammation. Routine definitely seems to play a role in mitigating or worsening symptoms too.

[@francescachristy8761]

Stop the exercise. Pacing and energy conservation is essential. Look for free LC resources on ME Association UK. Also Bateman Horne Centre and Workwell Foundation, both in US have great resources. Don't give up hope. Many can recover with the right convalescence. Good luck!

[@joelhendry8728]

I was hospitalized with long covid in 2021 before the vaccine was available to me. After two CT scans, an MRI, more blood tests that I can shake a stick at; the neurologist shrugged his shoulders, told me "there is no physiological cause to your symptoms", strongly implied that I had munchausens and sending me straight to a psychiatrist who then told me that this isn't a psychiatric disorder.

[@catserver8577]

That neurologist should have their license revoked, that is not on the symptom list for Munchhausen's in the first place. What a quack. Just because a doctor can't figure it out, that is not the end of the diagnosis.

[@jeffmcdonald101]

So sorry, thank goodness it is accepted more now, and more and more doctors are learning about it. Coincidentally enough lots of them got long covid, couldn't work and that kind of woke them up to the fact it's real. The ones who could have come back armed to the teeth with knowledge and the urge to help their neglected patients. Best of luck Joel, keep up the research and guide your care yourself as best you can. There are plenty of doctors out there now and you can telehealth with them if they are not in your town/country. Help is out there. Best of luck to you.

[@jassenjj]

Lucky you that you found someone who was already aware... Many people got real psychological trauma after being accused of hypochondria.

[@jeffmcdonald101]

@@jassenjj Indeed, this is why I advocate so highly for patient self-education. Doctors don't know everything, and medicine is so compartmentalised that it used to be very hard to find help. Being thrown in the too hard basket really hurts, I know. The best I could do was believe that if they couldn't give any explanation other than hypochondria, I would dismiss them as simply noy knowing what to do. Doctors feel like they have to have some answer. I've never been to a doctor who simply said, "I don't know, let's see if we can find someone who does". Their egos are way too big for that. Unfortunately, they don't understand the damage it causes though. I'd much rather an "I don't know" than being accused of it being in my head.

[@bimmjim]

@@jeffmcdonald101 .. You are correct. I dropped out of the medical system here in Canada and diverted my studies into medical science. .. I have other degrees and have been doing applied science for 50+ years. .. Professors John Campbell and Brett Weinstein have the best people in these fields being interviewed on their podcasts. .. Study up. I'm 74 and have experienced improving health over the last 5 years. .. Of course, I had the omicron, like 99% of the population. My natural immunity beat it in 4 days. It was so mild that I wouldn't have noticed it in normal times. Sabina has no idea.

[@tarmaque]

My best friend contracted Covid early, before vaccines were available, and spent 9 days in the hospital. He started improving just hours before he was scheduled to go on a ventilator, and came home a few days later. He lost 20 pounds. I have observed him ever since, and I can confirm he has deteriorated cognitively. Not severely, but he now does dumb things that he never would have done before and has trouble remembering things. For instance he repeats himself to me over the course of several days. He also acknowledges this. While anecdotal, I find this to be sufficient confirmation that long Covid is real.

[@julesvern-u4e]

just curious... is he overweight at all?

[@think1416]

I did see same happened to people I knew, one of them was my grandfather, and he passed away years be4 Covid, Did Covid exist back then and we didn’t know about it???

[@andredelacerdasantos4439]

@@think1416 What a useless comment.

[@raymitchell9736]

The cognitive problems are real I've suffered through that myself, I was thinking that I'd have to check myself into an Assisted Living Facility because I wasn't sure I could live at home alone anymore, yet, I was holding down a full-time job and commuting to work... It was 2022, last year, that I thought it was game over for me, Yeah... it's no joke. Fortunately I managed to pull out of it... I still get minor episodes now and then, but not to the degree it was. So I know it isn't easy to see that for your friend. You might ask what I did for myself, I can't give details because of YT rules... but I follow MedCram channel... they have some suggestions like the Sunlight therapy, and NAC, and other over the counter stuff... I also took fish oil to try and supply my body and my brain with DHA and EPA. Maybe that helped me? Also cleaned up the diet dumped all the processed foods... who know what it was that did the trick. Best of luck to you and your friend.

[@theintjengineer]

"before vaccines were available" If only you knew the true history around the Covid Psy-Ops. Also, those shots cannot, per definition, be called "vaccines" I'll leave you to do some research on that. I know it's hard to believe, especially when you're a scientist, but if you stopped watching and reading mainstream media stuff and opened your mind for a single second you'd see through all these events, the climate change hoax, Russia vs Ukraine, Isreal vs Palestine, the Digital Currency plan, the skies and clouds being sprayed with extremely harmful chemicals, and so on. Don't let them get you to believe what they say. It was all, as everything has been since the cosmic abandonment, planned.

[@zAbdullahKhan]

I have been following you on Twitter for quite a while now, chiefly for physics. I contracted COVID in July 2021 and have been bedbound and housebound with a multitude of debilitating symptoms since then, it's basically disabled me. I was somewhat improving by late 2022, went from completely bedbound to housebound to being able to resume my studies (graduate classes 2 days a week), then I took MMR vaccine in early 2023 for relocating to Canada and it has reversed whatever improvements I have made and brought even more severe cognitive/brain issues and I have been back to bedbound since getting the MMR vaccine. COVID-19 isn't the only virus that causes long-term, disabling post-viral symptoms, especially ME/CFS, there are many other viruses that can also cause similar long-term symptoms. For example, Dengue fever and EBV. Post-dengue symptoms are very identical to post-COVID sequelae symptoms and even severe, both viruses severely affect the brain.

[@alethathomson9011]

Finally, someone is acknowledging my illness, ME/CFS! Thank you!!! I have been to doctors numbering in the teens. Gaslighting is real. I cannot tell you how important this video is to my community and to Long Covid sufferers. This will be shared!

[@the-quintessenz]

Are you familiar with HPU?

[@kaitlynlsari681]

Yup me too and boy did I get gaslit 😂 it was pretty horrible at the time 😅 fortunately researchers are taking CFS/ME a lot more seriously now, especially in New Zealand where I live which is fantastic so the more research on this the better, hopefully leading to a treatment 👍😆

[@אילעובד-ע8ד]

ITS FROM THE VACCINE

[@DJWESG1]

The problem most ppl face are the Dr's who follow the poltical agenda. For instance, it's dar harder for a working class or poor person to be diagnosed with anything compared to middle class and wealthier ppl.

[@the-quintessenz]

@@DJWESG1 That's probably wrong.

[@enkephalin07]

I suffered from long Covid for almost 8 months, but didn't seek treatment because I didn't think there was any for it yet. When I got hit, it was still so new in the US that no one believed it was here, so there weren't even tests available. And yeah, the first medical professional I consulted with dismissed my symptoms. The next day, the pandemic was declared.

[@אילעובד-ע8ד]

ITS FROM THE VACCINE

[@kban77]

I’m sorry to hear you were dismissed. Along with others with similar symptoms. In medical dr and scientists defence, it is a complex and nuanced disease. And also, please remember, the doctors offices are FULL of people with fake symptoms and non issues. NOT saying thats what is happening to you. But there is still a lot of in their heads symptoms of all kinds of non existent disease. So doctors get cynical. I think it starts in grade school where kids flood the office “needing ice” for fake injuries. So doctors need to be better at weeding out the fake illness with real

[@Samson1981-ks4xc]

Did you take the Jab?

[@flagmichael]

@@Samson1981-ks4xc That is known not to be a factor, except as it reduces the number of people infected.

[@enkephalin07]

@@Samson1981-ks4xc Absolutely as soon as it was available. It was rolled out to veterans' hospitals first, but that was still nearly a year after I came down with it.

[@fins59]

The lighting in your videos is much improved now Sabine, the key and fill lights are much more natural than the ring light you used to use. Cheers from a retired film cameraman.

[@keithryales2725]

I was diagnosed with chronic fatigue syndrome in may of 2021 after 7 months of testing. I still suffer from it today. I failed 8th grade because I was too tired to do school work. Nearly the same thing happened last year in 10th grade. I could not attend school because I was so tired and nearly failed. I’m very worried about what colleges will think about my gpa. I was a gifted student and excelled in school, but now it’s hard to even do the simple things.

[@אילעובד-ע8ד]

ITS FROM THE VACCINE

[@DJWESG1]

There are many avenues to a degree and further education, places like the Open university for instance offer part time online based courses that be helpful for ppl with lots of things going on in their life.

[@BigZebraCom]

I feel for you. I have two sleep disorders that sometimes take turns kicking my ass. While you are at it, get a sleep study done. The fatigue from a sleep disorder could mimic chronic fatigue. I was one of those guys who did not exhibit any symptoms. I would have told anyone that I didn't have trouble sleeping. I just became easily fatigued, and didn't know why.

[@TheReaverOfDarkness]

I wouldn't worry too much about the college side of things. A degree won't get you anywhere these days anyway.

[@Arisaem]

My mom had chronic fatigue and what helped her was acupuncture, herbs and diet. She went from sleeping all the time for like 5 years with constant tests being done on her. After a few months of acupuncture etc she was back to being normal.

