Sarcoma, A glimpse at a rare cancer

Johns Hopkins Kimmel Cancer Center expert David Loeb discusses rare and difficult cancer.

[@UnruleeJulee]

I was just diagnosed with a sarcoma 2 days ago. I never even heard of sarcomas. Prayers to fellow patients of this disease.

[@CRCLN]

Must be nice

[@CaveWomen88]

So sorry. How are you doing now?❤️

[@arsonfly]

@@CRCLN wtf?

[@translator544]

Sending love and strength to you. ❤

[@___asia]

An artist died due it...

[@jeffreymurray6159]

I was diagnose with sarcoma soften of tissue in my left thigh that 22 yrs ago . I'm thanking GOD that he gave the doctors the wisdom and knowledge to combat this particular cancer

[@elliotbigland4300]

Gardners syndrome FAP dercums, and Ht6 mutations epilthemilol hyperlasia with sarcocotoid blemishes, pleomophic angioplasty with atypical low grade, tT9 chromosomes with dorsal dominant aplastic syndrome with big round cell chramasia if tFt112 through to the curvle y petitiones and irregular blastoma point 4 genes??? Any comments?

[@suechiks1581]

Thank you, I am happy to hear a successful story. I was diagnosed with sarcoma in 2007, I lost my right leg but I thank God I am alive.

[@funkdoktor]

That’s amazing! Glad to hear you’re doing well! My partner recently got diagnosed and was wondering if we could chat a little more? Would love to get some info on how you beat this. Email maybe? Thank you!

[@funkdoktor]

@@suechiks1581 amazing! Thank you for sharing! My partner just recently got diagnosed. Would you be able to chat a bit more about your journey? Email maybe? Any inspiration helps! Thank you!

[@CSMBS39]

Hi Jeffrey, can u share me some information on what medicine or method to cure you. My dad was diagnosed with this kind of Cancer. And Doctor is advice to cut off his left arm. We are looking for god advice to look for opportunities to keep his arm. Please advice and help. Thank u so much

[@glocan]

My nephew was diagnosed with this this week. God bless you.

[@foxtride7890]

Where was it located? Had this when I was 9 behind my left knee cap

[@ecdctechmma]

Is he still alive

[@naruturdd]

ecdctechmma What an insensitive question.

[@sadsader100yearsago9]

Is he alive?

[@glocan]

Sad Sader yes he is alive. Update on my nephew is that they took out a piece of his femur that had the tumor and replaced it with a metal “rod”. He now walks with a limp and is cancer free. I’m thankful to say he is a survivor and is doing well.

[@Katlady001]

My mom was diagnosed with this 2 1/2 years ago and we said no to chemo and radiation and said we went with an alternative she still here with us I pray that she stays with us as long as possible.

[@smiles3500]

what was the alternative... i've got widespread cancers that docs screwed me over an never tested especailly the muscle cancer that has grown extenviley invasivey in nerves muscles, etc... and terrified of dyign and going it alone.

[@olyacarell6434]

@@smiles3500 we all got to die. some a little sooner than others. thankfully, at least, you don't have to die suffering in certain countries. because certain countries allow physician-assisted suicide. Doctors are fucking useless, in most cases.

[@loganpritchett7008]

Yes what was the alternative?

[@wavemanj14]

God bless her i will pray for her

[@bhuvaneshwariumachagi785]

let me know alternative

[@fernandav4746]

My friend died of this she fought it for a year it spread quickly! She was loved by many and her faith remained until the end 😭 we miss her

[@elliotbigland4300]

Gardners syndrome FAP dercums, and Ht6 mutations epilthemilol hyperlasia with sarcocotoid blemishes, pleomophic angioplasty with atypical low grade, tT9 chromosomes with dorsal dominant aplastic syndrome with big round cell chramasia if tFt112 through to the curvle y petitiones and irregular blastoma point 4 genes??? Any comments?

[@olyacarell6434]

How did her faith save her? Oh wait... oops 😬

[@maleeliy1232]

@@olyacarell6434 she didn’t say it saved her? Also do you get off on being an insensitive prick to people who have lost a loved one?

[@olyacarell6434]

@@maleeliy1232 it's called being factual. Religion doesn't help and faith doesn't heal. Religion and god were invented by people who are afraid to admit that death is final. Guess what? Death is still final.

[@literallynobody949]

@@olyacarell6434 wow the attitude

[@wendysgobbo8242]

I was diagnosed with Ewing’s at the age of 32. My treatments were at our Children’s Hospital because that’s where the specialist was. I hope Ben is still doing well!

[@jamiesoares7108]

My husbands cousin lost his battle to ewings sarcoma a few years ago. It started in his leg. Went in remission then it came back I believe in his hip and spread. He passed a month after graduating high school.

[@kra_hme]

YOU GOT THIS TECHNOBLADE WE WILL SUPPORT YOU TO THE ENDS OF THE EARTH ❤️❤️❤️

[@Grim_Bunny]

♥️

[@crownedspirit472]

I actually have the same situation my left arm is starting to swell but not crazy. And I didn’t pull my muscle or dislocate it or anything else like that and my health progressively gets worse.

