Understanding Long COVID: What Every Patient Needs to Know

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UT Health Austin

UT Health Austin

Күн бұрын

Пікірлер: 624
@jhammy496
@jhammy496 8 ай бұрын
As a fellow MD, unfortunately suffering from Long Covid since 2021, sincerest thanks for the presentation. It is well overdue to have other MD's acknowledge this horrible disease. It is still far from having mainstream acceptance in the medical community, but you are helping that cause!!!
@dermotfitzpatrick5045
@dermotfitzpatrick5045 8 ай бұрын
That you Considered Betaine TMG?
@partdeux992
@partdeux992 8 ай бұрын
As a fellow sciency person - is it LC or an overexaggerated bodily response to the rus due to ur likely 2-3 sh0ts? something to think very, very carefully about. merging all these into one thing - LC - is not helping the patients. Get your IgG4 and microbiome checked. you are probably super low in bifido/lacto. good luck.
@partner230
@partner230 7 ай бұрын
Move MD from your name? Its Not long Covid??? Its Vaccine Injury.! Almost everyone knows this but you MD's are just protecting your asses by still lying!!!!! Thats a fact
@jeanbuchanan1660
@jeanbuchanan1660 2 ай бұрын
Just when the jabs appeared
@kakhipudhi
@kakhipudhi 9 ай бұрын
'Believe the patient'. Thank you.
@6rey6oose
@6rey6oose 4 ай бұрын
Sounds a lot like nocebo, somatic disorder, or a similar affliction. These are not well served if a doctor just believes the patient and can make the problem worse.
@kakhipudhi
@kakhipudhi 4 ай бұрын
@@6rey6oose Believe the patient when they say something is wrong and help to find out where. The doctor is the medical expert but to dismiss the patient, as has happened so many times to Long Covid and CFS/ME sufferers is to ignore an import piece of data.
@6rey6oose
@6rey6oose 4 ай бұрын
@@kakhipudhi Yes but there often isn’t anything medically wrong with a patient. The mind is really powerful if you think you’re really sick you will act like it. By agreeing a doctor is only helping them go down rabbit holes.
@kakhipudhi
@kakhipudhi 4 ай бұрын
@@6rey6oose Are you actually saying that long covid does not exist? Are you actually saying that CFS/ME is just a hallucination?
@6rey6oose
@6rey6oose 4 ай бұрын
@@kakhipudhi Well according to the research it happens with all illnesses so long covid is a misnomer. Chronic pain is often perpetuated by the mind, so no amount of medication can’t help, but to them it is very real. Doesn’t mean it doesn’t exist and that it doesn’t need to be treated. Just that it needs to be treated differently than a physical injury like a broken leg.
@CS-xs7zw
@CS-xs7zw 9 ай бұрын
I’m in my mid 20s. I was in my best physical and mental shape ever. Just got my pilots license, I was riding a high I’ve never before known in life. All my dreams and plans were finally going to work! Two weeks later I got covid. My life has never been the same since. I am 7 months on. I have half the energy I used to. Most days I am too tired to really do all that I need to go get better in my life. I am mentally not the same sharp mind I once was. But I think more than anything else I lost the confidence that made me who I was. Hard to be confident when you body sweats 24/7 like you have a fever. I’m not religious but I pray often that this goes away. I just want my life back. What I had before. I never realized how lucky I really was to just be normal. I’m so tried, I just want it to stop.
@karenwest9583
@karenwest9583 8 ай бұрын
😢 me too
@Dr-386
@Dr-386 8 ай бұрын
Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD that’s done vaccine research, so you can imagine my frustration.
@dermotfitzpatrick5045
@dermotfitzpatrick5045 8 ай бұрын
Betaine TMG 500mg 30 mins before breakfast, dinner & evening meal, increasing as tolerated to 500mg with breakfast and evening meal & 1 gram with dinner for 2 weeks. Talk to your doctor before considering
@renaissance5300
@renaissance5300 8 ай бұрын
you are not alone I have lyme and long cvid horrific all the best to you
@lynnienorris5776
@lynnienorris5776 8 ай бұрын
Me Too
@cw-rt9fc
@cw-rt9fc 10 ай бұрын
I'm sitting here crying right because this is literally my life right now 😢
@RoyJones-nx6zi
@RoyJones-nx6zi 9 ай бұрын
What symptoms you got?
@KarinSchweizer-b4g
@KarinSchweizer-b4g 9 ай бұрын
Me too
@brendabrenner2891
@brendabrenner2891 9 ай бұрын
Same here.. 3years in
@blumufn
@blumufn 9 ай бұрын
Exactly! My life since March 2020
@illusion7223
@illusion7223 9 ай бұрын
Mine too..first time I came across a video explaining my symptoms
@teripeterson5709
@teripeterson5709 11 ай бұрын
Ive been diagnosed with CFS/Post viral fatigue syndrome from a Rheumatologist Dr after having Mono/EBV in 2020! Havnt worked since 5/21. Still waiting on getting approved for SSDI. Living with ME/CFS IS NOT REALLY LIVING THANK YOU FOR FINALLY TELLING THE WORLD THAT THIS ILLNESS IS REAL
@jewelleryaddict
@jewelleryaddict 9 ай бұрын
So true after 30 long years, the best years of my life stolen by some invisible illness now the covid people understand how we felt all these years . Put down made fun of ridiculed it's all in our heads. BS.
@Gina-dn6xm
@Gina-dn6xm 11 ай бұрын
What the doctor said is true; post vital conditions have been around for a long time. It's too bad that the medical establishment has ignored the post viral patients in the past, even pushing them off as being psychological in nature. Now that thousands of people have come down with long covid, suddenly the medical community is paying attention. The years lost on progression are sad. We could have been further ahead if attention, which would have been paid to chronic lyme, chronic fatigue, and reactivated Epstein Barr.
@TheresaJacobs-f5e
@TheresaJacobs-f5e 11 ай бұрын
You are correct
@1961-v9k
@1961-v9k 10 ай бұрын
Absolutely true. In 1980 at the age of 19 had a bad flu. I was flat on my back for nearly two weeks, and had to sleep with my mum. I was already very skinny but lost 10 pounds in weight. It took me nearly one year to feel normal again, especially mornings. My taste was also affected where everything tasted differently for a long time.
@jewelleryaddict
@jewelleryaddict 9 ай бұрын
Yep 30 years in and no disability. Such a tragedy life stolen from us with CFS while we were/are still alive. Not many can comprehend the horror of such a painful life both mental and physical. To watch life go on around us while we stand still.
@omCi
@omCi 11 ай бұрын
People have already lost their houses and jobs. When will this be considered disability so we can get some help?
@tgm2754
@tgm2754 11 ай бұрын
Yes! I have private disability insurance that I have paid for at least 20 years. My primary doctor will not sign the papers. He does not have enough info to call it long Covid syndrome. Tests show shows that the EBV is active and kicking my butt. Actively looking for new Primary but endocrinologists are few and not taking new patients. The fatigue is epic. The fainting is annoying. The breath hunger is real. Ugh! 18 months of this awful nonsense.
@northernflicker1111
@northernflicker1111 11 ай бұрын
​@@tgm2754 find a long covid clinic, they are much more aware and sympathetic. Still havent been approved for disability though 😢
@pauladime6307
@pauladime6307 11 ай бұрын
I’m so very sorry😢
@islandbirdw
@islandbirdw 11 ай бұрын
Right when will we have a conversation in America that addresses the huge disibility as a result of Covid-19?
@omCi
@omCi 11 ай бұрын
@@islandbirdw politicians are too busy, turning us against each other to make any helpful laws. I’m personally not holding my breath. However, soon this will become a new epidemic and once it starts impacting economy and large businesses, they will have to do something about it. It will probably take years before this happens.