[@weksauce]

Gaslighting is NEVER "questioning someone else's experiences". Gaslighting is ALWAYS doing things to make someone doubt their sanity, usually so they appear insane to a 3rd party. That's what happened in Gaslight. The man in Gaslight did NOT QUESTION his wife's experiences. He manipulated her experiences, denied that her experiences were accurate, and made her appear insane to a 3rd party.

[@Veno06]

The original meaning of the word has been lost almost completely as it became popular. At this point it's just a fancy synonym for lying most of the time.

[@flagmichael]

IIRC the husband denied he had a visitor, although the wife saw the lamp dim as the gas pressure dropped.

[@weksauce]

@@flagmichael Yup. He was manipulating the gas lights and then DENYING (not questioning) his wife's experience of the flickering/dimming, and, crucially, he did this so as to make her appear insane to a 3rd party.

[@terryjwood]

Medical Gaslighting! Thanks for giving that a name! My PCP insisted that I couldn't have an illness that he never learned about in medical school. I figured out what was wrong with me and what the solution was, but he insisted that was "IMPOSSIBLE" (that's him screaming at me) and he demanded I go on six months of Valium to rid me of the obsession that I was ill. I found a pediatric allergist at Children's Hospital who had seen my "new" illness before and could provide me with the name of it. My PCP was now in a bind. It was no longer my "obsession", I had a specialist who had diagnosed me. Sadly, his ego couldn't handle that and I fired him and got a new PCP who was eager to treat my illness. I quickly recovered with the right treatment. I often think about what life would have been like with a Valium addiction AND my original illness. I doubt I could handle both at the same time.

[@thedevilsadvocate5210]

what was your treatment?

[@terryjwood]

@@thedevilsadvocate5210I was diagnosed with non-celiac gluten sensitivity (NCGS). I stopped eating wheat, rye and barley. I use rice, corn and quinoa instead. My gut healed and my brain fog, sore joints and stiff muscles all went away. Today I'm fine as long as I don't eat wheat, rye or barley.

[@rogalewskip]

It's sad Phisics Girl still struggles with it. I hope she gets well ASAP.

[@MrJBA79]

I sincerely hope that Physics Girl fully recovers, her absence is pronounced.

[@andredelacerdasantos4439]

Me too!! She's not looking good, though... =(

[@Bildgesmythe]

She's the first person I thought of when I saw this video. So horribly sad.

[@Samathachavez-k1w]

@@MrJBA79 Hi dear Good afternoon. I hope my comment didn't sound as a form of privacy invasion your comment tells of a wonderful man with a beautiful heart which led me to comment I don't normally write in the comment section but I think you deserve this complement. If you don’t mind can we be friends? Thanks God bless you….🌺🌺🌺

[@RavensEdge23]

So would this cover those with "vaccine injuries", as well?

[@adelinad3513]

Manufacturer immunity, govt will not be responsible for purchasing 7x doses per person from the like like pfizer without real tests and the fall guys are going to be...the gp..that were supposed to recommend this and read the tests reports that were not available and still are not...and they are going to replace all of them by ai. From hero to zero for them. And from personal relationship with your doctor to a number in the system for the patient ( of he survives). All all of you still believe in the long covid tooth fairy

[@tortysoft]

This is wonderful. I've had Long Covid since March 2020. You cover just about everything I have either had or heard of and you do it very well. Many thanks !

[@flagmichael]

Now, if only we could find a truly effective treatment....

[@Samathachavez-k1w]

@@tortysoft Hi dear Good afternoon. I hope my comment didn't sound as a form of privacy invasion your comment tells of a wonderful man with a beautiful heart which led me to comment I don't normally write in the comment section but I think you deserve this complement. If you don’t mind can we be friends? Thanks God bless you….🌺🌺🌺

[@brma1892]

Thank you Sabine for summarizing this so well! It seems that my employer, my friends and some of my family even have begun to ignore the ongoing risks both individually and societally that this virus whose origins remain unclear continues to wreak. I will be showing this to my supervisor and to my friends and family. Many thanks for your hard work on this and for your other videos and humour as well 🤗

[@brma1892]

I just want to add that for me, adding the food called “natto” to my diet has been a godsend. I hope it can help someone else out there too.

[@dragons_red]

Unclear? You've got to be kidding me...

[@KelliAnnWinkler]

@@dragons_red Can you say lab "leak"?

[@adelinad3513]

It's not unclear at all. It's a darpa lab. This thing is an engineered combination of more pathogens and hits people where is their weakest link. If you add the marketed cure in the mix too, you actually make it alot worse. They covered all bases.

[@vartanshakhoian9606]

Does this apply to unvaccinated too, just asking?

[@faustinpippin9208]

"wrongthink detected"

[@ickebins6948]

Maybe just watch the video..

[@sungazer454]

Conveniently, no one dares to make a study about that.

[@Yajoy-kh3kc]

​@@sungazer45414:04

[@ickebins6948]

Yes it does, watch the video.... Oh wait, that's just propaganda right?

[@uk7769]

One of the worst things is having to deal with the antivaaxers, and sadistic trolls who take delight in the suffering of others. and then to be dismissed by doctors too. cruel world.

[@michalmikulasi5193]

its funny that a good physicist on youtube is statistically(and in reality too) saving lives by talking about this. keep up the good work!

[@mikev751]

Awful work. This video is pure speculation presented as a matter of fact. Garbage.

[@duckymomo7935]

A lot of people hate her because she’s not gender affirming or pro covid That said, her primary criticism is technically she’s going out of her specialty but that’s an argument from authority

[@adelinad3513]

​@@duckymomo7935 why would you hate someone for not being pro covid? Are people crazy now?

[@wardka]

I have a friend who lost his job because of long Covid's dementia-like symptoms. Fortunately he was of retirement age, but it is not clear whether he will ever be able to drive safely again. It's a life changing issue.

[@flagmichael]

Indeed! I'm hoping we get the cause(s) of all this distress sorted out. I suppose not enough people suffered from chronic effects of Lyme disease, chronic Epstein-Barr disease (mononucleosis) and the ongoing mystery of fibromyalgia to muster all the efforts these symptoms demand. It is a quiet tragedy.

[@ETT329]

I am so sorry to hear that, I myself have dementia like issues from time to time, I am 26 and it is very upsetting to be aware of. I have lived with grandparents who had dementia. I would never think to see similar qualities in myself now. Long covid has left a consuming shadow on my life. Wishing your friend all the best and for health to find him.

[@Jatheus]

Long COVID is difficult. When I caught COVID, I never had fever, or loss of taste and smell or any of the typical symptoms. All of my symptoms were gastric. It caused nausea, loss of appetite, and wrecked my biome. I lost weight down to 126 pounds because I couldn't take in enough calories. I had no energy. I have a sedentary job, so I was able to stay at work, but I would amble home and lay down, letting my kids crawl over me while the TV was on because I couldn't muster any energy to do anything else. I had constant acid reflux and belching. I was in my late 30's when I caught COVID and all this started. Two years later, I finally was able to figure out that the gut biome changing made me hyper-sensitive to dairy. I cut that out of my diet and began to recover after about 4 days, and have continued to improve. At this point, my symptoms are basically gone. I may still be sensitive to dairy, but I take in so much less now, it is difficult to be sure. My doctor was sympathetic to my suffering, but with something so new and symptoms so varied, they didn't know what to do with it. They diagnosed me with chronic acid reflux and prescribed me some pills for that. They helped some, but now I don't need them anymore. I had myself scoped to make sure there was nothing else going on in my stomach, and I've since had ultrasound scans, all clear. No explanation to the symptoms I had, except that they began when I first had COVID.

[@PetraKann]

What is causing the excess death rates seen in many countries around the world?

[@dgphi]

No one knows the cause. It's a Scooby Doo mystery!

[@faustinpippin9208]

scientists are "baffled" and dont know but they ofc 100% know that its not what everyone was forced to take :)

[@iseenochains-oops7863]

Govts don't want to know? I wonder why not 😉

[@Gengh13]

They don't know, but they are 100% sure that is not the mandated experimental procedure. I guess the fact that the excess death is highly correlated to the country procedure uptake % is just a "coincidence".

[@tschorsch]

Covid-19.

[@MapleYum]

I have a friend who has long COVID and it’s been devastating. My thoughts go out to anyone going through this.

[@אילעובד-ע8ד]

ITS FROM THE VACCINE

[@robertputneydrake]

How many times vaccinated?

[@mauriciolguin]

It is a very devastating disease. I've been there.

[@alihenderson5910]

​@roymcintosh7983They always neglect to say, but I think it's safe to assume that they are. Gotta love the fully vaxed and boosted, all claiming to know how much worse covid is for the unvaxed. Wife and I, 63, unvaxed, unmasked, no social distancing, NO covid. Sadly, we will ALL pay dearly for their ignorance.

