Johns Hopkins Kimmel Cancer Center expert David Loeb discusses rare and difficult cancer.
Пікірлер: 199
@UnruleeJulee5 жыл бұрын
I was just diagnosed with a sarcoma 2 days ago. I never even heard of sarcomas. Prayers to fellow patients of this disease.
@CRCLN4 жыл бұрын
Must be nice
@CaveWomen884 жыл бұрын
So sorry. How are you doing now?❤️
@arsonfly4 жыл бұрын
@@CRCLN wtf?
@translator5444 жыл бұрын
Sending love and strength to you. ❤
@___asia4 жыл бұрын
An artist died due it...
@jeffreymurray61594 жыл бұрын
I was diagnose with sarcoma soften of tissue in my left thigh that 22 yrs ago . I'm thanking GOD that he gave the doctors the wisdom and knowledge to combat this particular cancer
@elliotbigland43004 жыл бұрын
Gardners syndrome FAP dercums, and Ht6 mutations epilthemilol hyperlasia with sarcocotoid blemishes, pleomophic angioplasty with atypical low grade, tT9 chromosomes with dorsal dominant aplastic syndrome with big round cell chramasia if tFt112 through to the curvle y petitiones and irregular blastoma point 4 genes??? Any comments?
@suechiks15813 жыл бұрын
Thank you, I am happy to hear a successful story. I was diagnosed with sarcoma in 2007, I lost my right leg but I thank God I am alive.
@funkdoktor3 жыл бұрын
That’s amazing! Glad to hear you’re doing well! My partner recently got diagnosed and was wondering if we could chat a little more? Would love to get some info on how you beat this. Email maybe? Thank you!
@funkdoktor3 жыл бұрын
@@suechiks1581 amazing! Thank you for sharing! My partner just recently got diagnosed. Would you be able to chat a bit more about your journey? Email maybe? Any inspiration helps! Thank you!
@CSMBS392 жыл бұрын
Hi Jeffrey, can u share me some information on what medicine or method to cure you. My dad was diagnosed with this kind of Cancer. And Doctor is advice to cut off his left arm. We are looking for god advice to look for opportunities to keep his arm. Please advice and help. Thank u so much
@glocan5 жыл бұрын
My nephew was diagnosed with this this week. God bless you.
@foxtride78904 жыл бұрын
Where was it located? Had this when I was 9 behind my left knee cap
@ecdctechmma4 жыл бұрын
Is he still alive
@naruturdd4 жыл бұрын
ecdctechmma What an insensitive question.
@sadsader100yearsago94 жыл бұрын
Is he alive?
@glocan4 жыл бұрын
Sad Sader yes he is alive. Update on my nephew is that they took out a piece of his femur that had the tumor and replaced it with a metal “rod”. He now walks with a limp and is cancer free. I’m thankful to say he is a survivor and is doing well.
@Katlady001 Жыл бұрын
My mom was diagnosed with this 2 1/2 years ago and we said no to chemo and radiation and said we went with an alternative she still here with us I pray that she stays with us as long as possible.
@smiles3500 Жыл бұрын
what was the alternative... i've got widespread cancers that docs screwed me over an never tested especailly the muscle cancer that has grown extenviley invasivey in nerves muscles, etc... and terrified of dyign and going it alone.
@olyacarell6434 Жыл бұрын
@@smiles3500 we all got to die. some a little sooner than others. thankfully, at least, you don't have to die suffering in certain countries. because certain countries allow physician-assisted suicide. Doctors are fucking useless, in most cases.
@loganpritchett7008 Жыл бұрын
Yes what was the alternative?
@wavemanj14 Жыл бұрын
God bless her i will pray for her
@bhuvaneshwariumachagi785 Жыл бұрын
let me know alternative
@fernandav47464 жыл бұрын
My friend died of this she fought it for a year it spread quickly! She was loved by many and her faith remained until the end 😭 we miss her
@elliotbigland43004 жыл бұрын
Gardners syndrome FAP dercums, and Ht6 mutations epilthemilol hyperlasia with sarcocotoid blemishes, pleomophic angioplasty with atypical low grade, tT9 chromosomes with dorsal dominant aplastic syndrome with big round cell chramasia if tFt112 through to the curvle y petitiones and irregular blastoma point 4 genes??? Any comments?