[@JuanPablo-pg3vx]

RIP

[@troppp]

Rest In Peace Alex

[@lilnugget2508]

Rip

[@NotReallyAHiro]

Fly high Technoblade ❤❤❤

[@thedeviousone909]

XD LOL HE LOST

[@MysticianLuna_VG]

@@thedeviousone909 hashtag rude

[@J4Y4YT]

@@thedeviousone909I wonder if you’d have this same attitude if it was your mom or dad dying of cancer.

[@BOKAJAN1997]

My dog just had a sarcoma removed, started as a small bump and we assumed it was just a lipoma but it grew extremely fast in a small amount of time. I pray that it doesnt come back🙏

[@arianmuntasir1634]

God bress Alex He was an inspiration

[@Dark-Blue-Diamond]

I miss him

[@HjalteHave]

Technoblade never dies

[@lapislazers2373]

My dad got diagnosed in 2009 and died on oct 10 2010. He fought for 15 months

[@JohnsHopkinsMedicine]

We are sorry for your loss, Marcus.

[@___asia]

Awh,....

[@elliotbigland4300]

Gardners syndrome FAP dercums, and Ht6 mutations epilthemilol hyperlasia with sarcocotoid blemishes, pleomophic angioplasty with atypical low grade, tT9 chromosomes with dorsal dominant aplastic syndrome with big round cell chramasia if tFt112 through to the curvle y petitiones and irregular blastoma point 4 genes??? Any comments?

[@lapislazers2373]

@@elliotbigland4300 and how does this relate to my dad dying to sarcoma

[@elliotbigland4300]

@@lapislazers2373 Gardners syndrome FAP dercums, and Ht6 mutations epilthemilol hyperlasia with sarcocotoid blemishes, pleomophic angioplasty with atypical low grade, tT9 chromosomes with dorsal dominant aplastic syndrome with big round cell chramasia if tFt112 through to the curvle y petitiones and irregular blastoma point 4 genes??? .4 abcdefj grunt grunt grunt grunt ???

[@user-mj6hs9ot5t]

This is very very difficult cancer. Hospital only can do for surgery. We are doing repurpose drug- Ivermectic 48mg + Menendazole 2,400mg daily and some COC. One of my friend who suffer clear cell sarcoma is taking ivermectin 120mg daily, then got better. Water in lung came out, became to take a meal ... usually when spread all body it is very difficult to stop getting worse for this cancer. The friend got diagnosed and took off the tumor and in a 3month cancer spread all over lung, brain, liver, all over.....this is very difficult cancer. Depending on the patient condition we can actively take repurpose drug to find some hope and opportunity. Good luck and God bless you all.

[@nalwangapatricia1379]

How is she doing now

[@dax8685]

my sister just got diagnosed with this, she just turned 18. i’m turning 16 tomorrow. i don’t know how to feel.

[@jamesbrekke8431]

Hi just saw your comment and wondering how your doing friend... I had Ewing’s and wanted to make sure your family is doing good

[@dax8685]

@@jamesbrekke8431 actually not too bad. she got the cancer removed and she’s going on chemo to remove any cancer cells that may still be in the area and it’s going alright! luckily we found it at a low stage.

[@jamesbrekke8431]

@@dax8685 HEY THATS SO GOOD TO HEAR! This makes my day... thanks for taking the time to respond.

[@jeezlouiz]

Tell her to eat soursop my neighbour had cancer all over the body and went to guatemala ate that everyday and it killed the cancer cells doctors didnt believe it, its known for that i hope she makes it i will keep her in prayer

[@funkdoktor]

@@dax8685 your sister is such an inspiration! How is chemo going with her? Hope all is well.

[@amplepotatopewboogeyman148]

rip techno

[@Master_HDplus]

Ah yes sarcoma a cancer that FUCKING KILLED TECHNOBLADE

[@thedeviousone909]

XD LOL HE LOST

[@nyuckkamoments12]

@@thedeviousone909 did that give you your daily hard on little queef?

[@MysticianLuna_VG]

@@thedeviousone909 stop disrespecting techno, its very sacrilegious

[@thedeviousone909]

@@MysticianLuna_VG dead

[@TheXWilson]

@@thedeviousone909 shut up

[@basalanreyes6500]

My husband died last 2 weeks because of sarcoma cancer the tumor grow in his spermatic cord and it was diagnosed a spindle cell sarcoma.he undergo a surgery after 5 months the tumor will be back ,so fast very active cancer it will spread some parts of his internal organs,it lead to stage 4 how fast that rare kind of cancer,im so sad now hes lost.

[@chazlon5061]

did it start as low grade and progress to a higher grade one?

[@DeeV91]

So sorry for your loss

[@ivanstrong4757]

We remember Technoblade.

[@jakecalvert]

Here with synovial sarcoma that doesn’t fit into any subtype. At least 3 In my spinal cord and another 1 near my brain. Just found out chemotherapy isn’t working 🙃🙃🙃

[@noneya_business6667]

How are you now?