[@abstuli]

My hypothesis is that ME/CFS, Long COVID and Post Lyme disease = Mast Cell Activation Syndrome (MCAS) . Same symptoms, same triggers, same PEM and same Common Co-diagnoses such as Allergy, Asthma, IBS, Fibromyalgia, POTS, ADHD, hEDS, Migraines, PTSD, Multiple Chemical Sensitivity (MCS), Interstitial cystitis (IC), Temporomandibular joint disorder ( TMJ), Restless legs syndrome (RLS).... There are many medications that can make most people with MCAS better. Scientific articles at NCBI. • Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast cell activation syndrome and the link with long COVID • Mast cell activation symptoms are prevalent in Long-COVID • Mast cell activation is associated with post‐acute COVID‐19 syndrome • Mast cell activation may explain many cases of chemical intolerance • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • The role of mast cells in migraine pathophysiology • The role of human mast cells in allergy and asthma • Substance P and mast cells: preliminary histologic analysis of the human temporomandibular joint • Evidence for the Role of Mast Cells in Cystitis-Associated Lower Urinary Tract Dysfunction: A Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network... • Restless legs syndrome is associated with mast cell activation syndrome • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • Successful Treatment of a Patient With Severe COVID-19 Using an Integrated Approach Addressing Mast Cells and Their Mediators • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers • Mast Cell Activation Syndrome: More than “just allergies”

[@wacomtexas]

My 'Force of Nature' cousin suffered from ME before it was properly recognised and diagnosed, and a long time before COVID. It's no joke, and the worst part for her was not being taken seriously for many years..

[@flagmichael]

No joke at all. It is a life changing condition for many of the sufferers. We don't know how to deal with is medically or institutionally.

[@ferrantepallas]

How about long jab related adverse effects?

[@adelinad3513]

Still can't talk about those yet . People prefer to burry their heads in the sand rather than looking into options

[@GK49245]

See what happened to Physics Girl, a popular KZbin scientist until she got long COVID. She has been what appears to be 100% disabled by Long COVID.

[@noremac4807]

She’s also 100% vaxxed though That needs to be investigated too. There is some research coming out about igG4 antibodies being produced from vx in ation and having a negative impact on immune response Everything should be out in the open, and transparent. This was a global clinical trial after all with billions of participants

[@adelinad3513]

Number of jabs can and will have an impact on what is described as long covid

[@timoluetk]

Thank you so much for covering this topic. Please keep and eye on it!

[@reynal_omnicide9217]

I had all this symptoms and thought I was becoming hypochondriac or crazy. I had my heart going crazy fast, becoming extremely tired while doing my moderate intensity cardio (I actually had to stop doing it at all). I went to the hospital for what I thought it was a panic attack and many test were done ECG, X-rays to check for heart size among other things like blood-tests, urine tests, the doctors found nothing so they ran a COVID test and it was positive. After that "panic attack" I've had a couple days where my heart go fast while I try to sleep and the anxiety keeps me from sleeping the entire night. It happened to me yesterday. I couldn't sleep at all at night, thankfully I slept for about 3 or 4 hours in the day 8am to 12pm. I also get extremely tired at times for very low activity effort like doing the dishes, picking up things from the floor, sometimes walking gets me crazy tired in 15 minutes and I usually walk at least 1 hour pretty much every day so I normally had a very high resistance for walking (I walk fairly fast, not turtle pace walking) I also have woken up wheezing for air and had shallow breathing. Thanks for this video! it really eases my mind to know I'm not just having some kind of psychotic break.

[@โนรีคอกเบิร์น]

I assume your writing my biography. Every word so true describing the last two & a half Years. You forgot to say it just gets worse and worse wishing the last 2 (of 7 in total) miocardial attacks had been fatal. 5 years ago I walked for 3 days & nights no stop with only 1 bottle of water no food for over 500 miles. I could carry 2 bags of cement dust (real bags Not the gay woke woosy small hse bags). I lifted out my car engine Without a hoist by myself. I pushed at the boundaries of science & physics & electronics & engineering for 65 years. Now an email or comment like this, takes at best several hours and often, a week or more to wright & de-bug (maybe it shows how bad Samsung software has got!).

[@DavidHRyall]

Vaccine injury will do that to your body

[@LeTrashPanda]

Get checked for POTS, that's what typically causes the tachycardia syndrome along with dysautonomia.

[@pittapittae]

I have long Covid for more than one year, as I mentioned in another comment, and the symptoms are almost spot on as yours. Periods of moderate good health alternate with crashes and strong post-fatigue malaise. It is very annoying and when the crash hits, also very scary and panicking. I think the anxiety is actually triggered by the crash itself. Stay strong mentally, hopefully we will get to the other side of the tunnel!!

[@xinixxagnix201]

Vaccine damage

[@annecarter5181]

This was the best description of “long Covid” that I’ve ever seen. Scientific, comprehensive & clear. Many thanks.

[@There-Is-No-Virus]

Just one problem. It's wrong. Long covid = vaccine damage.

[@andrewruiz7894]

No mention how many ppl got the jab. Biased. This woman is bought and paid for.

[@stuartcumings8026]

You believe that garbage then your brain has been well washed😂 swabs never was designed too test for infection or sickness…

[@mikev751]

And wrong.

[@DavidHRyall]

Long vaccine, not long covid

[@3dflyer347]

I am sending this link to my extended family, who think and behave as though covid is over. Although I am a medical doctor with public health experience they do not listen to me; I just want them to wear masks on the train, plane or in crowded shops and public places. This presentation is an excellent review of current knowledge, and by some magic it makes the subject interesting.

[@Rampart.X]

You should be struck off the medical registry for your complicity in this scandal.

[@ex8280]

Masks are for criminals who like to hide their faces.

[@ottofraser4879]

Read the commentary before yours and you will see the whole drama that 90% of doctors are partly responsible for. It's a disgrace!

[@Samathachavez-k1w]

@@3dflyer347 Hi dear Good afternoon. I hope my comment didn't sound as a form of privacy invasion your comment tells of a wonderful man with a beautiful heart which led me to comment I don't normally write in the comment section but I think you deserve this complement. If you don’t mind can we be friends? Thanks God bless you….🌺🌺🌺

[@WoziduranJahemter]

It's simple indeed but study for advanced herbalism is required: 1)Note down your symptoms; 2)Search for the naturalistic curings, vitamins, various curative fruits and vegetables, plants and herbs that can cure and defuse the afflictions; 3)Get tea, aromatherapy, spices, healthy foods recipes and herbal mixtures that heal and detox the body.

[@williamralph9008]

If so many were infected and then subsequently vaccinated,often multiple times,how do we distinguish the effects of the former from the latter?

[@adelinad3513]

If you have bad effects most of the time you have been vaccinated before. Or the other way around. But the combination is damaging for the body, especially for some genetic make-ups

[@Sammy_Chouchou]

I used to be shredded, super happy all the time, bright, going to school for astrophysics and super active. Now even doing basic chores whilst also working full time to keep my head above water is extremely difficult. I’ve been gaining weight, because everything is so tiring and difficult; and even breathing is often difficult. I can’t even dream of school anymore, as the brain fog and cognitive dysfunction has made it to where a kindergartener could intellectually run circles around me at this point. Despite the fatigue and brain fog though, there’s this weird fidgety hyperactivity. I don’t feel emotions anymore, I forget everything, my inner monologue is gone and I cannot sleep without ambien or weed. My social life has disappeared to all of it, amongst every other aspect of my life basically. I’ve been completely ruined. I went from feeling on top of the world, to being a brainless zombie, struggling just to make it through the day.

[@Magrat_Knoblauch]

I'm so, so sorry. 🌼 This feels like mocking, but I truly hope you will become better. Hopefully there will be medication in the near future.

[@adelinad3513]

​@@Magrat_Knoblauchmedication brought this..pharmakeia. he needs critical thinking to get ahead

[@adelinad3513]

Sorry to add to your pain but the more people get in this state , the easier it will be to just put a virtual reality headand eye gear on them and keep them in universal basic income. People will accept as there is nothing they can do 😢. Sad world is coming.

[@DAYBROK3]

as someone with long covid, the exhaustion is a constellation of tiredness. Post-exercise malaise is horrible do something and up to three days later you crash. the pots is where your blood leaves your brain when you change position, stand fast, and pass out. dysautonomia is the hardest it affects the digestion system badly it causes weight loss. here in canada part of the diagnosis is you have had to have been diagnosed with covid.

[@adelinad3513]

Canada is going downhill with the medical system. No critical thinking whatsoever in the remaing doctors . Sad

[@Meenaia]

I had nearly all of these symptoms for months. Someone told me I had long covid. Turns out I was in an emotionally abusive relationship and shortly after I left it, cognitive functions were better, heart palpitations dissipated, and my digestive problems were vastly improved. Perhaps I did have long covid but getting away from soul crushing stress is what made things turn around for me.

[@Eddie-ki9zd]

Long COVID is all agenda. Doctors are paid to diagnose long COVID. It is an illusion. They sold us out.

[@meyousex]

Thank you for your comment, it gives me hope

[@90klh]

I think stress makes all disorders worse...

[@flagmichael]

That makes perfect sense to me. I would believe you had what seems to be a variety of Long Covid - injury "mild" enough that you can do a lot of things without trouble, but that become worse - maybe much worse - when anything makes part of your life harder.

[@Meenaia]

@@meyousex I hope you are doing well now and sorry I haven't seen your reply sooner. One of my hobbies is reading various scholarly articles on topics of interest and one in particular may be of interest to you. It's a peer reviewed ncbi article titled "Psychological Stress and Mitochondria: A Systematic Review" done in 2018. Here is one sentence excerpt from the article "Nineteen studies showed significant adverse effects of psychological stress on mitochondria and four found increases in function or size after stress." that somewhat summarizes what to expect. Take care and wishing you good health and happiness.