@olyacarell64342 жыл бұрын
How did her faith save her? Oh wait... oops 😬
@maleeliy12322 жыл бұрын
@@olyacarell6434 she didn’t say it saved her? Also do you get off on being an insensitive prick to people who have lost a loved one?
@olyacarell64342 жыл бұрын
@@maleeliy1232 it's called being factual. Religion doesn't help and faith doesn't heal. Religion and god were invented by people who are afraid to admit that death is final. Guess what? Death is still final.
@literallynobody949 Жыл бұрын
@@olyacarell6434 wow the attitude
@wendysgobbo8242 Жыл бұрын
I was diagnosed with Ewing’s at the age of 32. My treatments were at our Children’s Hospital because that’s where the specialist was. I hope Ben is still doing well!
@jamiesoares71084 жыл бұрын
My husbands cousin lost his battle to ewings sarcoma a few years ago. It started in his leg. Went in remission then it came back I believe in his hip and spread. He passed a month after graduating high school.
@kra_hme2 жыл бұрын
YOU GOT THIS TECHNOBLADE WE WILL SUPPORT YOU TO THE ENDS OF THE EARTH ❤️❤️❤️
@Grim_Bunny2 жыл бұрын
♥️
@crownedspirit4722 жыл бұрын
I actually have the same situation my left arm is starting to swell but not crazy. And I didn’t pull my muscle or dislocate it or anything else like that and my health progressively gets worse.
@JuanPablo-pg3vx2 жыл бұрын
RIP
@troppp2 жыл бұрын
Rest In Peace Alex
@lilnugget25082 жыл бұрын
Rip
@NotReallyAHiro2 жыл бұрын
Fly high Technoblade ❤❤❤
@thedeviousone9092 жыл бұрын
XD LOL HE LOST
@MysticianLuna_VG2 жыл бұрын
@@thedeviousone909 hashtag rude
@J4Y4YT2 ай бұрын
@@thedeviousone909I wonder if you’d have this same attitude if it was your mom or dad dying of cancer.
@BOKAJAN19974 ай бұрын
My dog just had a sarcoma removed, started as a small bump and we assumed it was just a lipoma but it grew extremely fast in a small amount of time. I pray that it doesnt come back🙏
@arianmuntasir1634 Жыл бұрын
God bress Alex He was an inspiration
@Dark-Blue-Diamond Жыл бұрын
I miss him
@HjalteHave Жыл бұрын
Technoblade never dies
@lapislazers23734 жыл бұрын
My dad got diagnosed in 2009 and died on oct 10 2010. He fought for 15 months
@JohnsHopkinsMedicine4 жыл бұрын
We are sorry for your loss, Marcus.
@___asia4 жыл бұрын
Awh,....
@elliotbigland43004 жыл бұрын
Gardners syndrome FAP dercums, and Ht6 mutations epilthemilol hyperlasia with sarcocotoid blemishes, pleomophic angioplasty with atypical low grade, tT9 chromosomes with dorsal dominant aplastic syndrome with big round cell chramasia if tFt112 through to the curvle y petitiones and irregular blastoma point 4 genes??? Any comments?
@lapislazers23734 жыл бұрын
@@elliotbigland4300 and how does this relate to my dad dying to sarcoma
@elliotbigland43004 жыл бұрын
@@lapislazers2373 Gardners syndrome FAP dercums, and Ht6 mutations epilthemilol hyperlasia with sarcocotoid blemishes, pleomophic angioplasty with atypical low grade, tT9 chromosomes with dorsal dominant aplastic syndrome with big round cell chramasia if tFt112 through to the curvle y petitiones and irregular blastoma point 4 genes??? .4 abcdefj grunt grunt grunt grunt ???
@user-mj6hs9ot5t4 жыл бұрын
This is very very difficult cancer. Hospital only can do for surgery. We are doing repurpose drug- Ivermectic 48mg + Menendazole 2,400mg daily and some COC. One of my friend who suffer clear cell sarcoma is taking ivermectin 120mg daily, then got better. Water in lung came out, became to take a meal ... usually when spread all body it is very difficult to stop getting worse for this cancer. The friend got diagnosed and took off the tumor and in a 3month cancer spread all over lung, brain, liver, all over.....this is very difficult cancer. Depending on the patient condition we can actively take repurpose drug to find some hope and opportunity. Good luck and God bless you all.