@elizagray1397
@elizagray1397 11 ай бұрын
NOOOOOOOO many of us have severe lung and heart damage and we WERE NOT hospitalized. In winter/spring March 2020 we were refused care, not tested, not admitted to hospitals . told we had anxiety. This is well documented the damage those of us who werent hospitalized have
@kimbo1414
@kimbo1414 10 ай бұрын
Indeed
@islandbirdw
@islandbirdw 10 ай бұрын
Back then we had no idea what was going to happen. As a retired veteran RN in the US 30 years and much of that was critical care in teaching hospitals. How many years have chronic fatigue or even lupus years ago. In my opinion it’s unacceptable that we have no plan to coordinate and stop the next pandemic that’s coming soon. We left people to their own defenses snd couldn’t even test accurately or people were turned away from hospitals and clinics. I myself was caught when I saw these Chinese posts showing people fully clothed passed out on the street dead. YT was censuring anyone who mentioned CV in their content. I happen to have a N-95 mask I was fit for when I was working in a local hospital. I found it in my office at home and started wearing it in public on my BD Jan 20. It’s been my observation however that we have been warned for DECADES something like this was coming. We as a world must be able to agree on how to handle the next contagion. I was lucky I got an attenuated case of Cv-19 9/22. I took Vitamin D, low dose Aspirin twice a day, nattokinase and the usual respiratory hygiene and I was lucky I don’t think I have long Covid. It is the reason however I have been masking again indoors in public. I feel it’s a tool I’m able and willing to use at my own discretion. We could have managed this contagion so much better IMO. It’s decimated American healthcare which was in pretty bad shape to begin with.🤷🏼‍♀️
@elizagray1397
@elizagray1397 10 ай бұрын
leaving out the heart and lung damage that people who caught covid and had a mild initial infection who were very fit is something that can be changed right here right now beginning with this inaccurate video. doctors not believing and listening to patients is something that has to change right here and right now. @@islandbirdw
@elizagray1397
@elizagray1397 10 ай бұрын
dx people with anxiety instead of having basic medical knowledge that viruses can cause heart damage is medical neglect. medicine change from a healing art to a factor business. much of this precedes the pandemic. @@islandbirdw
@triciaweldo6634
@triciaweldo6634 10 ай бұрын
​@@islandbirdwexactly long covid is on the ME website same symptoms and onset after viral infection if more had been researched on these conditions there would be a treatment for long covid now but these sufferers did not even have clinics were not believed I once asked a health care practitioner whom I suspected did not believe in the condition.."well if it is not a condition Then how come it's got a name I was told by a consultant you referred .me to what was wrong with me I did not tell myself He did not answer me bout asked me to find another Dr because I was out of his catchment area I had been with this practice from I was a child relieved this news in the same envelope as a result of heart scan with findings of a regurge on the aortic heart valve which was ordered after my family paid for me to see a top consultant which this Dr was not happy about saying I could have referred you to specialist I said after 8yrs of this condition your only telling me that now well the money has been paid that was back in early 2000s hence still got ME now so sounds like nothings changed in 24yrs people need to stick together globally and demand better treatment care and research because it will happen again there is plenty of knowledge on tests and how to look after patients suffering after viruses I've listened to lectures of Dr's who cured themselves wanting a global data base allowing this information to be accessed instantly on line by all primary health care practitioners How brilliant that would be for patients
@MissHellable
@MissHellable 11 ай бұрын
Coming up on 4 years since first infection, long covid started a few months later. Was healthy before, now have PEM, POTS, inflammation and neuro issues. Glad to see some progress in the research, but as mentioned in comments, it really needs to be considered a disability.
@dermotfitzpatrick5045
@dermotfitzpatrick5045 11 ай бұрын
Consider talking to your doctor about taking Betaine TMG. Studies have shown that COVID-19 patients have increased levels of numerous inflammatory cytokines, including IL-1β, IL-2, IL-6, IL-10, IFN-γ, TNF-α, IFN-γ. Betaine lowers these key cytokines. Studies looking at the spike protein of the virus found that it triggers a hyper inflammatory T Cell immune response via TLR4 proteins. Betaine inhibits TLR4 proteins. Male Covid patients with severe Covid were found to have low or severely lower testosterone levels. Testosterone helps regulate systematic inflammation. Betaine temporarily increases circulating testosterone. Betaine also has anti inflammatory and anti thrombotic properties and lowers both cortisol and homocysteine levels. The virus maybe intentionally triggering this hyper inflammatory T Cell immune response in order to stimulate excessive release of cortisol to counter act the inflammation as cortisol can disrupt the immune response to infection by disrupting pathogen presentation pathways in dendritic cells and suppress IL-8 cytokines. Il-8 cytokines in a form of TB were found to bind to the infection and stimulate CD4 and CD8 T Cells to the site of infection. This effectively would disrupt the primary immune response. Cortisol can also lower circulating testosterone needed to regular systematic inflammation. Betaine TMG in high doses ie 4mg per day or more can increase blood cholesterol levels and cause diarrhoea so consult with your doctor before considering. I hope this information helps
@jewelleryaddict
@jewelleryaddict 9 ай бұрын
Well those of us with CFS have same symptoms and get no help no disability been 30 years for me. Hope not that long for you to get help.
@Zebragirl1111
@Zebragirl1111 8 ай бұрын
Exactly how my life is playing out after COVID. Exactly 4 years here too, long COVID started 3 months later. I was told your ok, just a respiratory infection. After that, was told There is nothing wrong with you. Oh yes there is, but nobody cares.
@Dr-386
@Dr-386 8 ай бұрын
Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD that’s done vaccine research, so you can imagine my frustration.
@Oliver-jp7kl
@Oliver-jp7kl 7 ай бұрын
@@Dr-386look into EMF remediation
@theresar7611
@theresar7611 9 ай бұрын
I finally feel heard and seen. I got hit hard with covid summer of 2022, prior to this I was super active and healthy, since I am a changed person, both mentally and physically, I can no longer walk up a set of stairs, severe depression. I'm currently on a medical leave because I can no longer work. I'm 37 female. Its crazy. And no doctor listens. Thank you so much for the work you are doing on this.
@Dr-386
@Dr-386 8 ай бұрын
Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD (female) that’s done vaccine research, so you can imagine my frustration.
@rosemaryhux654
@rosemaryhux654 7 ай бұрын
8 in😅​@@Dr-386
@DJ_Dutchess
@DJ_Dutchess 5 ай бұрын
It's been since Jan 2022 for me. My memory and executive functioning is coming back. I asked my dr about omega 3s and he recommends sardines 3x a week. They are gross but I choke them down and I swear that they have helped. I also got a dog that I'm training as my service dog. He's helped me be social again and got me back out in the world. Guided meditations on KZbin help both to sleep and just for depression and anxiety that come with a chronic illness. I also started taking daily vitamins and focusing on eating for nutrition. Kefir is high in natural probiotics. That has helped too. No matter what, do not lose hope. Just add one small thing to help in your recovery both physically and mentally. ❤️‍🩹🫂
@andyac6200
@andyac6200 11 ай бұрын
6 months in, still struggling with fatigue, brain fog and chest pains, 5 month's ago i felt like my body was shutting down...blood pressure was of the dial and i had a feeling of impending doom.
@Lolmanadam22
@Lolmanadam22 11 ай бұрын
i feel you brother, same exact timeline... i never comment on youtube but i resonated with this.
@dermotfitzpatrick5045
@dermotfitzpatrick5045 11 ай бұрын
Consider talking to your doctor about taking Betaine TMG. Studies have shown that COVID-19 patients have increased levels of numerous inflammatory cytokines, including IL-1β, IL-2, IL-6, IL-10, IFN-γ, TNF-α, IFN-γ. Betaine lowers these key cytokines. Studies looking at the spike protein of the virus found that it triggers a hyper inflammatory T Cell immune response via TLR4 proteins. Betaine inhibits TLR4 proteins. Male Covid patients with severe Covid were found to have low or severely lower testosterone levels. Testosterone helps regulate systematic inflammation. Betaine temporarily increases circulating testosterone. Betaine also has anti inflammatory and anti thrombotic properties and lowers both cortisol and homocysteine levels. The virus maybe intentionally triggering this hyper inflammatory T Cell immune response in order to stimulate excessive release of cortisol to counter act the inflammation as cortisol can disrupt the immune response to infection by disrupting pathogen presentation pathways in dendritic cells and suppress IL-8 cytokines. Il-8 cytokines in a form of TB were found to bind to the infection and stimulate CD4 and CD8 T Cells to the site of infection. This effectively would disrupt the primary immune response. Cortisol can also lower circulating testosterone needed to regular systematic inflammation. Betaine TMG in high doses ie 4mg per day or more can increase blood cholesterol levels and cause diarrhoea so consult with your doctor before considering. I hope this information helps
@jasonlax2102
@jasonlax2102 10 ай бұрын
How are u feeling now
@andyac6200
@andyac6200 10 ай бұрын
@jasonlax2102 Things are improving, I'm back at work and can get around more without heart palpitations and much chest pain, I've had no brain fog or headaches for 3 week's. I was extremely fit before I had covid....so looking forward to gradually getting back into exercise.