[@Carrie401]

Thank you, your empathy and caring is overwhelming, I deeply appreciate you.

[@Shadow_B4nned]

I've been disabled with Long Covid for over 3 years. Disautonomia has improved maybe 50% but I still can't produce work in any substantial capacity without significant repercussions. Stress and depression makes everything worse and it's so hard to avoid in the real world. I remain hopeful that one day I will be back to normal and I can mentally be there for my family.

[@jimmyraconteur]

probably get good government benefits

[@Shadow_B4nned]

@@jimmyraconteur Government won't even recognize it as a condition for the next 3 years or so. Last I heard anyway.

[@mrpocock]

​@@jimmyraconteurit is virtuality impossible to get benefits for long covid. The symptoms don't tick the boxes. Like any other chronic condition.

[@abstuli]

My hypothesis is that ME/CFS, Long COVID and Post Lyme disease = Mast Cell Activation Syndrome (MCAS) . Same symptoms, same triggers, same PEM and same Common Co-diagnoses such as Allergy, Asthma, IBS, Fibromyalgia, POTS, ADHD, hEDS, Migraines, PTSD, Multiple Chemical Sensitivity (MCS), Interstitial cystitis (IC), Temporomandibular joint disorder ( TMJ), Restless legs syndrome (RLS).... There are many medications that can make most people with MCAS better. Stress is a common trigger that can worsen MCAS. Scientific articles at NCBI. • Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast cell activation syndrome and the link with long COVID • Mast cell activation symptoms are prevalent in Long-COVID • Mast cell activation is associated with post‐acute COVID‐19 syndrome • Mast cell activation may explain many cases of chemical intolerance • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • The role of mast cells in migraine pathophysiology • The role of human mast cells in allergy and asthma • Substance P and mast cells: preliminary histologic analysis of the human temporomandibular joint • Evidence for the Role of Mast Cells in Cystitis-Associated Lower Urinary Tract Dysfunction: A Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network... • Restless legs syndrome is associated with mast cell activation syndrome • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • Successful Treatment of a Patient With Severe COVID-19 Using an Integrated Approach Addressing Mast Cells and Their Mediators • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers • Mast Cell Activation Syndrome: More than “just allergies”

[@sinopulence]

How many vaccines did you get?

[@carinaekstrom1]

Who knows how many of these symptoms were really caused by vaccination? Only by examining the unvaccinated who had covid could you get an idea of actual long covid. I don't think most studies have been done on this group.

[@flagmichael]

Or, we could look at the envelope of the vaccine statistics to see what fits inside. In the US the Countermeasures Injury Compensation Program (CICP) accepts and processes claims of COVID vaccine injuries. To date, 9,393 COVID vaccination claims have been filed, the product of 676,728,782 COVID vaccinations. That represents one claim for every 72,046 vaccinations. For reference, our life expectancy in the USA is 28,226 days. We could have 3 jabs a day from birth to death and have a 50/50 chance of a reaction serious enough to file a claim.

[@DonaldThomas-e9l]

@@carinaekstrom1 Hi dear Good afternoon. I hope my comment didn't sound as a form of privacy invasion your comment tells of a wonderful woman with a beautiful heart which led me to comment I don't normally write in the comment section but I think you deserve this complement. If you don’t mind can we be friends? Thanks God bless you….🌺🌺🌺

[@THEchiQ]

I’m just recovering from my first infection. I had hoped to avoid it altogether. I’m sleeping huge amounts, and still get out of breath very easily. I hope to avoid long covid, but this is a useful video. Thank you.

[@DonaldThomas-e9l]

@@THEchiQ Hi dear Good afternoon. I hope my comment didn't sound as a form of privacy invasion your comment tells of a wonderful woman with a beautiful heart which led me to comment I don't normally write in the comment section but I think you deserve this complement. If you don’t mind can we be friends? Thanks God bless you….🌺🌺🌺

[@melodymonger]

Thank you Sabine for presenting such an important topic. I have a lot of empathy for people suffering from chronic conditions which doctors don't understand, because the medical gaslighting adds another layer of suffering to their already difficult lives. My partner never had COVID but was hospitalised for 7 months after the 2nd dose of an mRNA vaccine and is now partially disabled with a list of symptoms which is very long-COVID like. And, no, I don't have anything against vaccines in general. Try getting medical help in this situation, it's virtually impossible 😢.

[@khellstr]

Just say it is Long Covid, and you get all the help.

[@bogsplash8612]

Sorry to hear of your partner's troubles. I hope the medical profession comes through for them soon.

[@noremac4807]

Long cv and long vx are both real with intertwined symptoms. There is also research showing the negative impact of vx after infection. Just as real is trauma and the psychological damage for those who lost careers and homes for wanting to make their own informed medical choices. Just as real is the carnage to economies and livelihoods as a result of unscientific and draconian cv measures. Lastly, just as real is the censorship and banning of early treatments which could have avoided so much of this mess.

[@hannahpumpkins4359]

@@khellstr -Only MAGA lie to their doctors; "I don't believe in Covid" then 6 months later when they can't breathe because of Covid, "I need to be admitted to the hospital because I can't breathe and I'm freaking out"... SMH...

[@whyamiwastingmytimeonthis]

If someone is “partially disabled”, they should’ve been able to get medical help, no matter the cause (and even without stating one) Anyway, condolences if it’s true, and get well soon

[@ianokay]

I'm a healthy athletic person and I've never been the same after Covid 3 years ago. I had gotten, unfortunately, the Delta variant, with lost smell but also memory loss and dizziness for 2 months. It gave me persistent tinnitus that has never gone away, that gets worse the more unhappy my brain is (like if I don't get enough sleep). And, additionally, my brain basically forgot how to sleep. It didn't matter how tired I was from not sleeping, I wouldn't be any more likely to sleep even under conditions of total exhaustion and tiredness. My sleep became something more like a light daydream and of course, that very seriously affects the quality of life. I still don't know exactly what went wrong, but they have found Covid in the brain in autopsies. My guess is there's some kind of CNS inflammation or dysregulation of neuro receptor sensitivity. Bizarrely, a regular MRI didn't show any damage to the brain, although it definitely feels otherwise. All of this has just become life now. 🤷‍♂ I wish they at the very least could identify what the very clear problem is. EDIT: Oh yeah and it damaged my immune system as Covid knows how to do. My white blood cell count is still around 2,000 when a healthy person can have up to 10,000. My Vitamin D levels were also flagged low, in summer, as a person who is outside all the time in the sun! EDIT 2: Oh and any kind of stimulation above normal, like video games, my brain/CNS also handles very badly now. I basically can't even play "fun" little mobile games if they're at all competitive because the heightened tenseness can mess me up.

[@corqMcc]

Great, though harrowing, description, very helpful to read this. I’m so sorry for how much you are going through. I sincerely hope that you eventually get some relief.

[@adelinad3513]

Something else damages the immune system ..called vaids

[@paulharrisonadventuregearm5457]

Your symptoms tell me what you need. B6 in large quantities as well as zinc. B vitamin sustained release package. Berberine to reduce inflammation amongst other things. Butyrate for gut biome and mending the Kynurenine Pathway. Above average amounts of vitamin D. Plenty of sustained release niacin for a period. Q10, carnitine and Nt factor, omega 3 fish oil. Plus a diet rich in greens, protein

[@ianokay]

Thanks for your suggestions, they're valuable as I haven't heard of a lot of this and all I can do is cautiously explore and see if anything helps. These symptoms have been bizarre, but the one that seems at the center is my sensitivity and poor handling (almost dizziness/inflammation) to stimulus now. It's strange to get dizzy and cloudy just playing a tense mobile game like I'm having some neuroreceptor flood. I've been taking NAC, protein powder, creatine, Omega 3, a bit of trimethylglycine, and a daily vitamin which has some vitamin B mix. The one that makes the largest impact by far is the Omega 3, I (my head) feel a bit better after them. Protein powder also but via muscle recovery (I do exercise). The rest I can't feel any difference. I recently started 1000iu of Vitamin D and I think for a short period after I maybe also feel less "mentally inflamed". I heard more needs to be taken with K2 and such. I tried Q10 and didn't notice anything except that it (and this is weird but I think it is accurate) seemed to degrade my athleticism. I sort of lost muscle definition taking it so I stopped. Do you recommend a vitamin B mix or just taking preference to one in particular like B6? You also recommend trying to keep some presence of B3? I don't know Berberine, Butyrate, carnitine and Nt factor, nor have I read on the Kynurenine Pathway. @@paulharrisonadventuregearm5457

[@ianokay]

AI informed me "The Kynurenine Pathway is not only important for niacin synthesis but also has implications for immune function, neurobiology, and inflammation. Some metabolites in the pathway have neuroactive properties and can affect neurotransmitter balance in the brain." Oh wow yeah that sounds right up my alley. All those things feel impacted and awry. Online research mentions the pathway is related to "tryptophan metabolism". I do have L-tryptophan which I thought might help with sleep (it didn't at all), should I be taking that to help this pathway? Also NAD seems mentioned (related to B3) which I've seen recommended as a vitamin. @@paulharrisonadventuregearm5457

[@prabie]

Sabine eres una joya de la internet. Este post es simplemente "A MUST". Gracias desde el corazón por la invaluable información que nos das.