[@thebasicbuilder241]

I have a lump under my right arm's skin and I hope it isn't this edit: i do not believe this is a cause for concern anymore

[@julieann5396]

Did you find out what it was ?

[@thebasicbuilder241]

@@julieann5396 i think it's fine since it hasn't grown at all since i posted that comment

[@wavemanj14]

@@thebasicbuilder241 bro u need to go to the doctor ASAP

[@thebasicbuilder241]

@Sarvesh yeah, probably fine, it still has not changed and it's probably just a lipoma. I haven't checked it out but I definitely will if changes.

[@Ambuj_kumar08]

​@@thebasicbuilder241how are you now dear ?

[@PatriciaAShelton-no6cq]

I have been diagnosed with a soft tissue sarcoma in my left ankle. Called leiomyosarcoma. Rare, didn't want my ankle amputated, but the limb saving procedure is drastic,thinking at my age it probably won't heal. Talking with my oncologist today. Thenban appointment to map out the area for radiation treatments. Don't think i would need radiation if it's amputated. Getting a clear margin. Alteady tiring of all the Dr visits. And my surgeon is across state over two hundred miles round trip. But there are only two of these surgeons in my state. About the same in every state . Hoping there's an immunology drug for this. Been reading up on alternatives,thinking it can't hurt nothing.

[@Gochandsubgochan70Real]

TECHNOBLADE NEVER DIES!!

[@tanishvaibhav5335]

Instead of saying one person u should think of others

[@Marlin123]

Guys, I know why you came here and what you want to know however could you please understand that the whole world does not revolve around Technoblade. It's painful to lose someone but let's give some love to the other victims.

[@CreeperG0d]

It's called selective empathy. We all loved Technoblade, and this disease reminds us of Technoblade. Ofc there r other anonymous ppl out there with this disease, but we only feel bad for them when we see smth abt them. Technoblade even helped to fight this disease, and that's y we also remember him, bcuz he raised thousands of dollars to research this disease. We just hope that everyone suffering this disease can make it out, and someday they find a cure for this cancer and all cancers.

[@IamUltraCrippled]

CreeperBoy7984 YTMCgaming this is very true.

[@Nearlydeads]

Technoblade? Please tell??

[@LorenzoPraja]

Technoblade. Bye

[@wtflolmobile2741]

i am here because of qinni

[@cowimmabitch93]

same...

[@___asia]

Same... 😭

[@bnitin007UTube]

Sir, can you please let me know if Carcinoma Sarcoma lung stage 4 can be cured or if there is some preventive medicines available?

[@RSO-IV]

Bro, try chinese medicine as well. The hospital will help on chemo-radio-surgery while TCM helps maintain tumor size at the current stage without mets. This gives doctors time to decide and family to have other opinion to ptoceed with appropriate action. My son gone 3 days ago (02-Aug-2020) with both Lung has Soft Tissue Sarcoma, that enveloped his heart and restricted his heart to pump until his final day.

[@spookily1661]

thought I had it I don’t I can move it around it’s feels spongey and I have multiple of tiny bumps and they aren’t painless or firm they are moveable

[@truse1000]

I have many of them. Did you check yours?

[@user-wp9xx3jf3x]

Technoblade never dies!

[@JohannesKalelPerez]

Condolences to the people that died of sarcoma and Technoblade too

[@onepercent267]

Technooo

[@sandysjy5340]

I miss Technoblade

[@OliverRedit]

My grandpa died with this cancer at 2001

[@JohnsHopkinsMedicine]

We are sorry for your loss.

[@amandataylor586]

Sorry for your loss How long did he fight it?

[@Livingwithhira]

How long did he survive?

[@Dazaigawd]

fly high techno 👑

[@elliotbigland4300]

Gardners syndrome FAP dercums, and Ht6 mutations epilthemilol hyperlasia with sarcocotoid blemishes, pleomophic angioplasty with atypical low grade, tT9 chromosomes with dorsal dominant aplastic syndrome with big round cell chramasia if tFt112 through to the curvle y petitiones and irregular blastoma point 4 genes??? Any comments?

[@bryanlatham2195]

🙏🙏

[@glocan]

🙏🏾

[@pranaybehera_b9240]

rip techno

[@thedeviousone909]

XD LOL HE LOST

[@nyuckkamoments12]

@@thedeviousone909 little queef

[@dassaultrafale2]

@@thedeviousone909 bro you're toxic

[@MysticianLuna_VG]

@@thedeviousone909 nej, du är hemskt.

[@AG-ff1kv]

@@thedeviousone909 XD LOL YOUR PARENTS WANTED TO ABORT YOU

[@kairon5249]

rip techno

[@thedeviousone909]

XD LOL HE LOST

[@CreeperG0d]

@@thedeviousone909 Not funny.

[@AG-ff1kv]

@@thedeviousone909 XD LOL YOUR PARENTS SET YOU UP FOR ADOPTION