@jasonlax2102
@jasonlax2102 10 ай бұрын
@@andyac6200 thanx God good to hear may god heal u completey I'm now 13 month from covid and its getting better but very very slow I'm angry all the time I'm slow moving I can't play my drums for more then 15 min but half a year ago I thought I'm not going to make it I was having panic attack heart papiltatoins and just sluggish hopefully I will start recovering faster the further I get from the virus
@baazooka2
@baazooka2 8 ай бұрын
This guy is an absolute BRO of an MD, from long covid patient going on 3 years. Thank you.
@partner230
@partner230 7 ай бұрын
Ts vaccine injury! NOT long Covid? Geebus wake the hell up
@tinatina5046
@tinatina5046 4 ай бұрын
me too.. its been 3 yrs now..😢
@ylvaeriksson4042
@ylvaeriksson4042 11 ай бұрын
This should be spread around the world to all medical doctors! Even if we do not yet have a cure or a clear duagnostic tool, we DO have proof that the fatigue and nervous system problems are real issues, not something that we patients creates by being afraid of the symptoms, wich most doctors I have met seems to think. It is NOT ”all in your head”!
@TRyanBenoitMusic
@TRyanBenoitMusic 10 ай бұрын
For sure. Been to 20+ visits with several practitioners and doctors in 2 states. Have been feeling horrible over a year. Started when living in a moldy house and stress from life and spinal pains. Yet to have a clear diagnosis. Or anything close. New pcp keeps gaslighting me saying it’s mental. Only referral he will give is to mental health counselor, who after 3 meetings still thinks it’s a nuero issue vs straight depression. The health care system is broken. The whole work 40 hours a week, pay taxes life style is a joke to me after doing that for 19 years. Never thought I’d have chronic health issues at 34. Had to close my business down, couldn’t work for a year. Started working 3 months ago at a company doing lighter duty work, tho at the point where I may have to quit due to the extreme fatigue, brain fog, memory and balance issues. Have had eye floaters for 10 months, ear aches for the same and tinnitus started a month ago. ENT just says Eustachian tube disfunction and had me doing Flonase for 6 weeks and counting. Such poor diagnostic skills in the health care world.
@AnnieLove-ru8pm
@AnnieLove-ru8pm 5 ай бұрын
​@@TRyanBenoitMusichow are you now? I've similar story. Moldy house, stress then covid made it all worse
@darlasue15
@darlasue15 11 ай бұрын
Great description! This is spot on for my symptoms of long covid. I've been in all 3 frameworks as time moves on. I'm still trying to recover almost 3 years later.
@Vidis88
@Vidis88 10 ай бұрын
3.. 🙁
@KathyPendziwater-dj1sc
@KathyPendziwater-dj1sc 9 ай бұрын
Me, too.
@matthewstreacker7402
@matthewstreacker7402 7 ай бұрын
I rarely hear doctors with this level of detailed knowledge or openness in America. You’re here for every patient and sound like the doctor to hear everyone’s concerns instead pf the type that says “oh you’re just whining” and ignores the patient’s needs
@bikeaddictbp
@bikeaddictbp 10 ай бұрын
Great video, thanks for putting this out there. It is just short of 2 years since omicron got me. Your descriptions of the fatigue and related issues are spot on. A few months ago, I started exercising again (and I couldn't really do so prior to that, due to "energy crash" - been through a few of those). I am now at a point of walking 30 - 60 min per day, and just getting back on my bicycle. For others going through this ... there is hope ... slooooowly start doing things and get a feel for how much you can do without having an "energy crash".
@giovanazimermmane
@giovanazimermmane 9 ай бұрын
Hi. It's good to see some hope. How did you treat this? When did you stop having the crash?
@bikeaddictbp
@bikeaddictbp 9 ай бұрын
@@giovanazimermmaneNo particular treatment - none available. I just developed a feel for how much I could do in a day and gradually worked up from there. Been two years as of this week ...
@bennyb.1742
@bennyb.1742 9 ай бұрын
Right on!
@cadacual9822
@cadacual9822 9 ай бұрын
Thank You for join your experience. It is hope¡
@HurricaneQueen777
@HurricaneQueen777 7 ай бұрын
Thank you so much for making this video because I am in the process myself right now of trying to make things work with my job, and I’m so thankful for my employer who continues to stand by me in a world full of heartless ones. Please continue to educate the public about this as well as healthcare providers of all kinds because this disease deserves a cure too!! My heart goes out to everyone who is suffering with this like me! We got this!🎉❤
@jesusislife345
@jesusislife345 3 ай бұрын
Thank you for addressing this issue. I have been suffering from long covid since 2022 when I was sick with covid for 4 weeks. My life has changed drastically. To the point where I was not able to speak because I forgot what to say when I am speaking with someone. I am suffering from dislexia, I never had any issues spelling words, this has made my job very hard, thank God for the spell check. I hope more doctors become aware of all this symptoms. All this happened after Covid. Please believe the patient!!
@samanthatully2018
@samanthatully2018 6 ай бұрын
Thank you from the bottom of my (broken) heart. Just such a perfect video. Now to share it to the disbelievers
@yvonnemontiel295
@yvonnemontiel295 8 ай бұрын
Thank you Dr. Brode! I’m grateful to be one of your long COVID patients!
@brendabrenner2891
@brendabrenner2891 5 ай бұрын
Have friends in AUSTIN, AM IN RI, does he take new patients.. wish I could get there🙏♥️
@Mau365PP
@Mau365PP 11 ай бұрын
What patients need to understand is that their lives are ruined and nobody cares 😢
@TheresaJacobs-f5e
@TheresaJacobs-f5e 11 ай бұрын
I have to agree . I feel Like crap everyday and nothing is wrong with me ???
@amyff294
@amyff294 10 ай бұрын
😢😢you are right
@jewelleryaddict
@jewelleryaddict 9 ай бұрын
That’s what happened to us with cfs. Been 30 years of this hell for me. We were made fun of called yuppie flu was no flu. No research worth anything done never money for it. We’re told all in our heads . We have every symptoms that Covid people have. Never got disability. All tests were normal the few they did way back. Every day you wake another symptom to replace the one you had last week. It’s like wack a mole trying to get the body’s symptoms straight enough to have a near decent hour. I sure hope you are not writing 30 years from now to the next group of test rabbits about your Covid like I am about my cfs and nothing done to help. All the meds had worse side effects they gave us and made more problems, I stopped all of them. Sure hope all of you get the help you deserve. We didn’t.
@jewelleryaddict
@jewelleryaddict 9 ай бұрын
But they will say you look fine, same as ever, as if looking good has anything to do with feeling good.
@rowaneisner6802
@rowaneisner6802 6 ай бұрын
what Drs need to understand...
@puremaledark8305
@puremaledark8305 Жыл бұрын
Pretty much hit the nail on the head. At least, as best you can. I tried everything under the sun to get better and the only thing to make a difference is time.
@StephanieAlice
@StephanieAlice 11 ай бұрын
And histamine free diet acupuncture brain retraining no sugar gluten dairy for anti-inflammatory benefits all helped me go from bed bound to working. Still battling. Thank you vaccine. It’s not just a virus. Anytime the immune system is provoked you can get these symptoms. It isn’t new. This happened with the HPV vax too. Doctors need to wake up and know the down sides to be allowed to administer these shots.
@mamaslomba
@mamaslomba 11 ай бұрын
Same here. It has been 2 very miserable years.
@crescentbeach691
@crescentbeach691 7 ай бұрын
This was so good for me to watch. I've asked my partner to view it and give their opinion, based on observations of me, post covid. You have both a supportive and informative presence in your video. Thanks so much for taking the time and effort!
@boodrowwilson1894
@boodrowwilson1894 10 ай бұрын
Have long covid for 3 years and wonder if im even going to be able to work or what's going to happen to my life at this point.
@decafmocha211
@decafmocha211 9 ай бұрын
So sorry for you. I'm in the same boat with 3 years of it. The brain fog causes horrible depression and anxiety. So scary.
@NRCave1
@NRCave1 8 ай бұрын
Yes, 4 years for me. 💔🌻
@flagmichael
@flagmichael 6 ай бұрын
I have been spared, but I consider Long Covid to be the worst medical problem of the decade; worse than COVID itself.
@lyesterday
@lyesterday 11 ай бұрын
I have had long covid for more than a year now and this video was so informative and nice to listen to. Thank you so much.