[@MichaelWohlstein]

Thx Sabine for this great explanation 👍 Your channel has really enriched my KZbin feed ☺️

[@billirwin3558]

I have had CFS for over 20 years. What caused it, I do not know. My impairment was severe at first but did slowly improve over 2 years. But I never got back to my previous energy levels. I estimate that my impairment was somewhere between 40 and 50 percent. And had stayed that way for a long time. In that time the medical profession has been unhelpful to say the least. Many doctors dismiss CFS altogether. And a few doctors do try to help by checking for causes for those symptoms. But there is only so many heart tests and blood tests you can do and they are mostly negative. So I gave up on doctors being able to help. Since then I have become worse with age and I estimate my impairment at about 60% now. That means I have to be very careful what I spend my energy on. And many people do not understand CFS and expect me to do normal things that I simply cannot do. I tire very quickly with physical activity and have to rest constantly throughout the day. Brain fogs with tiredness is common. And if I do too much, 'crash' is real and can be distressing. My legs in particular do not function well any more. So I am spending more time sitting down, which I figure is not a good thing. My governments welfare system has abandoned me. And I live on very little these days. But at least I am still alive and my brain still sort of functions. So don't feel sorry for me because there are others much worse off than me.

[@abstuli]

My hypothesis is that ME/CFS, Long COVID and Post Lyme disease = Mast Cell Activation Syndrome (MCAS) . Same symptoms, same triggers, same PEM and same Common Co-diagnoses such as Allergy, Asthma, IBS, Fibromyalgia, POTS, ADHD, hEDS, Migraines, PTSD, Multiple Chemical Sensitivity (MCS), Interstitial cystitis (IC), Temporomandibular joint disorder ( TMJ), Restless legs syndrome (RLS).... There are many medications that can make most people with MCAS better. Scientific articles at NCBI. • Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast cell activation syndrome and the link with long COVID • Mast cell activation symptoms are prevalent in Long-COVID • Mast cell activation is associated with post‐acute COVID‐19 syndrome • Mast cell activation may explain many cases of chemical intolerance • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • The role of mast cells in migraine pathophysiology • The role of human mast cells in allergy and asthma • Substance P and mast cells: preliminary histologic analysis of the human temporomandibular joint • Evidence for the Role of Mast Cells in Cystitis-Associated Lower Urinary Tract Dysfunction: A Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network... • Restless legs syndrome is associated with mast cell activation syndrome • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • Successful Treatment of a Patient With Severe COVID-19 Using an Integrated Approach Addressing Mast Cells and Their Mediators • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers • Mast Cell Activation Syndrome: More than “just allergies”

[@flagmichael]

I recall in the 1980s there was a big medical backlash about Chronic Fatigue Syndrome and fibromyalgia - that one in particular was scoffed at a lot. I suppose after studying medicine for a decade one feels that anything they had not heard of didn't exist.

[@datdudeinred]

Hope Diana (aka physics girl) is doing ok. Didn't hear from her for so long. I miss her videos. Everytime anyone mentions long covid her face comes Infront of me. Get well soon Diana science community needs you 🤞❤️

[@party4keeps28]

I often learn something new from these videos but I especially like when I discover something I didn't expect. It was a pleasant surprise to learn where the term "gaslighting" came from.

[@flagmichael]

The movie is available on at least one streaming service. I rewatched it last year because I couldn't remember exactly what the scam was. Black and white was a good medium for such a dark plot.

[@party4keeps28]

@@flagmichael Thank you, I'll look into it.

[@LittleGrayMouse]

I had "covid tongue" in 2021 and my sense of taste and smell are still dysfunctional in 2024. I'm starting to think it will never go back to how it was before.

[@Chriswsm]

In September 2021 I had covid and Delta was the primary strain going around at the time in the UK. I was not hospitalised and recovered at home but it was nasty. During the infection I had severe tinnitus in my right ear (unilateral tinnitus). I recovered from covid but the tinnitus is still there today although not as prominent as it was during the infection. I was advised by a friend who is a retired nurse to get unilateral tinnitus looked into as it is a concerning abnormality. I mentioned it to my doctor who acted very quickly. Examinations and MRI discovered I had CSVD (chronic small vessel disease in my brain) this raises my risk of vascular dementia and stroke. I have not noticed any cognitive decline but then ... would I notice it? I do not know if I already had CSVD and covid added the tinnitus or if it was the cause of both conditions. My doctor thinks the latter is a distinct possibility because covid-19 is a vascular disease.

[@SabineHossenfelder]

Thanks for sharing. Hope there is a treatment option?

[@hugegamer5988]

Same here, about the same time. Woke up on day three of symptoms with fairly loud tinnitus in both ears. It has not gotten better in over two years, though my brain has gotten better at ignoring it, it is still ever present. When getting screened for the extent of the damage my doctor told me they are getting about five new patients every day with the same problem. It’s permanent damage from the cells dying. Not everything grows back once dead.

[@אילעובד-ע8ד]

ITS FROM THE VACCINE

[@holthuizenoemoet591]

First off all I'm sorry this happend to you. I also have tinnitus (and fatigue). Can i ask how the doctor diagnosed this and what has be done to treat you. I'm from the Netherlands and my general practitioner is not impressed by my symptoms and basically ignores there relevance.

[@flagmichael]

As slippery as COVID-19 is, the view of it as being at least in part a vascular inflammatory disease is becoming pretty well accepted.

[@YaMumsSpecialFriend]

Yep, I got covid in 2022 after living with ME since 2009. Loving their combined love child of long covid though luckily I’m not as severely affected as some so must count my luck really. Years of medical and family gaslighting are the hardest part in many ways, or at least makes it so much harder having to fight symptoms and illness but then also doctors and family skepticism. It’s can be a lonely experience, akin to complaining of some poltergeist attacking you. Thanks for the video, education and awareness are part of the treatment as much as drugs or therapies. 🖖🏼!

[@DavidHRyall]

It's the vaccine that caused the damage, not covid. You are still being gaslit

[@christinearmington]

Thank you so much for this, Sabine. Needed information.

[@duran9664]

Long-Flue is real too 😒

[@jamielondon6436]

This video would've been the perfect opportunity to raise awareness (and ideally money) for fellow science KZbinr "Physics Girl", who is currently suffering from a particular horrible case of Long Covid.

[@adelinad3513]

Or vax injury

[@jamielondon6436]

@@adelinad3513 Troll.

[@drzeworyj]

I got my chronic illness from a fluoroquinoline treatment back in 2016. I should have never gotten that antibiotic at that point in time, A it was already broadly known it was controversial and risky. the result was a raging EBV infection which gave me dysautonomia, MCAS and a series of other issues. I fight brain fog, pain and fatigue every day, but my family lives in denial. explaining my problems to others is difficult, and deep inside, people usually won't believe me. my physical and mental capacity have diminished at 34. I tried to get a diagnosis, but my German old-school neurologist who was trained in the Soviet Union reacted to my textbook symptoms by saying I can't have dysautonomia (they didn't even know the abbreviation 'POTS', nor have they read English-language materials on it). if it seems like the system is tilted against you, it's cause it is. thank you for the video.

[@adelinad3513]

Yes and the fact you are not allowed anymore to speak the truth

[@GraemeMulvaney]

my gp insisted it was depression] and said I should just forget about running ultramarathons, triathlons and mountain climbing saying my ambitions were beyond what normal people needed and I needed to just accept they were out of my reach

[@AB-wf8ek]

Another way to read it is your condition is beyond what a normal doctor understands, so you need to find an exceptional doctor. Doctors often try to pin their inabilities on the patient's abnormal expectations, but the reality is, the average medical abilities are rather limited.

[@flogginga_dead_horse4022]

what??

[@r-gart]

How many 💉s?

[@adelinad3513]

Ditch him. Brainwashed gp by the system and scared for his job. He will be replaced by ai doctors soon.You deserve better. Look into "conspiracy " where people speak truth they are not allowed to say on tv

[@j.a.velarde5901]

This video was VERY useful, and I shared it simply based on the fact that you explain Gaslighting so well. Thanks!

[@danking439]

Thank you for covering this. Both my wife and son are dealing with long covid. They found your video very helpful.

[@FlyMIfYouGotM]

Imagine that; doctors not listening to a patient or outright dismissing them. I personally have witnessed multiple instances of this and 4 of those, "blown off" patiens/friends died as a result!

[@mauriciolguin]

It happened to me in different ways.

[@FlyMIfYouGotM]

@mauriciolguin I am currently fighting my own battle with this, and it's beyond frustrating!

[@adelinad3513]

Just to help with the bit picture...your frustrations with actual doctors have a purpose...to make all of us easier to accept or happy to accept the new AI doctors and get rid of these incompetent human ones that you are all disappointed with. Stealing all of us in the wrong direction. 😂

[@SMGJohn]

Get revenge.

[@Maderyne]

My experience with Covid is the taste of food. Bananas used to be my daily munchy. Since suffering from Covid, the banana has fallen out of favor. It is now tasteless, and just mushy. Most food is bland, and the dabbing of hot sauces brings back some, but not all of the taste. Thank you, Sabina for helping me to understand this blessed event.