@nalwangapatricia13793 жыл бұрын
How is she doing now
@dax86854 жыл бұрын
my sister just got diagnosed with this, she just turned 18. i’m turning 16 tomorrow. i don’t know how to feel.
@jamesbrekke84313 жыл бұрын
Hi just saw your comment and wondering how your doing friend... I had Ewing’s and wanted to make sure your family is doing good
@dax86853 жыл бұрын
@@jamesbrekke8431 actually not too bad. she got the cancer removed and she’s going on chemo to remove any cancer cells that may still be in the area and it’s going alright! luckily we found it at a low stage.
@jamesbrekke84313 жыл бұрын
@@dax8685 HEY THATS SO GOOD TO HEAR! This makes my day... thanks for taking the time to respond.
@jeezlouiz3 жыл бұрын
Tell her to eat soursop my neighbour had cancer all over the body and went to guatemala ate that everyday and it killed the cancer cells doctors didnt believe it, its known for that i hope she makes it i will keep her in prayer
@funkdoktor3 жыл бұрын
@@dax8685 your sister is such an inspiration! How is chemo going with her? Hope all is well.
@amplepotatopewboogeyman148 Жыл бұрын
rip techno
@Master_HDplus2 жыл бұрын
Ah yes sarcoma a cancer that FUCKING KILLED TECHNOBLADE
@thedeviousone9092 жыл бұрын
XD LOL HE LOST
@nyuckkamoments122 жыл бұрын
@@thedeviousone909 did that give you your daily hard on little queef?
@MysticianLuna_VG2 жыл бұрын
@@thedeviousone909 stop disrespecting techno, its very sacrilegious
@thedeviousone9092 жыл бұрын
@@MysticianLuna_VG dead
@TheXWilson2 жыл бұрын
@@thedeviousone909 shut up
@basalanreyes6500 Жыл бұрын
My husband died last 2 weeks because of sarcoma cancer the tumor grow in his spermatic cord and it was diagnosed a spindle cell sarcoma.he undergo a surgery after 5 months the tumor will be back ,so fast very active cancer it will spread some parts of his internal organs,it lead to stage 4 how fast that rare kind of cancer,im so sad now hes lost.
@chazlon5061 Жыл бұрын
did it start as low grade and progress to a higher grade one?
@DeeV91 Жыл бұрын
So sorry for your loss
@ivanstrong47572 жыл бұрын
We remember Technoblade.
@jakecalvert4 жыл бұрын
Here with synovial sarcoma that doesn’t fit into any subtype. At least 3 In my spinal cord and another 1 near my brain. Just found out chemotherapy isn’t working 🙃🙃🙃
@noneya_business66674 жыл бұрын
How are you now?
@thebasicbuilder2412 жыл бұрын
I have a lump under my right arm's skin and I hope it isn't this edit: i do not believe this is a cause for concern anymore
@julieann5396 Жыл бұрын
Did you find out what it was ?
@thebasicbuilder241 Жыл бұрын
@@julieann5396 i think it's fine since it hasn't grown at all since i posted that comment
@wavemanj14 Жыл бұрын
@@thebasicbuilder241 bro u need to go to the doctor ASAP
@thebasicbuilder241 Жыл бұрын
@Sarvesh yeah, probably fine, it still has not changed and it's probably just a lipoma. I haven't checked it out but I definitely will if changes.
@Ambuj_kumar08 Жыл бұрын
@@thebasicbuilder241how are you now dear ?
@PatriciaAShelton-no6cq4 ай бұрын
I have been diagnosed with a soft tissue sarcoma in my left ankle. Called leiomyosarcoma. Rare, didn't want my ankle amputated, but the limb saving procedure is drastic,thinking at my age it probably won't heal. Talking with my oncologist today. Thenban appointment to map out the area for radiation treatments. Don't think i would need radiation if it's amputated. Getting a clear margin. Alteady tiring of all the Dr visits. And my surgeon is across state over two hundred miles round trip. But there are only two of these surgeons in my state. About the same in every state . Hoping there's an immunology drug for this. Been reading up on alternatives,thinking it can't hurt nothing.