@dermotfitzpatrick5045
@dermotfitzpatrick5045 11 ай бұрын
Consider talking to your doctor about taking Betaine TMG. Studies have shown that COVID-19 patients have increased levels of numerous inflammatory cytokines, including IL-1β, IL-2, IL-6, IL-10, IFN-γ, TNF-α, IFN-γ. Betaine lowers these key cytokines. Studies looking at the spike protein of the virus found that it triggers a hyper inflammatory T Cell immune response via TLR4 proteins. Betaine inhibits TLR4 proteins. Male Covid patients with severe Covid were found to have low or severely lower testosterone levels. Testosterone helps regulate systematic inflammation. Baroness temporarily increases circulating testosterone. Betaine also has anti inflammatory and anti thrombotic properties and lowers both cortisol and homocysteine levels. The virus maybe intentionally triggering this hyper inflammatory T Cell immune response in order to stimulate excessive release of cortisol to counter act the inflammation as cortisol can disrupt the immune response to infection by disrupting pathogen presentation pathways in dendritic cells and suppress IL-8 cytokines. Il-8 cytokines in a form of TB were found to bind to the infection and stimulate CD4 and CD8 T Cells to the site of infection. This effectively would disrupt the primary immune response. Cortisol can also lower circulating testosterone needed to regular systematic inflammation. Betaine TMG in high doses ie 4mg per day or more can increase blood cholesterol levels and cause diarrhoea so consult with your doctor before considering. I hope this information helps
@alexandrecarlu7002
@alexandrecarlu7002 3 ай бұрын
Hi. I'm watching from France and suffering long COVID. Thanks for these clear and simple explanations.
@MrHerks
@MrHerks 11 ай бұрын
Started 2 weeks post infection. Been a year of horrible myopathy, weakening lungs, worsening fatigue, joint pain, fogginess, neurological problems, and being told all my labs look great, get some exercise and sleep more. Meanwhile I went from hiking 50 miles on weekends to having trouble walking up the stairs, there’s not much left for me anymore and I’m close to just ending the suffering
@danielsetia9632
@danielsetia9632 11 ай бұрын
Don’t give up, I’m dealing with it too. It’s frustrating. I wish you the best.
@jasonlax2102
@jasonlax2102 10 ай бұрын
I have long covid for over a year and its finally getting a little better
@MrHerks
@MrHerks 10 ай бұрын
@@jasonlax2102 that’s great to see! I feel like mine might be as well 👊
@bikeaddictbp
@bikeaddictbp 10 ай бұрын
Been there. I'm just short of 2 years in, and the first year was rough. Keep up the fight. Try to slowly increase your activity but be prepared for setbacks - I've lost count of how many times I thought I was done with it, only to have a relapse ... but the relapses became shorter and milder over a frustratingly long time. If you need to sleep in, if you need to go to bed early because you are knackered, do it. But do try to do whatever activities you can.
@Rachaelc1776
@Rachaelc1776 10 ай бұрын
Praying for you🙏
@brendanunez8670
@brendanunez8670 5 ай бұрын
In December of 2021 , I came down with Covid 19/SARS , in February I was hospitalized and put on a Ventilator for a week..I am 58 and have been suffering from Long Covid going on 3 years. I have lost so much muscle and am feeling very hopeless at this point. It is very painful. With Your knowledge and research WE ARE GOING TO RISE ABOVE THIS 🎉❤
@julierose6618
@julierose6618 9 ай бұрын
This makes sense. 2 years in still brain fog, PEM, chest pain, burning feet and legs. Asthma. Liver problems. Chronic fatigue.
@kvstrickland
@kvstrickland 9 ай бұрын
I wish you were my Doctor … Easter is the 1 year anniversary of the last time I had Covid. I’m a shell of my former self … been reaching out to my doctor for help… have been on a long COVID clinic wait list since August.. I’ve been in denial for so long because so many people say LC doesn’t exist .. but I can’t push thru… it’s real and I’m a mess.
@bubblegumacid
@bubblegumacid 4 ай бұрын
This is me right now. Thank you for your assessment and kind tone. If I didn’t survive this once I would be totally devastated and depressed so reading this comments I just wanted to share some light for anyone that needs it. Currently I am on my second long covid, 4months in, I have had everything you mentioned pots symptoms (absolutely the worst) muscular pains, loss of appetite, fever for weeks, fathom taste, no taste, first migraines in my life, sweats, nocturnal urinations, gut issues and frankly the list goes on. Mostly I am bedridden. I survived this once but unfortunately got covid again and the onset of symptoms got back. In the meantime I really did got better and had no symptoms whatsoever so I pray me and everyone included can get to that point no matter how “long” your long covid is! The more you understand your symptoms the better you progress. I hope some really smart scientists are on board with this, before we patients solve it ourselves lol. Stay strong and don’t give up! ✨
@janeathome6643
@janeathome6643 9 ай бұрын
March 16, 2020 was the day my old self died. I have been unwell, experiencing variable levels of disability for four years. Cerebral inflammation, respiratory inflammation, kidney and bladder inflammation, inflammation of the gut and abdominal organs. The inflammation feels like a fire in the organ(s) affected. I am single and rely on my job for my income, so I have had to work through this which has also had a deeply detrimental effect on my ability to relieve my symptoms and heal. I'm convinced my long Covid is driven by autoimmune dysfunction (but I don't test for any specific, "testable" autoimmune diseases). Additionally, about 6 months prior to Covid, I was diagnosed with Lyme (and treated successfully with antibiotics).
@brendabrenner2891
@brendabrenner2891 5 ай бұрын
The Lyme. left u open to infection.. unless u were in antibiotics for mo ir more, Lyme titers probably still active w negative overall, im. Lyme, mild injured, celiac, gut dysbuosis.. best to u
@chanchan5349
@chanchan5349 3 ай бұрын
Bless you. Late March 2020. Was in the best shape of my older self (or so I thought). I have tried every supplement, herb, etc. NAC has helped, as well as Nattokinase. I have to be more intentional @vitamins (D3, K2, zinc, magnesium need to be taken daily & together) as a baseline for our immune health, then a good B vitamin that incorporates all the minor B’s, especially B1 with a low C to make them accessible. I despise swallowing any type of pill but have really been trying to be consistent with vitamins to see if it helps long term. Research vitamin companies to find good ones, not fly by nights! I know working through all this has been extra hard, then trying to take care of yourself & eat healthy food even harder. Have you tried fasting at all? I do intermittent (timed eating) and I think it has helped some but I need to do a 3 day fast at least. It’s supposed to help detoxify which helps with inflammation. Good luck!
@AP-dn7gc
@AP-dn7gc 2 ай бұрын
Me too. Since Nov 9 2020.
@Rachaelc1776
@Rachaelc1776 11 ай бұрын
Taking the antihistamine Benadryl daily has greatly improved my symptoms. I assume this is due to lowering the histamine response in the body. There were a few news stories about a study from UC IRVINE & a paper from NIH regarding using antihistamines. Whatever it is, it works for me. I can tell a huge difference the few times I forgot to take it. Praying others find help🙏
@randolphwilliams2365
@randolphwilliams2365 10 ай бұрын
I'm taking 3 different antihistamines.
@boodrowwilson1894
@boodrowwilson1894 10 ай бұрын
Thanks, daily Zyrtec 10mg has gotten rid of a lot of the brain fog , and almost all of the heart pounding that plagued me for years. Extreme fatigue and feeling like crap, inflammation, stomach problems still persist though .
@couchphotography8861
@couchphotography8861 9 ай бұрын
@@boodrowwilson1894 Get an xray of your colon, if it's impacted that can cause a ton of problems including inflammation and constipation. Just happened to me a few weeks ago, but now all is better after a course of PEG to empty out the colon and reduce inflammation.
@ReneeD-gj6dp
@ReneeD-gj6dp 5 ай бұрын
What are your heart pounding symptoms like?