[@jong2359]

Literally the same experience here... I have started buying hot sauce by the gallon, and have lost a lot of the passion that I used to have for food and cooking. Nothing tastes the same, and I have lost a lot of my ability to smell certain smells.

[@brucemacmillan9581]

Blessed event???

[@DowncastParadox]

Yeah... completely losing my sense of taste and smell for about a week during my first Covid stint was _the_ _worst_ - luckily, I got it back, but I was really worried for a while. My second time was worse in other ways, but at least I still got to taste stuff. I don't even want to imagine what it'd be like if I lost that for good.

[@EaglePicking]

What you describe is not exclusive to Covid, though. I've had severe influenza with the same, lasting, symptoms.

[@usheffi]

Just curious, how many shots did you take?

[@KeithStrang]

The gaslighting comes from the desire to not look at a certain medical intervention that a very high percentage of people with long COVID had injected into them.

[@simonalcock1125]

I've had CFS for nearly 7 years following a really bad case of food poisoning. It completely wiped out my energy levels, rapid heart beat, brain fog, aching joints and sleep problems. Loads of blood tests, heart scan, camera in stomach etc. nothing sinister came back. GPs didnt really believe i had any issues, but eventually i found a doctor who took it seriously and we tried many types of medication and treatments. Now manage symptoms with pacing of activities, diet changed, vitamin supplements , low sugar, etc. bottom line: these diseases are real! If it affects you or a loved one, i send my positive thoughts that you can also find happiness and peace

[@andredelacerdasantos4439]

What was it that you ate?

[@simonalcock1125]

Not sure exactly what caused the problem, but several guests had food poisoning the next day. My wife also had gastro issues, and we were literally crawling to the toilet! (Sorry about sharing too much information!!!). Joking aside, humour really helps, especially when symptoms flare up every few weeks.

[@philochristos]

I guess I had a slight misunderstanding of what gaslighting meant. I thought gaslighting was when you tell somebody a lie that you know the other person knows is a lie, and you insist on it anyway.

[@jamesmorrow1646]

You should watch the movie.

[@AB-wf8ek]

That's a tactic of gaslighting, but it also includes trying to convincing other people that you're crazy. As a whole, gaslighting is trying to manipulate the information you give to someone and others in an attempt to devalue a person's perspective. The main goal is not to lie, but to devalue someone. It's one thing to lie to someone to get your way, it's another to try and completely undermine their self-esteem. Almost like murdering someone without killing them.

[@kennethfisher7013]

The definition seems to be changing because of misuse. Similarly to "snowflake" which originally meant someone who thinks they are unique and special, one of a kind.

[@barryon8706]

People use the term in different ways. Sometime it's as you described, and sometimes it's the "don't deny me my life experiences" type of meaning.

[@flagmichael]

As presented in the movie, that was the basis of the evil scheme. The wife knew she had seen the light dim, indicating he had turned on the light in his room, but he denied doing that.

[@moskitoh2651]

Well, I am missing the answers to WHAT is Long Covid. Long Covid is often also set identical to Post Vac. So it would really be interesting, if more vaccinated or unvaccinated people get it. If this assumption is true, it would nor really be an illness.

[@renscience]

Vaccinated 2 times. Took me 2 months to get taste back and brain fog symptoms lasted at least a 1 month. Flu symptoms only lasted 3-4 days

[@davidkent2804]

I can attest that since I had it twice, (when that was supposed to be impossible) it was a once in a lifetime experience each time. I know how i got it both times and from whom. It felt more like I was being poisoned than fighting an infection. The headaches and near deliruim were incomparable to anything I've experienced before or since. Another member of my household got it at the same time, both times, and had precisely the same complaints. I think something like this takes it toll, long term. Why exactly this was so bizarre for so many may never be fully explained.

[@kebsis]

So strange how it effects different people differently. I had it three times and each time the only reason I knew was because someone I was in contact with tested positive and I went for a test.

[@pizzablender]

@@kebsis For me it was quite the fever for a few days, als a loss of taste that lasted for weeks (gradually recovering). And an elevated heart rate for a month of 2.

[@revpgesqredux]

Bioweapons be that way

[@catserver8577]

It was never impossible to get it more than once. There are no viruses that work that way. Whoever told you that was a nut.

[@DavidHRyall]

@@kebsis it's the vaccine that did the damage

[@Lemonz1989]

I’ve had it twice. The first time was the worst; one of the worst “flu-like” illnesses I’ve ever had. Afterwards I was insanely tired for weeks. At my worst, I slept 15-17 hours a day, over multiple sleeps/naps (sometimes 4 or 5 naps a day). The rest of the day I spent like a zombie, either lying in bed or doing the bare minimum maintenance of myself, like shower, brushing teeth, grooming and such. It slowly went away, and then I got it again and the tiredness started all over again. Thankfully it’s over now. The fact that I have type 1 diabetes, probably contributed to the severity of the illness and aftermath.

[@justsomenobody889]

I experienced the same; I have a portable infrared sauna (one of those cheap ones you can get on Amazon) so I tried it on the off chance that it helped. Not only did it help, it brought me back to normal in only two days. My mom was also having lingering loss of smell and kept testing positive.. two days of sauna and her smell came right back! May be late now that COVID’s been around, but maybe someone will benefit from the info

[@flagmichael]

@@justsomenobody889 MedCram has several videos about the positive effects of near-infrared light for COVID patients and for a number of other disorders. His advice is to get sunlight if possible, but that near-IR sources are a good alternative. No real down-side: safe, inexpensive, good for a wide range of disorders. I'm no expert but I think he's on to something there.

[@RamiRouhana]

Shouldnt the study group be split into vaccinated/ unvaccinated to see if the vaccine reduces the chance of long covid ?

[@adelinad3513]

Yes but there are only with doses in there so they would not want to shoot themselves in the foot

[@joyl7842]

I think the "lack of access to medical care" factor should not be underestimated when so many of these studies were restricted to the USA. If you ask me it should disqualify the data altogether.

[@mauriciolguin]

If we are rigorous, most of the scientific publications should be disqualified, specially in the medicine field.

[@ThatOpalGuy]

The vast majority of the earth's populace fits that demographic.

[@joyl7842]

My entire nation does not (The Netherlands).@@ThatOpalGuy

[@leighcoulson2148]

My daughter is suffering from long covid. She hasn't been able to work for over 3 years now and all her future plans are on hold. Many of the symptoms, including brain fog and fatigue are pretty debilitating. She has had help but it's still not good.

[@RBzee112]

Has she tried a ketogenic diet? It's shown positive results with autoimmune disorders. It could help with her symptoms.

[@abstuli]

My hypothesis is that ME/CFS, Long COVID and Post Lyme disease = Mast Cell Activation Syndrome (MCAS) . Same symptoms, same triggers, same PEM and same Common Co-diagnoses such as Allergy, Asthma, IBS, Fibromyalgia, POTS, ADHD, hEDS, Migraines, PTSD, Multiple Chemical Sensitivity (MCS), Interstitial cystitis (IC), Temporomandibular joint disorder ( TMJ), Restless legs syndrome (RLS).... There are many medications that can make most people with MCAS better. Scientific articles at NCBI. • Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast cell activation syndrome and the link with long COVID • Mast cell activation symptoms are prevalent in Long-COVID • Mast cell activation is associated with post‐acute COVID‐19 syndrome • Mast cell activation may explain many cases of chemical intolerance • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • The role of mast cells in migraine pathophysiology • The role of human mast cells in allergy and asthma • Substance P and mast cells: preliminary histologic analysis of the human temporomandibular joint • Evidence for the Role of Mast Cells in Cystitis-Associated Lower Urinary Tract Dysfunction: A Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network... • Restless legs syndrome is associated with mast cell activation syndrome • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • Successful Treatment of a Patient With Severe COVID-19 Using an Integrated Approach Addressing Mast Cells and Their Mediators • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers • Mast Cell Activation Syndrome: More than “just allergies”

[@sinopulence]

How many jabs did she have?

[@leighcoulson2148]

@@sinopulence She got covid before the jabs were available to young people but had three at intervals afterwards.

[@mhult5873]

I´m so sorry to read this. I hope your daughter gets better and I wish her and you all the best. Did the vaccin result in any improvement for her? I had long covid myself for at least 2 years, I got somewhat better after my second mRNA vaccine and then slowly better over time, or maybe after fourth mRNA vaccin. Did your daughter have many symptoms during the first time of the infection? Has she improved at all from the first months from infection? I do hope and wish all the best for her. Take care. Best regards

[@FranciscoSalas33]

Im 25, I lost 50% of my smelling and 25% of my taste… it sucks, but im still thankful I survived it. My best friend died from it…

[@adelinad3513]

Worst viruses are coming this decade. No vax would help against those

[@NedInYaHead]

My sense of smell took more than a year to come back fully - I could smell some things accurately and others not at all, but strong tastes/smells would "imprint" onto my nose for several months after experiencing them, and many things I couldn't smell would instead reek of it. For example, I ate a breakfast sandwich with way too much egg, and I tasted egg white randomly for about 4-5 months. Another time I took a shift washing dishes for a pub I worked at over the weekend, and suffered almost 9 months of smelling used cooking oil in random places. Luckily I eventually recovered, but it was not fun...