@Gochandsubgochan70Real11 ай бұрын
TECHNOBLADE NEVER DIES!!
@tanishvaibhav53355 ай бұрын
Instead of saying one person u should think of others
@Marlin1232 жыл бұрын
Guys, I know why you came here and what you want to know however could you please understand that the whole world does not revolve around Technoblade. It's painful to lose someone but let's give some love to the other victims.
@CreeperG0d2 жыл бұрын
It's called selective empathy. We all loved Technoblade, and this disease reminds us of Technoblade. Ofc there r other anonymous ppl out there with this disease, but we only feel bad for them when we see smth abt them. Technoblade even helped to fight this disease, and that's y we also remember him, bcuz he raised thousands of dollars to research this disease. We just hope that everyone suffering this disease can make it out, and someday they find a cure for this cancer and all cancers.
@IamUltraCrippled2 жыл бұрын
CreeperBoy7984 YTMCgaming this is very true.
@Nearlydeads Жыл бұрын
Technoblade? Please tell??
@LorenzoPraja2 жыл бұрын
Technoblade. Bye
@wtflolmobile27414 жыл бұрын
i am here because of qinni
@cowimmabitch934 жыл бұрын
same...
@___asia4 жыл бұрын
Same... 😭
@bnitin007UTube5 жыл бұрын
Sir, can you please let me know if Carcinoma Sarcoma lung stage 4 can be cured or if there is some preventive medicines available?
@RSO-IV4 жыл бұрын
Bro, try chinese medicine as well. The hospital will help on chemo-radio-surgery while TCM helps maintain tumor size at the current stage without mets. This gives doctors time to decide and family to have other opinion to ptoceed with appropriate action. My son gone 3 days ago (02-Aug-2020) with both Lung has Soft Tissue Sarcoma, that enveloped his heart and restricted his heart to pump until his final day.
@spookily16612 жыл бұрын
thought I had it I don’t I can move it around it’s feels spongey and I have multiple of tiny bumps and they aren’t painless or firm they are moveable
@truse10002 жыл бұрын
I have many of them. Did you check yours?
@user-wp9xx3jf3x Жыл бұрын
Technoblade never dies!
@JohannesKalelPerez3 күн бұрын
Condolences to the people that died of sarcoma and Technoblade too
@onepercent2672 жыл бұрын
Technooo
@sandysjy5340 Жыл бұрын
I miss Technoblade
@OliverRedit5 жыл бұрын
My grandpa died with this cancer at 2001
@JohnsHopkinsMedicine5 жыл бұрын
We are sorry for your loss.
@amandataylor5865 жыл бұрын
Sorry for your loss How long did he fight it?
@Livingwithhira3 жыл бұрын
How long did he survive?
@Dazaigawd5 ай бұрын
fly high techno 👑
@elliotbigland43004 жыл бұрын
Gardners syndrome FAP dercums, and Ht6 mutations epilthemilol hyperlasia with sarcocotoid blemishes, pleomophic angioplasty with atypical low grade, tT9 chromosomes with dorsal dominant aplastic syndrome with big round cell chramasia if tFt112 through to the curvle y petitiones and irregular blastoma point 4 genes??? Any comments?
@bryanlatham21955 жыл бұрын
🙏🙏
@glocan5 жыл бұрын
🙏🏾
@pranaybehera_b92402 жыл бұрын
rip techno
@thedeviousone9092 жыл бұрын
XD LOL HE LOST
@nyuckkamoments122 жыл бұрын
@@thedeviousone909 little queef
@dassaultrafale22 жыл бұрын
@@thedeviousone909 bro you're toxic
@MysticianLuna_VG2 жыл бұрын
@@thedeviousone909 nej, du är hemskt.
@AG-ff1kv Жыл бұрын
@@thedeviousone909 XD LOL YOUR PARENTS WANTED TO ABORT YOU
@kairon52492 жыл бұрын
rip techno
@thedeviousone9092 жыл бұрын
XD LOL HE LOST
@CreeperG0d2 жыл бұрын
@@thedeviousone909 Not funny.
@AG-ff1kv Жыл бұрын
@@thedeviousone909 XD LOL YOUR PARENTS SET YOU UP FOR ADOPTION