@RoyJones-nx6zi
@RoyJones-nx6zi 10 ай бұрын
I was a boxer in the gym everyday....never had any of the long covid symptoms before covid...doctors do not listen yo us....now i can bearly exercise qithout having to go to e.r from feeling like this...i have severe brain fog that when its at its most extreme its scary...noone who has never whent threw this can understand...but to all who do ..i will say this my brothers and sisters ....nothing last forever wether good or bad it has an end wether it be death or gettn cured...at times thats how i know death is merciful...yes i would miss my fam and friends and everything i enjoyed in life but this is not living this is torture so at times im learning to accept to deal with this ...we are all going threw this experience to learn from it we are chosen to learn from it....i always say if i ever heal i am going to live life to the fullest ...so dont be sad or angry appreciate this even tho its scary but i would rather be the one to have this insted of anyone i love.. ill be the one to go threw this rather than see my nieces or nephews go threw this... appreciate life and all its lessons abd blessing... everything bad in life is a lesson and everything good is a blessing
@jewelleryaddict
@jewelleryaddict 9 ай бұрын
After having CFS 30 years now I understand. I have Spent most of my years trying to explain the symptoms. Was made fun of called Yuppie Flu. Doc would say get my hair done or have my husband take me out more, it's been awful. Or I am anxious for no reason Having your best years of life stolen from you is terrible. At least the long covid people are getting some validity imaging if you were told for 20 years it's all in your head. Hopefully you won't have to wait 30 years for help.
@RoyJones-nx6zi
@RoyJones-nx6zi 9 ай бұрын
@@jewelleryaddict I'm sorry to hear that...I hope you find a cure ...sometimes I ask myself why bad things happen to people ...I question if what I'm going threw is part of my karma for all the bad I've done ..I'm no saint I've done somethings I wish I could change ...having this I learned to love life ...I hope one day you get back to feeling normal I really do ...
@jewelleryaddict
@jewelleryaddict 9 ай бұрын
@@RoyJones-nx6zi well I have degree in health Ed and started 3 support groups for 22+ years for people with chronic illness cfs and fibro and lupis and chronic pain at local hospitals. I enjoyed it tho after each session had to spend 3 days in bed to recover. I hope I helped alot of people. Before that was in Air Force so I am not worried about my karma, would think it should be good but who knows? . Someone bigger then me runs the show. Hope you have some good or better days ahead.
@jewelleryaddict
@jewelleryaddict 9 ай бұрын
@@RoyJones-nx6zi no karma. My husband says same thing but he did the bad stuff when way younger we are old now. He says that if anyone is punished it should be him not me. I have been the one using my education for 20+ years while sick myself to help others who are sick with chronic illnes. I loved what I did but had to quit cost me to many more days in bed as I got older after menopause. So the karma thing is just a thing. We just get what we get, look around the world so many suffering for no good reason. It's a crap shoot, a numbers game. None of us seem to get what we deserve illness wise maybe it's best huh?? Kidding.
@RoyJones-nx6zi
@RoyJones-nx6zi 9 ай бұрын
@@jewelleryaddict have u tried IV therapy?
@allisonkloehs3082
@allisonkloehs3082 7 ай бұрын
Dr Brode, all I can say is thank you for this video. Hope you are able to make a difference in your patient's lives. I had Covid in March 2022, has changed my life. Appreciate your work on this problem. I actually live in Australia but have a wonderful GP who has been trying to help me. Cheers.
@pienutbutter..
@pienutbutter.. 9 ай бұрын
It helps seeing all these reactions. 3 years ago I had covid and was out of the running pretty much since then. Few months ago I was getting better and got it again. Stay strong everyone❤
@cadacual9822
@cadacual9822 9 ай бұрын
Thank You
@djpowell4928
@djpowell4928 3 ай бұрын
I finally feel validated! It has been a very tough road. Immunocompromised, psoriasis,bronchiectasis, adrenal fatigue, tremors and on and on.
@ASquires-wc8ii
@ASquires-wc8ii 8 ай бұрын
This is me. Went from doing CrossFit to barely being able to cut my grass.
@flagmichael
@flagmichael 6 ай бұрын
To me, one of the most striking factors in Long Covid is the remarkably high proportion of highly fit people among Long Covid sufferers... notably marathoners and half marathoners. There is no obvious reason - it just works out that way. I'm not a believer of this sort, but it is hard not to feel like the Devil is behind it. I would never have imagined a disease/disorder could be this - there is no other word - evil.
@donovan8530
@donovan8530 6 ай бұрын
Dang, same here ( not cross fit but heavy exercise ). A good immune sistrum won’t stop this 😕
@arwenanduin
@arwenanduin 6 ай бұрын
Yes!
@nosferatu2
@nosferatu2 3 ай бұрын
You know I’m gonna ask this… how are you feeling now? Lol
@edjack5on
@edjack5on 11 ай бұрын
What an amazing explanation. Dr. Brode. Thank you for your work :)
@backalleygaming7096
@backalleygaming7096 11 ай бұрын
I hope they figure out tinnitus visual problems like static or visual snow syndrome and extreme anxiety from post covid....
@flagmichael
@flagmichael 6 ай бұрын
The current thinking is that they are all part of the enormous grab-bag of specific symptoms. Imagine if the experts were able to come up with even one thing that predictably helps most LC sufferers... is that too much to ask? Probably.
@bretthorwood9396
@bretthorwood9396 8 ай бұрын
Thank you so much for explaining this .I had covid just after Christmas this year noticed now im depressed and tired all the time .yesterday I looked up the symptoms of long covid and yes I've got long covid .all I can say here is the depression is almost overwhelming The fatigue makes the depression worse than it is .
@Zebragirl1111
@Zebragirl1111 5 ай бұрын
@@bretthorwood9396 some mornings I wake up and say why.
@bretthorwood9396
@bretthorwood9396 5 ай бұрын
@@Zebragirl1111 I've given up thinking too much about it ,its not worth the mental effort.
@Theyeetboi
@Theyeetboi 7 ай бұрын
I got Covid January 19th and ever since then it’s been daily chest pains, heart problems and brain fog. I can’t even drink a cup of coffee anymore without my heart feeling like it’s going to explode. I’ve been to a cardiologist and E.R Multiple times and nothing came up in any of the test, I’m glad to know I’m not crazy and it’s not all in my head. My daughter is almost two months old and I just wanna be able to do things with her and play with her without feeling short of breath. I’m 26, I hate this and I just want my life back
@ttpearse
@ttpearse 11 ай бұрын
Thank you for your videos. Your description matches much of my 3-year long covid experience. Early on I had significant immune system upregulation (positive autoimmune marker and severe histamine sensitivity). About 18 months into my long covid I did a prolonged water fast which seems to have "reset" my immune system (autoimmune marker is now negative and no histamine sensitivity) and made major improvements, but I still have some remaining ANS dysfunction. ANS treatments are slowly helping. I would love to see a follow-up video on targeted therapies for ANS dysfunction and mild traumatic brain injury.
@tori3158
@tori3158 4 ай бұрын
How true. Dealing with anxiety and tachycardia hard since Covid. (No vaccines) First night my HR was 160 and was waking up after every single night at 3:30 for almost 3 weeks with masaive tachycardia. I thought i would lost it. With all the supplements from manuka honey, bronchial capsules, gut repair, D3 K2, magnesium glycinate etc.. i still cannot manage things. Been almost 2 years. Pain all over the body, burning feet at night, waking up in terror with pounding heart, digestive problems, and so on. Made few check-ups with my money as doctors don't even care to listen. Heart looks alright but holter still awaits me. It's a horrible journey.
@josiesmith850
@josiesmith850 7 ай бұрын
I think the title needs to be ‘what every doctor needs to know’ … medical help is practically non existent and patient dismissal is rife. The patients know what it’s like sadly the doctors often don’t and or don’t care.
@flagmichael
@flagmichael 6 ай бұрын
I think they actually fear - so to speak - getting involved. I don't know about other countries, but in the USA doctors are expected to follow established protocols for diagnosis and treatment. There is method in that madness - it would not be hard to stumble into something that would make the patient significantly worse.
@sneakypress
@sneakypress 6 ай бұрын
Do you really think “ the doctors don’t know “ ….. it’s their pharmaceutical drugs that cause this ! When do you all wake up ???
@isaacbuf35
@isaacbuf35 3 ай бұрын
How u no you have long cOvid ​@@flagmichael
@isaacbuf35
@isaacbuf35 3 ай бұрын
Gettin tested 2morrow
@alfonsoarce5507
@alfonsoarce5507 11 ай бұрын
Im exercising and doing saunas and cold showers along with taking some supplements. He mentioned oxygen not being used fully by the mitochondria. I think this is the biggest hurdle as I can’t exercise as much due to PEM. Keep at it, you can heal. Keep searching for the right therapies. Exercise, saunas, cold showers, light therapy, supplements, etc. If none of this work try long term water only fasting. Don’t give up!