[@azcomicgeek]

I had COVID before the 1st vaccine was developed and had long COVID after that. I have had less severe COVID symptoms with 3 more infections. This latest variant was the most mild but still have brain fog, fatigue, and occasional arrythmia

[@Samathachavez-k1w]

@@azcomicgeek Hi dear Good afternoon. I hope my comment didn't sound as a form of privacy invasion your comment tells of a wonderful man with a beautiful heart which led me to comment I don't normally write in the comment section but I think you deserve this complement. If you don’t mind can we be friends? Thanks God bless you….🌺🌺🌺

[@josephbegley9148]

Thanks Sabine for the great video! I caught COVID for the first time about 11 months ago, and have been suffering from moderately severe persistent asthma ever since. As a side effect of COVID, I am now extremely sensitive to artificial fragrances found in shampoos and other common products. Recently, it was also discovered that I have chronic inflammation in my epipharynx (the part of the throat behind the nose), and there even be some kind of viral particles remaining there which are upsetting my immune system. I have begun treatments with an ENT, and hopefully my symptoms will improve over time.

[@flagmichael]

IIRC that is one area where there has been a lot of success against sequelae of COVID-19, retraining the nose to recognize particular odors. I wish you the best!

[@josephbegley9148]

Thank you!@@flagmichael

[@CG_Hali]

I've had chronic fatigue syndrome along with multiple chemical sensitivity for years. It is all because of the central nervous system being out of whack which is common in post-viral syndromes. I hope the ENT works but if it doesn't you might need to look at using less and less fragrances to try to stop the progression (which often happens). A trick I learned if you have issues with an overwhelming smell that seems stuck in your nose is to sniff ground coffee or coffee beans. They use that trick in the perfume industry when testing different smells. Really helps stop a coughing attack (if you are that sensitive). My brain's reaction to chemicals and fragrances is so extreme at times, yet I was the person who had every single product out there. The best is to try to reduce them as much as possible to avoid overwhelming your senses. What helped the most is we moved to the countryside and stopped using fragrance-ladder products. Icanbreathe masks sell carbon filters. That's the only way I can meet normal people who wear clothes with detergents without gagging or coughing.

[@josephbegley9148]

Thanks for the tips! I am already using fragrance-free natural soaps and clothing detergents, and found that very helpful. One other thing I noticed is that even if something is unscented, it can still set off my asthma if it contains alcohol or certain other substances.@@CG_Hali

[@ianokay]

I retrained my nose and it did work, but after Covid my favorite perfume smelled like burning tires (when it actually smells like a dewey flower shop). So did many others. I worked really hard at remembering what it smelled like, and it got to about 50/50 when I could smell it again. Now three years later, I think I very thankfully have my smell back as normal, but it took almost this entire time@@flagmichael

[@morscoronam3779]

I've wondered why it's called "gaslighting" for a long time, but I kept forgetting to look it up. Thanks for clearing that up for me. 😅

[@flagmichael]

It's a good movie, too.

[@jaymartin4166]

My wife in two days from COVID on her second time getting COVID. She was fully vaccinated when testing positive for COVID on 12/26, I took her to the doctor on 12/27 with blood oxygen levels of eighty. They sent her home without any treatment and told her to get some rest her lungs collapsed on the morning of 12/28 causing her death.

[@wileecoyote796]

Thank you, Sabine. This is a very important topic, and well presented.

[@ChadHowarth]

I'd be interested in seeing data concerning "long COVID" and vaccination. How many of the long COVID ladies were also vaccinated?

[@noremac4807]

Long cv and long vx are both real with intertwined symptoms. There is also research showing the negative impact of vx after infection. Just as real is trauma and the psychological damage for those who lost careers and homes for wanting to make their own informed medical choices. Just as real is the carnage to economies and livelihoods as a result of unscientific and draconian cv measures. Lastly, just as real is the censorship and banning of early treatments which could have avoided so much of this mess.

[@helensmith9153]

Doctors now working on Long Vax.

[@flagmichael]

Google to find US NIH report: "Prevalence of long COVID decreases for increasing COVID-19 vaccine uptake"

[@JakubWasikiewicz]

She mentions it in the video. 2 vaccinations reduced long COVID chances by 37%, 3 by 69%

[@de1018]

After having CoVid, I also experienced LC effects that, for my age and health, should not have seemingly come out of nowhere as they did.

[@lilia_spn]

i remember that i was almost bedridden after either my first or second covid infection. I was incredebly sleepy for almost more than a month after my infection. I couldn't work and couldn't go to my studies. I slept more than 15 hours a day and couln't get out of bed because i was so sleepy. I was scared and very worried. Fortunatley, that went away after more than a month... I still suffer from exessive sleepines sometimes.

[@scarletsletter4466]

This happened to me as well, & I’m a young women without preexisting condition as far as I know. I have never been so tired in my life. I would get sleepy & have to immediately lie down & was sleeping many hours. But yes it seems to have gotten better

[@TheGrinningViking]

Andreas Goebel, who I follow because of a study he led involving transfer of antibodies from fibromyalgia patients to mice (that proved pretty definitely it was an autoimmune disease) noticed certain similarities to long COVID and fibromyalgia patients. Performing the test using long COVID patients led to very similar results. These are still preliminary, of course, but I'd look into fibromyalgia treatments if you have long COVID. The symptoms based treatments are, at the very least, for the same symptoms. I also need to recommend the DNA tests for medication effectiveness for every chronic illness, regardless of which one it is, and before taking any kind of medication you will need to keep taking forever. Insurance companies approve them in the US because they save them a lot of money, but my own realization that I was part of the 0.4% that have a recessive gene combination that makes SSRI antidepressants do badddd things to my head 100% saved my life.

[@robertbeste]

I am SO happy you did this video, Sabine. I really thought all of this was just me. 2 -3 years after infection I still have issues with certain smells (Parasmia), headaches, significantly increased heart rate, and bouts of fatigue. I am happy this is starting to be recognized as something real. You're doing the good work, Sabine, and it is being noticed!

[@adelinad3513]

It's real but it's in majority of cases from the cure

[@paulharrisonadventuregearm5457]

B vitamins !!! Look at all the key functions in your body that need attention.. mitochondria, heart, neurological and take the vitamins that are relevant to those areas...that is key. Covid bottoms out so many key vitamins and minerals

[@Jrockilla137]

I appreciate how well-researched your videos are.

[@alihenderson5910]

Didn't watch, but citing the WHO is not research. Most here will die, still believing that the vaccines aren't the culprit. After all this time and evidence, I have zero sympathy.

[@nicholas50]

CDC and WHO is not research. This video is pure propaganda with no basis in science in fact. Sabine is a sellout.

[@flagmichael]

Great to see you address Long Covid! I'm not a sufferer but I see it as a significant problem for too many people, while also possibly being an opportunity for understanding general chronic fatigue disorders. As I have followed Gez Medinger's channel, I have learned that athletes seem to be particularly vulnerable. Again the methodology is not ideal, but respondents to one of his surveys indicated a remarkable number of them were fairly serious athletes, particularly half-marathoners, before COVID. It sure seems likely that COVID-19 will be endemic throughout most of the world, so understanding how to deal with it is going to be important.

[@mariaannafarrugia5374]

Long covid comes after the covid vaccine which most of us took.

[@harrynac6017]

I could imagine that a factor is, that a lot of athletes want to go back training too soon, but that's just a guess.

[@mauriciolguin]

Only time will tell. I still think that is just a matter of time that we will get a variant that either kill us or put in danger our lives.

[@andrewstrakele6815]