@fredg5390
@fredg5390 7 ай бұрын
Thank you Dr Brode. I'm a senior and was quit active and was an NCAA athlete. Just before COVID I backpacked 40 mile in the wilderness area caring a 45-50 lb. back pack. Now, I am constantly tired and with brain fog and difficulty focusing on a task. I thrived on multi-tasking in a high stress environment in a very highly complex and technical job. No Dr seems to have any answers but after listening to you I feel I was right with Long COVID. Constant fatigue with joint soreness and easy muscle fatigue which I have never had these issue until I got COVID.
@flagmichael
@flagmichael 6 ай бұрын
That is way too common a story in the annals of Long COVID. Athletes seem to be hit especially hard; I've been impressed by how many marathoners and half-marathoners there are in the LC community and how hard they are hit. I can't even guess why.
@MakaiMauka
@MakaiMauka 6 ай бұрын
Thank you for this exceptionally well done overview.
@javajive01
@javajive01 11 ай бұрын
I had covid in December and it lingered for about 5 weeks. Now I have vague headaches, chills, stomach aches, malaise and general soreness throughout my body. I also had EBV around 2006 and chronic fatigue in the 1980s. I wish there was something that could help me.
@walt_the_dolt
@walt_the_dolt 11 ай бұрын
this video is fantastic! thank you!
@RhinoJoeOutdoors
@RhinoJoeOutdoors Ай бұрын
Thank you for this. I went from being able to run Ironman 70.3s to barely being able to run 2-3 miles months after COVID 19. My life is completely changed. Fatigue, brain fog, headache. I also developed an intolerance to alcohol which I used to enjoy craft beers and can't drink at all anymore. The explanation of the heart pumping harder because the muscles aren't using oxygen is mind blowing. Made me wonder why my heart rate goes crazy when cycling now and I get horrible pain in muscles after working out. Hoping to get better with time. Focused on fasting and reducing inflammation.
@jaymartin4166
@jaymartin4166 11 ай бұрын
Fact,my wife never fully recovered from Her first round of COVID and when she got it the second time she passed away in two days even though she was fully vaccinated.
@triciaweldo6634
@triciaweldo6634 10 ай бұрын
16:03 16:03 omg I'm so so so for your loss sorry sending prayers and ❤
@samanthaannlee5255
@samanthaannlee5255 10 ай бұрын
😢
@decafmocha211
@decafmocha211 9 ай бұрын
So sorry for your loss. Rest in Peace
@KarinSchweizer-b4g
@KarinSchweizer-b4g 9 ай бұрын
And if this happened because of vaccines?
@jaymartin4166
@jaymartin4166 9 ай бұрын
@@KarinSchweizer-b4g I would be pissed
@Oldmanyellsatcloud1985
@Oldmanyellsatcloud1985 9 ай бұрын
I'm positive I've got long Covid. I can't sleep because I wake up drenched in sweat, my brain fog is horrific, I can barely manage daily tasks, my stomach is all over the place and i have awful energy levels.
@decafmocha211
@decafmocha211 9 ай бұрын
Check out Dr. Boon Lim on youtube. He is a well respected cardiologist. Check out his video on Long Covid Dysautonomia. The malfunction in your autonomic nervous system is responsible for the sweating.
@Hossam-Y
@Hossam-Y 9 ай бұрын
I also suffer from sweat after covid recovery specially after walking or doing efforts that makes me worried and I asked two doctors about this side effect , they told me that their is no problem
@Oldmanyellsatcloud1985
@Oldmanyellsatcloud1985 9 ай бұрын
@@Hossam-Y makes life difficult doesn't it?
@Hossam-Y
@Hossam-Y 9 ай бұрын
@@Oldmanyellsatcloud1985 Yes , especially with nervous effects and sleep habits changed But don't worry Trust in God, our immune system discover the rest of this damn virus
@James-lu4en
@James-lu4en 4 ай бұрын
Constant vivid weird vivid dreams + tinnitus here, permanently exhausted.
@davidburian5095
@davidburian5095 11 ай бұрын
No word about ME/CFS... really bad. Thus is not a new thing, we known this for decades but just ignored it!
@flagmichael
@flagmichael 6 ай бұрын
That is the only bright spot now: it is getting hard to ignore (on an institutional level). Lots of research now, but no huge Aha! moments yet.
@kltutas
@kltutas 4 ай бұрын
This is the best explanation i've found. Thank you!
@footiemad9526
@footiemad9526 9 ай бұрын
Thank you, thank you, thank you for this excellent presentation. So clearly communicated and extremely informative. I am experiencing long covid for the second time. Will share this with friends and family.
@brianhawthorne7603
@brianhawthorne7603 9 ай бұрын
I was not hospitalized when I got Covid in Oct 2022. I now have airway problems/shortness of breath, cognitive impairment, headaches, POTS, PEM, etc. I am on intermittent disability leave, and trying to figure out how to afford to retire early. I managed to work 4 hours this morning, and have been in bed since. I’m working maybe 10-20 hours a week and using up 20 years of accumulated sick time. I was healthy, happy, and extremely physically active before. It’s gonna kill me.
@Dr-386
@Dr-386 8 ай бұрын
Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD that’s done vaccine research, so you can imagine my frustration.
@johnmitchell2741
@johnmitchell2741 10 ай бұрын
And not one person behind bars
@Dennis_510
@Dennis_510 9 ай бұрын
?
@jewelleryaddict
@jewelleryaddict 9 ай бұрын
Or sued for false claims.
@flagmichael
@flagmichael 6 ай бұрын
For what?
@AFFLICTED269
@AFFLICTED269 5 ай бұрын
@@flagmichaelcreating the virus in the first place..
@salravioli
@salravioli 2 ай бұрын
Who do you want to arrest? It was a world wide virus. Get your shots.
@lmr3639
@lmr3639 9 ай бұрын
Thank you Dr Brode. An excellent presentation.
@JonasMollerNielsen
@JonasMollerNielsen 9 ай бұрын
A fantastic video about the current state of knowledge. Thank you so much!
@ann-kristinsundell5906
@ann-kristinsundell5906 11 ай бұрын
Lovely video, thanks for making it. I think the metabolic and immunologic abnormalities seen with long Covid, POTS and M/CFS are likely just another symptom of dysautonaumia. Parasympathetic nervous system rehab and brain retraining seem to be helping a lot of people, although I haven’t seen the medical community paying much attention to this.
@kimbo1414
@kimbo1414 11 ай бұрын
Nope they don't do anything
@ReAlNeRd1
@ReAlNeRd1 11 ай бұрын
@@kimbo1414anything to back your opinion ?
@pienutbutter..
@pienutbutter.. 9 ай бұрын
My symptoms are extreme fatigue, hair loss (especially eyebrows and eyelashes) and constant colds. It could be worse, but it sucks a lot
@cadacual9822
@cadacual9822 9 ай бұрын
Thanks for the hope "time is healing"
@annel5511
@annel5511 10 ай бұрын
It would be interesting to see how many suffer from long COVID after vaccination
@DJ_Dutchess
@DJ_Dutchess 9 ай бұрын
I had a bad neurologic reaction to the Covid vaccine. I was in excellent health but suddenly found myself having joint pain, fatigue and muscle spasms (that never went away fully) and a myriad of other symptoms.
@julieannemeadows9867
@julieannemeadows9867 9 ай бұрын
Me too! I was very fit but suffered neurological symptoms as these cleared up the rashes began. Still suffering - 2 years, 8 months. So sorry to read you are suffering too.
@Dr-386
@Dr-386 8 ай бұрын
Me! Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD that’s done vaccine research, so you can imagine my frustration.
@julielinderbaum
@julielinderbaum 7 ай бұрын
I had a severe grand/mall seizure after getting a covid vacination.Been sick with Long Covid ever since,3yr. Can you send me any any studies please
@crescentbeach691
@crescentbeach691 7 ай бұрын
After the vaccination alone? No. After getting covid? Maybe. I also credit the vaccination with helping me survive covid. I am immunocompromised with 4 of the base conditions that would make covid more severe.
@michelewilki
@michelewilki Жыл бұрын
Excellent video
@nadinedebard7727
@nadinedebard7727 Ай бұрын
Thank you so much for this very detailed presentation. It helps a lot understanding what seems to affect me and how to deal with it.
@karenfuchs1674
@karenfuchs1674 11 ай бұрын
are the symptoms from long Covid similar to Vaccine injury symptoms ? How do you tell the difference ? and what can doctors do to treat these people ?
@kimbo1414
@kimbo1414 11 ай бұрын
I got worse after the vaccine
@ciuffoarancione8929
@ciuffoarancione8929 11 ай бұрын
Most cases of long covid comes from the jabs or jabs and then covid and doctors know it... But they lie about jabs. My life is ruined after 2nd dose of pfizer... I am sure long covid from jabs is way worse than from covid.. Inside that poison there was something toxic by purpose. Damn me the day i trusted doctors.. Life ruined forever..
@karenfuchs1674
@karenfuchs1674 10 ай бұрын
@@kimbo1414 Interesting . I am sorry to hear this .. Hope time helps healing .
@kimbo1414
@kimbo1414 10 ай бұрын
@@karenfuchs1674thanks Karen I appreciate your comment x
@flagmichael
@flagmichael 6 ай бұрын
In the US COVID vaccine injury claims are filed with the Countermeasures Injury Compensation Program (CICP). Very few of the claims are LC symptoms, so that seems like a dead end. However, it is very common for LC sufferers to get significantly better or worse - a toss-up - if they are vaccinated _after_ developing LC symptoms.
@ChuckieWaltmam-lq5qy
@ChuckieWaltmam-lq5qy 7 ай бұрын
After having COVID and not knowing it I passed it to my mother now she's paying a severe price with fatigue memory fog and now it's becoming harder to understand her speech.something needs to be done for the people dealing with this.
@flagmichael
@flagmichael 6 ай бұрын
If only we knew! FWIW major medical foundations are working hard on it but it is spectacularly hard to understand, much less treat. The only solid advice (other than avoiding catching COVID if possible) is to be lucky.
@safeeffective385
@safeeffective385 6 ай бұрын
@@flagmichael Only the jabbed have long covid. Everyone knows this.
@CNWPlayer
@CNWPlayer 6 ай бұрын
@@safeeffective385 www.scientificamerican.com/article/vaccination-dramatically-lowers-long-covid-risk/ Read the article.
@bennyb.1742
@bennyb.1742 9 ай бұрын
It's great to see it at least acknowledged and established. That's a step forward! The medical progress is slow, too slow for us of course (average problem to solution track for pharmacology is 15-17 years) but it is progressing! I had bed ridden LC for 6 months and disabling symptoms for 12 more. I felt like I had made excellent progress until a virus denier (straight up doesn't think it was real or really happened. Kook.) reinfected me over the holidays. Oh well, start again.
@brendabrenner2891
@brendabrenner2891 5 ай бұрын
Outstanding.. should be shared w all interns + Dr trained 25 years ago.. I see 11 Drs who treat 11 body parts.. no knowledge of gut brain connect.. was pre med,, CDC useless.. it's living hell.. I'm not getting better.. no clinic in RI🙏❤️
@alexandraramirez7620
@alexandraramirez7620 3 ай бұрын
Oh my God. I'm here crying you cannot even imagine what I have gone thru, I started to think I was crazy ,I have a lot to say ,I'm still in this planet, because of the grace of God ,and he was the one who guided me to my two doctors out of so many I visited I could see in their face had no intention of digging a little bit deeper into all this symptoms I'm having. oh my I can't stop crying but I'll keep fighting .I have a story to tell that it is going to help all of us believe it
@williamhayes6854
@williamhayes6854 8 ай бұрын
I have had Long COVID since Nov. 2020. I had tested "critically high" for Covid-19 and I was in the hospital a couple of times with pneumonia and other complications. I was physically fit before getting the virus. I also had 2 Pfizer shots in Mar. 2021. The second shot nearly killed me. I had to leave my job of Industrial Construction. I thought I would get better over time. But, I have gone down hill quickly over the past 6 months. I now have severe dysautonomia, severe orthostatic hypotension, POTS, fibromyalgia, extreme fatigue, post exertion malaise, small fiber neuropathy, atonic bladder, large post void urine retention, I now have to wear a permanent Foley catheter, I have ileus in my intestines, my colon does not move my stool like it should, I have left ventricle failure, the bottom of my lungs are collapsed, and I have several other health problems. Unfortunately, I know of many others like me who have been fighting the virus for 3-4 years now and who are also getting worse. We need answers and help before it is too late.
@partdeux992
@partdeux992 8 ай бұрын
Thanks for sharing. You had several months between Nov 2020 till March 2021. Did you have all these symptoms during that time? bc i highly highly doubt that. While I am terribly sorry about ordeals - I don't think you are fighting the rus. I think you are fighting acupuncture* injuries + over reaction to the rus bco the over-exaggerated response due to the acupuncture. So I don't think it's correct to say you have been fighting the rus. I'm not criticizing but I'm saying there is a need to be exact about descriptions of our issues so that we could help people better. I have had some form of LC but I was not acupunctured. I have some mini version of dysautonomia bc I just had another rus 4 weeks ago and i had the darn thing 5 times. i have nothing like what u r describing. i did have some stubborn candida that i finally fixed. it had to do with blood flow and i had to use some special exotic soaps. you should get your microbiome checked. your bifido/lacto are very low probably. feel better.
@williamhayes6854
@williamhayes6854 8 ай бұрын
I actually did have my LC symptoms all the time up to getting the jabs. I was told that I needed to get the jabs to help with my LC symptoms.​@@partdeux992
@flagmichael
@flagmichael 6 ай бұрын
I am really struck by the proportion of athletes (including half-marathoners and marathoners) in LC sufferers. It just ain't fair!
@不幸屋の娘-o6l
@不幸屋の娘-o6l 5 ай бұрын
If you're still alive (which is unlikely), you've got very little time left. RIP.
@williamhayes6854
@williamhayes6854 5 ай бұрын
I did have the issues from Nov 2020 to Mar 2021 and was being treated for Long Covid. I was told it was critical for me to get the shots because of my Long Covid condition.
@KATEB33ful
@KATEB33ful 11 ай бұрын
I'm suffering from PEM since 20 years. It's not better with time.
@vornamenachname1069
@vornamenachname1069 9 ай бұрын
What helped me the most was undergoing genetic testing. The report of the company that did the test was so so but after taking a look on the raw data myself, I found out that I have some mutations for Ehlers-Danlos Syndrome (I only had POTS after Covid and slightly more flexible arms), heriditary hemochromatosis (higher iron absorption --> more prone to certain bacterial and parasitic infections (I noticed this when I got infected by Yersinia bacteria), higher chances of iron deposits in brain that might lead to migraine and schizophrenia (I have a family history of schizophrenia and I myself have migraines), heterozygot for aceruloplasminemia (iron overload in the brain, leading to symptoms similar to parkinson's or schizophrenia), Lynch Syndrome (higher likelyhood of colon cancer - my grandmother had colon cancer), several defects in a gene that lead to higher odds of acute pyelonephritis (I had this after a flu). Now, just recently there has been a study that found that a disturbed iron metabolism is indicative of the development of Long Covid. Well... I have at least two genetic mutations that alter iron metabolism. And migraine and a mother with schizophrenia with both diseases shown to imply intracellular iron accumulation in the brain with low ferritin and low iron in serum. I found bacalin (scutellaria baicalensis) and doxycyclin to be helpful. Both act as iron chelators and can reach into the brain cells. So basically, getting the trapped iron out of the cells into the system.
@tgm2754
@tgm2754 11 ай бұрын
EBV reactivated. Hashimoto 30 years. Anti-depressant Prozac 30 years. If I double up on Prozac I have a much better day physically and intellectually( I can find the right words which tend to fly away when I need them. This fatigue is real. Glad the POTS fainting is gone. The pain is real. Inflammation: Trying histamine free foods . Gluten free: read that EBV loves gluten. after 10 days I do not have to take Advil. Hmmmm…
@delmar418
@delmar418 10 ай бұрын
I've had covid twice, 11 days to recover last year and my second three days ago with some lingering and light symptoms. I was expecting the next train car of symptoms that haven't arrived, or may not arrive. loss of olfactory, taste. Mainly stiff neck, headache from hell, profound fatigue, 103.8 or 38.3 fever and muscle pain, it's gone. I am unvaccinated. I'd like to know the differentials between vax vs unvax with long covid otherwise this is academic. I also believe that many of these issues are centered in the thyroid and parathyroid function which regulates many things. Before I had covid, my thyroid function and parathyroid - two separate tests, was in the normal range, but could have been optimal. I'm a 60 year old male. We really need to pay attention to white clotting which started showing up post distribution of covid intervention in autopsy and mainly embalmers.
@flagmichael
@flagmichael 6 ай бұрын
Not a certain thing, but one of the polls on Gez Medinger's YT channel asked his followers if their LC symptoms got a little better, a little worse, a lot worse. or a lot better after post-infection vaccination. The strongest responses were a lot better and a lot worse. I am one of the relatively few non-sufferers on his channel. I would be too scared to flip that coin.