Repressed Emotions can play a role in Long COVID. I think you also hit on something important about Elite Athletes being susceptible to this disease. JUST ROB, a Marathon Runner, reports a Long COVID recovery on his Channel where dealing with his own repressed emotions was his major breakthrough. I believe repressed emotions and the Mind/Body connection play a larger role in more illness than the Medical Community is aware. It is what prevents the successful diagnosis and treatment of Chronic Fatigue Syndrome/ME, Long COVID, Fibromyalgia, Chronic Lyme Disease, MCAS, and POTS. The Allopathic Medicine paradigm requires identifying a symptom, then prescribing a drug to diminish that symptom to allow the Body to recover on its own. The myriad symptoms associated with these chronic dysfunctions of the Immune System confound Traditional Medicine. In addition, Standard medical tests often fail to identify a biological problem. The Chronic Stress from repressed emotions suppresses the Immune System and Digestion. It results in poor defense against pathogens and improper digestion, causing deficiencies of essential nutrients. These deficiencies may result in a Leaky Gut, allowing undigested proteins and pathogens to pass through the intestines and directly enter the bloodstream. A more cytotoxic reaction from a compromised Immune System can result in Food Allergies and Autoimmune Diseases. Besides repressed emotions, other causes of Chronic Stress include Loss of a Loved One, Divorce, a Bad Relationship, Loss of a Job/Financial Security, a traumatic Accident or Experience, Surgery, or Illness. Athletic Overtraining and Failure to allow enough time for the Body to Fully Recover is a less recognized cause of Chronic Stress. It explains the paradox of Elite Athletes with CFS/ME or Long COVID. Though they appear Fit, their Bodies may be compromised from poor Recovery from Overtraining. Type A Overachiever Personalities who frequently put accomplishments over their Health are also susceptible to these diseases. Many Elite Athletes are Type-A Overachiever Personalities. For those with long COVID or CFS/ME, the Fear of causing symptoms of a Relapse may be the greatest Chronic Stress of all. LifeWithKyle discovered if gave himself Permission to be sick without blaming himself and used Meditation to calm and convince his nervous system that he was safe, his symptoms would diminish. He offers Meditations specific to Long COVID on his Channel. Those with Leaky Gut due to essential nutrient deficiencies may also develop a Leaky Blood/Brain Barrier, allowing foreign proteins and pathogens to enter the Brain. There, the compromised Immune System response causes inflammation in the Brain, leading to dysfunction of the Autonomic Nervous System, Brain Fog, Migraines, Depression & Anxiety, and other neurological conditions. Repressed emotions 👉chronic stress 👉compromised Immune System & essential nutrient deficiencies 👉 Leaky Gut, Leaky Blood/Brain Barrier appears to be the progression leading to Food Allergies, Autoimmune Diseases, and finally, a complete breakdown of the innate Immune System. Viruses, bacteria, molds, and parasites being held in remission will come out of their dormant state and cause symptoms, some similar to an acute infection of SARS-CoV-2 or Lyme Disease. In addition, a heightened sensitivity to environmental toxins, chemicals, or heavy metals may further complicate the overall illness. Developing pharmaceuticals to diminish some of the resulting symptoms can be helpful, but they will fail to address the root causes of repressed emotions, chronic stress, compromised Immune Systems, or essential nutrient deficiencies. A Change in Attitude is typically what is required to deal with repressed emotions or changing a Type A Overachiever Personality. Lifestyle Changes such as the Mind/Body approach (such as you used), improved Sleep Habits, Meditation & Breathing Techniques, followed by paced light Yoga or Exercise when the patient is ready, can be useful in Stress Reduction. A non-inflammatory, low carb, whole foods Ketogenic Diet with Intermittent Fasting and occasional Prolonged Fasting combined with Supplementation of essential nutrients can help reset the Immune System, eliminate essential nutrient deficiencies, and repair Leaky Gut and Leaky Blood/Brain Barrier. Changes in Attitude and Lifestyle Changes can be implemented immediately at little cost. They can also be used in conjunction with pharmaceuticals taken to diminish symptoms. They are necessary to address the root causes of the diseases resulting from chronic Immune System dysfunction.

[@ExecutionSommaire]

@@harrynac6017 high intensity efforts weaken your immune system I think

[@wolcek]

Sabine, I'm impressed. Much less after the nVPN ad.

[@hankseda]

Medical gaslighting... As i get older doctors seem to be practicing it more whenever I visit them.

[@E.lectricityNorth]

It's not always gaslighting any more. Realize that most doctors immediately jabbed themselves and their office staff. Next, they pushed it on their entire families. And then they pushed it obediently on their paying patients. So now there is an epidemic of guilt. Lots of broken spirits and minds nowadays.

[@MauriceOfInfiniteAtrocities]

Overworked and stressed drs has definitely caused a massive decline in healthcare quality, I wonder if the dismissal of symptoms is apart of that, or if it’s caused by other factors.

[@hankseda]

@@MauriceOfInfiniteAtrocities I would add dealing with an insurance industry that tends to pay as little as possible and the fear of lawsuits to the list. The motto may have become "the less I do or say the easier and safer it is for my practice".

[@raincheck5892]

Long Covid has completely turned my daughters life upside down, but she has had terrible experiences trying to get doctors to listen to her. It has gotten better with the doctors but not by much. Thank you so much Sabina for posting this, I appreciate you very very much

[@markvietti]

it is the MRNA vaccine that did it. not covid

[@vladimirseven777]

The same. Reaction of doctors on Pfizer side effects - "this is impossible". I wonder how they got everyone in 5000 (0.02%, Ukraine's numbers are one in 500) if medics ignoring symptoms. My ex working as therapist in LA and never heard of Pfizer side effects from CDC.

[@mauriciolguin]

That's a problem with doctors. Anyways there's not too much they can do. I've been in this situation and it's very frustrating.

[@ThatOpalGuy]

​@roymcintosh7983please maga...

[@flagmichael]

@@mauriciolguin In fairness, there is nothing that is known to work well enough to include in treatments.

[@ThomasHeyen]

Gold, as always! Great choice of topics and well presented. I hardly stay during lengthy videos somewhere else. But yours are worth the time. 😊

[@AdoptionLawSourceTrinity]

Thank you, Sabine, for bringing this to your audience. Long covid is real. Unfortunayely, the severity, symptoms and duration vary so much that it's hard to pin down. Thankfully, my doctor is up to date on the research and took me seriously.

[@DanielSMatthews]

Meanwhile nine years ago researchers had already uncovered a very inconvenient truth, see _"Chronic fatigue syndrome and fibromyalgia following immunization with the hepatitis B vaccine: another angle of the 'autoimmune (auto-inflammatory) syndrome induced by adjuvants' (ASIA)"_ There is no proof that "Long COVID" is real because covid infections are not the only probable cause of the observed symptoms.

[@DavidHRyall]

Vaccine damage is easy to pin down

[@adelinad3513]

If he is provax then he is not up to date with real research just another yes man

[@dan-bz7dz]

So is vaccine damage

[@flagmichael]

My loved ones and I have been lucky enough to escape Long Covid, mostly by not getting COVID. In our house we have an immune suppressed middle-aged son who wasn't able to be vaccinated; he got COVID last month. The same autoimmune problems that led to being immune suppressed made COVID a real threat, but a single course of Paxlovid knocked it down. He seems to have escaped the LC nightmare. I think Gez Medinger's channel is the best source of LC info on KZbin.

[@Meditation409]

I'm so glad you covered this Sabine! I have long COVID and it's been 6 months

[@Samson1981-ks4xc]

Sorry to hear. Did you take the Jab?

[@Meditation409]

I got the vaccines and the booster shots

[@flagmichael]

@@Samson1981-ks4xc It is interesting to note that in the US there have been 676,728,782 doses administered, and from those there have been 12,898 cases opened with the Countermeasures Injury Compensation Program (CICP). That represents one case for every 52,467 doses administered. Of those, fewer than a thousand complaints mentioned dysautonomia. That means fewer than one in 50 million vaccine doses produced complaints that included dysautonomia. For an understanding of the scale, the average life expectancy in the US today is 43 million minutes. Unvaccinated people are more heavily represented in Long Covid cases because if people don't get COVID they don't get Long Covid. You would be wise to stop falling for internet hoaxes, especially when your health is at stake.

[@abstuli]

My hypothesis is that ME/CFS, Long COVID and Post Lyme disease = Mast Cell Activation Syndrome (MCAS) . Same symptoms, same triggers, same PEM and same Common Co-diagnoses such as Allergy, Asthma, IBS, Fibromyalgia, POTS, ADHD, hEDS, Migraines, PTSD, Multiple Chemical Sensitivity (MCS), Interstitial cystitis (IC), Temporomandibular joint disorder ( TMJ), Restless legs syndrome (RLS).... There are many medications that can make most people with MCAS better. Scientific articles at NCBI. • Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast cell activation syndrome and the link with long COVID • Mast cell activation symptoms are prevalent in Long-COVID • Mast cell activation is associated with post‐acute COVID‐19 syndrome • Mast cell activation may explain many cases of chemical intolerance • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • The role of mast cells in migraine pathophysiology • The role of human mast cells in allergy and asthma • Substance P and mast cells: preliminary histologic analysis of the human temporomandibular joint • Evidence for the Role of Mast Cells in Cystitis-Associated Lower Urinary Tract Dysfunction: A Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network... • Restless legs syndrome is associated with mast cell activation syndrome • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • Successful Treatment of a Patient With Severe COVID-19 Using an Integrated Approach Addressing Mast Cells and Their Mediators • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers • Mast Cell Activation Syndrome: More than “just allergies”

[@sinopulence]

​@@Meditation409Of course you did. That's the point.

[@jordanschriver4228]

"...it's psychologically difficult to cope with having your life turned upside-down." Thanks, Captain Obvious.

[@terrywbreedlove]

I had a family member suffer Long Covid for a long time. Really messed up his lungs. A friend the same thing but she healed after about three months. A friend survived Covid but died a week later with Pneumonia. Another complained being tired and bad memory and slow thinking he said. He seems to have recovered fully now. All of them with Delta infection.

[@InfiniteNallidge]

All vaccinated too I am guessing. Weird how that happens

[@terrywbreedlove]

@@InfiniteNallidge Nope not a single one Vaccinated. And in fact my school hood friend who died with Pneumonia after Covid Infection. He was not Vaccinated but his wife was fully Vaccinated. She still hasn’t gotten Covid or had a single issue with the Vaccine. And she lived with him through it all. Same with their kids who are in their 30’s fully Vaccinated and visited a couple times a week. Thats just how it is.

[@InfiniteNallidge]

@@terrywbreedlove Li3s

[@InfiniteNallidge]

@@terrywbreedlove So everyone who has long Covid or who died was unjabbed. Yet their families who were jabbed have no long Covid, Covid infections or died? Riiiiiiiiiight. Sounds like a load of horseshit. I think you got that brain fog.

[@richtaylor7346]

​@@InfiniteNallidgeThere's no hope for them now. Stopped wasting my time.