@renaissance5300
@renaissance5300 8 ай бұрын
this is one of the best thank-you
@believeinpeace
@believeinpeace 2 ай бұрын
Excellent, thank you
@davec3568
@davec3568 10 ай бұрын
I got LC from exertion while having almost asymptomatic covid. Woke up the next day feeling like I was runover by a truck, everything in my body is damaged. I was recovering until I got diverticulitis about 7 months later, which I attribute to covid but I can't say for sure. Then I got some bug over xmas that set things back further, I have no idea what it was. In desperation I tried ivermectin and it was a night and day difference. I've tried a ton of remedies and the only other things I know for sure helped are electrolytes and Win Hoff technique of breathing and cold exposure. Before I tried ivermectin I thought it was a matter of time until I had a heart attack or stroke, the body is just under constant stress and it's not sustainable. Now I feel like I have a real shot at recovery.
@violetsparkles8527
@violetsparkles8527 2 ай бұрын
How much do you take and for how long?
@davidmangen1912
@davidmangen1912 9 ай бұрын
Doctor prescribed prednisone for covid. Worked great!
@jonathannorris8992
@jonathannorris8992 5 ай бұрын
Three years in August for me. One of the things that I have found so difficult is the emotional impact. My poor wife has had to sit and listen to me telling her that it would be better for her if I was no longer here. Suicidal thoughts have become and ever present problem for me. I have lost my business, although on paper it’s still running, but I drag myself out of bed every day to do a very heavy construction based job. But trying to problem solve and take on very physical work is slowly killing me. I know that I should be resting, but you have to eat and so here in New Zealand there is zero help for any of us and just like our American cousins the medical industry won’t admit that they have no treatment plan for any of us. We are just seen as collateral damage unfortunately.
@GlockPeace
@GlockPeace 3 ай бұрын
Do they sell kratom in New Zealand? It’s helping me to cope.
@jennifer1872
@jennifer1872 5 ай бұрын
My daughter has been suffering with long covid for 16 months she has just built her daily exercise up to 20 minutes a day she is a cardiac thoracic nurse who was already on Mat leave by the time she is able to get back she will have to do refresher course to keep her credentials, it’s crazy the terrible toll it takes on some people 😢
@patrickcahill6150
@patrickcahill6150 11 ай бұрын
Well explained..thank you..
@couchphotography8861
@couchphotography8861 9 ай бұрын
Thankyou Dr Brode, wish you were my GP!! At last, a concise, clear, explanation with no waffle, about what is going on here and how people have been damaged by these WEF maniacs! There is hope! Have a nasty itchy tickling cough that comes back every 4-5 weeks or so, after going away for a while. I think I'm lucky after reading some of the reports from the poor souls opposite.
@barbaraj.manning3902
@barbaraj.manning3902 9 ай бұрын
Everything makes sense now. I thought I was going crazy.
@mariegatzmer829
@mariegatzmer829 3 ай бұрын
I have been dealing with some strange symptoms for about a month. I was experiencing aches all over the body, even teeth aching, cheek as well, plus many other symptoms, great fatigue and desire to sleep. I thought it was from a cystoscopy that was done and no antibiotics were ordered. I went to the hospital, they sent me home the same day, saying it was probably viral. I have gotten somewhat better but have no stamina and feel brain fogged.
@detacheddad3396
@detacheddad3396 10 ай бұрын
I wish they would specify whether or not they were vaccinated.
@flagmichael
@flagmichael 6 ай бұрын
There is no indication anywhere of the LC frequency increasing or decreasing based on *prior* vaccination. Being vaccinated while the COVID infection is active is bad; being vaccinated after the COVID infection has run its course and LC has set in is a coin toss, with significant chance of getting better or worse. Being vaccinated after recovering from COVID appears to change nothing.
@christinasteels7067
@christinasteels7067 11 ай бұрын
Had covid a year ago and still have symptoms
@heidialexander8440
@heidialexander8440 7 ай бұрын
Depression can also be made worse than histamine intolerance, which is common in long covid. Inflammation messes with brain chemistry.
@TheresaJacobs-f5e
@TheresaJacobs-f5e 10 ай бұрын
I’d like to know what you can do about it
@decafmocha211
@decafmocha211 9 ай бұрын
Some help from Dr. Boon Lim on youtube. He is a well respected cardiologist. See his video on Long Covid Dysautonomia.
@marvinhamilton562
@marvinhamilton562 4 ай бұрын
Its been 4 hard years for me. I worry all the time. Thoughts of ending up in a homeless shelter because i struggle so much at work. Trying to hide the pain and confusion. This is no way to live.....
@Hdc2390
@Hdc2390 10 ай бұрын
How many die bc of of not having the care they need
@whisperingpoet4352
@whisperingpoet4352 10 ай бұрын
Good sensible video. Accurate
@loucollins6367
@loucollins6367 10 ай бұрын
I think it would be fair to discuss the connection of long Covid to receiving the vaccine, which in itself causes some of the symptoms you discuss.
@RoyJones-nx6zi
@RoyJones-nx6zi 10 ай бұрын
It's not the vaccine I never got it and feel all these symptoms ...
@decafmocha211
@decafmocha211 10 ай бұрын
Post covid vaccination syndrome is real. But it is a much smaller percentage those getting Long Covid after the Covid infection.
@flagmichael
@flagmichael 6 ай бұрын
The claims on the US CICP (Countermeasures Injury Compensation Program (CICP)) indicate no particular problem with more than transient LC symptoms after vaccination. However, it appears that people who have had COVID and developed Long Covid can get significantly better or worse - a coin toss - if they are then vaccinated.
@ayianaarthur2551
@ayianaarthur2551 6 ай бұрын
@@RoyJones-nx6zi I only had the vaccine and not covid and I have had horrific symptoms for 3 years. Its the spike protein and that is in covid and the vaccine.
@brendabrenner2891
@brendabrenner2891 5 ай бұрын
​@@ayianaarthur2551same ♥️🙏
@randolphwilliams2365
@randolphwilliams2365 10 ай бұрын
Multiple Covid infections over the last 3 years. Everything is strange about this condition.
@rebeccaslater1398
@rebeccaslater1398 10 ай бұрын
All my symptoms started after the vaccines - I never had covid !
@sallyweiner4180
@sallyweiner4180 Жыл бұрын
Thank you.
@dhskwkebbf
@dhskwkebbf 11 ай бұрын
What does the research show about people improving after having it for 2+ years? I’m only 19 and I’ll have had it for 2 year in about 20 days and my symptoms have either stayed the same or gotten worse
@vikassharma3950
@vikassharma3950 11 ай бұрын
Yeah, same with me😢
@solotraveller1234
@solotraveller1234 11 ай бұрын
I'll be 4 years next month. All I can say is that it's really true about exercise not being good for people with long covid. After pushing through since pretty much the beginning I am now much worse. My energy levels have plummeted even more and I'm less able bodied than I was a couple of years ago! Rest is key. Pacing helps. But I see this as permanent now, so it's all about working with what I can, rather than push myself beyond energy limits
@dhskwkebbf
@dhskwkebbf 11 ай бұрын
⁠@@solotraveller1234I’m sorry man that really sucks. Have you seen any doctors about it? I work at a really great research hospital so I’m gonna try and use my connections I’ve made to get into their long covid program, but even as an employee it’ll be at least a year of waiting and as a college student idk how long I can wait before the neurological symptoms destroy my GPA
@solotraveller1234
@solotraveller1234 11 ай бұрын
@@dhskwkebbf I've been to several long covid programmes, doctors, hospital, it's long covid they say. It's ok. Rest helps 🙂
@Hdc2390
@Hdc2390 10 ай бұрын
Virus is found in every organ in the body during autopsies of all ages.
@mitzivioletasalazarcastane4332
@mitzivioletasalazarcastane4332 7 ай бұрын
I have had long covid since September 2021 with fatigue, post-exertion discomfort, flu-like body pain and brain fog. No doctor has considered it long covid and they want to give me fibromyalgia treatments. it's right? They also insist that I exercise but I get worse and they don't understand me. Help me!
@Futurista88
@Futurista88 Ай бұрын
Can this doctor or any doctor in the comments advice on masking? Should people at higher risk for long covid or who have it continue to mask? Because when I asked this to my primary care doctor they said no and just prescribed anxiety meds.
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